Re: Dr. Phil

[Guest guest]

Apparently he does not understand the problem very well yet. (either do I after 50 years of it.)

There seem to me to be some other common characteristics with 4's people which contribute to it. I would like to do a study of what those might be to see if there is any connection. IE. depression, anxiety, childhood trauma, phobias etc.

Maybe this has already been done. I am new at this site. I have been to many therapies and most have been at a loss about this.

I am a hopeful person by nature and feel that there will be help in the future with understanding and research. Can't hurt to get the word out there. Dr. Phil might be a good forum. Maybe even Oprah.

Mike L.

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Hi, Mike,

Studies definitely need to be done; research is what will lead the way to finding proper protocols to treat 4S. I myself am investigating the theory that it originates in most cases from reactions in childhood to family gatherings, especially being at meals. Most of the people I have interviewed can pinpoint the beginnings of their anxiety, fear, panic, rage from feelings they have had at the dining table. Maybe a parent was very strict about manners, maybe forced the child to eat, or the atmosphere was oppressive, or chaotic, or, or, or...........I wonder what your experiences were like, and if others on the list can also join in to see if this hypothesis has some foundation.

I look forward to hearing from you,

Tara E in California

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: michael.lawrence57@...Date: Wed, 8 Dec 2010 05:29:30 -0800Subject: Re: Dr. Phil

Apparently he does not understand the problem very well yet. (either do I after 50 years of it.)

There seem to me to be some other common characteristics with 4's people which contribute to it. I would like to do a study of what those might be to see if there is any connection. IE. depression, anxiety, childhood trauma, phobias etc.

Maybe this has already been done. I am new at this site. I have been to many therapies and most have been at a loss about this.

I am a hopeful person by nature and feel that there will be help in the future with understanding and research. Can't hurt to get the word out there. Dr. Phil might be a good forum. Maybe even Oprah.

Mike L.

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Hi Tara,

I very much liked what you have said. I picked it up from my mother. (genetic,environmental or a combination I don't know for sure). She told me that she was very frightened of her strict father and hearing him eat upset her. (She, like me, is a very sensitive person)Mealtimes for me were stressful. My parents drank most nights so I ate with my siblings who drove me crazy eating. When they did eat with us, my father was drunk and made cruel and abusive statements to me. I was in therapy years ago (Primal) and met a girl (shy and sensitive by nature) who had the same problem. Her father sexually abused her in her room with the mother in the house (aware of it or not I don't know) and then would come to the dinner table and his eating bothered her terribly.She actually needed stomach surgery from all of the stress.

Also met another woman there with 4's. Her cold, strict and unloving father hurt very much.She also was a quiet and shy type personality.

There seem to be some commonalities here.

I would welcome others comments to see what, if any, similar circumstances may be at the root of this problem. I am 58 and have had it since I was 5. It has been a long hard road for me. Nothing as of yet has worked for me. Primal Therapy, Dianetics, hypnosis.

Lots of exercise, and a healthy and positive lifestyle help some.

Mike in Las Vegas

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Thank you for your reply, Mike. That is harsh stuff to put down on paper, and I appreciate you taking the time and effort. If my hypothesis proves true I am hoping to work with some people (free of charge) in/near San Francisco, using a combination of counselling, behavioural exercises, hypnosis (for the UNconscious parts), and sound therapy. If anyone out there would care to contact me, you can visit my website at www.lastingchanges.co.uk. (specifically under helath issues).

Hoping to hear from othersWith regards,

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: michael.lawrence57@...Date: Wed, 8 Dec 2010 08:20:28 -0800Subject: RE: Dr. Phil

Hi Tara,

I very much liked what you have said. I picked it up from my mother. (genetic,environmental or a combination I don't know for sure). She told me that she was very frightened of her strict father and hearing him eat upset her. (She, like me, is a very sensitive person)Mealtimes for me were stressful. My parents drank most nights so I ate with my siblings who drove me crazy eating. When they did eat with us, my father was drunk and made cruel and abusive statements to me. I was in therapy years ago (Primal) and met a girl (shy and sensitive by nature) who had the same problem. Her father sexually abused her in her room with the mother in the house (aware of it or not I don't know) and then would come to the dinner table and his eating bothered her terribly.She actually needed stomach surgery from all of the stress.

