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Thank you very much for the info. My new year's resolution is to find a NFB practitioner and start this. While I completely disagree that my misophonia is OCD, I really don't care about labels, I'm more interested in treatment.Thanks for your posts! Can't wait to find someone and try this out.Heidi

The CURE … NeurofeedbackEight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention.Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD.If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia.I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers.For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers.I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often bring us ridicule and mean spirited provoking.We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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Thank you very much for the info. My new year's resolution is to find a NFB practitioner and start this. While I completely disagree that my misophonia is OCD, I really don't care about labels, I'm more interested in treatment.Thanks for your posts! Can't wait to find someone and try this out.Heidi

The CURE … NeurofeedbackEight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention.Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD.If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia.I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers.For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers.I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often bring us ridicule and mean spirited provoking.We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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Thank you very much for the info. My new year's resolution is to find a NFB practitioner and start this. While I completely disagree that my misophonia is OCD, I really don't care about labels, I'm more interested in treatment.Thanks for your posts! Can't wait to find someone and try this out.Heidi

The CURE … NeurofeedbackEight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention.Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD.If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia.I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers.For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers.I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often bring us ridicule and mean spirited provoking.We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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Thank you so much for the valuable feedback! To: Soundsensitivity Sent: Saturday, January 7, 2012 4:56 PM Subject: The CURE ... Neurofeedback

The CURE … Neurofeedback Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also

has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention. Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD. If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle

improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most

pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia. I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers. For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in

which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers. I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often

bring us ridicule and mean spirited provoking. We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited

for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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Thank you so much for the valuable feedback! To: Soundsensitivity Sent: Saturday, January 7, 2012 4:56 PM Subject: The CURE ... Neurofeedback

The CURE … Neurofeedback Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also

has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention. Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD. If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle

improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most

pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia. I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers. For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in

which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers. I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often

bring us ridicule and mean spirited provoking. We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited

for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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Share on other sites

Thank you so much for the valuable feedback! To: Soundsensitivity Sent: Saturday, January 7, 2012 4:56 PM Subject: The CURE ... Neurofeedback

The CURE … Neurofeedback Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also

has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention. Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD. If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle

improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most

pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia. I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers. For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in

which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers. I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often

bring us ridicule and mean spirited provoking. We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited

for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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Share on other sites

I really appreciate this post. Thanks so much.I too, have posted items that

have helped me but received little response. Actually, I stopped coming to the

group for the reasons you cited( risk of obtaining new triggers, lack of

response to possible solutions).

>

>

>

>

> The CURE … Neurofeedback

>

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback

> was proving to be the " cure " for me in regards to this dreaded

> condition, referred to as Misophonia. I wrote of some extraordinary

> " successes " I was having at the time, and I wrote, " I do not

> know if this is the " cure " for all others on this site. I do

> know what it has done for me so far … it's given me the first

> real hope in defeating this after 45 years of anguish. " You can

> read my original post if you go to where it says message # at the top of

> this page, and put in 20318 (do not use a comma in the number). The

> positive progress I had recorded up to that time was after 24 sessions

> with a Neurofeedback (NFB) practitioner, and I told of our plans to

> start our 15 year-old son with NFB who also has Misophonia. To my

> disbelief, there was response from just two people on this site. That

> is why I decided to post under the heading " The Cure " in hopes

> of gaining everyone's attention.

>

> Neurofeedback has worked for both my son and me. I will stress that I

> suffered with this Misophonia condition for 45 years and to a degree

> just as strong as relayed by any of the messages posted on this site.

> Both my son and I have also dealt with various symptoms of OCD, which

> both my NFB Doctor and I feel that this condition is an element of. I

> have read past arguments of those that don't consider this OCD as

> they don't exhibit the " recognized " or usual symptoms, or

> have an official diagnosis of OCD thru the " main stream "

> physicians. Since I have not heard of others being treated successfully

> thru other means, I believe my NFB Doctor and I have earned the

> credibility in referring to this condition as an element of OCD.

>

> If there were a rating system developed, both my wife and I would put me

> at a strong 90 to 95% improvement from where I was several months ago.

> I would be at the 100% level as far as the total absence of the anger

> that is instantaneously present when Misophonia sufferers encounter a

> " trigger. " With some of the " successes " I am enjoying

> my wife tells me that, " You are completely cured. " But I

> don't accept that quite yet as there are a couple elements that I

> still notice, although ever so slightly. The terrific part of NFB is

> that although there may be an " ebb & flow " of reactions during

> treatment as improvements are made … improvements realized are

> permanent. Even more promising are studies that have shown that even

> when NFB sessions are stopped, subtle improvements are still recognized

> months later. Our son we would put at an 80% improvement level.

> Possibly we could rate him higher yet on that scale but with people that

> age it can be difficult to determine if some actions are unrelated to

> this condition and rather just the normal teenager hormones to be dealt

> with. He also started with more profound " recognized " and

> typical OCD symptoms than what I did.

>

>

>

> In addition, my higher rating of improvement can be attributed to my

> having a total of 112 NFB sessions so far versus my son's 64

> sessions. With saying that I want to stress at this point not to let

> the number of sessions and the related costs deter you. I pointed out

> in my original post that I paid $4,100 for my initial 40 sessions along

> with a beginning and ending QEEG. At the end of the initial 40

> sessions, both for myself as well as my son, my wife and I agreed that

> both of us had achieved a 60-70% improvement for our Misophonia versus

> our pre-Neurofeedback condition. Imagine how different your life would

> be, or that of your child, if you/he/she were rid of 60-70% of the

> triggers and anger … actually more on the anger as most of that

> leaves completely and is the most pronounced effect first realized.

> Although our lives would have been so much more enjoyable even if we had

> stopped after the initial 40 sessions, we made the decision to strive

> for perfection and be cured completely. My son has never complained one

> time with going to the 64 sessions as he continues to realize the subtle

> improvements he continues to make.

>

> Our NFB practitioner will be starting with the use of a program called

> the LORETA in another 3 weeks. The LORETA, which he will incorporate in

> every third session, is like a mini-QEEG, a functional imaging technique

> that looks directly at brain activity in " real time. " The data

> to date is showing the use of the LORETA enables one to treat at a more

> successful rate … at a quicker pace … and for more conditions!

> Naturally we are excited about this as we feel that he will be able to

> identify and treat those last stubborn areas of our brains.

>

> Over the last several months I have compiled nearly 80 pages of a

> journal chronicling the progress we have achieved thru Neurofeedback. I

> am working on condensing this material to a version that I can post at a

> later date so others may identify with situations we have encountered

> with triggers that have resulted in " successes " with a

> non-reaction and no anger present. In addition, our Doctor will be

> putting together a report for the Neurofeedback Journal and profession,

> along with my input from a patient's perspective, regarding

> NFB's success with treating Misophonia.

>

> I am going to add a disclaimer to my post. All brains are different,

> and some people may not respond favorably to Neurofeedback, there are no

> guarantees. But, we are not the only people with this condition that

> have experienced success with Neurofeedback. My Doctor recently learned

> of an NFB practitioner in Texas that had posted on a professional online

> forum asking if anyone had experience in treating Misophonia. This

> practitioner initially started seeing someone for ADD, but then this

> patient's parents educated him on the Misophonia their child had.

> Some time had elapsed and he posted a second time telling that he was

> having success with diminishing the Misophonia triggers.

>

> For those of you that contact a Neurofeedback practitioner and proceed

> with sessions, I will offer this advice … Do not monitor all of the

> posts on this site closely. I say this because of the number of posts

> where people are venting and telling of new and different triggers that

> outrage them. There have been arguments on this site in the past as to

> if the venting is helpful. I am not entering into that argument but

> rather just giving you advice on an observation that my Neurofeedback

> Doctor, my wife, and I all agree on. We feel there is the possibility

> of one developing new triggers they have not experienced before when

> reading of them thru the venting on this site. We base this on the fact

> that neither my wife, nor my Doctor, ever realized the manner in which

> people chew gum until coming in contact with me. It was simply

> something they were not conscience of. But now they both notice if

> people chew their gum or food in an obnoxious manner. It does not cause

> them to get angry, but they do notice it now as readily as a Misophonia

> victim does. For this reason I scan the headlines on this site but do

> not read any postings that appear to be from someone venting or telling

> of new triggers.

>

> I intend to stay anonymous on this site as well as in any subsequent

> article in the NFB Journal. If it was just me I would have no issue

> with using my real name. But I will not take the chance of subjecting

> my son to ridicule from his peers if our identification were known and

> talked of openly on this site, on a Facebook page, or in the media.

> Please respect this. We all know that if we told acquaintances we had

> ADD … they would have compassion for us. If we told others that we

> had depression, or bipolar … we would be shown compassion. In fact

> if we say, as my Doctor and I maintain, " I have an element of

> OCD " … we will be looked upon with compassion. But to tell

> someone of Misophonia and its triggers & anger … will most often

> bring us ridicule and mean spirited provoking.

>

> We live in Eastern Iowa so those of you that are close in proximity may

> send an email to my Yahoo Mail account and I will respond with the name

> of my Neurofeedback practitioner. For everyone else, please respect the

> fact that my Doctor cannot accept the several calls that could inundate

> him from those looking for referrals. He will not make referrals but

> would be glad to accept a phone call or an email from NFB practitioners

> in regards to protocol. My Doctor strongly suggests that one go to the

> website www.bcia.org <http://www.bcia.org/> to find a practitioner in

> your area and to make sure that they are specifically accredited for

> " BCN. " Another valuable website is the International Society

> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .

> At this time the practitioner listing section of this site is down so

> check back.

>

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Share on other sites

I really appreciate this post. Thanks so much.I too, have posted items that

have helped me but received little response. Actually, I stopped coming to the

group for the reasons you cited( risk of obtaining new triggers, lack of

response to possible solutions).

>

>

>

>

> The CURE … Neurofeedback

>

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback

> was proving to be the " cure " for me in regards to this dreaded

> condition, referred to as Misophonia. I wrote of some extraordinary

> " successes " I was having at the time, and I wrote, " I do not

> know if this is the " cure " for all others on this site. I do

> know what it has done for me so far … it's given me the first

> real hope in defeating this after 45 years of anguish. " You can

> read my original post if you go to where it says message # at the top of

> this page, and put in 20318 (do not use a comma in the number). The

> positive progress I had recorded up to that time was after 24 sessions

> with a Neurofeedback (NFB) practitioner, and I told of our plans to

> start our 15 year-old son with NFB who also has Misophonia. To my

> disbelief, there was response from just two people on this site. That

> is why I decided to post under the heading " The Cure " in hopes

> of gaining everyone's attention.

