Re: (unknown)

[Guest guest]

For what it's worth as anectdotal evidence, my mother had a hysterectomy ~ 1967,

in part to remedy an incontinence problem (any little jiggle created a

mini-flood). The surgery resolved the problem completely and it has not

recurred. She retained her ovaries - and has now gone through normal menopause.

I think her cervix was removed. She had to twist the doctor's arms to get the

surgery done & wishes she'd had it done years earlier.

I am worried

> about long term

> efffects of a hysterectomy Bladder problems etc. I am still researching

>

>

>

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[Guest guest]

Hello to all!!

Just want to let everyone know that today I had my pelvic ultrasound

to check on my six month post UAE fibroid status. Guess what?

All of my fibroids, except for one, the size of a pea, have shrunk up and

gone away!! I am thrilled and very pleased! Dr. Lurie, my IR,

called me today right after he received the ultrasound report!!

He was very pleased with my results as well! So, there is hope/success

with this procedure!! My excessive bleeding and cramping have also

returned to normal/mild. Unfortunately, the ultrasound shows a 4.5cm

cyst on my left ovary. Hopefully it will resolve itself, but there

is a possibility that it may continue to grow and cause me problems.

I will be getting a call soon to schedule another pelvic ultrasound, in

4-6 weeks, to check on this cyst. Please keep me in your prayers

and thoughts. My mother has a history of cysts on her ovaries, which

burst and caused her to have an emergency hysterectomy!! I just hope

not to follow in her footsteps where this is concerned!! Anyone

out there ever had cysts on their ovaries and can share their experiences?

Thanks to all for listening. --Val--

------------------------------------------------------------------------

[Guest guest]

Val,

I too have a 4.5 cm. cyst on my right ovary and I am in the watch and wait

mode for that. I had my UAE procedure on March 20, 2000 and I sure hope I

have as wonderful an ultrasound as you did when I reach my 6 month exam. I

just had my first cycle since my procedure and it is back to the way it was

when I was 20!!! YaHoo!!!! Let me know what you find out in regards to that

cyst. Mine has me a little freaked but I am ever hopeful it will simply go

away on it's own. Congratulations on your great results.

Vasquez

>

>Reply-To: uterinefibroidsegroups

>To: uterinefibroidsegroups

>Subject: Re: (unknown)

>Date: Fri, 28 Apr 2000 23:52:29 -0700

>

>Hello to all!!

>Just want to let everyone know that today I had my pelvic ultrasound to

>check

>on my six month post UAE fibroid status. Guess what? All of my fibroids,

>except for one, the size of a pea, have shrunk up and gone away!! I am

>thrilled and very pleased! Dr. Lurie, my IR, called me today right after

>he

>received the ultrasound report!! He was very pleased with my results as

>well!

>So, there is hope/success with this procedure!! My excessive bleeding and

>cramping have also returned to normal/mild. Unfortunately, the ultrasound

>shows a 4.5cm cyst on my left ovary. Hopefully it will resolve itself, but

>there is a possibility that it may continue to grow and cause me problems.

>I

>will be getting a call soon to schedule another pelvic ultrasound, in 4-6

>weeks, to check on this cyst. Please keep me in your prayers and thoughts.

> My

>mother has a history of cysts on her ovaries, which burst and caused her to

>have an emergency hysterectomy!! I just hope not to follow in her

>footsteps

>where this is concerned!! Anyone out there ever had cysts on their

>ovaries

>and can share their experiences? Thanks to all for listening. --Val--

>

> >

> > ------------------------------------------------------------------------

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[Guest guest]

Val and :

I too have a couple of large cysts on my ovary. My Dr. said he can go in

and " drain " them, has anyone heard of this? They found them when they

found the fibroids, and apparently don't seem to be in too big of a hurry

to do anything about them, because they are " clear " . I think they are

causing some pain at times.

Robyn

[Guest guest]

Robin,

I'm coming to visit you. I need a trainer!

You go, girl---are we going to see you in

any national running events? Come to

St. sburg for the Turkey Trot in Nov.

and stay with me. I'll cheer you on.

Hugs, Marsha

[Guest guest]

Robin,

I'm coming to visit you. I need a trainer!

You go, girl---are we going to see you in

any national running events? Come to

St. sburg for the Turkey Trot in Nov.

and stay with me. I'll cheer you on.

Hugs, Marsha

[Guest guest]

Because that's the very least of all the things you've experienced in the

last year.

If you must, go for liposuction - that seems to be the way to go to achieve

100%.

Robyn Cline wrote:

> Why is it " vain " to not want a fat stomach?

