Re: Rheumy let me down....

[Guest guest]

,

I'm sorry that the rheumy didn't help. I know how frustrating it is

when the dr doesn't seem to be listening. My rheumy (first time I

had seen him) did that to me recently. Made me so mad. I also have

to think about changing drs, but then we'd have to go through the

process all over again of finding one and retelling our problems. So

I don't exactly know the answer for you, but I feel for you. Hang in

there, and don't be afraid to get a second opinion from another doc

about the meds.

(((((HUGS)))))

a

> I saw my rheumatologist again yesterday and go nowhere as far as

pain meds

> go. He gave me an additional presrip for *5*mg. of flexeril to

take 3 times

> a day and told me to take tylenol on really bad breakthrough pain

days. He

> said he didn't like to prescribe narcotic pain meds. I also

showed him

> where I am getting pockets of severe swelling on the muscles in my

upper

> calves and he said to cut back on my salt. I promptly told him

that I did

> not eat any salt now! I know from reading that swelling like that

can be

> lymphedema. We tried to mention that (my husband was with me),

but got no

> where.

>

> I am not sure what to do. I hate doctors and I hate trying to

find a new

> one, but this one isn't working out. I also had to wait 3 hours.

>

> I am afraid that no one will help me with the pain because of my

mental

> health meds. Especially now that my pdoc doesn't want me to take

any pain

> meds.

>

> I guess I am meant to hurt.

>

> :-(

>

>

[Guest guest]

Dear a,

Thanks for the hugs. I need them right now. I really don't want to go

through finding another doctor because how do you know if the doc you go to

see even believes in FMS? I would hate to get stuck in an exam room with

one that didn't. What would you do then?

I might see my GP about pain meds. Maybe he can help me in that regard.

Thanks,

> Re: Rheumy let me down....

>

>

> ,

> I'm sorry that the rheumy didn't help. I know how frustrating it is

> when the dr doesn't seem to be listening. My rheumy (first time I

> had seen him) did that to me recently. Made me so mad. I also have

> to think about changing drs, but then we'd have to go through the

> process all over again of finding one and retelling our problems. So

> I don't exactly know the answer for you, but I feel for you. Hang in

> there, and don't be afraid to get a second opinion from another doc

> about the meds.

>

> (((((HUGS)))))

> a

>

>

>

> > I saw my rheumatologist again yesterday and go nowhere as far as

> pain meds

> > go. He gave me an additional presrip for *5*mg. of flexeril to

> take 3 times

> > a day and told me to take tylenol on really bad breakthrough pain

> days. He

> > said he didn't like to prescribe narcotic pain meds. I also

> showed him

> > where I am getting pockets of severe swelling on the muscles in my

> upper

> > calves and he said to cut back on my salt. I promptly told him

> that I did

> > not eat any salt now! I know from reading that swelling like that

> can be

> > lymphedema. We tried to mention that (my husband was with me),

> but got no

> > where.

> >

> > I am not sure what to do. I hate doctors and I hate trying to

> find a new

> > one, but this one isn't working out. I also had to wait 3 hours.

> >

> > I am afraid that no one will help me with the pain because of my

> mental

> > health meds. Especially now that my pdoc doesn't want me to take

> any pain

> > meds.

> >

> > I guess I am meant to hurt.

> >

> > :-(

> >

> >

>

>

>

>

>

>

[Guest guest]

Hi ,

I'm right there with you. My doctor doesn't even believe in

Fibromyalgia....he says <ahem ahem..and I quote >: " it isn't an

illness or a disease; it is merely a compilation of symptoms to be

managed. And, we must always keep in mind that there is a very

large 'psychological component' to Fibromyalgia that must be dealt

with. " Now what I get out of that is: " There's nothing wrong with

you. It is all in your head. All you need is some anti-depressants

and a good psychiatrist. " <sheesh> He will only prescribe Nabumetone

or Celebrex and anti-depressants (Effexor XR). These have done

absolutely NOTHING for me..zero..no relief. I've told him they don't

work and all he says is: " Well you haven't taken them properly. "

When I tell him I HAVE taken them properly and my husband backs me

up he says: " Well then you just haven't given them long enough. " I

keep telling him I am not depressed, I am not crazy....I hurt and

the medicines do nothing! He doesn't listen to a thing I tell him.

*sigh*

I'm currently trying to find a new doctor but it is soooo difficult.

I live in a small town and the main Rheumatologist...is in the

practice with my current doctor. I'm going to have to go to another

town to try to find a family practice doc and a rheumatologist.

Blessings,

Pixi

> I saw my rheumatologist again yesterday and go nowhere as far as

pain meds

> go. He gave me an additional presrip for *5*mg. of flexeril to

take 3 times

> a day and told me to take tylenol on really bad breakthrough pain

days. He

> said he didn't like to prescribe narcotic pain meds. I also

showed him

> where I am getting pockets of severe swelling on the muscles in my

upper

> calves and he said to cut back on my salt. I promptly told him

that I did

> not eat any salt now! I know from reading that swelling like that

can be

> lymphedema. We tried to mention that (my husband was with me),

but got no

> where.

>

> I am not sure what to do. I hate doctors and I hate trying to

find a new

> one, but this one isn't working out. I also had to wait 3 hours.

>

> I am afraid that no one will help me with the pain because of my

mental

> health meds. Especially now that my pdoc doesn't want me to take

any pain

> meds.

>

> I guess I am meant to hurt.

>

> :-(

>

>

[Guest guest]

{{{{MICHELLE}}}}}

I tell you, I just want to beat the snot out of your rheumy and your

psychiatrist! They obviously don't have a clue what it's like to

suffer with chronic, unrelenting pain.

Sweetie, you need to find a new doctor, and fast! I know it's hard,

and the last thing you want to deal with right now, but you should

try to seek out a pain specialist if you can. It's really

concerning that your rheumy is ignoring swelling, especially if you

told him you have already cut salt out of your diet!

Exactly where is this swelling you are having? Is it right below

your knees, and are there slight bulges behind your knees? Do you

have any pain or burning sensations where the swelling is, or pain

when you bend your knees or crouch down? I have something called

Baker's cysts (or popliteal cysts) on the backs of both knees, and

they are caused by the degeneration of tissue behind the kneecap,

causing synovial fluid to leak into the space behind it. It causes

a " cyst " to form, and when it bursts, it drains down, causing very

painful swelling in the calves. If you do a search on either name,

it will give you a more detailed description.

I so wish there was something I could do to help you out, like tell

your doctors off for you! I can't though, so I just want to let you

know I'm here for you if you need someone to talk to, of if you need

moral support. But do know that you aren't meant to hurt, and that

no one deserves it. Don't give up on searching for a good

doctor...they are out there, I promise!

Love and hugs,

Jen