Re: The CURE ... Neurofeedback

January 13, 2012

Hi there,

I took your advice and made an appointment for my daughter to start next

week. I know you said it has helped but are there any bad side

effects?? Did you or your son experience any side effects yourself?

>

> The CURE … Neurofeedback

>

> Eight months ago, on May 1, 2011, I posted here as to how

Neurofeedback

> was proving to be the " cure " for me in regards to this dreaded

> condition, referred to as Misophonia. I wrote of some extraordinary

> " successes " I was having at the time, and I wrote, " I do not

> know if this is the " cure " for all others on this site. I do

> know what it has done for me so far … it's given me the first

> real hope in defeating this after 45 years of anguish. " You can

> read my original post if you go to where it says message # at the top

of

> this page, and put in 20318 (do not use a comma in the number). The

> positive progress I had recorded up to that time was after 24 sessions

> with a Neurofeedback (NFB) practitioner, and I told of our plans to

> start our 15 year-old son with NFB who also has Misophonia. To my

> disbelief, there was response from just two people on this site. That

> is why I decided to post under the heading " The Cure " in hopes

> of gaining everyone's attention.

>

> Neurofeedback has worked for both my son and me. I will stress that I

> suffered with this Misophonia condition for 45 years and to a degree

> just as strong as relayed by any of the messages posted on this site.

> Both my son and I have also dealt with various symptoms of OCD, which

> both my NFB Doctor and I feel that this condition is an element of. I

> have read past arguments of those that don't consider this OCD as

> they don't exhibit the " recognized " or usual symptoms, or

> have an official diagnosis of OCD thru the " main stream "

> physicians. Since I have not heard of others being treated

successfully

> thru other means, I believe my NFB Doctor and I have earned the

> credibility in referring to this condition as an element of OCD.

>

> If there were a rating system developed, both my wife and I would put

me

> at a strong 90 to 95% improvement from where I was several months ago.

> I would be at the 100% level as far as the total absence of the anger

> that is instantaneously present when Misophonia sufferers encounter a

> " trigger. " With some of the " successes " I am enjoying

> my wife tells me that, " You are completely cured. " But I

> don't accept that quite yet as there are a couple elements that I

> still notice, although ever so slightly. The terrific part of NFB is

> that although there may be an " ebb & flow " of reactions during

> treatment as improvements are made … improvements realized are

> permanent. Even more promising are studies that have shown that even

> when NFB sessions are stopped, subtle improvements are still

recognized

> months later. Our son we would put at an 80% improvement level.

> Possibly we could rate him higher yet on that scale but with people

that

> age it can be difficult to determine if some actions are unrelated to

> this condition and rather just the normal teenager hormones to be

dealt

> with. He also started with more profound " recognized " and

> typical OCD symptoms than what I did.

>

> In addition, my higher rating of improvement can be attributed to my

> having a total of 112 NFB sessions so far versus my son's 64

> sessions. With saying that I want to stress at this point not to let

> the number of sessions and the related costs deter you. I pointed out

> in my original post that I paid $4,100 for my initial 40 sessions

along

> with a beginning and ending QEEG. At the end of the initial 40

> sessions, both for myself as well as my son, my wife and I agreed that

> both of us had achieved a 60-70% improvement for our Misophonia versus

> our pre-Neurofeedback condition. Imagine how different your life

would

> be, or that of your child, if you/he/she were rid of 60-70% of the

> triggers and anger … actually more on the anger as most of that

> leaves completely and is the most pronounced effect first realized.

> Although our lives would have been so much more enjoyable even if we

had

> stopped after the initial 40 sessions, we made the decision to strive

> for perfection and be cured completely. My son has never complained

one

> time with going to the 64 sessions as he continues to realize the

subtle

> improvements he continues to make.

>

> Our NFB practitioner will be starting with the use of a program called

> the LORETA in another 3 weeks. The LORETA, which he will incorporate

in

> every third session, is like a mini-QEEG, a functional imaging

technique

> that looks directly at brain activity in " real time. " The data

> to date is showing the use of the LORETA enables one to treat at a

more

> successful rate … at a quicker pace … and for more conditions!

> Naturally we are excited about this as we feel that he will be able to

> identify and treat those last stubborn areas of our brains.

>

> Over the last several months I have compiled nearly 80 pages of a

> journal chronicling the progress we have achieved thru Neurofeedback.

I

> am working on condensing this material to a version that I can post at

a

> later date so others may identify with situations we have encountered

> with triggers that have resulted in " successes " with a

> non-reaction and no anger present. In addition, our Doctor will be

> putting together a report for the Neurofeedback Journal and

profession,

> along with my input from a patient's perspective, regarding

> NFB's success with treating Misophonia.

>

> I am going to add a disclaimer to my post. All brains are different,

> and some people may not respond favorably to Neurofeedback, there are

no

> guarantees. But, we are not the only people with this condition that

> have experienced success with Neurofeedback. My Doctor recently

learned

> of an NFB practitioner in Texas that had posted on a professional

online

> forum asking if anyone had experience in treating Misophonia. This

> practitioner initially started seeing someone for ADD, but then this

> patient's parents educated him on the Misophonia their child had.

> Some time had elapsed and he posted a second time telling that he was

> having success with diminishing the Misophonia triggers.

>

> For those of you that contact a Neurofeedback practitioner and proceed

> with sessions, I will offer this advice … Do not monitor all of

the

> posts on this site closely. I say this because of the number of posts

> where people are venting and telling of new and different triggers

that

> outrage them. There have been arguments on this site in the past as

to

> if the venting is helpful. I am not entering into that argument but

> rather just giving you advice on an observation that my Neurofeedback

> Doctor, my wife, and I all agree on. We feel there is the possibility

> of one developing new triggers they have not experienced before when

> reading of them thru the venting on this site. We base this on the

fact

> that neither my wife, nor my Doctor, ever realized the manner in which

> people chew gum until coming in contact with me. It was simply

> something they were not conscience of. But now they both notice if

> people chew their gum or food in an obnoxious manner. It does not

cause

> them to get angry, but they do notice it now as readily as a

Misophonia

> victim does. For this reason I scan the headlines on this site but do

> not read any postings that appear to be from someone venting or

telling

> of new triggers.