>

> Neurofeedback has worked for both my son and me. I will stress that I

> suffered with this Misophonia condition for 45 years and to a degree

> just as strong as relayed by any of the messages posted on this site.

> Both my son and I have also dealt with various symptoms of OCD, which

> both my NFB Doctor and I feel that this condition is an element of. I

> have read past arguments of those that don't consider this OCD as

> they don't exhibit the " recognized " or usual symptoms, or

> have an official diagnosis of OCD thru the " main stream "

> physicians. Since I have not heard of others being treated successfully

> thru other means, I believe my NFB Doctor and I have earned the

> credibility in referring to this condition as an element of OCD.

>

> If there were a rating system developed, both my wife and I would put me

> at a strong 90 to 95% improvement from where I was several months ago.

> I would be at the 100% level as far as the total absence of the anger

> that is instantaneously present when Misophonia sufferers encounter a

> " trigger. " With some of the " successes " I am enjoying

> my wife tells me that, " You are completely cured. " But I

> don't accept that quite yet as there are a couple elements that I

> still notice, although ever so slightly. The terrific part of NFB is

> that although there may be an " ebb & flow " of reactions during

> treatment as improvements are made … improvements realized are

> permanent. Even more promising are studies that have shown that even

> when NFB sessions are stopped, subtle improvements are still recognized

> months later. Our son we would put at an 80% improvement level.

> Possibly we could rate him higher yet on that scale but with people that

> age it can be difficult to determine if some actions are unrelated to

> this condition and rather just the normal teenager hormones to be dealt

> with. He also started with more profound " recognized " and

> typical OCD symptoms than what I did.

>

>

>

> In addition, my higher rating of improvement can be attributed to my

> having a total of 112 NFB sessions so far versus my son's 64

> sessions. With saying that I want to stress at this point not to let

> the number of sessions and the related costs deter you. I pointed out

> in my original post that I paid $4,100 for my initial 40 sessions along

> with a beginning and ending QEEG. At the end of the initial 40

> sessions, both for myself as well as my son, my wife and I agreed that

> both of us had achieved a 60-70% improvement for our Misophonia versus

> our pre-Neurofeedback condition. Imagine how different your life would

> be, or that of your child, if you/he/she were rid of 60-70% of the

> triggers and anger … actually more on the anger as most of that

> leaves completely and is the most pronounced effect first realized.

> Although our lives would have been so much more enjoyable even if we had

> stopped after the initial 40 sessions, we made the decision to strive

> for perfection and be cured completely. My son has never complained one

> time with going to the 64 sessions as he continues to realize the subtle

> improvements he continues to make.

>

> Our NFB practitioner will be starting with the use of a program called

> the LORETA in another 3 weeks. The LORETA, which he will incorporate in

> every third session, is like a mini-QEEG, a functional imaging technique

> that looks directly at brain activity in " real time. " The data

> to date is showing the use of the LORETA enables one to treat at a more

> successful rate … at a quicker pace … and for more conditions!

> Naturally we are excited about this as we feel that he will be able to

> identify and treat those last stubborn areas of our brains.

>

> Over the last several months I have compiled nearly 80 pages of a

> journal chronicling the progress we have achieved thru Neurofeedback. I

> am working on condensing this material to a version that I can post at a

> later date so others may identify with situations we have encountered

> with triggers that have resulted in " successes " with a

> non-reaction and no anger present. In addition, our Doctor will be

> putting together a report for the Neurofeedback Journal and profession,

> along with my input from a patient's perspective, regarding

> NFB's success with treating Misophonia.

>

> I am going to add a disclaimer to my post. All brains are different,

> and some people may not respond favorably to Neurofeedback, there are no

> guarantees. But, we are not the only people with this condition that

> have experienced success with Neurofeedback. My Doctor recently learned

> of an NFB practitioner in Texas that had posted on a professional online

> forum asking if anyone had experience in treating Misophonia. This

> practitioner initially started seeing someone for ADD, but then this

> patient's parents educated him on the Misophonia their child had.

> Some time had elapsed and he posted a second time telling that he was

> having success with diminishing the Misophonia triggers.

>

> For those of you that contact a Neurofeedback practitioner and proceed

> with sessions, I will offer this advice … Do not monitor all of the

> posts on this site closely. I say this because of the number of posts

> where people are venting and telling of new and different triggers that

> outrage them. There have been arguments on this site in the past as to

> if the venting is helpful. I am not entering into that argument but

> rather just giving you advice on an observation that my Neurofeedback

> Doctor, my wife, and I all agree on. We feel there is the possibility

> of one developing new triggers they have not experienced before when

> reading of them thru the venting on this site. We base this on the fact

> that neither my wife, nor my Doctor, ever realized the manner in which

> people chew gum until coming in contact with me. It was simply

> something they were not conscience of. But now they both notice if

> people chew their gum or food in an obnoxious manner. It does not cause

> them to get angry, but they do notice it now as readily as a Misophonia

> victim does. For this reason I scan the headlines on this site but do

> not read any postings that appear to be from someone venting or telling

> of new triggers.

>

> I intend to stay anonymous on this site as well as in any subsequent

> article in the NFB Journal. If it was just me I would have no issue

> with using my real name. But I will not take the chance of subjecting

> my son to ridicule from his peers if our identification were known and

> talked of openly on this site, on a Facebook page, or in the media.

> Please respect this. We all know that if we told acquaintances we had

> ADD … they would have compassion for us. If we told others that we

> had depression, or bipolar … we would be shown compassion. In fact

> if we say, as my Doctor and I maintain, " I have an element of

> OCD " … we will be looked upon with compassion. But to tell

> someone of Misophonia and its triggers & anger … will most often

> bring us ridicule and mean spirited provoking.

>

> We live in Eastern Iowa so those of you that are close in proximity may

> send an email to my Yahoo Mail account and I will respond with the name

> of my Neurofeedback practitioner. For everyone else, please respect the

> fact that my Doctor cannot accept the several calls that could inundate

> him from those looking for referrals. He will not make referrals but

> would be glad to accept a phone call or an email from NFB practitioners

> in regards to protocol. My Doctor strongly suggests that one go to the

> website www.bcia.org <http://www.bcia.org/> to find a practitioner in

> your area and to make sure that they are specifically accredited for

> " BCN. " Another valuable website is the International Society

> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .

> At this time the practitioner listing section of this site is down so

> check back.

>

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Share on other sites

I love reading about solutions but I don't always reply just cuz there's so much traffic. But if it's something I think I can implement I do it. Please don't stop posting if you've got something positive, everyone here needs it. :-)

I really appreciate this post. Thanks so much.I too, have posted items that have helped me but received little response. Actually, I stopped coming to the group for the reasons you cited( risk of obtaining new triggers, lack of response to possible solutions).

>

>

>

>

> The CURE … Neurofeedback

>

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback

> was proving to be the "cure" for me in regards to this dreaded

> condition, referred to as Misophonia. I wrote of some extraordinary

> "successes" I was having at the time, and I wrote, "I do not

> know if this is the "cure" for all others on this site. I do

> know what it has done for me so far … it's given me the first

> real hope in defeating this after 45 years of anguish." You can

> read my original post if you go to where it says message # at the top of

> this page, and put in 20318 (do not use a comma in the number). The

> positive progress I had recorded up to that time was after 24 sessions

> with a Neurofeedback (NFB) practitioner, and I told of our plans to

> start our 15 year-old son with NFB who also has Misophonia. To my

> disbelief, there was response from just two people on this site. That

> is why I decided to post under the heading "The Cure" in hopes

> of gaining everyone's attention.

>

> Neurofeedback has worked for both my son and me. I will stress that I

> suffered with this Misophonia condition for 45 years and to a degree

> just as strong as relayed by any of the messages posted on this site.

> Both my son and I have also dealt with various symptoms of OCD, which

> both my NFB Doctor and I feel that this condition is an element of. I

> have read past arguments of those that don't consider this OCD as

> they don't exhibit the "recognized" or usual symptoms, or

> have an official diagnosis of OCD thru the "main stream"

> physicians. Since I have not heard of others being treated successfully

> thru other means, I believe my NFB Doctor and I have earned the

> credibility in referring to this condition as an element of OCD.

>

> If there were a rating system developed, both my wife and I would put me

> at a strong 90 to 95% improvement from where I was several months ago.

> I would be at the 100% level as far as the total absence of the anger

> that is instantaneously present when Misophonia sufferers encounter a

> "trigger." With some of the "successes" I am enjoying

> my wife tells me that, "You are completely cured." But I

> don't accept that quite yet as there are a couple elements that I

> still notice, although ever so slightly. The terrific part of NFB is

> that although there may be an "ebb & flow" of reactions during

> treatment as improvements are made … improvements realized are

> permanent. Even more promising are studies that have shown that even

> when NFB sessions are stopped, subtle improvements are still recognized

> months later. Our son we would put at an 80% improvement level.

> Possibly we could rate him higher yet on that scale but with people that

> age it can be difficult to determine if some actions are unrelated to

> this condition and rather just the normal teenager hormones to be dealt

> with. He also started with more profound "recognized" and

> typical OCD symptoms than what I did.

>

>

>

> In addition, my higher rating of improvement can be attributed to my

> having a total of 112 NFB sessions so far versus my son's 64

> sessions. With saying that I want to stress at this point not to let

> the number of sessions and the related costs deter you. I pointed out

> in my original post that I paid $4,100 for my initial 40 sessions along

> with a beginning and ending QEEG. At the end of the initial 40

> sessions, both for myself as well as my son, my wife and I agreed that

> both of us had achieved a 60-70% improvement for our Misophonia versus

> our pre-Neurofeedback condition. Imagine how different your life would

> be, or that of your child, if you/he/she were rid of 60-70% of the

> triggers and anger … actually more on the anger as most of that

> leaves completely and is the most pronounced effect first realized.

> Although our lives would have been so much more enjoyable even if we had

> stopped after the initial 40 sessions, we made the decision to strive

> for perfection and be cured completely. My son has never complained one

> time with going to the 64 sessions as he continues to realize the subtle

> improvements he continues to make.

