Re: (unknown)

[Guest guest]

Hi Robyn:

I ceased having a period for approximately 6 months after my UAE. However,

it ultimately returned.

Jackie

_____________________________________________________________

In a message dated 4/3/00 8:50:34 AM US Eastern Standard Time,

cliner@... writes:

<< I have a ? re periods after the ufe. I am now 7 weeks past mine. I had a

regular period on March 6, making this one due April 1. I really get pms

symptoms--tender breasts, cramps, moodiness, swollen stomach. Well, I got

all these symptoms, but no period. Then I read that sometimes you don't

have periods after the ufe. Well what happens if your period doesn't come,

what happens as far as the pms. Does that stop or do you keep that until

you eventually have a period? I'm really swollen, and moody and don't want

to be like this for 4-6 months while i wait for periods to resume.

Does anybody have any info.? I have read women say they didn't have a

period after and they eventually returned.

Thanks,

Robyn

>>

[Guest guest]

Robyn,

I can certainly relate to that.For years,I went to dr after dr and told

them=======something is very wrong with me.Every time I left the office of

yet another doctor,,,,I knew that the problem was all in their heads,,,not

mine.My fibroids caused me to stay in the house for months and months at a

time.I certainly wasn't hallucinating,when I saw the blood and the " boulders "

every other minute!!! It is so easy for them to say--you have DUB!!!! and

just forget you and send you the bill. I had gynecological problems for so

long,,,I really can't remember not having them.I really enjoyed your

post,,,thank you.

Love,Sparkey

48 years old

LAVH/BSO

11-16-99

DH-Stanley

Estratest and Prometrium and Estrace

Uterine fibroids

5 dogs

1 cat

2 guinea pigs

1 bird

Sparkeyjb@...

[Guest guest]

Dear Robyn - please tell me your sister left that FOOL for another doctor! i

guess he imagined himself as an authority on her pain...puleeze! thank God for

this wealth of information and this treasury of friends!

Robyn Cline wrote:

> something interesting to share with you all. My sister was diagnosed with

> fibroids years ago. She has had lower back problems almost as long. I

> told her about how my back ache is completely gone since my ufe. So she

> went to her dr. and asked him about it, he told her most women who have

> symptoms with fibroids are imagining them because fibroids rarely, and he

> stressed rarely, cause symptoms. He told her to go home and put a heating

> pad on her back and he is sure she will feel better. If I imagined my

> symptoms, such as my back ache, I'm glad I'm imagining them gone since my

> ufe.

>

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[Guest guest]

I'd like to register in on this discussion. This weekend I was confronted by an

older female gynecologist who, after studying my booth and discussion with women

at

the Feminist Expo, declared to me that uterine fibroids do NOT require

treatment.

Of any kind. When I asked her what women with excessive bleeding, pain, urinary

incontinence, etc. were to do -- she told me that it would all go away with

menopause and that they should simply be patient. I was left speechless. Not

for

long. I gave her copies of all of my material and asked her to critique it and

get

back to me. I told her I was sincerely interested in trying to understand her

perspective and would welcome her feedback. I don't think she expected that

response. It left HER speechless. She took the materials and left. I didn't

see

or hear from her again while I was at the Expo. These doctors do exist and

practice medicine all over the U.S. We need to quietly and calmly educate them.

It will take time. Some will never listen to us. But we should definitely be

writing them 'Dear Doctor' letters to let them know what we think and how we

feel.

Then move on to finding a better, more informed physician for our own health

care.

Robyn, I certainly hope your sister has found another doctor. Preferably one

who

will listen to her and is open to communication about her physical health.

carla

wrote:

> Dear Robyn - please tell me your sister left that FOOL for another doctor! i

> guess he imagined himself as an authority on her pain...puleeze! thank God

for

> this wealth of information and this treasury of friends!

>

> Robyn Cline wrote:

>

> > something interesting to share with you all. My sister was diagnosed with

> > fibroids years ago. She has had lower back problems almost as long. I

> > told her about how my back ache is completely gone since my ufe. So she

> > went to her dr. and asked him about it, he told her most women who have

> > symptoms with fibroids are imagining them because fibroids rarely, and he

> > stressed rarely, cause symptoms. He told her to go home and put a heating

> > pad on her back and he is sure she will feel better. If I imagined my

> > symptoms, such as my back ache, I'm glad I'm imagining them gone since my

> > ufe.