Also met another woman there with 4's. Her cold, strict and unloving father hurt very much.She also was a quiet and shy type personality.

There seem to be some commonalities here.

I would welcome others comments to see what, if any, similar circumstances may be at the root of this problem. I am 58 and have had it since I was 5. It has been a long hard road for me. Nothing as of yet has worked for me. Primal Therapy, Dianetics, hypnosis.

Lots of exercise, and a healthy and positive lifestyle help some.

Mike in Las Vegas

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Tara,

I had not paid attention to your credentials. I see you are a therapist and live in England. I am glad that you are on this post adding you imput and concern. Nice to know you.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

And presently in California, hoping to crack Misophonia!

Where are you?

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: michael.lawrence57@...Date: Wed, 8 Dec 2010 08:55:06 -0800Subject: RE: Dr. Phil

Tara,

I had not paid attention to your credentials. I see you are a therapist and live in England. I am glad that you are on this post adding you imput and concern. Nice to know you.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

I am in Las Vegas. There are many annoying noises here.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Tara,

I'm thrilled that you are interested in doing research on 4s. However, I don't think your theory of where it originates is correct. We have discussed this before. Although there are some who remember their parents being strict during the dinner table, many people including myself did not have a bad experience at the table. My daughter has 4s and we never in anyway mentioned manners or were strict about it. Our mealtimes were always a great time for us (me, my husband, and our 3 daughters). We would have some really great conversations. Then one day she just started getting really upset with her older sister's eating.(She was 8 and her sister was 11). Plus, this theory doesn't explain why it seems to also run in families. I don't think that it is caused by a bad experience. I think it is purely physical on the onset and then becomes psychological as the person keeps being tortured by it. The psychological is in response to the physical malfunction.

Anyway--good luck and thanks for your interest in helping to find answers.

Kathy

Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Just curious, but how is the ralationship between your 2 daughters. Mine started at 5. My brother and I were fine, but I was resentful of how much better my father treated him.

But I am sure there is much much more to it than that. Anyone eating bothered me.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Mine was from as early as I can remember. The dinner table was terrible though.

I have a brother, niece and father who were also affected by the same issues. It definitely seems to run in our family.

To: Soundsensitivity Sent: Wed, December 8, 2010 4:53:53 PMSubject: RE: Dr. Phil

Just curious, but how is the ralationship between your 2 daughters. Mine started at 5. My brother and I were fine, but I was resentful of how much better my father treated him.

But I am sure there is much much more to it than that. Anyone eating bothered me.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

I does seem to run in the family. My mother had it and my daughter has it as well. She will not have children because she does not want to pass it on. Makes me very sad.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Thanks to all who have sent in their younger dining table experiences. Please just keep them coming. I really need to interview people in person, so if anyone is near San Francisco, and would like to get together, please get in touch.

I am interested to know what happened at the table when Kathy's daughter suddenly got really upset with her older sister's eating. Did the older sister disturb what was, up until then, a really great time? Can she pinpoint what happened?

Phobias begin with a triggering situation that sets off an emotional reaction. These then become intertwined and can become a conditioned response. Phobias are also contagious which explains how they run in families. I do not know if 4S is considered a phobia in the USA, but in the UK the terminology is "misophonia" and the reaction is similar to a phobic one - usually flight or flight.

I look forward to hearing from you all,

With regards,

Tara

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: jimross33@...Date: Wed, 8 Dec 2010 15:22:36 -0800Subject: Re: Dr. Phil

Mine was from as early as I can remember. The dinner table was terrible though.

I have a brother, niece and father who were also affected by the same issues. It definitely seems to run in our family.

To: Soundsensitivity Sent: Wed, December 8, 2010 4:53:53 PMSubject: RE: Dr. Phil

Just curious, but how is the ralationship between your 2 daughters. Mine started at 5. My brother and I were fine, but I was resentful of how much better my father treated him.

But I am sure there is much much more to it than that. Anyone eating bothered me.

Mike

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

I have been told by a psycologist here in Los Angeles that my symptoms were considered by her to be a phobia.

Subject: Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

Ian,

I agree with you about the whole sensory sensitivity idea. Sometimes I think it acts like a phobia also ( I know a girl with extreme germaphobia who has the same distressed look in her eyes when confronted by her trigger), however it doesn't seem to respond to phobia meds which makes me rethink it.

