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In article <19990215204604.11206.qmail@...>,

<daviscathy@...> writes

>ust wondering what I should look for, just in case. " And he said, " if

>it happens to you, you'll know it. " so, that's as much information as I

>came away with.

>Helpful? I think not.......

>Any input would be greatly appreciated...

> D.

The absolute worst is when the eye ball perforates. As he said, you'll

know about it when it happens ( " scleromalacia perforans " ). Never ever

seen a case.

-------

Regards, Dr Graham Chiu

Prospective Internet Observational Study in Arthritis

Home Page http://www.compkarori.com/arthritis/

Contribute at http://www.compkarori.com/arthritis/contrib.htm

Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

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Sjogren's Syndrome is an autoimmune disorder that causes dryness of the eyes,

mouth, nose, skin as well as other symptoms. It can occur alone (Primary

Sjogren's Syndrome) or in conjunction with other rheumatological disorders

such as RA, lupus, sclerderma, etc.

Carol E from NY

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Thanks, I Think.......................... What a frightening image!

Glad to know it's not that common.

>The absolute worst is when the eye ball perforates. As he said, you'll

>know about it when it happens ( " scleromalacia perforans " ). Never ever

>seen a case.

>

>-------

>Regards, Dr Graham Chiu

>Prospective Internet Observational Study in Arthritis

>Home Page http://www.compkarori.com/arthritis/

>Contribute at http://www.compkarori.com/arthritis/contrib.htm

>Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

>

>------------------------------------------------------------------------

>To unsubscribe from this mailing list, or to change your subscription

>to digest, go to the ONElist web site, at and

>select the User Center link from the menu bar on the left.

>

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You wanna know what makes me mad is the dry eye syndrome

won't allow you to wear contacts. I live in the rain forest and

glasses that are fogged and wet are a tremendous detriment.

Any ideas? I tried having the lower duct in the lid sown shut

but that still didn't allow enough moisture to wear contacts.

Im somewhat desperate here . I found if I use snap on sunglasses

on the frame of my glasses I can put them in an up position

this allows freedom from rain that falls straight down but that windblown

rain from the side defeats this method.

Plus when I walk I always over dress and the glasses for up

with heat . I hate glasses . My nose will forever have a notch where

they lay. Any ideas???? thank you and Bless you

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Although I too like to be well informed, there is an upside to his approach:

the psychological effect. Sometimes just hearing of new symptoms will

create them....

-Mike-

rheumatic eyes

>From: " " <daviscathy@...>

>

>I recently went to the ophthalmologist because of a pain in my left eye.

>It's not constant, but it does seem to happen when I move my eyes

>quickly or when I look out of the corner of my eyes. When I told him I

>had RA he insisted that the pain was due to dryness and he suggested a

>product called TheraTears. According to him I should use this 4 times a

>day continuously. He suggested I should get used to using it as people

>with RA tend to have dryness, irritation, and inflammation of the eyes.

>I haven't read too much about this and am wondering if any of you have

>experienced this problem.

>I must confess that the doctor was not very helpful. When I asked him

>what other things could happening with my eyes he said, " not everyone

>with this disease experiences all the maladies. " I said, " well, I'm

>just wondering what I should look for, just in case. " And he said, " if

>it happens to you, you'll know it. " so, that's as much information as I

>came away with.

>Helpful? I think not.......

>Any input would be greatly appreciated...

> D.

>RA

>

>------------------------------------------------------------------------

>To unsubscribe from this mailing list, or to change your subscription

>to digest, go to the ONElist web site, at and

>select the User Center link from the menu bar on the left.

>

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Hi ,

If you're near sighted, you could consider RK (radiocaritotamy ... if I

spelled that right). My husband had that done and it was pretty simple

for him. They do one eye, then the other a week or so later, it's all

outpatient and takes about 15 minute per eye. I even hear they do it

with lasers now, so it's even more precise.

