New List

[Guest guest]

Hi Heidi, I just wanted to say 'thank you' for starting this new list and

hope we get everybody on that we had on the 'old' one. It can be a

fantastic support system.

Just a short synopsis of my story. I've had VV for approx. 10 yrs. During

that time I've been to so many doctors I've lost count, with the majority

of them saying its either a yeast infection or subtlely saying 'its in your

head'. I've gone the route of Anti-biotics, anti-yeast medications, to

cooking my underwear in the microwave, no soaps, lo oxylate diet, to even

sitting in a tub of almost pure bleach water trying to kill what ever this

'thing' is. One of the worst treatments I used was Pramasone & Gynecort, a

corticosteroid which I feel did unmeasureable damage causing blisters where

I looked as tho I had radiation burns. I now know that one is not to use

that for any extended length of time, which I had for about 9 months.

Foolish me!!!!!!

I've had severe burning, pain, cracking and splitting of the labial tissue

(like fissures), fusing of labial lips, to being unable to 'endure' a

sexual relationship. Until 10 yrs ago, believe me, I had a wonderful sex

life. (so, you doctors out there, don't tell me its in my head!!) Only

recently my gynecologist has put me on hormones (I'm menopausal), with

using Estrace cream down below to help 'unfuse' the lips. I must say I've

seen some improvement and hopefully will continue to see more.

The wonderful part about this list is so many people being willing to share

what has helped them and to give comfort in knowing 'you're not alone', as

I thought I was the only one with such a condition and was too ashamed and

embarassed to tell anyone. The freeing of this thought alone has been

wonderful.. Thanks again Heidi, Warmest Regards, Dee ~