>

> Our NFB practitioner will be starting with the use of a program called

> the LORETA in another 3 weeks. The LORETA, which he will incorporate in

> every third session, is like a mini-QEEG, a functional imaging technique

> that looks directly at brain activity in "real time." The data

> to date is showing the use of the LORETA enables one to treat at a more

> successful rate … at a quicker pace … and for more conditions!

> Naturally we are excited about this as we feel that he will be able to

> identify and treat those last stubborn areas of our brains.

>

> Over the last several months I have compiled nearly 80 pages of a

> journal chronicling the progress we have achieved thru Neurofeedback. I

> am working on condensing this material to a version that I can post at a

> later date so others may identify with situations we have encountered

> with triggers that have resulted in "successes" with a

> non-reaction and no anger present. In addition, our Doctor will be

> putting together a report for the Neurofeedback Journal and profession,

> along with my input from a patient's perspective, regarding

> NFB's success with treating Misophonia.

>

> I am going to add a disclaimer to my post. All brains are different,

> and some people may not respond favorably to Neurofeedback, there are no

> guarantees. But, we are not the only people with this condition that

> have experienced success with Neurofeedback. My Doctor recently learned

> of an NFB practitioner in Texas that had posted on a professional online

> forum asking if anyone had experience in treating Misophonia. This

> practitioner initially started seeing someone for ADD, but then this

> patient's parents educated him on the Misophonia their child had.

> Some time had elapsed and he posted a second time telling that he was

> having success with diminishing the Misophonia triggers.

>

> For those of you that contact a Neurofeedback practitioner and proceed

> with sessions, I will offer this advice … Do not monitor all of the

> posts on this site closely. I say this because of the number of posts

> where people are venting and telling of new and different triggers that

> outrage them. There have been arguments on this site in the past as to

> if the venting is helpful. I am not entering into that argument but

> rather just giving you advice on an observation that my Neurofeedback

> Doctor, my wife, and I all agree on. We feel there is the possibility

> of one developing new triggers they have not experienced before when

> reading of them thru the venting on this site. We base this on the fact

> that neither my wife, nor my Doctor, ever realized the manner in which

> people chew gum until coming in contact with me. It was simply

> something they were not conscience of. But now they both notice if

> people chew their gum or food in an obnoxious manner. It does not cause

> them to get angry, but they do notice it now as readily as a Misophonia

> victim does. For this reason I scan the headlines on this site but do

> not read any postings that appear to be from someone venting or telling

> of new triggers.

>

> I intend to stay anonymous on this site as well as in any subsequent

> article in the NFB Journal. If it was just me I would have no issue

> with using my real name. But I will not take the chance of subjecting

> my son to ridicule from his peers if our identification were known and

> talked of openly on this site, on a Facebook page, or in the media.

> Please respect this. We all know that if we told acquaintances we had

> ADD … they would have compassion for us. If we told others that we

> had depression, or bipolar … we would be shown compassion. In fact

> if we say, as my Doctor and I maintain, "I have an element of

> OCD" … we will be looked upon with compassion. But to tell

> someone of Misophonia and its triggers & anger … will most often

> bring us ridicule and mean spirited provoking.

>

> We live in Eastern Iowa so those of you that are close in proximity may

> send an email to my Yahoo Mail account and I will respond with the name

> of my Neurofeedback practitioner. For everyone else, please respect the

> fact that my Doctor cannot accept the several calls that could inundate

> him from those looking for referrals. He will not make referrals but

> would be glad to accept a phone call or an email from NFB practitioners

> in regards to protocol. My Doctor strongly suggests that one go to the

> website www.bcia.org <http://www.bcia.org/> to find a practitioner in

> your area and to make sure that they are specifically accredited for

> "BCN." Another valuable website is the International Society

> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .

> At this time the practitioner listing section of this site is down so

> check back.

>

Link to comment
Share on other sites

This is very interesting. I've found a practitioner in my area, but I'd like to

write her an e-mail, explaining the problem and asking if she thinks she'd be

able to help me, before I make an appointment. Do you have any suggestions about

how to explain misophonia to her? How did you explain it to your doctor?

Also, do you need a referral from your primary physician to do neurofeedback?

Best wishes and thanks for telling us about this,

Kate

>

>

>

>

> The CURE … Neurofeedback

>

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback

> was proving to be the " cure " for me in regards to this dreaded

> condition, referred to as Misophonia. I wrote of some extraordinary

> " successes " I was having at the time, and I wrote, " I do not

> know if this is the " cure " for all others on this site. I do

> know what it has done for me so far … it's given me the first

> real hope in defeating this after 45 years of anguish. " You can

> read my original post if you go to where it says message # at the top of

> this page, and put in 20318 (do not use a comma in the number). The

> positive progress I had recorded up to that time was after 24 sessions

> with a Neurofeedback (NFB) practitioner, and I told of our plans to

> start our 15 year-old son with NFB who also has Misophonia. To my

> disbelief, there was response from just two people on this site. That

> is why I decided to post under the heading " The Cure " in hopes

> of gaining everyone's attention.

>

> Neurofeedback has worked for both my son and me. I will stress that I

> suffered with this Misophonia condition for 45 years and to a degree

> just as strong as relayed by any of the messages posted on this site.

> Both my son and I have also dealt with various symptoms of OCD, which

> both my NFB Doctor and I feel that this condition is an element of. I

> have read past arguments of those that don't consider this OCD as

> they don't exhibit the " recognized " or usual symptoms, or

> have an official diagnosis of OCD thru the " main stream "

> physicians. Since I have not heard of others being treated successfully

> thru other means, I believe my NFB Doctor and I have earned the

> credibility in referring to this condition as an element of OCD.

>

> If there were a rating system developed, both my wife and I would put me

> at a strong 90 to 95% improvement from where I was several months ago.

> I would be at the 100% level as far as the total absence of the anger

> that is instantaneously present when Misophonia sufferers encounter a

> " trigger. " With some of the " successes " I am enjoying

> my wife tells me that, " You are completely cured. " But I

> don't accept that quite yet as there are a couple elements that I

> still notice, although ever so slightly. The terrific part of NFB is

> that although there may be an " ebb & flow " of reactions during

> treatment as improvements are made … improvements realized are

> permanent. Even more promising are studies that have shown that even

> when NFB sessions are stopped, subtle improvements are still recognized

> months later. Our son we would put at an 80% improvement level.

> Possibly we could rate him higher yet on that scale but with people that

> age it can be difficult to determine if some actions are unrelated to

> this condition and rather just the normal teenager hormones to be dealt

> with. He also started with more profound " recognized " and

> typical OCD symptoms than what I did.

>

>

>

> In addition, my higher rating of improvement can be attributed to my

> having a total of 112 NFB sessions so far versus my son's 64

> sessions. With saying that I want to stress at this point not to let

> the number of sessions and the related costs deter you. I pointed out

> in my original post that I paid $4,100 for my initial 40 sessions along

> with a beginning and ending QEEG. At the end of the initial 40

> sessions, both for myself as well as my son, my wife and I agreed that

> both of us had achieved a 60-70% improvement for our Misophonia versus

> our pre-Neurofeedback condition. Imagine how different your life would

> be, or that of your child, if you/he/she were rid of 60-70% of the

> triggers and anger … actually more on the anger as most of that

> leaves completely and is the most pronounced effect first realized.

> Although our lives would have been so much more enjoyable even if we had

> stopped after the initial 40 sessions, we made the decision to strive

> for perfection and be cured completely. My son has never complained one

> time with going to the 64 sessions as he continues to realize the subtle

> improvements he continues to make.

>

> Our NFB practitioner will be starting with the use of a program called

> the LORETA in another 3 weeks. The LORETA, which he will incorporate in

> every third session, is like a mini-QEEG, a functional imaging technique

> that looks directly at brain activity in " real time. " The data

> to date is showing the use of the LORETA enables one to treat at a more

> successful rate … at a quicker pace … and for more conditions!

> Naturally we are excited about this as we feel that he will be able to

> identify and treat those last stubborn areas of our brains.

>

> Over the last several months I have compiled nearly 80 pages of a

> journal chronicling the progress we have achieved thru Neurofeedback. I

> am working on condensing this material to a version that I can post at a

> later date so others may identify with situations we have encountered

> with triggers that have resulted in " successes " with a

> non-reaction and no anger present. In addition, our Doctor will be

> putting together a report for the Neurofeedback Journal and profession,

> along with my input from a patient's perspective, regarding

> NFB's success with treating Misophonia.

>

> I am going to add a disclaimer to my post. All brains are different,

> and some people may not respond favorably to Neurofeedback, there are no

> guarantees. But, we are not the only people with this condition that

> have experienced success with Neurofeedback. My Doctor recently learned

> of an NFB practitioner in Texas that had posted on a professional online

> forum asking if anyone had experience in treating Misophonia. This

> practitioner initially started seeing someone for ADD, but then this

> patient's parents educated him on the Misophonia their child had.

> Some time had elapsed and he posted a second time telling that he was

> having success with diminishing the Misophonia triggers.

>

> For those of you that contact a Neurofeedback practitioner and proceed

> with sessions, I will offer this advice … Do not monitor all of the

> posts on this site closely. I say this because of the number of posts

> where people are venting and telling of new and different triggers that

> outrage them. There have been arguments on this site in the past as to

> if the venting is helpful. I am not entering into that argument but

> rather just giving you advice on an observation that my Neurofeedback

> Doctor, my wife, and I all agree on. We feel there is the possibility

> of one developing new triggers they have not experienced before when

> reading of them thru the venting on this site. We base this on the fact

> that neither my wife, nor my Doctor, ever realized the manner in which

> people chew gum until coming in contact with me. It was simply

> something they were not conscience of. But now they both notice if

> people chew their gum or food in an obnoxious manner. It does not cause

> them to get angry, but they do notice it now as readily as a Misophonia

> victim does. For this reason I scan the headlines on this site but do

> not read any postings that appear to be from someone venting or telling

> of new triggers.

>

> I intend to stay anonymous on this site as well as in any subsequent

> article in the NFB Journal. If it was just me I would have no issue

> with using my real name. But I will not take the chance of subjecting

> my son to ridicule from his peers if our identification were known and

> talked of openly on this site, on a Facebook page, or in the media.