>

> I intend to stay anonymous on this site as well as in any subsequent

> article in the NFB Journal. If it was just me I would have no issue

> with using my real name. But I will not take the chance of subjecting

> my son to ridicule from his peers if our identification were known and

> talked of openly on this site, on a Facebook page, or in the media.

> Please respect this. We all know that if we told acquaintances we had

> ADD … they would have compassion for us. If we told others that

we

> had depression, or bipolar … we would be shown compassion. In

fact

> if we say, as my Doctor and I maintain, " I have an element of

> OCD " … we will be looked upon with compassion. But to tell

> someone of Misophonia and its triggers & anger … will most often

> bring us ridicule and mean spirited provoking.

>

> We live in Eastern Iowa so those of you that are close in proximity

may

> send an email to my Yahoo Mail account and I will respond with the

name

> of my Neurofeedback practitioner. For everyone else, please respect

the

> fact that my Doctor cannot accept the several calls that could

inundate

> him from those looking for referrals. He will not make referrals but

> would be glad to accept a phone call or an email from NFB

practitioners

> in regards to protocol. My Doctor strongly suggests that one go to

the

> website www.bcia.org <http://www.bcia.org/> to find a practitioner in

> your area and to make sure that they are specifically accredited for

> " BCN. " Another valuable website is the International Society

> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .

> At this time the practitioner listing section of this site is down so

> check back.

>

January 13, 2012

My son went today for a QEEG. He said it would take about a week for the results. He also has a lot of other issues that I'm hoping it will help. GingerSent on the Sprint® Now Network from my BlackBerry®Sender: Soundsensitivity Date: Fri, 13 Jan 2012 18:59:29 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: The CURE ... Neurofeedback Hi there,I took your advice and made an appointment for my daughter to start nextweek. I know you said it has helped but are there any bad sideeffects?? Did you or your son experience any side effects yourself?>>>>> The CURE … Neurofeedback>> Eight months ago, on May 1, 2011, I posted here as to howNeurofeedback> was proving to be the " cure " for me in regards to this dreaded> condition, referred to as Misophonia. I wrote of some extraordinary> " successes " I was having at the time, and I wrote, " I do not> know if this is the " cure " for all others on this site. I do> know what it has done for me so far … it's given me the first> real hope in defeating this after 45 years of anguish. " You can> read my original post if you go to where it says message # at the topof> this page, and put in 20318 (do not use a comma in the number). The> positive progress I had recorded up to that time was after 24 sessions> with a Neurofeedback (NFB) practitioner, and I told of our plans to> start our 15 year-old son with NFB who also has Misophonia. To my> disbelief, there was response from just two people on this site. That> is why I decided to post under the heading " The Cure " in hopes> of gaining everyone's attention.>> Neurofeedback has worked for both my son and me. I will stress that I> suffered with this Misophonia condition for 45 years and to a degree> just as strong as relayed by any of the messages posted on this site.> Both my son and I have also dealt with various symptoms of OCD, which> both my NFB Doctor and I feel that this condition is an element of. I> have read past arguments of those that don't consider this OCD as> they don't exhibit the " recognized " or usual symptoms, or> have an official diagnosis of OCD thru the " main stream " > physicians. Since I have not heard of others being treatedsuccessfully> thru other means, I believe my NFB Doctor and I have earned the> credibility in referring to this condition as an element of OCD.>> If there were a rating system developed, both my wife and I would putme> at a strong 90 to 95% improvement from where I was several months ago.> I would be at the 100% level as far as the total absence of the anger> that is instantaneously present when Misophonia sufferers encounter a> " trigger. " With some of the " successes " I am enjoying> my wife tells me that, " You are completely cured. " But I> don't accept that quite yet as there are a couple elements that I> still notice, although ever so slightly. The terrific part of NFB is> that although there may be an " ebb & flow " of reactions during> treatment as improvements are made … improvements realized are> permanent. Even more promising are studies that have shown that even> when NFB sessions are stopped, subtle improvements are stillrecognized> months later. Our son we would put at an 80% improvement level.> Possibly we could rate him higher yet on that scale but with peoplethat> age it can be difficult to determine if some actions are unrelated to> this condition and rather just the normal teenager hormones to bedealt> with. He also started with more profound " recognized " and> typical OCD symptoms than what I did.