Debra

M Root wrote:

>

> From: " M Root " <ru42354@...>

>

> You wanna know what makes me mad is the dry eye syndrome

> won't allow you to wear contacts. I live in the rain forest and

> glasses that are fogged and wet are a tremendous detriment.

> Any ideas? I tried having the lower duct in the lid sown shut

> but that still didn't allow enough moisture to wear contacts.

> Im somewhat desperate here . I found if I use snap on sunglasses

> on the frame of my glasses I can put them in an up position

> this allows freedom from rain that falls straight down but that windblown

> rain from the side defeats this method.

> Plus when I walk I always over dress and the glasses for up

> with heat . I hate glasses . My nose will forever have a notch where

> they lay. Any ideas???? thank you and Bless you

>

> ------------------------------------------------------------------------

> To unsubscribe from this mailing list, or to change your subscription

> to digest, go to the ONElist web site, at and

> select the User Center link from the menu bar on the left.

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In article <00ec01be59a2$68b7c2c0$61cb9cd1@oemcomputer>, M Root

<ru42354@...> writes

>won't allow you to wear contacts. I live in the rain forest and

>glasses that are fogged and wet are a tremendous detriment.

Try soap or similar commercial products. It stops fogging on the glass.

-------

Regards, Dr Graham Chiu

Prospective Internet Observational Study in Arthritis

Home Page http://www.compkarori.com/arthritis/

Contribute at http://www.compkarori.com/arthritis/contrib.htm

Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

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In article <36C9AC3A.6F58@...>, D. King <dking@...>

writes

>If you're near sighted, you could consider RK (radiocaritotamy ... if I

>spelled that right). My husband had that done and it was pretty simple

>for him. They do one eye, then the other a week or so later, it's all

>outpatient and takes about 15 minute per eye. I even hear they do it

>with lasers now, so it's even more precise.

Radialkeratotomy. Expensive though. NZ$1500 per eye here.

-------

Regards, Dr Graham Chiu

Prospective Internet Observational Study in Arthritis

Home Page http://www.compkarori.com/arthritis/

Contribute at http://www.compkarori.com/arthritis/contrib.htm

Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

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Hi

I was under the impression if you had a auto immune that causes edema of

any kind that you wern't a good candidate for that???

cooky

Dr Graham Chiu wrote:

>

> From: Dr Graham Chiu <anon_emouse@...>

>

> In article <36C9AC3A.6F58@...>, D. King <dking@...>

> writes

> >If you're near sighted, you could consider RK (radiocaritotamy ... if I

> >spelled that right). My husband had that done and it was pretty simple

> >for him. They do one eye, then the other a week or so later, it's all

> >outpatient and takes about 15 minute per eye. I even hear they do it

> >with lasers now, so it's even more precise.

>

> Radialkeratotomy. Expensive though. NZ$1500 per eye here.

>

> -------

> Regards, Dr Graham Chiu

> Prospective Internet Observational Study in Arthritis

> Home Page http://www.compkarori.com/arthritis/

> Contribute at http://www.compkarori.com/arthritis/contrib.htm

> Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

>

> ------------------------------------------------------------------------

> To unsubscribe from this mailing list, or to change your subscription

> to digest, go to the ONElist web site, at and

> select the User Center link from the menu bar on the left.

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See!!! This proves it!!! My spelling has gone to poot. :)

Debra

Dr Graham Chiu wrote:

>

> From: Dr Graham Chiu <anon_emouse@...>

>

> In article <36C9AC3A.6F58@...>, D. King <dking@...>

> writes

> >If you're near sighted, you could consider RK (radiocaritotamy ... if I

> >spelled that right). My husband had that done and it was pretty simple

> >for him. They do one eye, then the other a week or so later, it's all

> >outpatient and takes about 15 minute per eye. I even hear they do it

> >with lasers now, so it's even more precise.

>

> Radialkeratotomy. Expensive though. NZ$1500 per eye here.