> Please respect this. We all know that if we told acquaintances we had

> ADD … they would have compassion for us. If we told others that we

> had depression, or bipolar … we would be shown compassion. In fact

> if we say, as my Doctor and I maintain, " I have an element of

> OCD " … we will be looked upon with compassion. But to tell

> someone of Misophonia and its triggers & anger … will most often

> bring us ridicule and mean spirited provoking.

>

> We live in Eastern Iowa so those of you that are close in proximity may

> send an email to my Yahoo Mail account and I will respond with the name

> of my Neurofeedback practitioner. For everyone else, please respect the

> fact that my Doctor cannot accept the several calls that could inundate

> him from those looking for referrals. He will not make referrals but

> would be glad to accept a phone call or an email from NFB practitioners

> in regards to protocol. My Doctor strongly suggests that one go to the

> website www.bcia.org <http://www.bcia.org/> to find a practitioner in

> your area and to make sure that they are specifically accredited for

> " BCN. " Another valuable website is the International Society

> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .

> At this time the practitioner listing section of this site is down so

> check back.

>

Link to comment
Share on other sites

This is very interesting. I've found a practitioner in my area, but I'd like to

write her an e-mail, explaining the problem and asking if she thinks she'd be

able to help me, before I make an appointment. Do you have any suggestions about

how to explain misophonia to her? How did you explain it to your doctor?

Also, do you need a referral from your primary physician to do neurofeedback?

Best wishes and thanks for telling us about this,

Kate

>

>

>

>

> The CURE … Neurofeedback

>

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback

> was proving to be the " cure " for me in regards to this dreaded

> condition, referred to as Misophonia. I wrote of some extraordinary

> " successes " I was having at the time, and I wrote, " I do not

> know if this is the " cure " for all others on this site. I do

> know what it has done for me so far … it's given me the first

> real hope in defeating this after 45 years of anguish. " You can

> read my original post if you go to where it says message # at the top of

> this page, and put in 20318 (do not use a comma in the number). The

> positive progress I had recorded up to that time was after 24 sessions

> with a Neurofeedback (NFB) practitioner, and I told of our plans to

> start our 15 year-old son with NFB who also has Misophonia. To my

> disbelief, there was response from just two people on this site. That

> is why I decided to post under the heading " The Cure " in hopes

> of gaining everyone's attention.

>

> Neurofeedback has worked for both my son and me. I will stress that I

> suffered with this Misophonia condition for 45 years and to a degree

> just as strong as relayed by any of the messages posted on this site.

> Both my son and I have also dealt with various symptoms of OCD, which

> both my NFB Doctor and I feel that this condition is an element of. I

> have read past arguments of those that don't consider this OCD as

> they don't exhibit the " recognized " or usual symptoms, or

> have an official diagnosis of OCD thru the " main stream "

> physicians. Since I have not heard of others being treated successfully

> thru other means, I believe my NFB Doctor and I have earned the

> credibility in referring to this condition as an element of OCD.

>

> If there were a rating system developed, both my wife and I would put me

> at a strong 90 to 95% improvement from where I was several months ago.

> I would be at the 100% level as far as the total absence of the anger

> that is instantaneously present when Misophonia sufferers encounter a

> " trigger. " With some of the " successes " I am enjoying

> my wife tells me that, " You are completely cured. " But I

> don't accept that quite yet as there are a couple elements that I

> still notice, although ever so slightly. The terrific part of NFB is

> that although there may be an " ebb & flow " of reactions during

> treatment as improvements are made … improvements realized are

> permanent. Even more promising are studies that have shown that even

> when NFB sessions are stopped, subtle improvements are still recognized

> months later. Our son we would put at an 80% improvement level.

> Possibly we could rate him higher yet on that scale but with people that

> age it can be difficult to determine if some actions are unrelated to

> this condition and rather just the normal teenager hormones to be dealt

> with. He also started with more profound " recognized " and

> typical OCD symptoms than what I did.

>

>

>

> In addition, my higher rating of improvement can be attributed to my

> having a total of 112 NFB sessions so far versus my son's 64

> sessions. With saying that I want to stress at this point not to let

> the number of sessions and the related costs deter you. I pointed out

> in my original post that I paid $4,100 for my initial 40 sessions along

> with a beginning and ending QEEG. At the end of the initial 40

> sessions, both for myself as well as my son, my wife and I agreed that

> both of us had achieved a 60-70% improvement for our Misophonia versus

> our pre-Neurofeedback condition. Imagine how different your life would

> be, or that of your child, if you/he/she were rid of 60-70% of the

> triggers and anger … actually more on the anger as most of that

> leaves completely and is the most pronounced effect first realized.

> Although our lives would have been so much more enjoyable even if we had

> stopped after the initial 40 sessions, we made the decision to strive

> for perfection and be cured completely. My son has never complained one

> time with going to the 64 sessions as he continues to realize the subtle

> improvements he continues to make.

>

> Our NFB practitioner will be starting with the use of a program called

> the LORETA in another 3 weeks. The LORETA, which he will incorporate in

> every third session, is like a mini-QEEG, a functional imaging technique

> that looks directly at brain activity in " real time. " The data

> to date is showing the use of the LORETA enables one to treat at a more

> successful rate … at a quicker pace … and for more conditions!

> Naturally we are excited about this as we feel that he will be able to

> identify and treat those last stubborn areas of our brains.

>

> Over the last several months I have compiled nearly 80 pages of a

> journal chronicling the progress we have achieved thru Neurofeedback. I

> am working on condensing this material to a version that I can post at a

> later date so others may identify with situations we have encountered

> with triggers that have resulted in " successes " with a

> non-reaction and no anger present. In addition, our Doctor will be

> putting together a report for the Neurofeedback Journal and profession,

> along with my input from a patient's perspective, regarding

> NFB's success with treating Misophonia.

>

> I am going to add a disclaimer to my post. All brains are different,

> and some people may not respond favorably to Neurofeedback, there are no

> guarantees. But, we are not the only people with this condition that

> have experienced success with Neurofeedback. My Doctor recently learned

> of an NFB practitioner in Texas that had posted on a professional online

> forum asking if anyone had experience in treating Misophonia. This

> practitioner initially started seeing someone for ADD, but then this

> patient's parents educated him on the Misophonia their child had.

> Some time had elapsed and he posted a second time telling that he was

> having success with diminishing the Misophonia triggers.

>

> For those of you that contact a Neurofeedback practitioner and proceed

> with sessions, I will offer this advice … Do not monitor all of the

> posts on this site closely. I say this because of the number of posts

> where people are venting and telling of new and different triggers that

> outrage them. There have been arguments on this site in the past as to

> if the venting is helpful. I am not entering into that argument but

> rather just giving you advice on an observation that my Neurofeedback

> Doctor, my wife, and I all agree on. We feel there is the possibility

> of one developing new triggers they have not experienced before when

> reading of them thru the venting on this site. We base this on the fact

> that neither my wife, nor my Doctor, ever realized the manner in which

> people chew gum until coming in contact with me. It was simply

> something they were not conscience of. But now they both notice if

> people chew their gum or food in an obnoxious manner. It does not cause

> them to get angry, but they do notice it now as readily as a Misophonia

> victim does. For this reason I scan the headlines on this site but do

> not read any postings that appear to be from someone venting or telling

> of new triggers.

>

> I intend to stay anonymous on this site as well as in any subsequent

> article in the NFB Journal. If it was just me I would have no issue

> with using my real name. But I will not take the chance of subjecting

> my son to ridicule from his peers if our identification were known and

> talked of openly on this site, on a Facebook page, or in the media.

> Please respect this. We all know that if we told acquaintances we had

> ADD … they would have compassion for us. If we told others that we

> had depression, or bipolar … we would be shown compassion. In fact

> if we say, as my Doctor and I maintain, " I have an element of

> OCD " … we will be looked upon with compassion. But to tell

> someone of Misophonia and its triggers & anger … will most often

> bring us ridicule and mean spirited provoking.

>

> We live in Eastern Iowa so those of you that are close in proximity may

> send an email to my Yahoo Mail account and I will respond with the name

> of my Neurofeedback practitioner. For everyone else, please respect the

> fact that my Doctor cannot accept the several calls that could inundate

> him from those looking for referrals. He will not make referrals but

> would be glad to accept a phone call or an email from NFB practitioners

> in regards to protocol. My Doctor strongly suggests that one go to the

> website www.bcia.org <http://www.bcia.org/> to find a practitioner in

> your area and to make sure that they are specifically accredited for

> " BCN. " Another valuable website is the International Society

> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> .

> At this time the practitioner listing section of this site is down so

> check back.

>

Link to comment
Share on other sites

I think you and your NFB are correct...I DO believe it is an element of OCD. Thank you so much for your information. I will have to look into this further.Marnie To: Soundsensitivity Sent: Saturday, January 7, 2012 4:56 PM Subject: The CURE ... Neurofeedback

The CURE … Neurofeedback Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also

has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention. Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD. If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle

improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most

pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia. I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers. For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in

which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers. I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often

bring us ridicule and mean spirited provoking. We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited

for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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I think you and your NFB are correct...I DO believe it is an element of OCD. Thank you so much for your information. I will have to look into this further.Marnie To: Soundsensitivity Sent: Saturday, January 7, 2012 4:56 PM Subject: The CURE ... Neurofeedback

The CURE … Neurofeedback Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the "cure" for me in regards to this dreaded condition, referred to as Misophonia. I wrote of some extraordinary "successes" I was having at the time, and I wrote, "I do not know if this is the "cure" for all others on this site. I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish." You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number). The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also

has Misophonia. To my disbelief, there was response from just two people on this site. That is why I decided to post under the heading "The Cure" in hopes of gaining everyone's attention. Neurofeedback has worked for both my son and me. I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site. Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of. I have read past arguments of those that don't consider this OCD as they don't exhibit the "recognized" or usual symptoms, or have an official diagnosis of OCD thru the "main stream" physicians. Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD. If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago. I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a "trigger." With some of the "successes" I am enjoying my wife tells me that, "You are completely cured." But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly. The terrific part of NFB is that although there may be an "ebb & flow" of reactions during treatment as improvements are made … improvements realized are permanent. Even more promising are studies that have shown that even when NFB sessions are stopped, subtle

improvements are still recognized months later. Our son we would put at an 80% improvement level. Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with. He also started with more profound "recognized" and typical OCD symptoms than what I did. In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions. With saying that I want to stress at this point not to let the number of sessions and the related costs deter you. I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG. At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition. Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most

pronounced effect first realized. Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely. My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks. The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in "real time." The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions! Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback. I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in "successes" with a non-reaction and no anger present. In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia. I am going to add a disclaimer to my post. All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees. But, we are not the only people with this condition that have experienced success with Neurofeedback. My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia. This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had. Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers. For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely. I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them. There have been arguments on this site in the past as to if the venting is helpful. I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site. We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in

which people chew gum until coming in contact with me. It was simply something they were not conscience of. But now they both notice if people chew their gum or food in an obnoxious manner. It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does. For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers. I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal. If it was just me I would have no issue with using my real name. But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media. Please respect this. We all know that if we told acquaintances we had ADD … they would have compassion for us. If we told others that we had depression, or bipolar … we would be shown compassion. In fact if we say, as my Doctor and I maintain, "I have an element of OCD" … we will be looked upon with compassion. But to tell someone of Misophonia and its triggers & anger … will most often

bring us ridicule and mean spirited provoking. We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner. For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals. He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol. My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited

for "BCN." Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org . At this time the practitioner listing section of this site is down so check back.