>>>> In addition, my higher rating of improvement can be attributed to my> having a total of 112 NFB sessions so far versus my son's 64> sessions. With saying that I want to stress at this point not to let> the number of sessions and the related costs deter you. I pointed out> in my original post that I paid $4,100 for my initial 40 sessionsalong> with a beginning and ending QEEG. At the end of the initial 40> sessions, both for myself as well as my son, my wife and I agreed that> both of us had achieved a 60-70% improvement for our Misophonia versus> our pre-Neurofeedback condition. Imagine how different your lifewould> be, or that of your child, if you/he/she were rid of 60-70% of the> triggers and anger … actually more on the anger as most of that> leaves completely and is the most pronounced effect first realized.> Although our lives would have been so much more enjoyable even if wehad> stopped after the initial 40 sessions, we made the decision to strive> for perfection and be cured completely. My son has never complainedone> time with going to the 64 sessions as he continues to realize thesubtle> improvements he continues to make.>> Our NFB practitioner will be starting with the use of a program called> the LORETA in another 3 weeks. The LORETA, which he will incorporatein> every third session, is like a mini-QEEG, a functional imagingtechnique> that looks directly at brain activity in " real time. " The data> to date is showing the use of the LORETA enables one to treat at amore> successful rate … at a quicker pace … and for more conditions!> Naturally we are excited about this as we feel that he will be able to> identify and treat those last stubborn areas of our brains.>> Over the last several months I have compiled nearly 80 pages of a> journal chronicling the progress we have achieved thru Neurofeedback. I> am working on condensing this material to a version that I can post ata> later date so others may identify with situations we have encountered> with triggers that have resulted in " successes " with a> non-reaction and no anger present. In addition, our Doctor will be> putting together a report for the Neurofeedback Journal andprofession,> along with my input from a patient's perspective, regarding> NFB's success with treating Misophonia.>> I am going to add a disclaimer to my post. All brains are different,> and some people may not respond favorably to Neurofeedback, there areno> guarantees. But, we are not the only people with this condition that> have experienced success with Neurofeedback. My Doctor recentlylearned> of an NFB practitioner in Texas that had posted on a professionalonline> forum asking if anyone had experience in treating Misophonia. This> practitioner initially started seeing someone for ADD, but then this> patient's parents educated him on the Misophonia their child had.> Some time had elapsed and he posted a second time telling that he was> having success with diminishing the Misophonia triggers.>> For those of you that contact a Neurofeedback practitioner and proceed> with sessions, I will offer this advice … Do not monitor all ofthe> posts on this site closely. I say this because of the number of posts> where people are venting and telling of new and different triggersthat> outrage them. There have been arguments on this site in the past asto> if the venting is helpful. I am not entering into that argument but> rather just giving you advice on an observation that my Neurofeedback> Doctor, my wife, and I all agree on. We feel there is the possibility> of one developing new triggers they have not experienced before when> reading of them thru the venting on this site. We base this on thefact> that neither my wife, nor my Doctor, ever realized the manner in which> people chew gum until coming in contact with me. It was simply> something they were not conscience of. But now they both notice if> people chew their gum or food in an obnoxious manner. It does notcause> them to get angry, but they do notice it now as readily as aMisophonia> victim does. For this reason I scan the headlines on this site but do> not read any postings that appear to be from someone venting ortelling> of new triggers.>> I intend to stay anonymous on this site as well as in any subsequent> article in the NFB Journal. If it was just me I would have no issue> with using my real name. But I will not take the chance of subjecting> my son to ridicule from his peers if our identification were known and> talked of openly on this site, on a Facebook page, or in the media.> Please respect this. We all know that if we told acquaintances we had> ADD … they would have compassion for us. If we told others thatwe> had depression, or bipolar … we would be shown compassion. Infact> if we say, as my Doctor and I maintain, " I have an element of> OCD " … we will be looked upon with compassion. But to tell> someone of Misophonia and its triggers & anger … will most often> bring us ridicule and mean spirited provoking.>> We live in Eastern Iowa so those of you that are close in proximitymay> send an email to my Yahoo Mail account and I will respond with thename> of my Neurofeedback practitioner. For everyone else, please respectthe> fact that my Doctor cannot accept the several calls that couldinundate> him from those looking for referrals. He will not make referrals but> would be glad to accept a phone call or an email from NFBpractitioners> in regards to protocol. My Doctor strongly suggests that one go tothe> website www.bcia.org <http://www.bcia.org/> to find a practitioner in> your area and to make sure that they are specifically accredited for> " BCN. " Another valuable website is the International Society> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .> At this time the practitioner listing section of this site is down so> check back.>