[Guest guest]

Robyn, to date there is no report involving a successful embolization where new

fibroids appeared. Leonie

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[Guest guest]

Robyn, a fibroid within the uterine muscle would not be shed -- it's trapped

within the muscle. When it dies, the body will gradually reabsorp it as it does

any other cells that die. And there is no guarantee that a submucosal fibroid

will be shed; there's no way to predict which ones will be shed and which won't.

Leonie

______________________________________

This message, together with any attachments, is intended only for the

use of the individual or entity to which it is addressed and may contain

information that is legally privileged, confidential and exempt from

disclosure. If you are not the intended recipient, you are hereby

notified that any dissemination, distribution, or copying of this

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this message in error, please notify the original sender (or the WSPR

Help Desk) immediately by telephone () or by return

E-mail and delete the message, along with any attachments, from

your computer. Thank you.

[Guest guest]

Robyn:

The other issue with non-organic coffee is the high levels of pesticide used

on it. Your liver works over time to eliminate the toxins and is less

effective in processing the excess estrogen in your system.

[Guest guest]

>I went on a non dairy non meat diet, went for acupuncture and exercised

>regularly...my fibroids grew anyway....I have finally given up caffeine,

>but that 's for my lumpy breasts, though it has ameliorated alot of PMS

>(now clinically call PDD for premenstrual dysphoric disorder...the more

>severe kind of debilitating type of PMS, for which I take medication).

They don't know what makes fibroids, they don't know why there is PMS or

PDD, but my hormones have been wacky ALL my life, grew breasts two years

before my peers, had really bizarre endorcrine reactions to my menstrual

onset..Ulitmately, I think it was from stuff, not DES, but a whole host of

other stuff they gave my mom when she was pregnant because she had lost two

babies before my brother and then me. She said they gave her alot of

estrogen and she called me an estrogen baby....so...who knows?

Darby

and my fibroids grew aThanks everyone for the diet info. Very, very

interesting. I'm

>interested in looking for more information on this vegan diet--I think I

>will look it up on internet. And Myra, I think I will give up the decaf.

>

>

>

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[Guest guest]

thanks i found out mu fibroid isn't as large as the DR. said it is

5.8x5.1x4.4 as of Nov.

cm. so that is a lot less than 1 c.m. I am changing OB- GYN Thanks

[Guest guest]

Dear ,

I believe that the bottom line is that you need to do what is right for

you. Although, weigh the pro's and con's carefully. I'm concerned that you

mentioned the cramping after UAE as being a deterrant. Have you any idea

what it feels like to have had major abdominal surgery? Granted, it is

immediate satisfaction as far as getting rid of your fibroids is concerned,

but at what cost? 6-8 weeks of dealing with an abdominal wound can be very

painful and extremely tiring. You mentioned the fact that you are active,

if you feel that 6-8 weeks of recovery to never have to worry about a

fibroid again is O.K., then weigh your options and consider hysterectomy.

Keep in mind, a typical UAE recovery lasts 5-6 days, and after the first 24

hrs. of the procedure the way you are feeling will be the determining factor

of what you will be able to do. You are correct by stating that the

shrinkage of the fibroids/uterus is gradual, but then again so is the

growth. Some of our patients that we have contacted one month after the

procedure say their symptoms have already begun to disappear, and we have

even had a few women say they felt immediately the decrease in the size of

their belly. UAE does not preclude you from having surgery, if it doesn't

work, you still have hysterectomy as an option, ( I feel pretty confident,

however, that you will not need/want one.) My advice, start small and work

your way up. Good Luck with making your decision and keep us posted!!

Sincerely,

Patty Meo, R.N.

Re: (unknown)

> Dear Group, i ma still comtemplating the idea of a hysterectomny vs an

embo

> . Hear me out please, one: I want immediate results, however I am worried

> about long term

> efffects of a hysterectomy Bladder problems etc. I am still researching

but

> one thing for sure this will be my decision my ob is not leaning one way

or

> another. I just wish there weren't so many side effects with the embo

> cramping, slow shrinkage etc.) I have no

> emotional ties to my uterus, at least for now I do want to be my ol "

active

> self again. Any hints please pass them along.