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That if fantastic news. I will respond properly tonight but I am very happy for you and your family.

 

 

The CURE … Neurofeedback

Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was proving to be the " cure " for me in regards to this dreaded condition, referred to as Misophonia.  I wrote of some extraordinary " successes " I was having at the time, and I wrote, " I do not know if this is the " cure " for all others on this site.  I do know what it has done for me so far … it's given me the first real hope in defeating this after 45 years of anguish. "   You can read my original post if you go to where it says message # at the top of this page, and put in 20318 (do not use a comma in the number).  The positive progress I had recorded up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner, and I told of our plans to start our 15 year-old son with NFB who also has Misophonia.  To my disbelief, there was response from just two people on this site.  That is why I decided to post under the heading " The Cure " in hopes of gaining everyone's attention.

Neurofeedback has worked for both my son and me.  I will stress that I suffered with this Misophonia condition for 45 years and to a degree just as strong as relayed by any of the messages posted on this site.  Both my son and I have also dealt with various symptoms of OCD, which both my NFB Doctor and I feel that this condition is an element of.  I have read past arguments of those that don't consider this OCD as they don't exhibit the " recognized " or usual symptoms, or have an official diagnosis of OCD thru the " main stream " physicians.  Since I have not heard of others being treated successfully thru other means, I believe my NFB Doctor and I have earned the credibility in referring to this condition as an element of OCD.

If there were a rating system developed, both my wife and I would put me at a strong 90 to 95% improvement from where I was several months ago.  I would be at the 100% level as far as the total absence of the anger that is instantaneously present when Misophonia sufferers encounter a " trigger. "   With some of the " successes " I am enjoying my wife tells me that, " You are completely cured. "   But I don't accept that quite yet as there are a couple elements that I still notice, although ever so slightly.  The terrific part of NFB is that although there may be an " ebb & flow " of reactions during treatment as improvements are made … improvements realized are permanent.  Even more promising are studies that have shown that even when NFB sessions are stopped, subtle improvements are still recognized months later.  Our son we would put at an 80% improvement level.  Possibly we could rate him higher yet on that scale but with people that age it can be difficult to determine if some actions are unrelated to this condition and rather just the normal teenager hormones to be dealt with.  He also started with more profound " recognized " and typical OCD symptoms than what I did.

 

 In addition, my higher rating of improvement can be attributed to my having a total of 112 NFB sessions so far versus my son's 64 sessions.  With saying that I want to stress at this point not to let the number of sessions and the related costs deter you.  I pointed out in my original post that I paid $4,100 for my initial 40 sessions along with a beginning and ending QEEG.  At the end of the initial 40 sessions, both for myself as well as my son, my wife and I agreed that both of us had achieved a 60-70% improvement for our Misophonia versus our pre-Neurofeedback condition.  Imagine how different your life would be, or that of your child, if you/he/she were rid of 60-70% of the triggers and anger … actually more on the anger as most of that leaves completely and is the most pronounced effect first realized.  Although our lives would have been so much more enjoyable even if we had stopped after the initial 40 sessions, we made the decision to strive for perfection and be cured completely.  My son has never complained one time with going to the 64 sessions as he continues to realize the subtle improvements he continues to make. 

Our NFB practitioner will be starting with the use of a program called the LORETA in another 3 weeks.  The LORETA, which he will incorporate in every third session, is like a mini-QEEG, a functional imaging technique that looks directly at brain activity in " real time. "   The data to date is showing the use of the LORETA enables one to treat at a more successful rate … at a quicker pace … and for more conditions!  Naturally we are excited about this as we feel that he will be able to identify and treat those last stubborn areas of our brains. 

Over the last several months I have compiled nearly 80 pages of a journal chronicling the progress we have achieved thru Neurofeedback.  I am working on condensing this material to a version that I can post at a later date so others may identify with situations we have encountered with triggers that have resulted in " successes " with a non-reaction and no anger present.  In addition, our Doctor will be putting together a report for the Neurofeedback Journal and profession, along with my input from a patient's perspective, regarding NFB's success with treating Misophonia.

I am going to add a disclaimer to my post.  All brains are different, and some people may not respond favorably to Neurofeedback, there are no guarantees.  But, we are not the only people with this condition that have experienced success with Neurofeedback.  My Doctor recently learned of an NFB practitioner in Texas that had posted on a professional online forum asking if anyone had experience in treating Misophonia.  This practitioner initially started seeing someone for ADD, but then this patient's parents educated him on the Misophonia their child had.  Some time had elapsed and he posted a second time telling that he was having success with diminishing the Misophonia triggers.

For those of you that contact a Neurofeedback practitioner and proceed with sessions, I will offer this advice … Do not monitor all of the posts on this site closely.  I say this because of the number of posts where people are venting and telling of new and different triggers that outrage them.  There have been arguments on this site in the past as to if the venting is helpful.  I am not entering into that argument but rather just giving you advice on an observation that my Neurofeedback Doctor, my wife, and I all agree on.  We feel there is the possibility of one developing new triggers they have not experienced before when reading of them thru the venting on this site.  We base this on the fact that neither my wife, nor my Doctor, ever realized the manner in which people chew gum until coming in contact with me.  It was simply something they were not conscience of.  But now they both notice if people chew their gum or food in an obnoxious manner.  It does not cause them to get angry, but they do notice it now as readily as a Misophonia victim does.  For this reason I scan the headlines on this site but do not read any postings that appear to be from someone venting or telling of new triggers.

I intend to stay anonymous on this site as well as in any subsequent article in the NFB Journal.  If it was just me I would have no issue with using my real name.  But I will not take the chance of subjecting my son to ridicule from his peers if our identification were known and talked of openly on this site, on a Facebook page, or in the media.  Please respect this.  We all know that if we told acquaintances we had ADD … they would have compassion for us.  If we told others that we had depression, or bipolar … we would be shown compassion.  In fact if we say, as my Doctor and I maintain, " I have an element of OCD " … we will be looked upon with compassion.  But to tell someone of Misophonia and its triggers & anger … will most often bring us ridicule and mean spirited provoking.

We live in Eastern Iowa so those of you that are close in proximity may send an email to my Yahoo Mail account and I will respond with the name of my Neurofeedback practitioner.  For everyone else, please respect the fact that my Doctor cannot accept the several calls that could inundate him from those looking for referrals.  He will not make referrals but would be glad to accept a phone call or an email from NFB practitioners in regards to protocol.  My Doctor strongly suggests that one go to the website www.bcia.org to find a practitioner in your area and to make sure that they are specifically accredited for " BCN. "   Another valuable website is the International Society for Neurofeedback & Research at www.isnr.org .  At this time the practitioner listing section of this site is down so check back.     

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That makes sense to me too. My negative thoughts will not go away but keep

churning against my will, similar to someone who is not able to sit still when

an item is not lined up perfectly in OCD. Even though I know how inappropriate

it is to hate the noise (and sometimes the person making it who might be a

beloved friend) I MUST do some action to relieve my intolerable rage. If NFB is

working for you, how wonderful for us all. Even though many may not be able to

afford the treatments, at least there may be a beginning of light shining on

what this thing might be. Please keep us informed of your wellness/condition

while you are working on it.

>

> I think you and your NFB are correct...I DO believe it is an element of OCD. 

Thank you so much for your information.  I will have to look into this further.

> Marnie

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Saturday, January 7, 2012 4:56 PM

> Subject: The CURE ... Neurofeedback

>

>

>  

>  

> The CURE … Neurofeedback

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was

proving to be the " cure " for me in regards to this dreaded condition, referred

to as Misophonia.  I wrote of some extraordinary " successes " I was having at

the time, and I wrote, " I do not know if this is the " cure " for all others on

this site.  I do know what it has done for me so far … it's given me the

first real hope in defeating this after 45 years of anguish. "   You can read my

original post if you go to where it says message # at the top of this page, and

put in 20318 (do not use a comma in the number).  The positive progress I had

recorded up to that time was after 24 sessions with a Neurofeedback (NFB)

practitioner, and I told of our plans to start our 15 year-old son with NFB who

also has Misophonia.  To my disbelief, there was response from just two people

on this site.  That is why I decided to post under the heading " The Cure " in

hopes of gaining everyone's

> attention.

> Neurofeedback has worked for both my son and me.  I will stress that I

suffered with this Misophonia condition for 45 years and to a degree just as

strong as relayed by any of the messages posted on this site.  Both my son and

I have also dealt with various symptoms of OCD, which both my NFB Doctor and I

feel that this condition is an element of.  I have read past arguments of those

that don't consider this OCD as they don't exhibit the " recognized " or usual

symptoms, or have an official diagnosis of OCD thru the " main stream "

physicians.  Since I have not heard of others being treated successfully thru

other means, I believe my NFB Doctor and I have earned the credibility in

referring to this condition as an element of OCD.