>

> ------------------------------------------------------------------------

> Get paid for the stuff you know!

> Get answers for the stuff you don’t. And get $10 to spend on the site!

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[Guest guest]

Righton I had a somewhat flat stomach after preg.s I was down t 106 then

this horrible

fibroid hit. NOw fat 138 no energy and feel yucky. So I think wanting a flat

stomach, nothing wrong with plastic surgery. good luck

[Guest guest]

Dear Robyn C,

UFE has risks. Keep in mind everything does, but UFE and it's risks are

not dependent on where your fibroid is located. However, a fibroid located

in the muscular wall of the uterus is more likely to begin sloughing after

embolization. What does this mean for you? You may pass more clots after

embolization than someone who does not have an intramural fibroid. If you

have a pedunculated intramural fibroid, with a thin stalk, you chances are

slightly higher that you may pass the whole fibroid. ( I actually had a

patient call me from a NYS Thruway rest stop saying she was giving birth to

her fibroid.) Now the question is, would you regard this as a risk. Well,

for the woman I just mentioned, other than alot of cramping and passing a

very large clot, she felt great afterwards, and was happy she new she could

call me on a saturday night to help her through her ordeal. When I hung up

the phone we were both laughing hysterically. My thought for this woman was

that she got the best of both worlds, she got to have the embolization

instead of surgery, and she got rid of her fibroid essentially

atraumatically. The worst case scenario is for someone who has an extremely

large pedunculated fibroid that decides to break of and cannot be passed,

this would involve lots of cramping with clots for a prolonged period of

time, and may require your GYN to go in hysteroscopicallyto remove the

offender. Therefore, if you have a large intramural pedunculated fibroid,

and decide to go through UFE, than these are the things you and your IR/GYN

need to have a plan B for. As with everything in healthcare, it is always

best to plan for the worst and expect the best!! Good Luck, and I hope this

helps.

Patty Meo, R.N.

(unknown)

> I just read a post that ufe has some risks for a fibroid that is in the

> uterine lining? What are the risks? And is uterine lining and the muscle

> wall of the uterus the same thing?

>

>

>

>

> ------------------------------------------------------------------------

> Sign up for the free zZounds.com newsletter for the latest and

> greatest music gear savings, musician tips and hot contests.

> http://click./1/3738/7/_/4009/_/957787875/

> ------------------------------------------------------------------------

>

>

>

[Guest guest]

Dear Robyn C,

UFE has risks. Keep in mind everything does, but UFE and it's risks are

not dependent on where your fibroid is located. However, a fibroid located

in the muscular wall of the uterus is more likely to begin sloughing after

embolization. What does this mean for you? You may pass more clots after

embolization than someone who does not have an intramural fibroid. If you

have a pedunculated intramural fibroid, with a thin stalk, you chances are

slightly higher that you may pass the whole fibroid. ( I actually had a

patient call me from a NYS Thruway rest stop saying she was giving birth to

her fibroid.) Now the question is, would you regard this as a risk. Well,

for the woman I just mentioned, other than alot of cramping and passing a

very large clot, she felt great afterwards, and was happy she new she could

call me on a saturday night to help her through her ordeal. When I hung up

the phone we were both laughing hysterically. My thought for this woman was

that she got the best of both worlds, she got to have the embolization

instead of surgery, and she got rid of her fibroid essentially

atraumatically. The worst case scenario is for someone who has an extremely

large pedunculated fibroid that decides to break of and cannot be passed,

this would involve lots of cramping with clots for a prolonged period of

time, and may require your GYN to go in hysteroscopicallyto remove the

offender. Therefore, if you have a large intramural pedunculated fibroid,

and decide to go through UFE, than these are the things you and your IR/GYN

need to have a plan B for. As with everything in healthcare, it is always

best to plan for the worst and expect the best!! Good Luck, and I hope this

helps.

Patty Meo, R.N.

(unknown)

> I just read a post that ufe has some risks for a fibroid that is in the

> uterine lining? What are the risks? And is uterine lining and the muscle

> wall of the uterus the same thing?

>

>

>

>

> ------------------------------------------------------------------------

> Sign up for the free zZounds.com newsletter for the latest and

> greatest music gear savings, musician tips and hot contests.

> http://click./1/3738/7/_/4009/_/957787875/

> ------------------------------------------------------------------------

>

>

>

[Guest guest]

Patty:

Thanks for the info. Mine is not pedunctulated, but i'm pretty sure mine

was in the uterine muscle wall. i agree i would luv to " give birth " to

this thing and know it's completely gone and be done with it. I do have a

lot more blood clots with period than I thought I would, so maybe it is

" breaking off " . Again thanks for the information.