Plus, it seems like such an instantaneous reflex response when a 4ser hears a trigger. It's like there is no time to even try to reason or be calm. I'm not speaking from experience and could never totally understand the torture that a person with 4s feels. I know that I have a "learned" response when I hear a sound that I know bothers my daughter--like gum popping. I get irritated because I know it bothers her (even if she's not there), because I have been made aware of these sounds. However, I can easily just block them out.

The thing about 4s that really baffles me is how someone can meet someone new and not be bothered by their chewing, but then after a while (say a few months) they start noticing the noises. I always thought maybe it's like when we are first dating someone, our brain is in the infatuation stage and on an MRI you can actually see a part of the brain light up like it's on drugs. Maybe this effect somehow overrides the 4s response. But then after a few months the infatuation stage wears off and this might cause a 4ser to start noticing the trigger sounds again.

Who knows--I just get tired of hypothesizing. I spent about 3 years looking for answers. My daughter had an MRI (she was asleep though, not being triggered), and EEG, Neurofeedback, AIT (Auditory Integration Training), many holistic remedies, chiropractors (actually she notices sounds are more manageable when her neck is aligned), ENTs, sound therapy, psychologists. The funny thing is that 2 of the psychologist that we saw both thought it had a physical root, and the other medical doctors just thought it was behavioral.

So now I have realized that there are no answers as of yet in the medical community. We are just fortunate to have Dr. on our side. The NIH said they were extremely interested in doing a study--I'm not sure if they are still working on one or not. The House Clinic in California was also interested in the genetic aspect, but said they need about $2 million to do a study. I am praying that maybe a really rich/famous/prominent person will have a child with 4s and find us, and then they will do everything they can to get the research done. (Maybe Bill Gates' kid).

I pray for everyone on this site. I go to sleep tonight and wonder how many poor children will wake up with 4s tomorrow--that makes me sad.

Take care--someday there will be answers!!

-----Original Message-----From: Soundsensitivity [mailto:Soundsensitivity ]On Behalf Of IanSent: Wednesday, December 08, 2010 9:57 PMTo: Soundsensitivity Subject: Re: Dr. Phil

Your hypothesis would appear to apply to me, at least superficially. My first 4S-related memory is my father criticising me for eating with open mouth (age 12), and then a later memory (also age 12) is me cringing away from him at the breakfast table because I could hear him eating.However, one of my children also has 4S - but with sniffling and scraping sounds, rather than eating. She told me that it started when she was 13 and my wife pointed out some sound to her and she couldn't switch off to that sound from then on. She is a very easily stressed person in general (like me). My other daughter is entirely free from 4S - and she is a lot calmer in general. I think the calm/stress difference was there long before the 4S emerged.By the way, 4S is also found among a number of people with autism spectrum disorders (ASDs), as part of their general sensory sensitivity. I have been told by my psychologist that I have various sensory issues besides 4S - I have problems with fluorescent lights and with general sensory overload, for example. Quite a few people here report problems with repetitive visual stimuli (me too), and some have touch sensitivity, or taste or smell sensitivity. I really think 4S may be an unusual - and possibly hereditary - subtype of sensory sensitivity in general.Many people here also have other conditions like ASD, ADHD, OCD, anxiety disorders, etc. Such disorders may well play a role in 4S. Sensory sensitivity in general is well known, for example, among many people with ADHD, as well as the vast majority of those with ASD. And tables are generally places with complex sensations - conversation, sharp sounds from cutlery and plates, eating and drinking sounds, and the proximity of a number of people: a great opportunity for sensory overload and defensiveness to kick in, if a person has sensory sensitivity.Anyway, good luck with your research (sincerely). I am glad that someone is examining 4S, although - like Kathy Howe - I am inclined to take a different view of the underlying nature of 4S. For the record, I don't think it is a phobia at all, I think it is a sensory sensitivity issue. However, I do agree that the "phobic" hypothesis needs to be explored.Something to think about: are you looking for cases to confirm your hypothesis or for cases to challenge your hypothesis? By stating up front your hypothesis about the causes of 4S, you may be attracting people who agree, and repelling people who disagree. That worries me a little.>> > Thanks to all who have sent in their younger dining table experiences. Please just keep them coming. I really need to interview people in person, so if anyone is near San Francisco, and would like to get together, please get in touch.> I am interested to know what happened at the table when Kathy's daughter suddenly got really upset with her older sister's eating. Did the older sister disturb what was, up until then, a really great time? Can she pinpoint what happened?> Phobias begin with a triggering situation that sets off an emotional reaction. These then become intertwined and can become a conditioned response. Phobias are also contagious which explains how they run in families. I do not know if 4S is considered a phobia in the USA, but in the UK the terminology is "misophonia" and the reaction is similar to a phobic one - usually flight or flight.> I look forward to hearing from you all,> With regards,> Tara> > Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCP> > Telephone 01488-685151/ 686881>