> If there were a rating system developed, both my wife and I would put me at a

strong 90 to 95% improvement from where I was several months ago.  I would be

at the 100% level as far as the total absence of the anger that is

instantaneously present when Misophonia sufferers encounter a " trigger. "   With

some of the " successes " I am enjoying my wife tells me that, " You are completely

cured. "   But I don't accept that quite yet as there are a couple elements that

I still notice, although ever so slightly.  The terrific part of NFB is that

although there may be an " ebb & flow " of reactions during treatment as

improvements are made … improvements realized are permanent.  Even more

promising are studies that have shown that even when NFB sessions are stopped,

subtle improvements are still recognized months later.  Our son we would put at

an 80% improvement level.  Possibly we could rate him higher yet on that scale

but with people that age it can be

> difficult to determine if some actions are unrelated to this condition and

rather just the normal teenager hormones to be dealt with.  He also started

with more profound " recognized " and typical OCD symptoms than what I did.

>  

>  In addition, my higher rating of improvement can be attributed to my having

a total of 112 NFB sessions so far versus my son's 64 sessions.  With saying

that I want to stress at this point not to let the number of sessions and the

related costs deter you.  I pointed out in my original post that I paid $4,100

for my initial 40 sessions along with a beginning and ending QEEG.  At the end

of the initial 40 sessions, both for myself as well as my son, my wife and I

agreed that both of us had achieved a 60-70% improvement for our Misophonia

versus our pre-Neurofeedback condition.  Imagine how different your life would

be, or that of your child, if you/he/she were rid of 60-70% of the triggers and

anger … actually more on the anger as most of that leaves completely and is

the most pronounced effect first realized.  Although our lives would have been

so much more enjoyable even if we had stopped after the initial 40 sessions, we

made the decision to

> strive for perfection and be cured completely.  My son has never complained

one time with going to the 64 sessions as he continues to realize the subtle

improvements he continues to make. 

> Our NFB practitioner will be starting with the use of a program called the

LORETA in another 3 weeks.  The LORETA, which he will incorporate in every

third session, is like a mini-QEEG, a functional imaging technique that looks

directly at brain activity in " real time. "   The data to date is showing the use

of the LORETA enables one to treat at a more successful rate … at a quicker

pace … and for more conditions!  Naturally we are excited about this as we

feel that he will be able to identify and treat those last stubborn areas of our

brains. 

> Over the last several months I have compiled nearly 80 pages of a journal

chronicling the progress we have achieved thru Neurofeedback.  I am working on

condensing this material to a version that I can post at a later date so others

may identify with situations we have encountered with triggers that have

resulted in " successes " with a non-reaction and no anger present.  In addition,

our Doctor will be putting together a report for the Neurofeedback Journal and

profession, along with my input from a patient's perspective, regarding NFB's

success with treating Misophonia.

> I am going to add a disclaimer to my post.  All brains are different, and

some people may not respond favorably to Neurofeedback, there are no

guarantees.  But, we are not the only people with this condition that have

experienced success with Neurofeedback.  My Doctor recently learned of an NFB

practitioner in Texas that had posted on a professional online forum asking if

anyone had experience in treating Misophonia.  This practitioner initially

started seeing someone for ADD, but then this patient's parents educated him on

the Misophonia their child had.  Some time had elapsed and he posted a second

time telling that he was having success with diminishing the Misophonia

triggers.

> For those of you that contact a Neurofeedback practitioner and proceed with

sessions, I will offer this advice … Do not monitor all of the posts on this

site closely.  I say this because of the number of posts where people are

venting and telling of new and different triggers that outrage them.  There

have been arguments on this site in the past as to if the venting is helpful. 

I am not entering into that argument but rather just giving you advice on an

observation that my Neurofeedback Doctor, my wife, and I all agree on.  We feel

there is the possibility of one developing new triggers they have not

experienced before when reading of them thru the venting on this site.  We base

this on the fact that neither my wife, nor my Doctor, ever realized the manner

in which people chew gum until coming in contact with me.  It was simply

something they were not conscience of.  But now they both notice if people chew

their gum or food in an obnoxious

> manner.  It does not cause them to get angry, but they do notice it now as

readily as a Misophonia victim does.  For this reason I scan the headlines on

this site but do not read any postings that appear to be from someone venting or

telling of new triggers.

> I intend to stay anonymous on this site as well as in any subsequent article

in the NFB Journal.  If it was just me I would have no issue with using my real

name.  But I will not take the chance of subjecting my son to ridicule from his

peers if our identification were known and talked of openly on this site, on a

Facebook page, or in the media.  Please respect this.  We all know that if we

told acquaintances we had ADD … they would have compassion for us.  If we

told others that we had depression, or bipolar … we would be shown

compassion.  In fact if we say, as my Doctor and I maintain, " I have an element

of OCD " … we will be looked upon with compassion.  But to tell someone of

Misophonia and its triggers & anger … will most often bring us ridicule and

mean spirited provoking.

> We live in Eastern Iowa so those of you that are close in proximity may send

an email to my Yahoo Mail account and I will respond with the name of my

Neurofeedback practitioner.  For everyone else, please respect the fact that my

Doctor cannot accept the several calls that could inundate him from those

looking for referrals.  He will not make referrals but would be glad to accept

a phone call or an email from NFB practitioners in regards to protocol.  My

Doctor strongly suggests that one go to the website www.bcia.orgto find a

practitioner in your area and to make sure that they are specifically accredited

for " BCN. "   Another valuable website is the International Society for

Neurofeedback & Research at www.isnr.org.  At this time the practitioner

listing section of this site is down so check back.     

>

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That makes sense to me too. My negative thoughts will not go away but keep

churning against my will, similar to someone who is not able to sit still when

an item is not lined up perfectly in OCD. Even though I know how inappropriate

it is to hate the noise (and sometimes the person making it who might be a

beloved friend) I MUST do some action to relieve my intolerable rage. If NFB is

working for you, how wonderful for us all. Even though many may not be able to

afford the treatments, at least there may be a beginning of light shining on

what this thing might be. Please keep us informed of your wellness/condition

while you are working on it.

>

> I think you and your NFB are correct...I DO believe it is an element of OCD. 

Thank you so much for your information.  I will have to look into this further.

> Marnie

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Saturday, January 7, 2012 4:56 PM

> Subject: The CURE ... Neurofeedback

>

>

>  

>  

> The CURE … Neurofeedback

> Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was

proving to be the " cure " for me in regards to this dreaded condition, referred

to as Misophonia.  I wrote of some extraordinary " successes " I was having at

the time, and I wrote, " I do not know if this is the " cure " for all others on

this site.  I do know what it has done for me so far … it's given me the

first real hope in defeating this after 45 years of anguish. "   You can read my

original post if you go to where it says message # at the top of this page, and

put in 20318 (do not use a comma in the number).  The positive progress I had

recorded up to that time was after 24 sessions with a Neurofeedback (NFB)

practitioner, and I told of our plans to start our 15 year-old son with NFB who

also has Misophonia.  To my disbelief, there was response from just two people

on this site.  That is why I decided to post under the heading " The Cure " in

hopes of gaining everyone's

> attention.

> Neurofeedback has worked for both my son and me.  I will stress that I

suffered with this Misophonia condition for 45 years and to a degree just as

strong as relayed by any of the messages posted on this site.  Both my son and

I have also dealt with various symptoms of OCD, which both my NFB Doctor and I

feel that this condition is an element of.  I have read past arguments of those

that don't consider this OCD as they don't exhibit the " recognized " or usual

symptoms, or have an official diagnosis of OCD thru the " main stream "

physicians.  Since I have not heard of others being treated successfully thru

other means, I believe my NFB Doctor and I have earned the credibility in

referring to this condition as an element of OCD.

> If there were a rating system developed, both my wife and I would put me at a

strong 90 to 95% improvement from where I was several months ago.  I would be

at the 100% level as far as the total absence of the anger that is

instantaneously present when Misophonia sufferers encounter a " trigger. "   With

some of the " successes " I am enjoying my wife tells me that, " You are completely

cured. "   But I don't accept that quite yet as there are a couple elements that

I still notice, although ever so slightly.  The terrific part of NFB is that

although there may be an " ebb & flow " of reactions during treatment as

improvements are made … improvements realized are permanent.  Even more

promising are studies that have shown that even when NFB sessions are stopped,

subtle improvements are still recognized months later.  Our son we would put at

an 80% improvement level.  Possibly we could rate him higher yet on that scale

but with people that age it can be

> difficult to determine if some actions are unrelated to this condition and

rather just the normal teenager hormones to be dealt with.  He also started

with more profound " recognized " and typical OCD symptoms than what I did.

>  

>  In addition, my higher rating of improvement can be attributed to my having

a total of 112 NFB sessions so far versus my son's 64 sessions.  With saying

that I want to stress at this point not to let the number of sessions and the

related costs deter you.  I pointed out in my original post that I paid $4,100

for my initial 40 sessions along with a beginning and ending QEEG.  At the end

of the initial 40 sessions, both for myself as well as my son, my wife and I

agreed that both of us had achieved a 60-70% improvement for our Misophonia

versus our pre-Neurofeedback condition.  Imagine how different your life would

be, or that of your child, if you/he/she were rid of 60-70% of the triggers and

anger … actually more on the anger as most of that leaves completely and is

the most pronounced effect first realized.  Although our lives would have been

so much more enjoyable even if we had stopped after the initial 40 sessions, we

made the decision to

> strive for perfection and be cured completely.  My son has never complained

one time with going to the 64 sessions as he continues to realize the subtle

improvements he continues to make. 

> Our NFB practitioner will be starting with the use of a program called the

LORETA in another 3 weeks.  The LORETA, which he will incorporate in every

third session, is like a mini-QEEG, a functional imaging technique that looks

directly at brain activity in " real time. "   The data to date is showing the use

of the LORETA enables one to treat at a more successful rate … at a quicker

pace … and for more conditions!  Naturally we are excited about this as we

feel that he will be able to identify and treat those last stubborn areas of our

brains. 

> Over the last several months I have compiled nearly 80 pages of a journal

chronicling the progress we have achieved thru Neurofeedback.  I am working on

condensing this material to a version that I can post at a later date so others

may identify with situations we have encountered with triggers that have

resulted in " successes " with a non-reaction and no anger present.  In addition,

our Doctor will be putting together a report for the Neurofeedback Journal and

profession, along with my input from a patient's perspective, regarding NFB's

success with treating Misophonia.