>

> -------

> Regards, Dr Graham Chiu

> Prospective Internet Observational Study in Arthritis

> Home Page http://www.compkarori.com/arthritis/

> Contribute at http://www.compkarori.com/arthritis/contrib.htm

> Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

>

> ------------------------------------------------------------------------

> To unsubscribe from this mailing list, or to change your subscription

> to digest, go to the ONElist web site, at and

> select the User Center link from the menu bar on the left.

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Has anyone had their eyes affected by lyme? My vision has gotten worse in the

last year. I just picked up contacts today. I have never had to wear glasses

or contacts before.

I was on IV therapy for 8 weeks over the holidays. I was totally off any meds

for 1 month. Now I am taking zithromax and ceftin orally. I am extremely achey

and have alot of headaches. We all need to pray that someone out there will

find a cure for this evil disease.

Love and blessings to you all!

Sandy

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Hi Sandy,

Yes my eyes got worse. I had just gotten new glasses, wore them all my life,

when my vision went. I kept trying to talk myself out of paying big bucks

again and had read that lyme affects the eyes. Well I finally decided about

six months of this was enough and made an appointment and was ready to pay

again when they started to clear up. I happens periodically, no specific time,

not herx time or whatever. tonight they are bad, but now they only stay bad

for a week or so. I also get conjunctivitis really easy now. I have drops

that I use right away and it helps.

I rreally think it is a lyme thing,

Connie

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had to get bi focals in august for the first time.....then started having

problems seeing even with glass's went back to doc.....he said he had never

seen someones vision decrease so rapidly......got new prescribtion......seems

to be working he said that it was probably related to the spiros and nuero

problems

Reid

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dear Connie and Reid,

Thanks for responding to my question so quickly. I am 38 female and my doc

said that I could use bifocals. NO WAY!!!! not yet...... I'm going to try

contacts first.

God Bless you both

Sandy

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Hi Sandy,

I've worn glasses all my life. After I got Lyme in 1987 my eyes started

changing a lot. At first I didn't realize what was going on. Now, I

just rotate my previous prescriptions until I find one close enough to

use, depending on how bad they are. The worst experience I have is

waking up blurry eyed. It used to bother me a lot but now I just go back

to bed until the blurriness and double vision are gone. I can do that

now that I'm retired. Before that, it was a major problem. But then,

all my symptoms were.

On Wed, 17 Feb 1999 20:02:26 EST HolyGstPwr@... writes:

>From: HolyGstPwr@...

>

>Has anyone had their eyes affected by lyme? My vision has gotten worse

>in the

>last year. I just picked up contacts today. I have never had to wear

>glasses

>or contacts before.

>I was on IV therapy for 8 weeks over the holidays. I was totally off

>any meds

>for 1 month. Now I am taking zithromax and ceftin orally. I am

>extremely achey

>and have alot of headaches. We all need to pray that someone out there

>will

>find a cure for this evil disease.

>Love and blessings to you all!

>Sandy

>

>------------------------------------------------------------------------

>

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Hi Reid and all, and a big welcome all the newcomers,

My vision changes day to day and is sooooooooo frustrating, since I am

bedridden a lot of the time, my main pleasure is reading. One day the print

of the book I am reading is fine, the next day a total blur. I don't use

glasses for up close reading yet, but only need them for distance. I am

thinking about getting one of those magnifying things that you can clip to a

book for those bad days. I have tried the large print books available at my

library, and they are pretty good but the choice is limited....anyone else

having trouble reading the TV Guide? That was my clue that the eye trouble

changes daily, as sometimes I have no trouble reading it, other times,

impossible.

>From: RMcmur3194@...

>

>had to get bi focals in august for the first time.....then started having

>problems seeing even with glass's went back to doc.....he said he had never

>seen someones vision decrease so rapidly......got new

prescribtion......seems

>to be working he said that it was probably related to the spiros and nuero

>problems

>Reid

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Hi

I was under the impression if you had a auto immune that causes edema of

any kind that you weren't a good candidate for that???

cooky

Hey this one stopped me right in my tracks . That is a valid thought

as I know that with Reiters and PA conjunctivitis and uvitis,

are always a concern. I will ask thanks for the good question.

