Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 Hello, This is . I live in Murray, Kentucky and go to The Pain Management Center of Paducah. The Dr. is Laximiah Manchikanti, an anesthesiologist. Anything anyone can tell me would be greatly appreciated. Can't type well. I'll have more to say at another time. Thanks to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 In a message dated 5/10/00 7:49:22 PM Eastern Daylight Time, paulaakajane@... writes: << Anything anyone can tell me would be greatly appreciated. Can't type well. >> Hi , I cannot type well either, first because I can't type, Lol, but at times my hand is get pretty bad. As far as telling you something I can only share my experiences as far as treatments and medications. I can also share my research. If you go to the main site page of this list you will see the link button on the left. We have added quite a few very informative links. If you would take a minute a go to it, while there you can go to the database is making or the files section and add a photo. You will be there all day. Lol To hold you over I am enclosing a link to 30 pages of the best RSD info for the layman I have come across. I chose to print it out. I brought a copy to my doctor and sent one to my lawyer. I am going to the pain clinic tomorrow to see my anesthesiologist for a lidocaine IV. This is done once a month, followed with a daily dosage of Mexitil the oral form of lidocaine. It seems to have made the seizure type episodes stop, and eased quite a bit of the burning. Judy, a nurse who is also on this list, had an adverse reaction to it. Like anything else, everyone is different. I also take oxycontin and hydrocodone. Oh and neurontin. Hope this link proves useful. Welcome . <A HREF= " http://www.rsds.org/ " >RSDSA - Reflex Sympathetic Dystrophy Syndrome Association of America Homepage</A> or www.rsds.org Hugs and a pain free moment, Deb listowner crps@egroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 , Hi! My name is Tracey and I just wanted to welcome you to the group. I have RSD in my whole left side after knee surgery in 1997. It just keeps spreading on me. Please know we all care here and are always here to listen and share. Welcome!! Hugs, Tracey > [Original Message] > > To: <CRPSegroups> > Date: 5/10/00 7:48:22 PM > Subject: Re: rsd Re: a and > > Hello, > > This is . I live in Murray, Kentucky and go to The Pain Management > Center of Paducah. The Dr. is Laximiah Manchikanti, an anesthesiologist. > Anything anyone can tell me would be greatly appreciated. > > Can't type well. I'll have more to say at another time. > > Thanks to all, > > > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click./1/2567/0/_/706883/_/958002500/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 Hi PJ and All, a here. We want to thank everyone for their help, concern & info. has had such a hard time with this. Not only is he dealing with a Dr. that doesn't prescribe any other pain relief, but goes through the usual mess with family & friends who do not understand & think he is " faking it " (imagine that!). I keep telling him that I think his Dr. is not treating this properly, yet he doesn't want to upset anyone by asking for drugs and such. I told him he had the right to read his medical records to find out what was being said regarding his condition since the Dr. rarely has much to say at all other than treating him & herding him out (the guy does over 3000 nerve blocks like 's every year!). When he picked up his chart to read it, the nurse took it away & said he didn't need to see it. WHAT? If anyone knows of a neurologist in the Nashville, TN area, that would be great. I have asked to make an appointment with my rheumatologist so he can get a referral for another Dr. (I have mentioned 's RSD to my Dr. & he seemed to know a whole lot more about it than anyone else has), bone scan, etc., since the anesthesiologist doesn't work with anyone else regarding the treatment of the RSD. I love & will NOT sit by & watch him suffer. I don't care how far we have to travel to find the right Dr., we will find one that will work with him to ease the pain. Thanks again to everyone for being here for us. Hugs & Love to All, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 Hi PJ here: I have been riding the back of this monster since " 91 " .The information on this disease is getting better everday.Your options of treatment are varied as the understanding of RSD by your DR will be the driving factor in your treatment! The most important thing that I can relate to you is that RSD and its symptoms cannot be sterotyped the disease is differant for all of us.This is the main reason it is hard to find a good treating DR.They see 1 case and think they have all the answers,they will make you think that anything outside their experiance is in your head!!!!You are litteraly going to war with your own body,the attacks are as unique as you are.You are not going crazy and it is not in your head!!!!! As you go through this nightmare remember you are not alone.Read all you can find and keep a journal so you can keep track of the changes which are taking place in your body.I pray that the treatment you recieve will control the pain and spread of this disease. Your Friend in Pain PJ - Re: rsd Re: a and Hello, This is . I live in Murray, Kentucky and go to The Pain Management Center of Paducah. The Dr. is Laximiah Manchikanti, an anesthesiologist. Anything anyone can tell me would be greatly appreciated. Can't type well. I'll have more to say at another time. Thanks to all, ------------------------------------------------------------------------ Would you like to save big on your phone bill -- and keep on saving more each month? Join beMANY! Our huge buying group gives you Long Distance rates which fall monthly, plus an extra $60 in FREE calls! http://click./1/2567/0/_/706883/_/958002500/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Hi a! I think that you've started on the right path trying to get the treatment he needs. You must try and convince him that he does have the right to read his medical records, participate in his own treatment decisions, be as pain-free as humanly possible with RSD, etc. I think, and the rest of the list will correct me if I'm wrong :-)) that most pain mgmt. Drs. want to be the only ones to treat the RSD. My pain Dr. WILL work in conjunction with any of my other Drs. but will not share the treatment of the RSD. He has a firm plan in his mind, and if I start adding other treatments for the pain, he doesn't know what's effective and what isn't. He has no interest in whatever other ailments I have, he wants my primary to worry about those. There will always be people who think that those of us with RSD are " faking " it. I don't know how to tell people that if I would not wish this upon ANYONE. A lot of us look like " normal " people so others assume that we feel like normal people. There are so many treatments being tried. Some find biofeedback and self-hypnosis beneficial. Some have had blocks that were helpful, some have had Lidocaine IV's that gave them relief. We're all different and there isn't any one treatment. But, this RSD must be dealt with aggressively, to avoid further spreading and to ease his pain as much as possible. I hope that you can convince that asking for drugs is something he needs to do if he doesn't take anything that's effective. With hugs and pleasant thoughts! Jo CRPS/RSD onelist. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Cookie here,a first of all I want to thank you for fighting this monster with . I have had RSD for 8 yrs and it has completely destroyed my life. I lost my JOB that I loved more than any material thing in my life. I lost my partner at the time and most of all I lost my self esteem and love for myself. All family with exception of one niece and all friends have gone by as if I never existed.I was always the one everyone run to with their problems or call for repairs when they wanted to save money on appliance repairs. This was my profession and chosen love of life. I had 17 yrs down when I lost life. But my body still stays here in pain. , we feel that everyone thinks that we are faking this pain because they are ingot. People that love us as my partner now tries to understand, they just cannot because it is such a different pain. I cant seem to be able to describe the feelings to them and especially to the doctors that don't care anyway. , ask for those drugs and don't care what the doctor thinks, he doesn't care what you think or your pain,and as soon as you walk out and the next dollar walks in he has already forgotten you and is back to feeling like GOD to his next victim. I have been to over 60 doctors that I remember that work comp sent me to and only one of them even knew what I was talking about when I said RSD. Work comp stopped me from seeing him and my lawyer says there is nothing I can do. They keep sending me to doctors that asked me what RSD stood for and what did it mean.After I explained my understanding, they go home and read a book. At next visit they seem to know more than I did about how and where my pain was. When I say something about pain or location, I hear NO that's not what the book says. That's not how you feel or RSD does not move, I let them experiment on me for 4 yrs then told not to come back because they could not anything for me.I wasnt trying. They sent me to a rehab doctor that I had to explain all and he became GOD over his book and my life.Drugs and more drugs until I wasn't human..Now work comp has stopped all. , this is a normal cycle for most of us.We cant give up or let these doctors make us feel inhuman.Demand for pain meds. I have finally found some friends that can understand my real pain and heart break. I am still desperate looking for a GOOD RSD doctor and lawyer in Arkansas. We will all fight as a unit. Thanks for someone finally listening! Re: rsd Re: a and > Hi PJ and All, > a here. We want to thank everyone for their help, concern & info. > has had such a hard time with this. Not only is he dealing with a Dr. that > doesn't prescribe any other pain relief, but goes through the usual mess with > family & friends who do not understand & think he is " faking it " (imagine > that!). I keep telling him that I think his Dr. is not treating this > properly, yet he doesn't want to upset anyone by asking for drugs and such. I > told him he had the right to read his medical records to find out what was > being said regarding his condition since the Dr. rarely has much to say at > all other than treating him & herding him out (the guy does over 3000 nerve > blocks like 's every year!). When he picked up his chart to read it, > the nurse took it away & said he didn't need to see it. WHAT? If anyone knows > of a neurologist in the Nashville, TN area, that would be great. I have asked > to make an appointment with my rheumatologist so he can get a > referral for another Dr. (I have mentioned 's RSD to my Dr. & he > seemed to know a whole lot more about it than anyone else has), bone scan, > etc., since the anesthesiologist doesn't work with anyone else regarding the > treatment of the RSD. I love & will NOT sit by & watch him suffer. I > don't care how far we have to travel to find the right Dr., we will find one > that will work with him to ease the pain. Thanks again to everyone for being > here for us. > Hugs & Love to All, > a > > ------------------------------------------------------------------------ > Remember four years of good friends, bad clothes, explosive chemistry > experiments. > http://click./1/4051/0/_/706883/_/958099580/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2000 Report Share Posted May 16, 2000 HELLO, I know what you are saying about dr. and everything even with family,, i do understand... please know i am praying for you and your family... i am setting here right now with alot of pain... man it is hard,, you have my prayers, may god bless you ANITA R garrett@... Re: rsd Re: a and > Hi PJ and All,> a here. We want to thank everyone for their help, concern & info.> has had such a hard time with this. Not only is he dealing with a Dr. that> doesn't prescribe any other pain relief, but goes through the usual messwith> family & friends who do not understand & think he is "faking it" (imagine> that!). I keep telling him that I think his Dr. is not treating this> properly, yet he doesn't want to upset anyone by asking for drugs andsuch. I> told him he had the right to read his medical records to find out what was> being said regarding his condition since the Dr. rarely has much to say at> all other than treating him & herding him out (the guy does over 3000nerve> blocks like 's every year!). When he picked up his chart to readit,> the nurse took it away & said he didn't need to see it. WHAT? If anyoneknows> of a neurologist in the Nashville, TN area, that would be great. I haveasked> to make an appointment with my rheumatologist so he can get a> referral for another Dr. (I have mentioned 's RSD to my Dr. & he> seemed to know a whole lot more about it than anyone else has), bone scan,> etc., since the anesthesiologist doesn't work with anyone else regardingthe> treatment of the RSD. I love & will NOT sit by & watch him suffer.I> don't care how far we have to travel to find the right Dr., we will findone> that will work with him to ease the pain. Thanks again to everyone forbeing> here for us.> Hugs & Love to All,> a>> ------------------------------------------------------------------------> Remember four years of good friends, bad clothes, explosive chemistry> experiments.> http://click./1/4051/0/_/706883/_/958099580/> ------------------------------------------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.