>

>

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>

[Guest guest]

Thanks for the encouragement. My anemia weight gain makes me somewhat

emotional. i did find out that the first dr. may be wrong my fibroid may not

be 16 cm and could be only 5.6 cm. Knowing that i could once again run a

half marathon is really what is in the back of my mind. so if anyone has had

the UAF and works out a lot let me know how long etc. it took you. Again

thanks so much

[Guest guest]

Thanks for the encouragement. My anemia weight gain makes me somewhat

emotional. i did find out that the first dr. may be wrong my fibroid may not

be 16 cm and could be only 5.6 cm. Knowing that i could once again run a

half marathon is really what is in the back of my mind. so if anyone has had

the UAF and works out a lot let me know how long etc. it took you. Again

thanks so much

[Guest guest]

I lost about 10 lbs, partly from drinking lots of water instead of

soft drinks. Plus, I started using progesterone cream.

At 02:14 PM 4/24/00 -0400, Robyn wrote:

>Did anyone gain weight after ufe. I am, working out nonstop, watching what

>I eat, but can't seem to lose weight, never had a probleem before.

libbielou@...

=-=-=-=-=-=-=-=-=-=-=-=-

[Guest guest]

I lost about 10 lbs, partly from drinking lots of water instead of

soft drinks. Plus, I started using progesterone cream.

At 02:14 PM 4/24/00 -0400, Robyn wrote:

>Did anyone gain weight after ufe. I am, working out nonstop, watching what

>I eat, but can't seem to lose weight, never had a probleem before.

libbielou@...

=-=-=-=-=-=-=-=-=-=-=-=-

[Guest guest]

> Thanks for the encouragement. My anemia weight gain makes me somewhat

>emotional. i did find out that the first dr. may be wrong my fibroid may not

>be 16 cm and could be only 5.6 cm. Knowing that i could once again run a

>half marathon is really what is in the back of my mind. so if anyone has had

>the UAF and works out a lot let me know how long etc. it took you. Again

>thanks so much

>

I work out. Started back doing step aeorbics at 3 weeks and walking. Dr.

told me not to lift weights for a while though, so I didn't do those for 1

month. I am back running now, after 8 weeks, and that was mostly put off

because of laziness. But now I have shin splints--any advice on those?

I'm pretty pleased with everything following my ufe. It has now been 8 or

9 weeks, I wish my stomach would go down more, but I realize that it hasn't

been that long yet. I have a lot more energy now, after the ufe, than I

have the past year.

GOod luck

[Guest guest]

> Thanks for the encouragement. My anemia weight gain makes me somewhat

>emotional. i did find out that the first dr. may be wrong my fibroid may not

>be 16 cm and could be only 5.6 cm. Knowing that i could once again run a

>half marathon is really what is in the back of my mind. so if anyone has had

>the UAF and works out a lot let me know how long etc. it took you. Again

>thanks so much

>

I work out. Started back doing step aeorbics at 3 weeks and walking. Dr.

told me not to lift weights for a while though, so I didn't do those for 1

month. I am back running now, after 8 weeks, and that was mostly put off

because of laziness. But now I have shin splints--any advice on those?

I'm pretty pleased with everything following my ufe. It has now been 8 or

9 weeks, I wish my stomach would go down more, but I realize that it hasn't

been that long yet. I have a lot more energy now, after the ufe, than I

have the past year.

GOod luck

[Guest guest]

Robyn --

The problem with one's pot belly, as I understand it (regardless of whether

you do UAE or hyst) is that the stomach muscles have been so stretched out

from accommodating the fibroids, it takes either exercise, good genes,

cosmetic surgery (or a combination) to really restore it back to normal.

Expansion due to pregnancy is only for a few months; many of us have been

expanding with fibroids over years, so it would naturally take even longer to

get those muscles back in shape.

This depresses me greatly, too, as my belly seems to be expanding more and

more lately, while I decide exactly how to address my fibroids.

I hate to think of all those wretched sit-ups in my future...

M.