> I am going to add a disclaimer to my post.  All brains are different, and

some people may not respond favorably to Neurofeedback, there are no

guarantees.  But, we are not the only people with this condition that have

experienced success with Neurofeedback.  My Doctor recently learned of an NFB

practitioner in Texas that had posted on a professional online forum asking if

anyone had experience in treating Misophonia.  This practitioner initially

started seeing someone for ADD, but then this patient's parents educated him on

the Misophonia their child had.  Some time had elapsed and he posted a second

time telling that he was having success with diminishing the Misophonia

triggers.

> For those of you that contact a Neurofeedback practitioner and proceed with

sessions, I will offer this advice … Do not monitor all of the posts on this

site closely.  I say this because of the number of posts where people are

venting and telling of new and different triggers that outrage them.  There

have been arguments on this site in the past as to if the venting is helpful. 

I am not entering into that argument but rather just giving you advice on an

observation that my Neurofeedback Doctor, my wife, and I all agree on.  We feel

there is the possibility of one developing new triggers they have not

experienced before when reading of them thru the venting on this site.  We base

this on the fact that neither my wife, nor my Doctor, ever realized the manner

in which people chew gum until coming in contact with me.  It was simply

something they were not conscience of.  But now they both notice if people chew

their gum or food in an obnoxious

> manner.  It does not cause them to get angry, but they do notice it now as

readily as a Misophonia victim does.  For this reason I scan the headlines on

this site but do not read any postings that appear to be from someone venting or

telling of new triggers.

> I intend to stay anonymous on this site as well as in any subsequent article

in the NFB Journal.  If it was just me I would have no issue with using my real

name.  But I will not take the chance of subjecting my son to ridicule from his

peers if our identification were known and talked of openly on this site, on a

Facebook page, or in the media.  Please respect this.  We all know that if we

told acquaintances we had ADD … they would have compassion for us.  If we

told others that we had depression, or bipolar … we would be shown

compassion.  In fact if we say, as my Doctor and I maintain, " I have an element

of OCD " … we will be looked upon with compassion.  But to tell someone of

Misophonia and its triggers & anger … will most often bring us ridicule and

mean spirited provoking.

> We live in Eastern Iowa so those of you that are close in proximity may send

an email to my Yahoo Mail account and I will respond with the name of my

Neurofeedback practitioner.  For everyone else, please respect the fact that my

Doctor cannot accept the several calls that could inundate him from those

looking for referrals.  He will not make referrals but would be glad to accept

a phone call or an email from NFB practitioners in regards to protocol.  My

Doctor strongly suggests that one go to the website www.bcia.orgto find a

practitioner in your area and to make sure that they are specifically accredited

for " BCN. "   Another valuable website is the International Society for

Neurofeedback & Research at www.isnr.org.  At this time the practitioner

listing section of this site is down so check back.     

>

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Kate,

You do not need a referral from a primary physician. In fact, some "main stream" physicians are not going to buy into the importance of Neurofeedback for several reasons: Lack of understanding and out of the realm of their training … is not supported by the powerful pharmaceutical industry … and NFB is not covered by insurance.

Misophonia, we know, is not understood and has not been heard of by most in the medical / health profession. In fact my NFB practitioner had not heard of this condition until I told him of its characteristics. It can be very difficult and embarrassing to explain some of the triggers to others so I would take the time to list your triggers & the extent of the associated anger, copy & paste a handful of previous posts from this site, and include a copy of my post.

You can also refer them to my NFB practitioner, Dr. Randall Lyle, in Cedar Rapids, Iowa. Dr. Lyle is well known and highly regarded, and is the current President of the International Society for Neurofeedback & Research … www.isnr.org. In releasing Dr. Lyle's name I ask once again for everyone to please respect the fact that Dr. Lyle does not have the time to accept and answer phone calls and emails from Misophonia sufferers, as there is nothing to accomplish by direct contact. What will be advantageous for you is if your NFB practitioner contacts Dr. Lyle so that he can correspond with them regarding his protocol and findings.

Dr. Lyle is a strong proponent of committing oneself to a minimum of 40 sessions of Neurofeedback. Our family has been fortunate in that we do not have to travel far to attend our sessions. But unless you are within easy driving distance of Cedar Rapids, or are open to staying at an extended stay motel in Cedar Rapids for 3 months to complete the 40 sessions, the help Dr. Lyle can offer you is to communicate with your NFB practitioner.

>

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Kate,

You do not need a referral from a primary physician. In fact, some "main stream" physicians are not going to buy into the importance of Neurofeedback for several reasons: Lack of understanding and out of the realm of their training … is not supported by the powerful pharmaceutical industry … and NFB is not covered by insurance.

Misophonia, we know, is not understood and has not been heard of by most in the medical / health profession. In fact my NFB practitioner had not heard of this condition until I told him of its characteristics. It can be very difficult and embarrassing to explain some of the triggers to others so I would take the time to list your triggers & the extent of the associated anger, copy & paste a handful of previous posts from this site, and include a copy of my post.

You can also refer them to my NFB practitioner, Dr. Randall Lyle, in Cedar Rapids, Iowa. Dr. Lyle is well known and highly regarded, and is the current President of the International Society for Neurofeedback & Research … www.isnr.org. In releasing Dr. Lyle's name I ask once again for everyone to please respect the fact that Dr. Lyle does not have the time to accept and answer phone calls and emails from Misophonia sufferers, as there is nothing to accomplish by direct contact. What will be advantageous for you is if your NFB practitioner contacts Dr. Lyle so that he can correspond with them regarding his protocol and findings.

Dr. Lyle is a strong proponent of committing oneself to a minimum of 40 sessions of Neurofeedback. Our family has been fortunate in that we do not have to travel far to attend our sessions. But unless you are within easy driving distance of Cedar Rapids, or are open to staying at an extended stay motel in Cedar Rapids for 3 months to complete the 40 sessions, the help Dr. Lyle can offer you is to communicate with your NFB practitioner.

>

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Thank you for posting. I had posted of my success with a chiropractor and the response was dead silence. I then re-posted asking for some feedback and was told that I was rude and shouldn’t post here anymore and that this is a forum for venting, not necessarily for information about solutions.I do think that any treatment that helps soothe the nerves in the “ear package” is what helps to diminish the reactions. I do not think there is an actual “cure” but rather options to manage the symptoms. My chiropractic treatment does this, it has eliminated the response, not the actual problem. I’m not sure that the problem will be found any time soon and I am ok with that. If I can manage the symptoms, the reaction, and the stress that accompanies this, I will be happy.

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Hi ,

I'm appalled that anyone would respond to you like that. I'm newly (self)

diagnosed with misophonia and I came to this forum for a lot of reasons, one

being to hear ways that others are coping with this problem. I appreciate

hearing all suggestions, even though I may not respond to every post. I truly

believe that by working TOGETHER, we can figure out how to deal with this

blasted thing!

Lori

>

> Thank you for posting. I had posted of my success with a chiropractor and

> the response was dead silence. I then re-posted asking for some feedback and

> was told that I was rude and shouldn't post here anymore and that this is a

> forum for venting, not necessarily for information about solutions.

>

> I do think that any treatment that helps soothe the nerves in the " ear

> package " is what helps to diminish the reactions. I do not think there is an

> actual " cure " but rather options to manage the symptoms. My chiropractic

> treatment does this, it has eliminated the response, not the actual problem.

> I'm not sure that the problem will be found any time soon and I am ok with

> that. If I can manage the symptoms, the reaction, and the stress that

> accompanies this, I will be happy.

>

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From: becca.kun@...Date: Sun, 8 Jan 2012 10:26:05 -0700

>Thank you for posting. I had posted of my success with a chiropractor and the response was dead silence. I then re-posted asking for

>some feedback and was told that I was rude and shouldn’t post here anymore and that this is a forum for venting, not necessarily for

>information about solutions.

I'm on a few email lists like this and it happens that from time to time unexpected things occur - something you expect to get lots of replies gets no response, things you think will get few replies end up with a big debate. I understand that you felt a bit put out when there were no reponses, but I don't remember anyone saying that this was ONLY a palce for venting. We are all looking for solutions, although some people do find it easier to use this board/email as a venting area. You shouldn't feel that you cannot post other information.

>I do think that any treatment that helps soothe the nerves in the “ear package” is what helps to diminish the reactions. I do not think

>there is an actual “cure” but rather options to manage the symptoms. My chiropractic treatment does this, it has eliminated the

>response, not the actual problem. I’m not sure that the problem will be found any time soon and I am ok with that. If I can manage the

>symptoms, the reaction, and the stress that accompanies this, I will be happy.

I think there will be a cure at some point in the future, but that is still some way off. Some people will find relief (maybe a cure for them) through one thing; others from another. Until a full cure has been found we need to look at ways of reducing the problems caused by this - and any suggestions should be welcome.

,

Hull

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From: becca.kun@...Date: Sun, 8 Jan 2012 10:26:05 -0700

>Thank you for posting. I had posted of my success with a chiropractor and the response was dead silence. I then re-posted asking for

>some feedback and was told that I was rude and shouldn’t post here anymore and that this is a forum for venting, not necessarily for

>information about solutions.

I'm on a few email lists like this and it happens that from time to time unexpected things occur - something you expect to get lots of replies gets no response, things you think will get few replies end up with a big debate. I understand that you felt a bit put out when there were no reponses, but I don't remember anyone saying that this was ONLY a palce for venting. We are all looking for solutions, although some people do find it easier to use this board/email as a venting area. You shouldn't feel that you cannot post other information.

>I do think that any treatment that helps soothe the nerves in the “ear package” is what helps to diminish the reactions. I do not think

>there is an actual “cure” but rather options to manage the symptoms. My chiropractic treatment does this, it has eliminated the

>response, not the actual problem. I’m not sure that the problem will be found any time soon and I am ok with that. If I can manage the

>symptoms, the reaction, and the stress that accompanies this, I will be happy.

I think there will be a cure at some point in the future, but that is still some way off. Some people will find relief (maybe a cure for them) through one thing; others from another. Until a full cure has been found we need to look at ways of reducing the problems caused by this - and any suggestions should be welcome.

,

Hull

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From: becca.kun@...Date: Sun, 8 Jan 2012 10:26:05 -0700

>Thank you for posting. I had posted of my success with a chiropractor and the response was dead silence. I then re-posted asking for

>some feedback and was told that I was rude and shouldn’t post here anymore and that this is a forum for venting, not necessarily for

>information about solutions.