[Guest guest]

I asked her, but she doesn't remember why it started with her oldest sister. I asked her if she remembers anything negative at meal times and she insists that there was nothing.

When she first got it I tried hard to ask her as much as I could about it, because when they first get it they are in their purest for of 4s before all the psychological overlay takes affect. I just remember her not understanding why she got it, and crying herself to sleep because she wanted to be "normal" again. She would cry because she could barely even go to her friend's house for a sleepover (which she always loved). She went from being very social to barely leaving her room. It was very horrible during this time.

Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

I can remember this case - or a similar one - where the parent with 4S was

nowhere around (had left the family many years earlier) when their child

developed 4S. Also runs through cousins and aunts, according to another member

here, I believe - not just the same nuclear family.

My daughter has different triggers - she is not affected by the sounds that I

complain about ... but she has 4S and slams her fist down when someone sniffs

near her. I don't have that trigger - in fact, our triggers don't coincide *at

all*. But we both have 4S, with onset at similar ages (12 for me, 13 for my

daughter).

>

> I have read about many others in this group who have relatives who suffer from

4s. And I'm sure many behavioral doctors would say " Aha! They just learned it

from each other! " But their were some who never knew their relative had it

until recently. There is one guy who has it and was estranged from his daughter

(hadn't seen her since she was born) and found out that she has it. It's bad

enough that my daughter has this, but then I think that my grandchildren might

have it also! It makes me just pray for answers even harder.

[Guest guest]

I have spoken to two clinical psychologists about 4S. One thinks it is

neurological and genetic, not a learned response. She cited stuttering as an

example of something that was long thought to be the result of emotional

experiences ... and then they found a gene (yes, it is more complex than that,

but there is a definite genetic component in some persistent cases of

stuttering).

The other psychologist is treating my 4S as part of a wider problem with sensory

sensitivity - and he is a specialist in autism spectrum disorders and is

familiar with sensory sensitivity (75-90% of people with Asperger's Syndrome

have sensory sensitivity, especially sound sensitivity). He pointed out a number

of other ways I express sensory sensitivity (overload) that I hadn't been aware

of.

>

>

>

> Subject: Dr. Phil

> To: Soundsensitivity

> Date: Wednesday, December 8, 2010, 3:36 AM

>

>

>

> For some of you newer people who have not seen the older

> posts, we have been down this road before. A woman was on his show with 4s,

> and he basically told her it was stress, and gave her some relaxation CD's.

> Someone contacted her at his site, and we welcomed her here. I think it is a

> good idea to contact him though. If he keeps getting contacted about the

> same thing, maybe he will start to take it more seriously. (one CAN hope)

>

[Guest guest]

I only learned a few years ago that my aunt has it, my father's sister. I so wished I had known that while I was growing up wouldn't felt like a freak and so alone. I think we could have supported each other. Her father was her biggest trigger but everyone bothers her. My mom is sensitive to sounds but she does'nt have 4S. My dad doesn't have it at all and my brother is like my mom, just sensitive to sounds. I hope hope hope my daughter doesn't have it. She's 4 1/2 and is very sensitive to loud noises like ballons popping, jack hammers and those darn hand drawers and automatic toilet flushers in public toilets. She bursts onto tears at the sound of any of them but could careless about mouth noises. I never ever complain about of mouth noises to her. Hope shes like my mom and brother and not like my aunt and I. Sent from my iPhone

I can remember this case - or a similar one - where the parent with 4S was nowhere around (had left the family many years earlier) when their child developed 4S. Also runs through cousins and aunts, according to another member here, I believe - not just the same nuclear family.