[Guest guest]

Makes sense . Thanks

[Guest guest]

Hi Robyn - Forgive me for not remembering how long since your procedure, but

maybe you can help your body help itself. A little light exercise,

specifically, crunches - stomach work - might bring you faster results. aslo it

seems to me that since fibroids take a long time to get so large, it will take

a fair amount of time before you see the results you'd like. Surgery of any

kind takes its toll on the body and since we're not as young as we say (!),

that would also affect the healing process. I had my knee " scoped " abount 16

months ago and it's still not quite at the level of

Robyn Cline wrote:

> I don't get it. I was told before my ufe that your stomach will shrink

> some. After reading posts past few days, it's like people are saying don't

> count on it. I don't understand if the fibroid is shrinking why won't your

> pot belly go down, if that's what made it big in the first place. I'm

> depressed about it. Tired of pregnant gut.

>

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[Guest guest]

Sorry, Robyn - I was too fast on the trigger and didn't finish! Anyway, my knee

is

still not quite at the level I feel it should be and for a while I was feeling a

little down about it but it is BETTER than it was and that's what I choose to

concentrate on. So, you may not be exactly at your peak but it will come and

you

should try to strive toward that time, not worry about things that for RIGHT NOW

aren't happening. Aren't you better than you were before you had all this great

info and Carla and all of us who feel good for you? Of course you are!

wrote:

> Hi Robyn - Forgive me for not remembering how long since your procedure, but

> maybe you can help your body help itself. A little light exercise,

> specifically, crunches - stomach work - might bring you faster results. aslo

it

> seems to me that since fibroids take a long time to get so large, it will take

> a fair amount of time before you see the results you'd like. Surgery of any

> kind takes its toll on the body and since we're not as young as we say (!),

> that would also affect the healing process. I had my knee " scoped " abount 16

> months ago and it's still not quite at the level of

>

> Robyn Cline wrote:

>

> > I don't get it. I was told before my ufe that your stomach will shrink

> > some. After reading posts past few days, it's like people are saying don't

> > count on it. I don't understand if the fibroid is shrinking why won't your

> > pot belly go down, if that's what made it big in the first place. I'm

> > depressed about it. Tired of pregnant gut.

> >

> > ------------------------------------------------------------------------

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[Guest guest]

I rather do a thousand sit-ups than get a hysterectomy!

susanmorg@... wrote:

> Robyn --

>

> The problem with one's pot belly, as I understand it (regardless of whether

> you do UAE or hyst) is that the stomach muscles have been so stretched out

> from accommodating the fibroids, it takes either exercise, good genes,

> cosmetic surgery (or a combination) to really restore it back to normal.

> Expansion due to pregnancy is only for a few months; many of us have been

> expanding with fibroids over years, so it would naturally take even longer to

> get those muscles back in shape.

>

> This depresses me greatly, too, as my belly seems to be expanding more and

> more lately, while I decide exactly how to address my fibroids.

>

> I hate to think of all those wretched sit-ups in my future...

>

> M.

>

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[Guest guest]

My tummy has just been going down gradually, but don't get me wrong! The usual

PMS bloating occurs each month, it's just that the prego. stomach has left,

thank God! My largest 4.5cm fibroid was located inside my uterus, upper right,

where was yours? I don't mind the questions at all, and please feel free to

email at my email address, if you'd like.

-Val-

Robyn Cline wrote:

> Val:

>

> It sounds like yours was about the same size as mine. Mine was a 4 they

> say. I've been running a lot and trying to watch what I eat. If you don't

> mind answering one more question--did yours start going down right away or

> do you remember when you noticed it and do you know where yours was

> located.

>

> Thanks,

>

> Robyn

>

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[Guest guest]

Good advice , and I like the part about we're not as young as we

say, that made me laugh and have a good start to my day. Thanks!!!

Robyn

[Guest guest]

Val:

Thanks again for info. Mine was right in front they kept saying and had

pressed my bladder almost flat. I guess mine is going down a bit, just not

as fast as I want. They kept saying mine was a 4 but I don't know if that

meant cm. or 4 month pregnancy. I just have to learn to be patient.

Robyn

[Guest guest]

Anytime, you just keep the faith!!

Robyn Cline wrote:

> Good advice , and I like the part about we're not as young as we

> say, that made me laugh and have a good start to my day. Thanks!!!

>

> Robyn

>

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