January 13, 2012

My son went today for a QEEG. He said it would take about a week for the results. He also has a lot of other issues that I'm hoping it will help. GingerSent on the Sprint® Now Network from my BlackBerry®Sender: Soundsensitivity Date: Fri, 13 Jan 2012 18:59:29 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: The CURE ... Neurofeedback Hi there,I took your advice and made an appointment for my daughter to start nextweek. I know you said it has helped but are there any bad sideeffects?? Did you or your son experience any side effects yourself?>>>>> The CURE … Neurofeedback>> Eight months ago, on May 1, 2011, I posted here as to howNeurofeedback> was proving to be the " cure " for me in regards to this dreaded> condition, referred to as Misophonia. I wrote of some extraordinary> " successes " I was having at the time, and I wrote, " I do not> know if this is the " cure " for all others on this site. I do> know what it has done for me so far … it's given me the first> real hope in defeating this after 45 years of anguish. " You can> read my original post if you go to where it says message # at the topof> this page, and put in 20318 (do not use a comma in the number). The> positive progress I had recorded up to that time was after 24 sessions> with a Neurofeedback (NFB) practitioner, and I told of our plans to> start our 15 year-old son with NFB who also has Misophonia. To my> disbelief, there was response from just two people on this site. That> is why I decided to post under the heading " The Cure " in hopes> of gaining everyone's attention.>> Neurofeedback has worked for both my son and me. I will stress that I> suffered with this Misophonia condition for 45 years and to a degree> just as strong as relayed by any of the messages posted on this site.> Both my son and I have also dealt with various symptoms of OCD, which> both my NFB Doctor and I feel that this condition is an element of. I> have read past arguments of those that don't consider this OCD as> they don't exhibit the " recognized " or usual symptoms, or> have an official diagnosis of OCD thru the " main stream " > physicians. Since I have not heard of others being treatedsuccessfully> thru other means, I believe my NFB Doctor and I have earned the> credibility in referring to this condition as an element of OCD.>> If there were a rating system developed, both my wife and I would putme> at a strong 90 to 95% improvement from where I was several months ago.> I would be at the 100% level as far as the total absence of the anger> that is instantaneously present when Misophonia sufferers encounter a> " trigger. " With some of the " successes " I am enjoying> my wife tells me that, " You are completely cured. " But I> don't accept that quite yet as there are a couple elements that I> still notice, although ever so slightly. The terrific part of NFB is> that although there may be an " ebb & flow " of reactions during> treatment as improvements are made … improvements realized are> permanent. Even more promising are studies that have shown that even> when NFB sessions are stopped, subtle improvements are stillrecognized> months later. Our son we would put at an 80% improvement level.> Possibly we could rate him higher yet on that scale but with peoplethat> age it can be difficult to determine if some actions are unrelated to> this condition and rather just the normal teenager hormones to bedealt> with. He also started with more profound " recognized " and> typical OCD symptoms than what I did.>>>> In addition, my higher rating of improvement can be attributed to my> having a total of 112 NFB sessions so far versus my son's 64> sessions. With saying that I want to stress at this point not to let> the number of sessions and the related costs deter you. I pointed out> in my original post that I paid $4,100 for my initial 40 sessionsalong> with a beginning and ending QEEG. At the end of the initial 40> sessions, both for myself as well as my son, my wife and I agreed that> both of us had achieved a 60-70% improvement for our Misophonia versus> our pre-Neurofeedback condition. Imagine how different your lifewould> be, or that of your child, if you/he/she were rid of 60-70% of the> triggers and anger … actually more on the anger as most of that> leaves completely and is the most pronounced effect first realized.> Although our lives would have been so much more enjoyable even if wehad> stopped after the initial 40 sessions, we made the decision to strive> for perfection and be cured completely. My son has never complainedone> time with going to the 64 sessions as he continues to realize thesubtle> improvements he continues to make.>> Our NFB practitioner will be starting with the use of a program called> the LORETA in another 3 weeks. The LORETA, which he will incorporatein> every third session, is like a mini-QEEG, a functional imagingtechnique> that looks directly at brain activity in " real time. " The data> to date is showing the use of the LORETA enables one to treat at amore> successful rate … at a quicker pace … and for more conditions!> Naturally we are excited about this as we feel that he will be able to> identify and treat those last stubborn areas of our brains.>> Over the last several months I have compiled nearly 80 pages of a> journal chronicling the progress we have achieved thru Neurofeedback. I> am working on condensing this material to a version that I can post ata> later date so others may identify with situations we have encountered> with triggers that have resulted in " successes " with a> non-reaction and no anger present. In addition, our Doctor will be> putting together a report for the Neurofeedback Journal andprofession,> along with my input from a patient's perspective, regarding> NFB's success with treating Misophonia.>> I am going to add a disclaimer to my post. All brains are different,> and some people may not respond favorably to Neurofeedback, there areno> guarantees. But, we are not the only people with this condition that> have experienced success with Neurofeedback. My Doctor recentlylearned> of an NFB practitioner in Texas that had posted on a professionalonline> forum asking if anyone had experience in treating Misophonia. This> practitioner initially started seeing someone for ADD, but then this> patient's parents educated him on the Misophonia their child had.> Some time had elapsed and he posted a second time telling that he was> having success with diminishing the Misophonia triggers.>> For those of you that contact a Neurofeedback practitioner and proceed> with sessions, I will offer this advice … Do not monitor all ofthe> posts on this site closely. I say this because of the number of posts> where people are venting and telling of new and different triggersthat> outrage them. There have been arguments on this site in the past asto> if the venting is helpful. I am not entering into that argument but> rather just giving you advice on an observation that my Neurofeedback> Doctor, my wife, and I all agree on. We feel there is the possibility> of one developing new triggers they have not experienced before when> reading of them thru the venting on this site. We base this on thefact> that neither my wife, nor my Doctor, ever realized the manner in which> people chew gum until coming in contact with me. It was simply> something they were not conscience of. But now they both notice if> people chew their gum or food in an obnoxious manner. It does notcause> them to get angry, but they do notice it now as readily as aMisophonia> victim does. For this reason I scan the headlines on this site but do> not read any postings that appear to be from someone venting ortelling> of new triggers.>> I intend to stay anonymous on this site as well as in any subsequent> article in the NFB Journal. If it was just me I would have no issue> with using my real name. But I will not take the chance of subjecting> my son to ridicule from his peers if our identification were known and> talked of openly on this site, on a Facebook page, or in the media.> Please respect this. We all know that if we told acquaintances we had> ADD … they would have compassion for us. If we told others thatwe> had depression, or bipolar … we would be shown compassion. Infact> if we say, as my Doctor and I maintain, " I have an element of> OCD " … we will be looked upon with compassion. But to tell> someone of Misophonia and its triggers & anger … will most often> bring us ridicule and mean spirited provoking.>> We live in Eastern Iowa so those of you that are close in proximitymay> send an email to my Yahoo Mail account and I will respond with thename> of my Neurofeedback practitioner. For everyone else, please respectthe> fact that my Doctor cannot accept the several calls that couldinundate> him from those looking for referrals. He will not make referrals but> would be glad to accept a phone call or an email from NFBpractitioners> in regards to protocol. My Doctor strongly suggests that one go tothe> website www.bcia.org <http://www.bcia.org/> to find a practitioner in> your area and to make sure that they are specifically accredited for> " BCN. " Another valuable website is the International Society> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .> At this time the practitioner listing section of this site is down so> check back.>