My daughter has different triggers - she is not affected by the sounds that I complain about ... but she has 4S and slams her fist down when someone sniffs near her. I don't have that trigger - in fact, our triggers don't coincide *at all*. But we both have 4S, with onset at similar ages (12 for me, 13 for my daughter).

>

> I have read about many others in this group who have relatives who suffer from 4s. And I'm sure many behavioral doctors would say "Aha! They just learned it from each other!" But their were some who never knew their relative had it until recently. There is one guy who has it and was estranged from his daughter (hadn't seen her since she was born) and found out that she has it. It's bad enough that my daughter has this, but then I think that my grandchildren might have it also! It makes me just pray for answers even harder.

[Guest guest]

You are very fortunate to have found a doctor like that. Let us know how it goes.

Dr. Phil> To: Soundsensitivity > Date: Wednesday, December 8, 2010, 3:36 AM> > > > For some of you newer people who have not seen the older> posts, we have been down this road before. A woman was on his show with 4s,> and he basically told her it was stress, and gave her some relaxation CD's.> Someone contacted her at his site, and we welcomed her here. I think it is a> good idea to contact him though. If he keeps getting contacted about the> same thing, maybe he will start to take it more seriously. (one CAN hope)>

[Guest guest]

When writing Dr. Phil, one might want to check whether anyone at the Dr. Phil show ever even did a follow-up on , the teen with 4s who was on the show early this year, Am I the Only One? was the name of the show I believe. I kind of doubt it. Although, Dr. PHil does some good spreading awareness, I would also like to point out that the NAMI, National Alliance for the Mentally Ill, has also lodged some complaints against him for some of the things he has done on his show. Personally, I don't think he is all that bright, but that's of course just my opinion. I think we might get more helpful results writing the NIH rather than Dr. Phil or Oprah, also just my opinion. I am interested if hypnosis or other forms of deep relaxation could be helpful followed by imaginary exposures to

the trigger sounds. I thought I read that studies have shown imagining experiences can light up some of the same areas of the brain as actually having the experiences in reality. I suspect it would take a time and a lot of persistence to make progress this route, but I have not had great success with the traditional phobia treatment route for 4s personally.To: Soundsensitivity Sent: Thu, December 9, 2010 7:09:23 AMSubject: RE: Re: Dr. Phil

You are very fortunate to have found a doctor like that. Let us know how it goes.

Dr. Phil> To: Soundsensitivity > Date: Wednesday, December 8, 2010, 3:36 AM> > > > For some of you newer people who have not seen the older> posts, we have been down this road before. A woman was on his show with 4s,> and he basically told her it was stress, and gave her some relaxation CD's.> Someone contacted her at his site, and we welcomed her here. I think it is a> good idea to contact him though. If he keeps getting contacted about the> same thing, maybe he will start to take it more seriously. (one CAN hope)>

[Guest guest]

I have not seen much of Dr. Phil. And I believe that the mind(and body and the connection between the two) is much more complex than he seems to make of it.

I am mainly concerned with getting the word out there about 4S.

I don't expect there to be one easy cure for this. There may be many approaches to allieviating the suffering and it may be different for different people, but I just hope that is a way to minimize the pain and social effects.

I am a lay person, with limited understanding about this. But the collective effort should make a difference.

How effective are the White/Pink noise hearing aids? I plan to visit an audiologist after learning about this on this post.

Mike L.

Subject: Re: Re: Dr. PhilTo: Soundsensitivity Date: Thursday, December 9, 2010, 5:46 AM

When writing Dr. Phil, one might want to check whether anyone at the Dr. Phil show ever even did a follow-up on , the teen with 4s who was on the show early this year, Am I the Only One? was the name of the show I believe. I kind of doubt it. Although, Dr. PHil does some good spreading awareness, I would also like to point out that the NAMI, National Alliance for the Mentally Ill, has also lodged some complaints against him for some of the things he has done on his show. Personally, I don't think he is all that bright, but that's of course just my opinion. I think we might get more helpful results writing the NIH rather than Dr. Phil or Oprah, also just my opinion. I am interested if hypnosis or other forms of deep relaxation could be helpful followed by imaginary exposures to the trigger sounds. I thought I read that studies have shown imagining experiences can light up some of the same areas of the brain as actually having the

experiences in reality. I suspect it would take a time and a lot of persistence to make progress this route, but I have not had great success with the traditional phobia treatment route for 4s personally.

