23/M/Arizona Diagnosed Yesterday

October 5, 2000

After a whole spattering of tests I was just diagnosed with PSC. As

I'm sure about every month or so, some newbie to the group comes

along asking all the questions that have been asked a hundred times.

I'm that newbie now. I've got lots of questions. [i'd love for

someone my age [OR NOT] to email me @ admin@... but here

come the questions...] I've got no real symptoms but I suppose

that's somewhat normal. I am tired... a LOT.. I don't really want to

sleep, just close my eyes and lay there.. it usually starts at about

10am and lasts the rest of the day.. then I take like a 20 min nap in

the late afternoon and it about kills me to wake up... I feel

terrible for like a half and hour... Are there drugs to help with

fatigue?

I understand the median age of diagnosis is like in your 30s to 40s

but does that mean you develop it at that age or that it's just

diagnosed at that age?

Is there like a 'prognosis' curve or something that you [the patient]

can be applied to to help chart the course PSC is going to take?

I forget what it's called, but the itching.. as a symptom. Is that

localized? Or is it all over? Does this symptom and related ones

come and go or over time does everything gradually get worse?

In the research I've done, I understand that 10 years is the average

from diagnosis to liver failure.. Is that accurate?

I know I'm spouting off and these answers aren't easily summed up in

10 words or less... But any help would be appreciated.

I have yet to talk to my doctor about ongoing treatment but I'm on

vitamins... Actigol and supposed to intake like 2,000 to 2,500

calories a day.. I DON'T EAT ever... I rarely eat breakfast... Lunch

is always light and by dinner time I'm too tired to even WANT to eat

so I eat very little... I weigh about 145lbs.. and have for years...

so I'm not loosing any weight..

Anyhow.. I'm done for now.

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