Re: Trying to Cover All Bases!

[Guest guest]

You're story sounds amazingly similar to mine. I'm on Hydroxyzine which is

a antihistame, Pamelor which

is Nortriptylene and am having Bio-Feedback. I tried the calcium citrate

for oxalates and it didn't seem to help much. But then again, because I'm

trying stuff together, it's hard to tell. I think the Pamelor helped me

more than anything else so far. My pelvic muscles are now strong and

pretty good in relaxation and I'm still burning today. I think stress

contributes. I've had a stressful couple of days and now I'm burning. Plus

I have a yeast infection for which I was given Diflucan. After I took the

Diflucan on Friday my burning got better, now today it's back. It would

seem to indicate that the Diflucan helped, but I think it's coincidence as

my burning has mysteriously come and gone for the last year and 3 months.

I'm as confused as you, but rest assured you're not the only one trying a

multitude of things at once. I would like to try the calcium again, but I'm

already constipated from the Pamelor and am afraid I'd never be able to go.

Magnesium makes me ill - can't take it.

Hang in there.

SandiSharp@... on 05/04/99 02:22:10 PM

Please respond to VulvarDisordersonelist

To: vulvardisordersonelist

cc: (bcc: Kleinfeldt)

Subject: Trying to Cover All Bases!

From: SandiSharp@...

Hi everyone,

I just wanted to let you know how my dr appointment went today. I have

CONSTANT burning that was doing somewhat better until I got my period last

week. With every period during this problem I get a rash and my pelvic

floor

muscles ache and throb. My doctor who is a member of the pelvic pain

society

has heard good things about antihistamines for vv, so he gave me a

prescription for Atarax (sp?). He also upped my Elavil to 30 mg a day.

I am trying to cover a lot of the theories at once. I had my urine tested

with Dr. s and it was high in oxalate, so I am on the diet with the

timed calcium citrate.

I will be evaluated for biofeedback next Friday and am hopeful that that

path

will help me.

The Elavil and Depakote ( an antiseizure drug) go along with the nerve

damage

theory.

I also am on an herbal program and take candida pills containing peau

d'arco

and other herbs. Dr. s said that the herbal pills should be OK.

Many

of the ingreients are high oxalate herbs, but I am taking them in small

doses.

I think the only theories I am not doing are long term prescription yeast

suppression, ( tried that already) and estrogen cream ( Tried that briefly,

did not really give it a fair chance. But since I am already doing so

much,

I'll save this for later.)

If I only had pain on penetration then I don't think I'd be so aggressive

in

treatment. But this constant burning is ruining every aspect of my life.

I'm desperate!

My second cousin also has vv, but she must not have it as badly as me

because

she has never even tried a prescription medication to fix it other than

short term antifungals. She does the diet and can keep it in check with

some

flares.

Has anyone else tried several approaches at once? Did it help or did it

make

you crazy?

Take care,

Sandi

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[Guest guest]

,

What is your dosage for Nortriptyline (Palomar)? Thanks.

Kathy

[Guest guest]

,

What is your dosage for Nortriptyline (Palomar)? Thanks.

Kathy