To: Soundsensitivity Sent: Thu, December 9, 2010 7:09:23 AMSubject: RE: Re: Dr. Phil

You are very fortunate to have found a doctor like that. Let us know how it goes.

Dr. Phil> To: Soundsensitivity > Date: Wednesday, December 8, 2010, 3:36 AM> > > > For some of you newer people who have not seen the older> posts, we have been down this road before. A woman was on his show with 4s,> and he basically told her it was stress, and gave her some relaxation CD's.> Someone contacted her at his site, and we welcomed her here. I think it is a> good idea to contact him though. If he keeps getting contacted about the> same thing, maybe he will

start to take it more seriously. (one CAN hope)>

[Guest guest]

I do agree that the mind body connection is complex and that state of mind is important also with conditions that may have physiologically origins. The other members of my family that tend toward this noise sensitivity also genetically tend toward nervous and anxiety conditions. I do appreciate your wanting to get the word out about 4s. I also agree a collective effort should make a difference. I can not speak to the broadband noise ear devices myself, as I do not currently have one. To: Soundsensitivity Sent: Thu, December 9, 2010 8:02:49 AMSubject: Re: Re: Dr. Phil

I have not seen much of Dr. Phil. And I believe that the mind(and body and the connection between the two) is much more complex than he seems to make of it.

I am mainly concerned with getting the word out there about 4S.

I don't expect there to be one easy cure for this. There may be many approaches to allieviating the suffering and it may be different for different people, but I just hope that is a way to minimize the pain and social effects.

I am a lay person, with limited understanding about this. But the collective effort should make a difference.

How effective are the White/Pink noise hearing aids? I plan to visit an audiologist after learning about this on this post.

Mike L.

Subject: Re: Re: Dr. PhilTo: Soundsensitivity Date: Thursday, December 9, 2010, 5:46 AM

When writing Dr. Phil, one might want to check whether anyone at the Dr. Phil show ever even did a follow-up on , the teen with 4s who was on the show early this year, Am I the Only One? was the name of the show I believe. I kind of doubt it. Although, Dr. PHil does some good spreading awareness, I would also like to point out that the NAMI, National Alliance for the Mentally Ill, has also lodged some complaints against him for some of the things he has done on his show. Personally, I don't think he is all that bright, but that's of course just my opinion. I think we might get more helpful results writing the NIH rather than Dr. Phil or Oprah, also just my opinion. I am interested if hypnosis or other forms of deep relaxation could be helpful followed by imaginary exposures to the trigger sounds. I thought I read that studies have shown imagining experiences can light up some of the same areas of the brain as actually having the

experiences in reality. I suspect it would take a time and a lot of persistence to make progress this route, but I have not had great success with the traditional phobia treatment route for 4s personally.

To: Soundsensitivity Sent: Thu, December 9, 2010 7:09:23 AMSubject: RE: Re: Dr. Phil

You are very fortunate to have found a doctor like that. Let us know how it goes.

Dr. Phil> To: Soundsensitivity > Date: Wednesday, December 8, 2010, 3:36 AM> > > > For some of you newer people who have not seen the older> posts, we have been down this road before. A woman was on his show with 4s,> and he basically told her it was stress, and gave her some relaxation CD's.> Someone contacted her at his site, and we welcomed her here. I think it is a> good idea to contact him though. If he keeps getting contacted about the> same thing, maybe he will

start to take it more seriously. (one CAN hope)>

[Guest guest]

Kathy,

I spoke recently to an audiologist in the UK who had treated a young person who was extremely irritated by the way his sister ate. It all started by a face she had made, and this then set off full blown 4S reactions.

Your daughter may well have stored an incident in her subconscious, or she may have been angry about something with her sister before the meal and it was transferred over. I am pulling ideas out of the hat, and am unsure as yet how important it is to identify the initial trigger, but I do believe there always is one.

