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It seems to me the miralax isnt working, he is still backed up, mega colon, 5yrs

of use,! Especially if he has mega colon. Mega colon isnt good for long term.

You need to trust your instincts/leariness. I have a feeling your gi visit today

is only going to tell you to add more miralax. This is the dependency and

putting intestines to sleep side affect. You mentioned he goes several times a

day with large amounts but the exrays show back up. It is most likely the mega

colon issue. At 5yrs miralax time frame Im guessing his colon is super mega

colon. This means he has a lot of extra room to fill with food, more time to

fill the intestines, more time the stool has to sit in there to get to the mega

colon size/fill. Stool can be toxic and constipate the longer it sits in there.

Im also guessing he has days that he isnt going and then all of a sudden seems

like good movements. This is overflow from backup, being forced out. I would

start adding natural alternatives like Vitamin C, aloe juice, etc. Encopresis is

also a sign of overflow that I mentioned with mega colon. Jennie<><

>

> I usually just read here because I'm confused about what to do for my

grandson.  He's been on Miralax for going on 5 years.  He's healthy other than

encopresis and a mega colon as a result of it.  The Miralax keeps him going but

not enough for us to see any results.  There are still accidents, although with

regular commode times not daily now, and xrays still show he is backed up even

when he seems to be going at least a few times a day and good-sized amounts.

>

> He's never had any of the behavioral changes some of you have seen.  If

Miralax is the only thing that will work to keep him going and give any hope of

his colon being cleaned out  then a part of me thinks we should keep giving it. 

But if there's a chance that it's harming him and something will show up in the

future, then I'm thinking mega colon is the least of our worries.  And it hasn't

helped yet!  I tell my daughter that I feel so guilty giving it to him daily.

He's so good about taking it and I wonder what we are doing by giving it to him.

>

> One of the most alarming things I've found in doing internet searches is

information that part of the process of making PEG involves 1,4-dioxane, a known

carcinogen which may cause cancer or liver and kidney damage.  How much of this

is in oral Miralax and how much is absorbed- I don't know.  But just the

possibilty that after 5 years of taking it there will be problems from this

sickens me. 

>

> We go to another pediatric GI specialist today.  I'm going to talk to her

about my concerns and show her a copy of the letter posted here from Nexgen.  If

you do a search of Nexgen and Miralax, you can find that they are connected.  I

found letters and notices from the CDC regarding Miralax going from just

prescription to over-the- counter and Nexgen Pharm. is included in the list of

companies.

>

> We ordered fruit-ese just yesterday.  And we've been pushing the water.  I

even have water races with him and owe him a dollar every time he downs his

glass first.  Anything that will help.  I'm hoping the Dr. today has some

suggestions about more natural ways to help.

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