At $1500 per eye for radial keratotamy I think its worth it

if they can get one's vision at 20/20 or 20/30 at the worst

anything less than that and Ill wear my glasses as they have

enhanced my vision greatly. Root

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thats the way i feel about my bifocals i read and watch tv in bed alot( the

only place i am comfortqable.....they are a pain to get use to moving back

andf forth in the lens but hey at least i can see clear now.........was

driving me crazy when the whole world was fuzzy even with my first set of new

glass's ....luckily i get my eyes and some other things done thru the vets

admin at no cost due to being disabled.....could not have afforded two pairs

of glass's in 3 months without them......

take care.......hey we have walked a mile in each others shoes ....it is a

comfort to me to be able to go on line and talk to other lymies when weird

stuff happens to me....then i find that it has happened to many others......u

know sometimes u feel like its is all in ur head .....if we are hypos we all

have esp cause we share a l;ot of symptoms....lol

Reid

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marta.

I know the feeling.....have always been a big reader .....being basically home

bound....(due to lyme ) i read 4 papers a day....get some mags and weekly auto

racing papers (big fan) and go to the library like crazy.....only problem some

days i don't have the concentration to read or even watch tv......due to lyme

brain.....boy are hose days long......read the same sentance over and

over.......yuck........oh well makes life interesting....living with lyme

Reid

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DO NOT DO ANY EYE SURGERY! I have dry eyes too and have had to stop the

contacts and go with glasses and I hate them too, though, as I get older they

do hide the wrinkles and make me look younger.

HERE " S THE REASON: I consulted an eye surgeon (TOPS!) about laser correction

of bad near sightedness. One of the diseases on the NIH warning list that

precludes you having it done is RA. RA is a disease of collegen and our eyes

are made of collegen (at least the lens which is what they fool with). Any

eye surgery, even RK, is sure to affect the collagen. There is a danger of

losing vision. THe surgeon says much more research with arthritis patients is

needed before it can be done. (who would volunteer !@#$!). He suggested I get

my punctum plugged; these are the holes that tears come out of. , it

sounds like you've already done that. You have my sympathy.

, a fellow reluctant eye=glass wearer.

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,That's exactly what I thought too!

Doctor explained that rather than preventing tears, it allows tears that come

from other openings to pool and bathe the eye.

Hope that helps.

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In article <36CDED68.E76B0177@...>, S C <sasc@...> writes

>How come if you have dry eyes you can get the tear ducts plugged. This sounds

>like just the opposite

>of whats needed. I know you have an explanation for it.

The drainage duct is closed off so more tears stick around.

-------

Regards, Dr Graham Chiu

Prospective Internet Observational Study in Arthritis

Home Page http://www.compkarori.com/arthritis/

Contribute at http://www.compkarori.com/arthritis/contrib.htm

Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

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Indeed I do to keep this simple: there are two ducts in the eye one

moistens the eye allowing fluid into the eye and another that the fluid runs

in to that drains in the sinuses . If you block the outlet

duct then moisture should build up on the eye making it a better environment

to float glass or plastic on . Even so there are people that just do not

produce enough fluid to allow them to wear contacts.

I remember a incident where I had traffic stopped during rush hour

on a one way bridge because my contact was stuck to my eyeball

and hurt so bad I had to stop and PEAL it off my eye . Needless to say I

have avoided wearing contacts since.............. Root

God Love ya and keep Ya

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Hi Pat

I am curious about Celebrex knowing that my good luck is not going to hold on

forever and I may have to take some anti inflammatory toxin one of these days

if I flare.

I have heard ( as we all have I am sure) that the hype was way out of line

with the truth.

So aside from blood vessals popping ( I am fainting!) how do you find it in

relation to other NSAIDs you have taken.

And is PA your only illness?

Kit

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