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RE: Unsettling News - Brain Lesion

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Wicked,

I am so sorry about what happened at the docs. I will light a candle for

you and hope you get an answer soon and some relief. It is very hard not

knowing what is going on. It took me 5 years to dx'd with Lupus, they

tossed around MS, Scleroderma and others. They still toss around MS.

Know that we are here for you.

bb

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Robin,

So sorry to hear about this as " not knowing " and, for me they called

it " progressive " , losing more and more are beyond frustrating.

I recently listed what I was angry about and not knowing how much

more was coming was #1. This is not a prescription; you might list

all the things you have to deal with. It hwlps me get the repitition

off of my mind.

How angrificating (?) is it that with all the powerful voodoo the

docs have, they can't put a name on it. Don't you just want to shake

them or, for me, put some paper clips (those big pinchy kind) on them

so they begin to understand some of the pain at least? They might

hurry up then? A couple of days with big pinchy clips on their legs,

feet, toes, forehead, and " goin " ...(well that doc is a male so he'd

get the picture, a woman doc would have to get creative - but that's

beside the point) should be part of their " learn'n " as a doc.

Best wishes and my prayers include you too.

3 Cheers,

Alan

Raleigh, NC

>

It could be nothing significant. It could be something serious.

>

> Unfortunately I have seen that same look on doctors' faces before

>

> Now the picture of my pain has become even more clouded.

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