January 13, 2012

My son went today for a QEEG. He said it would take about a week for the results. He also has a lot of other issues that I'm hoping it will help. GingerSent on the Sprint® Now Network from my BlackBerry®Sender: Soundsensitivity Date: Fri, 13 Jan 2012 18:59:29 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: The CURE ... Neurofeedback Hi there,I took your advice and made an appointment for my daughter to start nextweek. I know you said it has helped but are there any bad sideeffects?? Did you or your son experience any side effects yourself?>>>>> The CURE … Neurofeedback>> Eight months ago, on May 1, 2011, I posted here as to howNeurofeedback> was proving to be the " cure " for me in regards to this dreaded> condition, referred to as Misophonia. I wrote of some extraordinary> " successes " I was having at the time, and I wrote, " I do not> know if this is the " cure " for all others on this site. I do> know what it has done for me so far … it's given me the first> real hope in defeating this after 45 years of anguish. " You can> read my original post if you go to where it says message # at the topof> this page, and put in 20318 (do not use a comma in the number). The> positive progress I had recorded up to that time was after 24 sessions> with a Neurofeedback (NFB) practitioner, and I told of our plans to> start our 15 year-old son with NFB who also has Misophonia. To my> disbelief, there was response from just two people on this site. That> is why I decided to post under the heading " The Cure " in hopes> of gaining everyone's attention.>> Neurofeedback has worked for both my son and me. I will stress that I> suffered with this Misophonia condition for 45 years and to a degree> just as strong as relayed by any of the messages posted on this site.> Both my son and I have also dealt with various symptoms of OCD, which> both my NFB Doctor and I feel that this condition is an element of. I> have read past arguments of those that don't consider this OCD as> they don't exhibit the " recognized " or usual symptoms, or> have an official diagnosis of OCD thru the " main stream " > physicians. Since I have not heard of others being treatedsuccessfully> thru other means, I believe my NFB Doctor and I have earned the> credibility in referring to this condition as an element of OCD.>> If there were a rating system developed, both my wife and I would putme> at a strong 90 to 95% improvement from where I was several months ago.> I would be at the 100% level as far as the total absence of the anger> that is instantaneously present when Misophonia sufferers encounter a> " trigger. " With some of the " successes " I am enjoying> my wife tells me that, " You are completely cured. " But I> don't accept that quite yet as there are a couple elements that I> still notice, although ever so slightly. The terrific part of NFB is> that although there may be an " ebb & flow " of reactions during> treatment as improvements are made … improvements realized are> permanent. Even more promising are studies that have shown that even> when NFB sessions are stopped, subtle improvements are stillrecognized> months later. Our son we would put at an 80% improvement level.> Possibly we could rate him higher yet on that scale but with peoplethat> age it can be difficult to determine if some actions are unrelated to> this condition and rather just the normal teenager hormones to bedealt> with. He also started with more profound " recognized " and> typical OCD symptoms than what I did.>>>> In addition, my higher rating of improvement can be attributed to my> having a total of 112 NFB sessions so far versus my son's 64> sessions. With saying that I want to stress at this point not to let> the number of sessions and the related costs deter you. I pointed out> in my original post that I paid $4,100 for my initial 40 sessionsalong> with a beginning and ending QEEG. At the end of the initial 40> sessions, both for myself as well as my son, my wife and I agreed that> both of us had achieved a 60-70% improvement for our Misophonia versus> our pre-Neurofeedback condition. Imagine how different your lifewould> be, or that of your child, if you/he/she were rid of 60-70% of the> triggers and anger … actually more on the anger as most of that> leaves completely and is the most pronounced effect first realized.> Although our lives would have been so much more enjoyable even if wehad> stopped after the initial 40 sessions, we made the decision to strive> for perfection and be cured completely. My son has never complainedone> time with going to the 64 sessions as he continues to realize thesubtle> improvements he continues to make.>> Our NFB practitioner will be starting with the use of a program called> the LORETA in another 3 weeks. The LORETA, which he will incorporatein> every third session, is like a mini-QEEG, a functional imagingtechnique> that looks directly at brain activity in " real time. " The data> to date is showing the use of the LORETA enables one to treat at amore> successful rate … at a quicker pace … and for more conditions!> Naturally we are excited about this as we feel that he will be able to> identify and treat those last stubborn areas of our brains.>> Over the last several months I have compiled nearly 80 pages of a> journal chronicling the progress we have achieved thru Neurofeedback. I> am working on condensing this material to a version that I can post ata> later date so others may identify with situations we have encountered> with triggers that have resulted in " successes " with a> non-reaction and no anger present. In addition, our Doctor will be> putting together a report for the Neurofeedback Journal andprofession,> along with my input from a patient's perspective, regarding> NFB's success with treating Misophonia.>> I am going to add a disclaimer to my post. All brains are different,> and some people may not respond favorably to Neurofeedback, there areno> guarantees. But, we are not the only people with this condition that> have experienced success with Neurofeedback. My Doctor recentlylearned> of an NFB practitioner in Texas that had posted on a professionalonline> forum asking if anyone had experience in treating Misophonia. This> practitioner initially started seeing someone for ADD, but then this> patient's parents educated him on the Misophonia their child had.> Some time had elapsed and he posted a second time telling that he was> having success with diminishing the Misophonia triggers.>> For those of you that contact a Neurofeedback practitioner and proceed> with sessions, I will offer this advice … Do not monitor all ofthe> posts on this site closely. I say this because of the number of posts> where people are venting and telling of new and different triggersthat> outrage them. There have been arguments on this site in the past asto> if the venting is helpful. I am not entering into that argument but> rather just giving you advice on an observation that my Neurofeedback> Doctor, my wife, and I all agree on. We feel there is the possibility> of one developing new triggers they have not experienced before when> reading of them thru the venting on this site. We base this on thefact> that neither my wife, nor my Doctor, ever realized the manner in which> people chew gum until coming in contact with me. It was simply> something they were not conscience of. But now they both notice if> people chew their gum or food in an obnoxious manner. It does notcause> them to get angry, but they do notice it now as readily as aMisophonia> victim does. For this reason I scan the headlines on this site but do> not read any postings that appear to be from someone venting ortelling> of new triggers.>> I intend to stay anonymous on this site as well as in any subsequent> article in the NFB Journal. If it was just me I would have no issue> with using my real name. But I will not take the chance of subjecting> my son to ridicule from his peers if our identification were known and> talked of openly on this site, on a Facebook page, or in the media.> Please respect this. We all know that if we told acquaintances we had> ADD … they would have compassion for us. If we told others thatwe> had depression, or bipolar … we would be shown compassion. Infact> if we say, as my Doctor and I maintain, " I have an element of> OCD " … we will be looked upon with compassion. But to tell> someone of Misophonia and its triggers & anger … will most often> bring us ridicule and mean spirited provoking.>> We live in Eastern Iowa so those of you that are close in proximitymay> send an email to my Yahoo Mail account and I will respond with thename> of my Neurofeedback practitioner. For everyone else, please respectthe> fact that my Doctor cannot accept the several calls that couldinundate> him from those looking for referrals. He will not make referrals but> would be glad to accept a phone call or an email from NFBpractitioners> in regards to protocol. My Doctor strongly suggests that one go tothe> website www.bcia.org <http://www.bcia.org/> to find a practitioner in> your area and to make sure that they are specifically accredited for> " BCN. " Another valuable website is the International Society> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .> At this time the practitioner listing section of this site is down so> check back.>

January 13, 2012

wouldlovetofindacure,

I understand your concern because of past experiences, but rest assured, neither of us has experienced any bad side effects, and in all of the research I have done concerning Neurofeedback I have never come across any data, studies, or people that showed or experienced bad side effects.

