Re: Imogene/Hospice

[Guest guest]

Jan, I would be upset too if no one was with my LO. Come to think of

it was only family with Don's mother, and a nurse came in once in a

while when we were there.

I don't know if she had Hospice or not. Maybe Hospice thinks nurses

will care for the person, and only go to homes where they think help

is needed.???

To leave a person die alone is very sad.

I just talked to Sharon (Cyber daughter). Boy has she got it mad in

her throat. She could hardly talk, but she is so sweet. I hate to see

her so sick all the time.

I gotta stop a minute.

Love you dear, Jan,

Imogene

> > >

> > > Hi Sheila,

> > > Where do you live, because I had the samething happen when my

> > husband lived at home 24/7 and Hospice came to evaluate him. I

was

> > really struggling with him, but he coud talk and understand and

> > answer questions the person asked. And she said he did not

qualify

> > for Hospice. She gave me a brochure to a caregiver agency, but I

> > didn't need that, I already had a caregiver. I needed help 24/7

> that

> > was affordable, but I couldn't find it. I eventually admitted my

> > husband to a nursing home and spent down, so he would qualify

> > for Medicaid to help pay the nh and he has been there a little

over

> > two years. One year after he was there, he got a very bad UTI

> > (Sepsis) and was hospitalized for 10 days and he qualified for

> > Hospice when he returned from the hospital to the nh. Hospice

> stayed

> > with him for 4 months and then said he didn't need them anymore

and

> > they said good-bye. So, Hospice is not something to depend on for

> > full time help if you need them for the rest

> > >  of your mother's life, unless she is really showing she is not

> > thriving. That is my experience anyway. Also, one of my husband's

> > roommates was on Hospice at the nh. His family requested Hospice

> for

> > him when he was failing. He had AD. I am at the nh for several

> hours

> > everyday and I never once saw Hospice come in to see the man.

They

> > probably came in the early, early  morning when I was not there,

> but

> > that man died and no one was there for him and I sat with him all

> > night and was there when he died. Not once was Hospice there for

> him

> > while dying. His daughter came in the afternoon to see him and he

> was

> > in the dying process, but Hospice had told her on the phone it

> could

> > be a few more days, so she left after about an hour with him and

> that

> > night when she was not there, I sat with him and talked to him. I

> > thought that was the job of Hospice. It was shocking to me that

not

> > one person was there for this man, not even the staff at the nh.

> They

> > would come in

> > >  and check to see how he was doing periodically, but not one

> person

> > sat with him.

> > > I felt so sorry for this man, I put Jim in bed and drew the

> > curtains and sat with the man on the other side. When he died,

the

> > CNA and nurse asked me what time he had died. I didn't know that

> was

> > my job to keep track of, I was just there for him. I gave them an

> > estimation, because I really didn't look at the clock at the

> precise

> > moment. I was saying a little prayer for the poor man when he

died.

> > > Now, here is the Godincidence, as Sandie says. Not knowing this

> man

> > would die that night, Jim and I had been sitting outside during

the

> > day on the nh patio and there were some beautiful roses and one

was

> a

> > rose bud and I picked it and put it in Jim's buttonhole of  his

> > shirt. I've never done this before and it was for no special

> > occasion, I just felt like doing it.

> > > That night, I knew exactly why I had picked that rose bud, it

was

> > for the man that died and I left it on his bed after he died and

> his

> > daughter saw it when she arrived and she  e-mailed me a very nice

> > letter and said that she was going to throw the rose in with her

> > father. That was so special to hear.

> > > You might try and see if you have PACE in your area. They do in-

> > home care and it is with Medicare or Medicaid. Here is the

website

> > about it.

> > > http://www.medicare.gov/nursing/Alternatives/Pace.asp

> > >

> > >

> > >

> > > Hospice

> > >

> > > My mom is doing worse.  the Dr. suggested Hospice.  They came

to

> > > evaluate her and they said that since she could speak and

> > understood

> > > what we were saying she probably wouldn't qualify.  I don't

> > understand,

> > > she can not walk without assistance, she can't do anything

> without

> > > assistance, Her tremors are so bad she can't eat or brush her

> > teeth. 

> > > She is delusional, thinks dad is trying to hurt her, and she

get

> > upset

> > > if I'm not there. 

> > > Has anyone else had problems with people not understanding

about

> > LBD? 

> > > They think it is like Alzhiemers, with the memory problems, 

mom

> > > doesn't have that problem, but her symptoms are just as bad. 

It

> > gets

> > > so frustrating.  I don't know what to do.  I would also like to

> > know

> > > what to expect.  All the DR's say is that there is no cure and

> she

> > will

> > > go down hill fast. I feel like no one understands what I am

going

> > > thru.  I'm worried I can't do it but I have to because there is

> no

> > one

> > > else except Dad and he is not well either. 

> > > thanks for listening!

> > > Sheila 

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Welcome to LBDcaregivers. 

> > >

> > >