Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 --- Hi lonnie- I'm new too. Surprised your GP diagnosed you--- I've been to several doctors, had several x-rays, MRI's and work before a Rhuemitologist (sp?) told me I had FM. He ha sput me on Neurontin, a anti-seizure medication that is supposed to have a side effect that helps reduce pain. The way he explained it to me was that it's like you're hardwired wrond. There is often a chemical imbalance which is why many people with FM also usually have been on anti-anxiety meds, serontin lifters like Lexepro, and anti-depressants. He says the difference is that these signals come from the spine instead of the brain. But they register pain that should be 0-1-2 as a 10,20 (100 if you were to ask me) I am new to the Neurontin so I can't say if it works or not. My aunt has been diagnosed with it for several years now and has a pretty well working set of she takes. I just have that list in front of me. Email me if you are interested. Also, go to a specialist (arthritis usually I think) if you don't get the desired results from your GP.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Dear Lorrie, You said you were thinking about trying to go back to work... are you on SSD right now? They have a back to work program that lets you try it for 9 months, and if during that time, you find you can't work, your benefits will be reinstated with no questions asked. My problem is that I can never predict when I am going to have a good pain day and when it is going to be a bad one. Weather plays a huge part, and who is going to hire someone who says that she cannot come in if the weather is cold, damp or rainy?? If I knew ahead that I could only work every other day or something, part time work might be an option for me. But there is no rhyme or reason to my pain. I am feeling pretty good today, at least painwise, even though I am under tremendous stress with my surgery on the 12th fast approaching. But for several days before today, I was having a major flare. So I am not willing to risk my disability by trying to work when I know in my heart of hearts that I really am not able to. I believe that SSD also has a program where you can work part time and draw partial SSD benefits, but I could be wrong on that. Best bet would be to call SS. hugs and prayers, Sharon - Memphis, TN Faith...with it, miracles *CAN* and *DO* happen! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Be very careful about this. I had no flack from SS until I told them I wanted to try to go back to work. All of a sudden, I was under investigation to make sure I was still disabled. Even though their doctors said that my condition hadn't changed, they still kicked me off of SSDI & told me I owed them $13,000+ in overpayments. in Jax <><><><><> Re: new here Dear Lorrie, You said you were thinking about trying to go back to work... are you on SSD right now? They have a back to work program that lets you try it for 9 months, and if during that time, you find you can't work, your benefits will be reinstated with no questions asked. ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Be very careful about this. I had no flack from SS until I told them I wanted to try to go back to work. All of a sudden, I was under investigation to make sure I was still disabled. Even though their doctors said that my condition hadn't changed, they still kicked me off of SSDI & told me I owed them $13,000+ in overpayments. in Jax <><><><><> Re: new here Dear Lorrie, You said you were thinking about trying to go back to work... are you on SSD right now? They have a back to work program that lets you try it for 9 months, and if during that time, you find you can't work, your benefits will be reinstated with no questions asked. ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Hi Keri, Welcome to the group! I am sort of behind in reading posts. Like two days behind. Every since I wrecked my truck last Sat. I am running a couple days behind. Oh well Ill catch up eventually. Maybe. Nice to meet ya! Write anytime. G. new here Hi my name is Keri age 32 and not only am I the mother of 4 children ages 15, 13, 12 and 10....two of whom are autistic...I was jsut diagnosed with fibromyalgia less than 3 months ago. The doctor put me on Relefen and tramadol...after a month I decided that they really do not help me; so i am currently " eating " 600-800mg of Ibroprofen! (An over the counter med that I cannot live without! ! At the same time I was diagnosed with Fibro. I was also diagnosed with the Epstein Barr Virus and Chronic Fatigue....Was wondering if anyone on here shares any of the same diagnosis?? I look forward to getting to know everyone and hopfully learning everything that I can from evveryone! I also look forward to hopefully being able to contribute to this list and being here for others! Take care everyone and hope to chat soon! Love Keri Quote Link to comment Share on other sites More sharing options...
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