The only side effects either of us has experienced are the following: 1) Occasionally feeling a bit tired after a session. 2) Occasional irritability or minor "set back" after a session as in noticing a trigger. This is consistent with the "ebb & flow" of reactions during treatment as improvements are made that I posted earlier.

The best way to understand this is to equate the NFB session with a physical workout. After a hard workout you are sometimes invigorated but at times are tired after working out. You can also feel weaker after physical workouts until your muscles have time to repair … then you feel the benefits as the muscle fibers mend and you gain strength. Neurofeedback is similar in that it is giving your brain a workout. And when working out, while a nice walk is beneficial on a daily basis, you don't want a vigorous workout daily or it can be detrimental. The same is true with NFB, your brain needs a rest between sessions so twice to three times a week are a maximum with a day's rest between sessions. Where NFB differs from a physical workout is that studies show that as improvements are made with NFB, the improvements realized are permanent. In addition, unlike a physical workout, when NFB sessions are stopped, subtle improvements are still recognized months later.

Do not be concerned with these very minor side effects. The tiredness has never been enough to deter my son or daughter (for ADD) from attending school, affect their grades, or any other activities they are busy with. Likewise, these minor effects have never caused me to change my activities or schedule.

As I put in a previous post, I would ask your practitioner to contact my NFB practitioner, Dr. Randall Lyle, to communicate with in regarding his protocol and experience with this condition.

> >> >> >> >> > The CURE … Neurofeedback> >> > Eight months ago, on May 1, 2011, I posted here as to how> Neurofeedback> > was proving to be the "cure" for me in regards to this dreaded> > condition, referred to as Misophonia. I wrote of some extraordinary> > "successes" I was having at the time, and I wrote, "I do not> > know if this is the "cure" for all others on this site. I do> > know what it has done for me so far … it's given me the first> > real hope in defeating this after 45 years of anguish." You can> > read my original post if you go to where it says message # at the top> of> > this page, and put in 20318 (do not use a comma in the number). The> > positive progress I had recorded up to that time was after 24 sessions> > with a Neurofeedback (NFB) practitioner, and I told of our plans to> > start our 15 year-old son with NFB who also has Misophonia. To my> > disbelief, there was response from just two people on this site. That> > is why I decided to post under the heading "The Cure" in hopes> > of gaining everyone's attention.> >> > Neurofeedback has worked for both my son and me. I will stress that I> > suffered with this Misophonia condition for 45 years and to a degree> > just as strong as relayed by any of the messages posted on this site.> > Both my son and I have also dealt with various symptoms of OCD, which> > both my NFB Doctor and I feel that this condition is an element of. I> > have read past arguments of those that don't consider this OCD as> > they don't exhibit the "recognized" or usual symptoms, or> > have an official diagnosis of OCD thru the "main stream"> > physicians. Since I have not heard of others being treated> successfully> > thru other means, I believe my NFB Doctor and I have earned the> > credibility in referring to this condition as an element of OCD.> >> > If there were a rating system developed, both my wife and I would put> me> > at a strong 90 to 95% improvement from where I was several months ago.> > I would be at the 100% level as far as the total absence of the anger> > that is instantaneously present when Misophonia sufferers encounter a> > "trigger." With some of the "successes" I am enjoying> > my wife tells me that, "You are completely cured." But I> > don't accept that quite yet as there are a couple elements that I> > still notice, although ever so slightly. The terrific part of NFB is> > that although there may be an "ebb & flow" of reactions during> > treatment as improvements are made … improvements realized are> > permanent. Even more promising are studies that have shown that even> > when NFB sessions are stopped, subtle improvements are still> recognized> > months later. Our son we would put at an 80% improvement level.> > Possibly we could rate him higher yet on that scale but with people> that> > age it can be difficult to determine if some actions are unrelated to> > this condition and rather just the normal teenager hormones to be> dealt> > with. He also started with more profound "recognized" and> > typical OCD symptoms than what I did.> >> >> >> > In addition, my higher rating of improvement can be attributed to my> > having a total of 112 NFB sessions so far versus my son's 64> > sessions. With saying that I want to stress at this point not to let> > the number of sessions and the related costs deter you. I pointed out> > in my original post that I paid $4,100 for my initial 40 sessions> along> > with a beginning and ending QEEG. At the end of the initial 40> > sessions, both for myself as well as my son, my wife and I agreed that> > both of us had achieved a 60-70% improvement for our Misophonia versus> > our pre-Neurofeedback condition. Imagine how different your life> would> > be, or that of your child, if you/he/she were rid of 60-70% of the> > triggers and anger … actually more on the anger as most of that> > leaves completely and is the most pronounced effect first realized.> > Although our lives would have been so much more enjoyable even if we> had> > stopped after the initial 40 sessions, we made the decision to strive> > for perfection and be cured completely. My son has never complained> one> > time with going to the 64 sessions as he continues to realize the> subtle> > improvements he continues to make.> >> > Our NFB practitioner will be starting with the use of a program called> > the LORETA in another 3 weeks. The LORETA, which he will incorporate> in> > every third session, is like a mini-QEEG, a functional imaging> technique> > that looks directly at brain activity in "real time." The data> > to date is showing the use of the LORETA enables one to treat at a> more> > successful rate … at a quicker pace … and for more conditions!> > Naturally we are excited about this as we feel that he will be able to> > identify and treat those last stubborn areas of our brains.> >> > Over the last several months I have compiled nearly 80 pages of a> > journal chronicling the progress we have achieved thru Neurofeedback. > I> > am working on condensing this material to a version that I can post at> a> > later date so others may identify with situations we have encountered> > with triggers that have resulted in "successes" with a> > non-reaction and no anger present. In addition, our Doctor will be> > putting together a report for the Neurofeedback Journal and> profession,> > along with my input from a patient's perspective, regarding> > NFB's success with treating Misophonia.> >> > I am going to add a disclaimer to my post. All brains are different,> > and some people may not respond favorably to Neurofeedback, there are> no> > guarantees. But, we are not the only people with this condition that> > have experienced success with Neurofeedback. My Doctor recently> learned> > of an NFB practitioner in Texas that had posted on a professional> online> > forum asking if anyone had experience in treating Misophonia. This> > practitioner initially started seeing someone for ADD, but then this> > patient's parents educated him on the Misophonia their child had.> > Some time had elapsed and he posted a second time telling that he was> > having success with diminishing the Misophonia triggers.> >> > For those of you that contact a Neurofeedback practitioner and proceed> > with sessions, I will offer this advice … Do not monitor all of> the> > posts on this site closely. I say this because of the number of posts> > where people are venting and telling of new and different triggers> that> > outrage them. There have been arguments on this site in the past as> to> > if the venting is helpful. I am not entering into that argument but> > rather just giving you advice on an observation that my Neurofeedback> > Doctor, my wife, and I all agree on. We feel there is the possibility> > of one developing new triggers they have not experienced before when> > reading of them thru the venting on this site. We base this on the> fact> > that neither my wife, nor my Doctor, ever realized the manner in which> > people chew gum until coming in contact with me. It was simply> > something they were not conscience of. But now they both notice if> > people chew their gum or food in an obnoxious manner. It does not> cause> > them to get angry, but they do notice it now as readily as a> Misophonia> > victim does. For this reason I scan the headlines on this site but do> > not read any postings that appear to be from someone venting or> telling> > of new triggers.> >> > I intend to stay anonymous on this site as well as in any subsequent> > article in the NFB Journal. If it was just me I would have no issue> > with using my real name. But I will not take the chance of subjecting> > my son to ridicule from his peers if our identification were known and> > talked of openly on this site, on a Facebook page, or in the media.> > Please respect this. We all know that if we told acquaintances we had> > ADD … they would have compassion for us. If we told others that> we> > had depression, or bipolar … we would be shown compassion. In> fact> > if we say, as my Doctor and I maintain, "I have an element of> > OCD" … we will be looked upon with compassion. But to tell> > someone of Misophonia and its triggers & anger … will most often> > bring us ridicule and mean spirited provoking.> >> > We live in Eastern Iowa so those of you that are close in proximity> may> > send an email to my Yahoo Mail account and I will respond with the> name> > of my Neurofeedback practitioner. For everyone else, please respect> the> > fact that my Doctor cannot accept the several calls that could> inundate> > him from those looking for referrals. He will not make referrals but> > would be glad to accept a phone call or an email from NFB> practitioners> > in regards to protocol. My Doctor strongly suggests that one go to> the> > website www.bcia.org <http://www.bcia.org/> to find a practitioner in> > your area and to make sure that they are specifically accredited for> > "BCN." Another valuable website is the International Society> > for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .> > At this time the practitioner listing section of this site is down so> > check back.> >>

