Re: [RSD-CRPS]two new members

[Guest guest]

Hi Guys

I want to welcome Lori and JCutler to our group.

If you would both take a minute to write your stories, Jo will add them to

all the others in the files section of the lists archives.

Take a look at our stories too.

You see we have a chat schedule. Hope to see you both at one of them at least!

Also, one rule we DO have on our list is no saying the word 'sorry'

We spend way too much time apologizing for this monster, and it is not our

fault.

Please, anytime you need to talk, email me privately. Otherwise I hope to be

hearing from you both with your stories soon. Welcome again, relax, vent.

This is your list. Our list. We are all in this together. If you want to add

a link, please do so. We have added numerous links you may find helpful.

Hugs and a pain free minute,

Deb

RSD-CRPS

egroups

/RSD-CRPS

[Guest guest]

Welcome to our family Lori and JC it always great to see new people join

us. You will find this group very supportive and loving. I wish I

could get into chat and get to know each of you better, but I am on

webtv and unable to. I was using my daughters computer,but they are

running a business on it also and I don't want to use up all thier

memory.

I am the birthday mom and would love to add both of you and the other

new members Kathy and Becky and anyone else I might have missed lately.

Just send in your birth month and day and i will add you on.

Again WELCOME

Good Friends are Hard to Come bySo Treasure the Ones You Have

[Guest guest]

Don't quite have the hang of how this works, but I'm Jackie Cutler and ou

won't have to worry about me for a while. January 20. Thank you for the

welcome. I know someone wanted " my story " ., but I don't know where to send

that.

Jackie

[Guest guest]

Dear Lori and JC welcome to our wonderful support family, I hope you

like it as much as I do. Everyone is so supporting so friendly. Between

us all we can answer most any questions you might have. Glad you are

here we love new friends. Love, Debbie-CT (there are a few Debbie-s), I

live in CT so I sign off like that.

[Guest guest]

Thanks for the welcome That was sweet. My birthday is March 12, a Pisces. I

have only been diagnosed for about 9 or 10 months now. I have RSD now in both

legs and both feet. It started un just my left knee but in 8 months has

spread to both legs and both feet and both knees. I have a great set up of

docs finally. A neuoroligist dx me first. I filed for SSD in March, we will

see. Have not head anything but they told me I wouldnt hear anything until

August. I am glad to be here and looking forward to getting to know all of

you!!

Love LORI

[Guest guest]

In a message dated 7/15/00 9:55:52 PM Eastern Daylight Time,

jcutler114@... writes:

<< I know someone wanted " my story " ., but I don't know where to send

that. >>

Hi Jackie,

Just send it the same way you sent this!

Hugs and a pain free minute,

Deb

RSD-CRPS

egroups

/RSD-CRPS

[Guest guest]

Hi Lori, its Peggy, I tried to file for ss and they denied me saying my

husband makes to much money. In the state where I live if you make over a

certain amount and you or your spouse also have 402k and stocks and binds

then basically your screwed {Hope thats okay to say.} I am still holding out

hope that they the doc will be able to cure me as I have only been down with

it for about 2 mos. From what I understand if they catch it within a certain

amount of time they can halt the progression. If I am wrong would you please

let me know. Take care. Peggy

[Guest guest]

I don't feel to comfortable with that either, but for now I have to stay. I

am in terrible pain today cause my husband is being mean to me and it causes

flair ups. Does any one else get flair ups like this? Its been bad off and

on for days. He knows when he is mean to me that it will cause me physical

pain, and sometimes I don't think he cares. Any how I am going to go lay

down for a while. Hope you have a nice day. Peggy

[Guest guest]

To All Sorry I am pulling out of this group, but the Tampa Tribune has advised that to much of our information is going out about our medical cindition, and we should not be inputing our birthdates, places of birth age etc. Egroups does not have a 128 bit security lock for our information and its very important that all of you go into your Profiles and delte a lot of your personal infromation as its not secured esp with Egroups, if you a florida resident please todays Tampa tribune on Security on your information that you put out on these lists and chat rooms.

Sorry about pulling out, but I dont feel confortable with my info out there with E groups not having a 128 security lock on our information.

Jan

JGL

Re: two new members

Don't quite have the hang of how this works, but I'm Jackie Cutler and ou won't have to worry about me for a while. January 20. Thank you for the welcome. I know someone wanted "my story"., but I don't know where to send that.Jackie

[Guest guest]

Hi, The reason for the problem is that Yahoo has bought out e-groups and

they are saying they can use any anything information in there any way

they want. Now someone told me that chats are not recorded and they

should be save. But what can we do, unless we can find a place to move

the groups. I cannot give up this group, I would say when we have real

private information we e-mail or call the other perso. Don't mention

specific names or places unless you have to. I have to stay here. Love,

Debbie

[Guest guest]

Hi Jan,

I already locked all the information up! It is available only to myself and

Jo.

Please relax and stay with us.

Thanks,

Hugs to you all,

Deb

listowner

RSD-CRPS

egroups