Robyn C.

[Guest guest]

Patty:

Thanks for the info. Mine is not pedunctulated, but i'm pretty sure mine

was in the uterine muscle wall. i agree i would luv to " give birth " to

this thing and know it's completely gone and be done with it. I do have a

lot more blood clots with period than I thought I would, so maybe it is

" breaking off " . Again thanks for the information.

Robyn C.

[Guest guest]

(unknown)

I know I should know this by now, but cannot figure it out. How do you

access the archives again, and are the archives all the past messages or is

there any other info. there and doesn't Carla have a web page?

Need info. asap. Thanks .

Robin,

You have to go to /list/uterinefibroids

and then click on " sign in "

Once you are in, you can access the archives by clicking on the links.

Michele

[Guest guest]

Robyn,

Try one of the local health food stores - not a GNC center. There are many

homeopathic remedies that work for water retention. I use homeopathic

remedies for quite a few things. I don't know the name of them offhand for

water retention, but I'll check. Also, a health food store attendant should

be able to tell you, but I'll see what I can find out.

Barbara

(unknown)

Has anybody noticed they retain water, since ufe. I am so swollen, but then

if I take a dieuretic it goes right away, stomach flattens right out. I

don't want to take dieuretics everyday, does anybody know of a natural

dieuretic that won't cause problems. I'm sick of being swollen like this.

Robyn

------------------------------------------------------------------------

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[Guest guest]

I'll do that today Barbara, thanks and let me know if you hear of any

specific natural dieuretics. I didn't have this swelling until recently.

I look pregnant right now, but if I take a dieuretic, I look like stomach

is almost flat. But I wonder does the retaining water have anything to do

with ufe, or just a coincidence, I haven't changed eating habits or

anything, if anything I'm trying to watch my salt intake and eat less. Of

course, once you have something done, you try to associate everything with

that procedure, especially if you didn't do it before, and this, of course,

could be completely unrelated. I'm so swollen, I'm miserable.

Again Thanks.

[Guest guest]

Hi Robyn,

None of the information that I've obtained on UAE said anything about water

retention as a symptom. First I've heard of it. Anyone else out there have

this problem since their UAE? If so, let us just-recently-had and

soon-to-be-done UAE's know. Every little bit of info helps.

Thanks,

Barbara

RE: (unknown)

I'll do that today Barbara, thanks and let me know if you hear of any

specific natural dieuretics. I didn't have this swelling until recently.

I look pregnant right now, but if I take a dieuretic, I look like stomach

is almost flat. But I wonder does the retaining water have anything to do

with ufe, or just a coincidence, I haven't changed eating habits or

anything, if anything I'm trying to watch my salt intake and eat less. Of

course, once you have something done, you try to associate everything with

that procedure, especially if you didn't do it before, and this, of course,

could be completely unrelated. I'm so swollen, I'm miserable.

Again Thanks.

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[Guest guest]

Robyn,

I have to check my book at home, but I'll have an answer for you regarding

specific homeopathic 'water retention' remedies tomorrow.

Have a good night,

Barbara

[Guest guest]

The nurse called me yesterday to say that I can still move on with IVF. She

said that the spot was either a fibroid or a fibroid pocket left over from the

surgery? What is a fibroid pocket? Does anyone know. We are just going to

watch everything and make sure nothing grows.

Robyn

[Guest guest]

Robyn, I did have stomach swelling...But my uterus was the size of a 3 month

preg. I had " bitched " about things like pain, swelling, painful intercourse,

heavy heavy bleeding and thats about all. No one ever did an ultrasound till

recently and the pathologist after my hyst. said my cancer had to have been

growing for " years " . No one had done a thing. Please if you feel something isnt

right, it probabaly isnt. Tell someone! Anyone until they listen and help you.

If they dont satisfy you, go to another dr. This is what I continually did. Till

I was taken seriously. And thank you for your thoughts////Dawn

---

" Smile, It makes everyone wonder what you are up to "

>Dawn :

>

>What kinds of things were you bitching about, like what were the symptoms.

>I had the ufe and my stomach doesn't seem to be going down at all, however,

>right before ufe they told me I had an ovarian cyst but it is nothing to

>worry about. Then on the news the other day, I heard swollen stomach is a

>sign of cancer, I don't remenber if they said ovarian cancer of cancer of

>the uterus. Did you have that--stomach swelling? You will be in my

>thoughts and prayers and I hope everything turns out okay for you.