January 13, 2012

Ginger,

In regards to your statement, "He also has a lot of other issues that I'm hoping it will help." ……

Both my son and I have realized monumental improvement / relief / remedy in several areas with other issues:

In my post of 8 months ago, in case you missed it, I wrote of the first change I noticed was concerning my problem with consuming alcohol to excess. I posted that after only 10 sessions I felt this "need" lessoning. That 10th session was last March 14th. Since that time and still today I have just a single glass of red wine before dinner and rarely if ever feel the desire for a second glass.

I also posted that at about that same time I noticed diminishing anger when triggered, as well as overall absence of anger with other issues and aspects of life. This anger is not present today. As I wrote earlier, on a scale of 0 to 10 with 10 being the most severe, my anger is a 0 in regards to Misophonia. With other issues where even "normal" people can become angry … I am no exception as I can be upset, but it is short in duration, infrequent, and minor.

The other area of issues where I have had profound improvement is the near elimination of other "recognized" and obvious OCD elements.

Likewise, my son had even more severe "recognized" and obvious OCD elements and quirks than I did. It has been remarkable and a relief to all of us that these have been lessoned to a great degree and continue to improve.

One of the other benefits my son has noticed is his ability to focus more. He brought this to our attention, as well as to our NFB practitioner, after some of his earlier sessions several months ago. Just this week when my wife asked him what he would attribute the difference to in that he felt that he found it easier to study and to take tests … he didn't hesitate in saying, "Neurofeedback." My son is a sophomore in high school and is presently carrying a 4.33 grade point average. I say this because those of you that are in school, or have children in school that are afflicted with this; know that this is highly improbable when suffering with Misophonia.

Ginger … I hope this illustrates how Neurofeedback can remedy other maladies and conditions, and improve optimal health beyond that which you are originally seeking treatment for.

I commend you, as I do others, for moving ahead with Neurofeedback. As I've stated in other posts, I would encourage you to have your practitioner communicate with my NFB practitioner in regards to protocol and experience in treating this condition.