I'm on a few email lists like this and it happens that from time to time unexpected things occur - something you expect to get lots of replies gets no response, things you think will get few replies end up with a big debate. I understand that you felt a bit put out when there were no reponses, but I don't remember anyone saying that this was ONLY a palce for venting. We are all looking for solutions, although some people do find it easier to use this board/email as a venting area. You shouldn't feel that you cannot post other information.

>I do think that any treatment that helps soothe the nerves in the “ear package” is what helps to diminish the reactions. I do not think

>there is an actual “cure” but rather options to manage the symptoms. My chiropractic treatment does this, it has eliminated the

>response, not the actual problem. I’m not sure that the problem will be found any time soon and I am ok with that. If I can manage the

>symptoms, the reaction, and the stress that accompanies this, I will be happy.

I think there will be a cure at some point in the future, but that is still some way off. Some people will find relief (maybe a cure for them) through one thing; others from another. Until a full cure has been found we need to look at ways of reducing the problems caused by this - and any suggestions should be welcome.

,

Hull

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Well I sure missed anyone telling you not to post treatments and that this place is only for venting. I can tell you I certainly appreciate anyone listing success treatments and really encourage it. And please do not get discouraged if noone responds. That doesnt mean we are ignorining you and don't like it. Personally I've been going to a Chiropractor for years and it's never helped with Misophonia but sure glad it helped you!HeidiSent from my iPhone

From: becca.kun@...Date: Sun, 8 Jan 2012 10:26:05 -0700

>Thank you for posting. I had posted of my success with a chiropractor and the response was dead silence. I then re-posted asking for

>some feedback and was told that I was rude and shouldn’t post here anymore and that this is a forum for venting, not necessarily for

>information about solutions.

I'm on a few email lists like this and it happens that from time to time unexpected things occur - something you expect to get lots of replies gets no response, things you think will get few replies end up with a big debate. I understand that you felt a bit put out when there were no reponses, but I don't remember anyone saying that this was ONLY a palce for venting. We are all looking for solutions, although some people do find it easier to use this board/email as a venting area. You shouldn't feel that you cannot post other information.

>I do think that any treatment that helps soothe the nerves in the “ear package†is what helps to diminish the reactions. I do not think

>there is an actual “cure†but rather options to manage the symptoms. My chiropractic treatment does this, it has eliminated the

>response, not the actual problem. I’m not sure that the problem will be found any time soon and I am ok with that. If I can manage the

>symptoms, the reaction, and the stress that accompanies this, I will be happy.

I think there will be a cure at some point in the future, but that is still some way off. Some people will find relief (maybe a cure for them) through one thing; others from another. Until a full cure has been found we need to look at ways of reducing the problems caused by this - and any suggestions should be welcome.

,

Hull

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****** PLEASE make sure to find a NFB practitioner who has the same training

and certification as the one clyle53 used. I had neurofeedback training 2X/wk

for over 2 years and although it calmed my system and made me less hypervigilant

and somewhat less reactive, I am still at the top of the MAS (8-9).

Clyle53: where did you used to be on the MAS and where are you now? Also, with

my neurofeedback, I was told that a tune-up would be required every 6 weeks or

so (for life?). Is that the case with yours? I am delighted to get this update

from you! I remember when you posted that you were starting. At that time I

did find a BCN practitioner in my area but he never answered my emails or

returned my phone calls. It was really disappointing - he has a private fMRI

machine! I was drooling to get in there! Hahahahaha! I look forward to your

updates.

Regards,

Adah Siganoff

>

> >

> >

> >

> > The CURE … Neurofeedback

> >

> > Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback was

proving to be the " cure " for me in regards to this dreaded condition, referred

to as Misophonia. I wrote of some extraordinary " successes " I was having at the

time, and I wrote, " I do not know if this is the " cure " for all others on this

site. I do know what it has done for me so far … it's given me the first real

hope in defeating this after 45 years of anguish. " You can read my original

post if you go to where it says message # at the top of this page, and put in

20318 (do not use a comma in the number). The positive progress I had recorded

up to that time was after 24 sessions with a Neurofeedback (NFB) practitioner,

and I told of our plans to start our 15 year-old son with NFB who also has

Misophonia. To my disbelief, there was response from just two people on this

site. That is why I decided to post under the heading " The Cure " in hopes of

gaining everyone's attention.

> >

> > Neurofeedback has worked for both my son and me. I will stress that I

suffered with this Misophonia condition for 45 years and to a degree just as

strong as relayed by any of the messages posted on this site. Both my son and I

have also dealt with various symptoms of OCD, which both my NFB Doctor and I

feel that this condition is an element of. I have read past arguments of those

that don't consider this OCD as they don't exhibit the " recognized " or usual

symptoms, or have an official diagnosis of OCD thru the " main stream "

physicians. Since I have not heard of others being treated successfully thru

other means, I believe my NFB Doctor and I have earned the credibility in

referring to this condition as an element of OCD.

> >

> > If there were a rating system developed, both my wife and I would put me at

a strong 90 to 95% improvement from where I was several months ago. I would be

at the 100% level as far as the total absence of the anger that is

instantaneously present when Misophonia sufferers encounter a " trigger. " With

some of the " successes " I am enjoying my wife tells me that, " You are completely

cured. " But I don't accept that quite yet as there are a couple elements that I

still notice, although ever so slightly. The terrific part of NFB is that

although there may be an " ebb & flow " of reactions during treatment as

improvements are made … improvements realized are permanent. Even more

promising are studies that have shown that even when NFB sessions are stopped,

subtle improvements are still recognized months later. Our son we would put at

an 80% improvement level. Possibly we could rate him higher yet on that scale

but with people that age it can be difficult to determine if some actions are

unrelated to this condition and rather just the normal teenager hormones to be

dealt with. He also started with more profound " recognized " and typical OCD

symptoms than what I did.

> >

> >

> >

> > In addition, my higher rating of improvement can be attributed to my having

a total of 112 NFB sessions so far versus my son's 64 sessions. With saying

that I want to stress at this point not to let the number of sessions and the

related costs deter you. I pointed out in my original post that I paid $4,100

for my initial 40 sessions along with a beginning and ending QEEG. At the end

of the initial 40 sessions, both for myself as well as my son, my wife and I

agreed that both of us had achieved a 60-70% improvement for our Misophonia

versus our pre-Neurofeedback condition. Imagine how different your life would

be, or that of your child, if you/he/she were rid of 60-70% of the triggers and

anger … actually more on the anger as most of that leaves completely and is the

most pronounced effect first realized. Although our lives would have been so

much more enjoyable even if we had stopped after the initial 40 sessions, we

made the decision to strive for perfection and be cured completely. My son has

never complained one time with going to the 64 sessions as he continues to

realize the subtle improvements he continues to make.

> >

> > Our NFB practitioner will be starting with the use of a program called the

LORETA in another 3 weeks. The LORETA, which he will incorporate in every third

session, is like a mini-QEEG, a functional imaging technique that looks directly

at brain activity in " real time. " The data to date is showing the use of the

LORETA enables one to treat at a more successful rate … at a quicker pace … and

for more conditions! Naturally we are excited about this as we feel that he

will be able to identify and treat those last stubborn areas of our brains.

> >

> > Over the last several months I have compiled nearly 80 pages of a journal

chronicling the progress we have achieved thru Neurofeedback. I am working on

condensing this material to a version that I can post at a later date so others

may identify with situations we have encountered with triggers that have

resulted in " successes " with a non-reaction and no anger present. In addition,

our Doctor will be putting together a report for the Neurofeedback Journal and

profession, along with my input from a patient's perspective, regarding NFB's

success with treating Misophonia.

> >

> > I am going to add a disclaimer to my post. All brains are different, and

some people may not respond favorably to Neurofeedback, there are no guarantees.

But, we are not the only people with this condition that have experienced

success with Neurofeedback. My Doctor recently learned of an NFB practitioner

in Texas that had posted on a professional online forum asking if anyone had

experience in treating Misophonia. This practitioner initially started seeing

someone for ADD, but then this patient's parents educated him on the Misophonia

their child had. Some time had elapsed and he posted a second time telling that

he was having success with diminishing the Misophonia triggers.

> >

> > For those of you that contact a Neurofeedback practitioner and proceed with

sessions, I will offer this advice … Do not monitor all of the posts on this

site closely. I say this because of the number of posts where people are

venting and telling of new and different triggers that outrage them. There have

been arguments on this site in the past as to if the venting is helpful. I am

not entering into that argument but rather just giving you advice on an

observation that my Neurofeedback Doctor, my wife, and I all agree on. We feel

there is the possibility of one developing new triggers they have not

experienced before when reading of them thru the venting on this site. We base

this on the fact that neither my wife, nor my Doctor, ever realized the manner

in which people chew gum until coming in contact with me. It was simply

something they were not conscience of. But now they both notice if people chew

their gum or food in an obnoxious manner. It does not cause them to get angry,

but they do notice it now as readily as a Misophonia victim does. For this

reason I scan the headlines on this site but do not read any postings that

appear to be from someone venting or telling of new triggers.

> >

> > I intend to stay anonymous on this site as well as in any subsequent article

in the NFB Journal. If it was just me I would have no issue with using my real

name. But I will not take the chance of subjecting my son to ridicule from his

peers if our identification were known and talked of openly on this site, on a

Facebook page, or in the media. Please respect this. We all know that if we

told acquaintances we had ADD … they would have compassion for us. If we told

others that we had depression, or bipolar … we would be shown compassion. In

fact if we say, as my Doctor and I maintain, " I have an element of OCD " … we

will be looked upon with compassion. But to tell someone of Misophonia and its

triggers & anger … will most often bring us ridicule and mean spirited

provoking.

> >

> > We live in Eastern Iowa so those of you that are close in proximity may send

an email to my Yahoo Mail account and I will respond with the name of my

Neurofeedback practitioner. For everyone else, please respect the fact that my

Doctor cannot accept the several calls that could inundate him from those

looking for referrals. He will not make referrals but would be glad to accept a

phone call or an email from NFB practitioners in regards to protocol. My Doctor

strongly suggests that one go to the website www.bcia.org to find a practitioner

in your area and to make sure that they are specifically accredited for " BCN. "

Another valuable website is the International Society for Neurofeedback &

Research at www.isnr.org . At this time the practitioner listing section of

this site is down so check back.

> >

> >

> >

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