>

>Robyn Cline

>

>

>

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[Guest guest]

I don't know about everyone else, but I would consider that small to medium.

My fibroid is about 10cm x 11cm x 7cm and I think that is somewhat large (or

maybe medium to large). I've been told my uterus is 16-week size (in terms

of equivalence to pregnancy). My doctor said surgery is more difficult

after 20-week uterus size, so I would think 20 weeks & greater is definitely

large. I'm sure others may have more expert opinions on this though.

B.

(unknown)

Is a fibroid that is 4 cm considered small or large?

------------------------------------------------------------------------

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[Guest guest]

I don't know about everyone else, but I would consider that small to medium.

My fibroid is about 10cm x 11cm x 7cm and I think that is somewhat large (or

maybe medium to large). I've been told my uterus is 16-week size (in terms

of equivalence to pregnancy). My doctor said surgery is more difficult

after 20-week uterus size, so I would think 20 weeks & greater is definitely

large. I'm sure others may have more expert opinions on this though.

B.

(unknown)

Is a fibroid that is 4 cm considered small or large?

------------------------------------------------------------------------

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[Guest guest]

Thank you Robyn.

Take care,

Barbara

(unknown)

Barbara:

Best of luck to you tomorrow and with your recovery. My dr. told me that

depo can make fibroids grow. I have found out my fibroid was a 4cm., my IR

and his nurse make that sound like that is such a huge fibroid and it's

gonna take some time to go away or whatever they do, but then when I read

about the size of others fibroids, that seems small. It's all confusing!!!

I know mine grew from a 2cm to a 4cm in one year, so that is doubled.

Again, good luck, i'll keep you in my thoughts.

Robyn

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[Guest guest]

Thank you Robyn.

Take care,

Barbara

(unknown)

Barbara:

Best of luck to you tomorrow and with your recovery. My dr. told me that

depo can make fibroids grow. I have found out my fibroid was a 4cm., my IR

and his nurse make that sound like that is such a huge fibroid and it's

gonna take some time to go away or whatever they do, but then when I read

about the size of others fibroids, that seems small. It's all confusing!!!

I know mine grew from a 2cm to a 4cm in one year, so that is doubled.

Again, good luck, i'll keep you in my thoughts.

Robyn

------------------------------------------------------------------------

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[Guest guest]

Hi, I'm the one who cancelled hysterectomy last October and am now going

for it in June! Meanwhile, since last August I have had three separate

3-month injections of Lupron to achieve fibroid shrinkage. After reading

some e-mails from the group this morning, I now surmise that my weight gain

of about 10 pounds is due to this chemical. Could that be true? I have not

changed my eating habits and have continued to exercise yet that extra

weight has not budged. Other than this, however, Lupron has not had caused

any adverse effects whatsoever. Any Lupron experts out there care to

respond?

(unknown)

:

I had a ufe in Feb. of this year. All I can say is that like you I

weight

train, 4 x a week, run 4-5 miles, 4 times a week, so I know it is

not from

lack of exerciese. Like you mine is all in my mid-section. But

this

past year I have gained about 8 lbs. and I cannot get it off no

matter

what. I watch what I eat carefully, for a couple of weeks and then

I get

discouraged for a few days and eat the wrong things. People tell me

it's

because of my age, so is it some magical thing that the day you hit

40 you

start gaining weight. I attribute it to the fibroid and hopefully,

this

damn thing will dissolve soon or whatever it is that they do after

ufe.

Robyn

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[Guest guest]

Thanks for the response, Robyn. I'm wondering if the culprit is the fibroid

or the hormones that cause the fibroids. My worry is, if it's a raging

hormonal imbalance of some sort, no fibroid treatment will help. I guess

time will tell. I'd like to know your results, as shrinkage of your fibroids

continues. Maybe that'll give me some hope. I'm just feeling a bit

depressed and helpless about it. It seems like this ought to be something I

can control.

(unknown)

:

I had a ufe in Feb. of this year. All I can say is that like you I weight

train, 4 x a week, run 4-5 miles, 4 times a week, so I know it is not from

lack of exerciese. Like you mine is all in my mid-section. But this

past year I have gained about 8 lbs. and I cannot get it off no matter

what. I watch what I eat carefully, for a couple of weeks and then I get

discouraged for a few days and eat the wrong things. People tell me it's

because of my age, so is it some magical thing that the day you hit 40 you

start gaining weight. I attribute it to the fibroid and hopefully, this

damn thing will dissolve soon or whatever it is that they do after ufe.

Robyn

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