> > > > > > > > > > The CURE … Neurofeedback > > > > Eight months ago, on May 1, 2011, I posted here as to how > Neurofeedback > > was proving to be the "cure" for me in regards to this dreaded > > condition, referred to as Misophonia. I wrote of some extraordinary > > "successes" I was having at the time, and I wrote, "I do not > > know if this is the "cure" for all others on this site. I do > > know what it has done for me so far … it's given me the first > > real hope in defeating this after 45 years of anguish." You can > > read my original post if you go to where it says message # at the top > of > > this page, and put in 20318 (do not use a comma in the number). The > > positive progress I had recorded up to that time was after 24 sessions > > with a Neurofeedback (NFB) practitioner, and I told of our plans to > > start our 15 year-old son with NFB who also has Misophonia. To my > > disbelief, there was response from just two people on this site. That > > is why I decided to post under the heading "The Cure" in hopes > > of gaining everyone's attention. > > > > Neurofeedback has worked for both my son and me. I will stress that I > > suffered with this Misophonia condition for 45 years and to a degree > > just as strong as relayed by any of the messages posted on this site. > > Both my son and I have also dealt with various symptoms of OCD, which > > both my NFB Doctor and I feel that this condition is an element of. I > > have read past arguments of those that don't consider this OCD as > > they don't exhibit the "recognized" or usual symptoms, or > > have an official diagnosis of OCD thru the "main stream" > > physicians. Since I have not heard of others being treated > successfully > > thru other means, I believe my NFB Doctor and I have earned the > > credibility in referring to this condition as an element of OCD. > > > > If there were a rating system developed, both my wife and I would put > me > > at a strong 90 to 95% improvement from where I was several months ago. > > I would be at the 100% level as far as the total absence of the anger > > that is instantaneously present when Misophonia sufferers encounter a > > "trigger." With some of the "successes" I am enjoying > > my wife tells me that, "You are completely cured." But I > > don't accept that quite yet as there are a couple elements that I > > still notice, although ever so slightly. The terrific part of NFB is > > that although there may be an "ebb & flow" of reactions during > > treatment as improvements are made … improvements realized are > > permanent. Even more promising are studies that have shown that even > > when NFB sessions are stopped, subtle improvements are still > recognized > > months later. Our son we would put at an 80% improvement level. > > Possibly we could rate him higher yet on that scale but with people > that > > age it can be difficult to determine if some actions are unrelated to > > this condition and rather just the normal teenager hormones to be > dealt > > with. He also started with more profound "recognized" and > > typical OCD symptoms than what I did. > > > > > > > > In addition, my higher rating of improvement can be attributed to my > > having a total of 112 NFB sessions so far versus my son's 64 > > sessions. With saying that I want to stress at this point not to let > > the number of sessions and the related costs deter you. I pointed out > > in my original post that I paid $4,100 for my initial 40 sessions > along > > with a beginning and ending QEEG. At the end of the initial 40 > > sessions, both for myself as well as my son, my wife and I agreed that > > both of us had achieved a 60-70% improvement for our Misophonia versus > > our pre-Neurofeedback condition. Imagine how different your life > would > > be, or that of your child, if you/he/she were rid of 60-70% of the > > triggers and anger … actually more on the anger as most of that > > leaves completely and is the most pronounced effect first realized. > > Although our lives would have been so much more enjoyable even if we > had > > stopped after the initial 40 sessions, we made the decision to strive > > for perfection and be cured completely. My son has never complained > one > > time with going to the 64 sessions as he continues to realize the > subtle > > improvements he continues to make. > > > > Our NFB practitioner will be starting with the use of a program called > > the LORETA in another 3 weeks. The LORETA, which he will incorporate > in > > every third session, is like a mini-QEEG, a functional imaging > technique > > that looks directly at brain activity in "real time." The data > > to date is showing the use of the LORETA enables one to treat at a > more > > successful rate … at a quicker pace … and for more conditions! > > Naturally we are excited about this as we feel that he will be able to > > identify and treat those last stubborn areas of our brains. > > > > Over the last several months I have compiled nearly 80 pages of a > > journal chronicling the progress we have achieved thru Neurofeedback. > I > > am working on condensing this material to a version that I can post at > a > > later date so others may identify with situations we have encountered > > with triggers that have resulted in "successes" with a > > non-reaction and no anger present. In addition, our Doctor will be > > putting together a report for the Neurofeedback Journal and > profession, > > along with my input from a patient's perspective, regarding > > NFB's success with treating Misophonia. > > > > I am going to add a disclaimer to my post. All brains are different, > > and some people may not respond favorably to Neurofeedback, there are > no > > guarantees. But, we are not the only people with this condition that > > have experienced success with Neurofeedback. My Doctor recently > learned > > of an NFB practitioner in Texas that had posted on a professional > online > > forum asking if anyone had experience in treating Misophonia. This > > practitioner initially started seeing someone for ADD, but then this > > patient's parents educated him on the Misophonia their child had. > > Some time had elapsed and he posted a second time telling that he was > > having success with diminishing the Misophonia triggers. > > > > For those of you that contact a Neurofeedback practitioner and proceed > > with sessions, I will offer this advice … Do not monitor all of > the > > posts on this site closely. I say this because of the number of posts > > where people are venting and telling of new and different triggers > that > > outrage them. There have been arguments on this site in the past as > to > > if the venting is helpful. I am not entering into that argument but > > rather just giving you advice on an observation that my Neurofeedback > > Doctor, my wife, and I all agree on. We feel there is the possibility > > of one developing new triggers they have not experienced before when > > reading of them thru the venting on this site. We base this on the > fact > > that neither my wife, nor my Doctor, ever realized the manner in which > > people chew gum until coming in contact with me. It was simply > > something they were not conscience of. But now they both notice if > > people chew their gum or food in an obnoxious manner. It does not > cause > > them to get angry, but they do notice it now as readily as a > Misophonia > > victim does. For this reason I scan the headlines on this site but do > > not read any postings that appear to be from someone venting or > telling > > of new triggers. > > > > I intend to stay anonymous on this site as well as in any subsequent > > article in the NFB Journal. If it was just me I would have no issue > > with using my real name. But I will not take the chance of subjecting > > my son to ridicule from his peers if our identification were known and > > talked of openly on this site, on a Facebook page, or in the media. > > Please respect this. We all know that if we told acquaintances we had > > ADD … they would have compassion for us. If we told others that > we > > had depression, or bipolar … we would be shown compassion. In > fact > > if we say, as my Doctor and I maintain, "I have an element of > > OCD" … we will be looked upon with compassion. But to tell > > someone of Misophonia and its triggers & anger … will most often > > bring us ridicule and mean spirited provoking. > > > > We live in Eastern Iowa so those of you that are close in proximity > may > > send an email to my Yahoo Mail account and I will respond with the > name > > of my Neurofeedback practitioner. For everyone else, please respect > the > > fact that my Doctor cannot accept the several calls that could > inundate > > him from those looking for referrals. He will not make referrals but > > would be glad to accept a phone call or an email from NFB > practitioners > > in regards to protocol. My Doctor strongly suggests that one go to > the > > website www.bcia.org <http://www.bcia.org/> to find a practitioner in > > your area and to make sure that they are specifically accredited for > > "BCN." Another valuable website is the International Society > > for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> . > > At this time the practitioner listing section of this site is down so > > check back. > >>

January 13, 2012