Re: to mothers with Tethered cords

[Guest guest]

I have tethered cord. Not my children, but the doctors have told me that no

way was it hereditary.

>

>Reply-To: tetheredspinalcord

>To: tetheredspinalcord

>Subject: to mothers with Tethered cords

>Date: Fri, 16 Jan 2004 15:26:06 +0000

>

>

>Dear all,

>

>I am writing on behalf of someone who has read my website, but who is

>not a member of tetheredspinalcord (yet!)

>

>She is asking

> " Have you had any children with your condition? How has it affected your

>life with having spina bifida occulta? I was thinking of trying for

>another child but I am so scared and I am afraid that when Elise is old

>enough it will happen to her children too. Any answers you give me

>will be much appreciated. "

>

>Please could any of you mothers-with-tethered cord out there please

>reply to me using the tetheredspinalcord address, with

>your opinions and experiences, as I don't have children and don't know

>anyone close who has TC AND children

>

>With thanks in advance for your help. I know you will come up trumps

>for this lady. She may even join the list to speak to you soon herself

>

>

>Regards

>

>Nina

>

>----------------------

>Ms Nina Bunton

>Department of Electrical & Electronic Engineering

>Merchant Venturers Building

>Woodland Road

>Bristol BS8 1UB

>

>Tel: +44

>Fax: +44

>Email: Nina.Bunton@...

>

_________________________________________________________________

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[Guest guest]

I don't think they know. Both my sister and I have it and I'm sure my mom did

too but it was not found unless when the surgeon said her striffin(?) Was

fastened to her back bone when he did surgery.

to mothers with Tethered cords

>Date: Fri, 16 Jan 2004 15:26:06 +0000

>

>

>Dear all,

>

>I am writing on behalf of someone who has read my website, but who is

>not a member of tetheredspinalcord (yet!)

>

>She is asking

> " Have you had any children with your condition? How has it affected your

>life with having spina bifida occulta? I was thinking of trying for

>another child but I am so scared and I am afraid that when Elise is old

>enough it will happen to her children too. Any answers you give me

>will be much appreciated. "

>

>Please could any of you mothers-with-tethered cord out there please

>reply to me using the tetheredspinalcord address, with

>your opinions and experiences, as I don't have children and don't know

>anyone close who has TC AND children

>

>With thanks in advance for your help. I know you will come up trumps

>for this lady. She may even join the list to speak to you soon herself

>

>

>Regards

>

>Nina

>

>----------------------

>Ms Nina Bunton

>Department of Electrical & Electronic Engineering

>Merchant Venturers Building

>Woodland Road

>Bristol BS8 1UB

>

>Tel: +44

>Fax: +44

>Email: Nina.Bunton@...

>

_________________________________________________________________

There are now three new levels of MSN Hotmail Extra Storage! Learn more.

http://join.msn.com/?pgmarket=en-us & page=hotmail/es2 & ST=1

Not Medical Advice. We Are Not Doctors.

Need help with the list? Email

kathy@...,michelle@..., rick@...

[Guest guest]

I'd have to disagree on that one. All three of my kids have tethered spinal

cord and when seeing thier nsg she said yes it does run in families.

Charnel

>

>Reply-To: tetheredspinalcord

>To: tetheredspinalcord

>Subject: RE: to mothers with Tethered cords

>Date: Fri, 16 Jan 2004 10:51:11 -0500

>

>I have tethered cord. Not my children, but the doctors have told me that

>no

>way was it hereditary.

>

>

> >

> >Reply-To: tetheredspinalcord

> >To: tetheredspinalcord

> >Subject: to mothers with Tethered cords

> >Date: Fri, 16 Jan 2004 15:26:06 +0000

> >

> >

> >Dear all,

> >

> >I am writing on behalf of someone who has read my website, but who is

> >not a member of tetheredspinalcord (yet!)

> >

> >She is asking

> > " Have you had any children with your condition? How has it affected your

> >life with having spina bifida occulta? I was thinking of trying for

> >another child but I am so scared and I am afraid that when Elise is old

> >enough it will happen to her children too. Any answers you give me

> >will be much appreciated. "

> >

> >Please could any of you mothers-with-tethered cord out there please

> >reply to me using the tetheredspinalcord address, with

> >your opinions and experiences, as I don't have children and don't know

> >anyone close who has TC AND children

> >

> >With thanks in advance for your help. I know you will come up trumps

> >for this lady. She may even join the list to speak to you soon herself

> >

> >

> >Regards

> >

> >Nina

> >

> >----------------------

> >Ms Nina Bunton

> >Department of Electrical & Electronic Engineering

> >Merchant Venturers Building

> >Woodland Road

> >Bristol BS8 1UB

> >

> >Tel: +44

> >Fax: +44

> >Email: Nina.Bunton@...

> >

>

>_________________________________________________________________

>There are now three new levels of MSN Hotmail Extra Storage! Learn more.

>http://join.msn.com/?pgmarket=en-us & page=hotmail/es2 & ST=1

>

_________________________________________________________________

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[Guest guest]

Hi

I have four children. Two have spina bifida occulta and NO tethered cord or

Arnold Chiari Malformation! (Had all four MRI'd.)

I really think my mom and myself just aren't great at producing/keeping

folic acid in our systems and that if I had taken additional doses when I

was pregnant, the two that do have SBO wouldn't have it. (Although back

when I was pregnant, no one had a clue I had this condition.)

Tell her to follow all of her doctor's orders and don't forget to take the

folic acid before becoming pregnant and during her pregnancy.

Kathy

to mothers with Tethered cords

>

> Dear all,

>

> I am writing on behalf of someone who has read my website, but who is

> not a member of tetheredspinalcord (yet!)

>

> She is asking

> " Have you had any children with your condition? How has it affected your

> life with having spina bifida occulta? I was thinking of trying for

> another child but I am so scared and I am afraid that when Elise is old

> enough it will happen to her children too. Any answers you give me

> will be much appreciated. "

>

> Please could any of you mothers-with-tethered cord out there please

> reply to me using the tetheredspinalcord address, with

> your opinions and experiences, as I don't have children and don't know

> anyone close who has TC AND children

>

> With thanks in advance for your help. I know you will come up trumps

> for this lady. She may even join the list to speak to you soon herself

>

>

> Regards

>

> Nina

>

> ----------------------

> Ms Nina Bunton

> Department of Electrical & Electronic Engineering

> Merchant Venturers Building

> Woodland Road

> Bristol BS8 1UB

>

> Tel: +44

> Fax: +44

> Email: Nina.Bunton@...

>

>

> Not Medical Advice. We Are Not Doctors.

> Need help with the list? Email

kathy@...,michelle@..., rick@...

>

>