I am also very aware of sound sensitivity. Just as each one of us has different positive reactions to different signals, so can we be prone to negatives. For example, evocative smells are very comforting to me - the smell of wood smoke outdoors on a winter's day, clean sheets, a certain perfume etc. So sound sensitivity may well make the phobic reaction more intense in some people and less (or not at all ) in others. Once again, we are talking a combination of factors in both the causes and possible protocols

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: k.howe@...Date: Wed, 8 Dec 2010 23:06:29 -0500Subject: RE: Dr. Phil

I asked her, but she doesn't remember why it started with her oldest sister. I asked her if she remembers anything negative at meal times and she insists that there was nothing.

When she first got it I tried hard to ask her as much as I could about it, because when they first get it they are in their purest for of 4s before all the psychological overlay takes affect. I just remember her not understanding why she got it, and crying herself to sleep because she wanted to be "normal" again. She would cry because she could barely even go to her friend's house for a sleepover (which she always loved). She went from being very social to barely leaving her room. It was very horrible during this time.

Dr. PhilTo: Soundsensitivity Date: Wednesday, December 8, 2010, 3:36 AM

For some of you newer people who have not seen the older posts, we have been down this road before. A woman was on his show with 4s, and he basically told her it was stress, and gave her some relaxation CD's. Someone contacted her at his site, and we welcomed her here. I think it is a good idea to contact him though. If he keeps getting contacted about the same thing, maybe he will start to take it more seriously. (one CAN hope)

[Guest guest]

So, do you think sound sensitivity can run in families to different degrees - and the members who are more sensitive can then develop 4S as a reaction?

Tara Economakis, Dip.AdvHyp,(N-SHAP),MCRAH,UKCPTelephone 01488-685151/ 686881info@...www.lastingchanges.co.uk

To: Soundsensitivity From: heidi@...Date: Wed, 8 Dec 2010 22:39:04 -0800Subject: Re: Re: Dr. Phil

I only learned a few years ago that my aunt has it, my father's sister. I so wished I had known that while I was growing up wouldn't felt like a freak and so alone. I think we could have supported each other. Her father was her biggest trigger but everyone bothers her.

My mom is sensitive to sounds but she does'nt have 4S. My dad doesn't have it at all and my brother is like my mom, just sensitive to sounds. I hope hope hope my daughter doesn't have it. She's 4 1/2 and is very sensitive to loud noises like ballons popping, jack hammers and those darn hand drawers and automatic toilet flushers in public toilets. She bursts onto tears at the sound of any of them but could careless about mouth noises. I never ever complain about of mouth noises to her. Hope shes like my mom and brother and not like my aunt and I.

Sent from my iPhone

I can remember this case - or a similar one - where the parent with 4S was nowhere around (had left the family many years earlier) when their child developed 4S. Also runs through cousins and aunts, according to another member here, I believe - not just the same nuclear family.My daughter has different triggers - she is not affected by the sounds that I complain about ... but she has 4S and slams her fist down when someone sniffs near her. I don't have that trigger - in fact, our triggers don't coincide *at all*. But we both have 4S, with onset at similar ages (12 for me, 13 for my daughter).>> I have read about many others in this group who have relatives who suffer from 4s. And I'm sure many behavioral doctors would say "Aha! They just learned it from each other!" But their were some who never knew their relative had it until recently. There is one guy who has it and was estranged from his daughter (hadn't seen her since she was born) and found out that she has it. It's bad enough that my daughter has this, but then I think that my grandchildren might have it also! It makes me just pray for answers even harder.

[Guest guest]

I watched that Dr. Phil Show with the 4S. He bascially thinks it is just a quick

fix and said she can't let things bother her. He said you can't let things like

a dog barking down the street bother you. He clearly doesn't understand the

layer of pain and emotional stress. He thinks everything is a behavioral thing-

I think it is a mental or medical thing- because I deal with it everyday.

It might be more damaging if he tells the nation that we are just control

freaks, and that it is something we can control.

I think we should be careful about who goes public with this, unless they really

understand what we really have.

>

> For some of you newer people who have not seen the older posts, we have been

down this road before. A woman was on his show with 4s, and he basically told

her it was stress, and gave her some relaxation CD's. Someone contacted her at

his site, and we welcomed her here. I think it is a good idea to contact him

though. If he keeps getting contacted about the same thing, maybe he will start

to take it more seriously. (one CAN hope)

>