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At 06:19 PM 9/2/02 -0400, addpg10@... wrote:

>Can anyone tell me why there is always pain, if the operation is succsful

>should't the pain not be there..Janice

My surgery was successful with out pain.

Rick

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At 06:19 PM 9/2/02 -0400, addpg10@... wrote:

>Can anyone tell me why there is always pain, if the operation is succsful

>should't the pain not be there..Janice

My surgery was successful with out pain.

Rick

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Even if the Surgery is successful, Surgery is still Traumatic to the Nerves

and sometimes they don't come out of it.

I know that is real detailed as to why. But I do know that somebody else

here is able to explain it better then I can, so I will let them do it.

Me :)

mymocha@...

> Can anyone tell me why there is always pain, if the operation is succsful

> should't the pain not be there..Janice

---

Outgoing mail is certified Virus Free.

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Version: 6.0.384 / Virus Database: 216 - Release Date: 8/21/2002

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Even if the Surgery is successful, Surgery is still Traumatic to the Nerves

and sometimes they don't come out of it.

I know that is real detailed as to why. But I do know that somebody else

here is able to explain it better then I can, so I will let them do it.

Me :)

mymocha@...

> Can anyone tell me why there is always pain, if the operation is succsful

> should't the pain not be there..Janice

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.384 / Virus Database: 216 - Release Date: 8/21/2002

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There are many reasons for pain. There are different

types of pain. The pain we have is neuropathic, which

means nerve pain, and usually it has no " cause " in

that there isn't an injury to point to.

In the files section of our yahoo group site, there is

a paper I co-wrote regarding neuropathic pain. If you

skim through it, you will find different reasons why

the pain remains after the source is taken away. The

nerves, essentially, are overexcited and send signals

along afferent neurons (which interpret as pain

signals). Our nerves have been stretched beyond

anything they were ever meant to be stretched to, and

they can't seem to calm themselves, even when they are

no longer being stretched.

--- Brande wrote:

> Even if the Surgery is successful, Surgery is still

> Traumatic to the Nerves

> and sometimes they don't come out of it.

>

> I know that is real detailed as to why. But I do

> know that somebody else

> here is able to explain it better then I can, so I

> will let them do it.

>

> Me :)

> mymocha@...

>

>

>

> > Can anyone tell me why there is always pain, if

> the operation is succsful

> > should't the pain not be there..Janice

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system

> (http://www.grisoft.com).

> Version: 6.0.384 / Virus Database: 216 - Release

> Date: 8/21/2002

>

>

__________________________________________________

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There are many reasons for pain. There are different

types of pain. The pain we have is neuropathic, which

means nerve pain, and usually it has no " cause " in

that there isn't an injury to point to.

In the files section of our yahoo group site, there is

a paper I co-wrote regarding neuropathic pain. If you

skim through it, you will find different reasons why

the pain remains after the source is taken away. The

nerves, essentially, are overexcited and send signals

along afferent neurons (which interpret as pain

signals). Our nerves have been stretched beyond

anything they were ever meant to be stretched to, and

they can't seem to calm themselves, even when they are

no longer being stretched.

--- Brande wrote:

> Even if the Surgery is successful, Surgery is still

> Traumatic to the Nerves

> and sometimes they don't come out of it.

>

> I know that is real detailed as to why. But I do

> know that somebody else

> here is able to explain it better then I can, so I

> will let them do it.

>

> Me :)

> mymocha@...

>

>

>

> > Can anyone tell me why there is always pain, if

> the operation is succsful

> > should't the pain not be there..Janice

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system

> (http://www.grisoft.com).

> Version: 6.0.384 / Virus Database: 216 - Release

> Date: 8/21/2002

>

>

__________________________________________________

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I am glad to hear that, Rick. My sons pain may just be comming from him

trying to do physical exercise in sports, he is only 13 and keeps trying to

be like everyone , else. Thanks again...Janice...

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Go to http://groups.yahoo.com, click on my groups to

sign in, then click on tethered spinal cord group on

the left hand side. The files are listed on teh left

hand side as well.

Can anyone make these clearer? I'm not thinking

straight right now!

--- addpg10@... wrote:

> this is very informative, thank you. How do i get

> to the file section of

> the yahoo??? Janice..

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Go to http://groups.yahoo.com, click on my groups to

sign in, then click on tethered spinal cord group on

the left hand side. The files are listed on teh left

hand side as well.

Can anyone make these clearer? I'm not thinking

straight right now!

--- addpg10@... wrote:

> this is very informative, thank you. How do i get

> to the file section of

> the yahoo??? Janice..

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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At 02:13 PM 9/3/2002 -0700, Weaver wrote:

>Go to http://groups.yahoo.com, click on my groups to

>sign in, then click on tethered spinal cord group on

>the left hand side. The files are listed on teh left

>hand side as well.

>

>Can anyone make these clearer? I'm not thinking

>straight right now!

Yes, http://groups.yahoo.com/group/tetheredspinalcord/

This URL is at the bottom of every message.

Rick

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At 02:13 PM 9/3/2002 -0700, Weaver wrote:

>Go to http://groups.yahoo.com, click on my groups to

>sign in, then click on tethered spinal cord group on

>the left hand side. The files are listed on teh left

>hand side as well.

>

>Can anyone make these clearer? I'm not thinking

>straight right now!

Yes, http://groups.yahoo.com/group/tetheredspinalcord/

This URL is at the bottom of every message.

Rick

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  • 3 months later...

Hi,

I really don't know of any Doctors in Texas. I live in Northern, VA. The

Doctor that did my surgery is at town University Medical center in

Washington, DC. He is a really good surgeon. After the surgery he did The

pain was not as bad as the first surgery I had.

I found my surgeon thru the Spinal Bifida Association. I called and ask for a

Neurosurgeon who knew about tethered cord. They said he was the best in this

area. Maybe you can call them and they can give you a name of a good Doc in

the area.

I hope this helps,

In VA

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I m not sure of a Dr. in your area either, but may be able to help with

questions or info as my daughter had her surgery at 12 months--she is now 16

months. Let me know if I can answer anything for you.

-mom to 16 months-NY, USA

Re: question

Hi,

I really don't know of any Doctors in Texas. I live in Northern, VA. The

Doctor that did my surgery is at town University Medical center in

Washington, DC. He is a really good surgeon. After the surgery he did The

pain was not as bad as the first surgery I had.

I found my surgeon thru the Spinal Bifida Association. I called and ask for a

Neurosurgeon who knew about tethered cord. They said he was the best in this

area. Maybe you can call them and they can give you a name of a good Doc in

the area.

I hope this helps,

In VA

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I m not sure of a Dr. in your area either, but may be able to help with

questions or info as my daughter had her surgery at 12 months--she is now 16

months. Let me know if I can answer anything for you.

-mom to 16 months-NY, USA

Re: question

Hi,

I really don't know of any Doctors in Texas. I live in Northern, VA. The

Doctor that did my surgery is at town University Medical center in

Washington, DC. He is a really good surgeon. After the surgery he did The

pain was not as bad as the first surgery I had.

I found my surgeon thru the Spinal Bifida Association. I called and ask for a

Neurosurgeon who knew about tethered cord. They said he was the best in this

area. Maybe you can call them and they can give you a name of a good Doc in

the area.

I hope this helps,

In VA

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  • 5 months later...
Guest guest

Hi , the first sign of my TC was bad foot deformities, mostly my

left foot and then as I grew, my R foot got worse. The Left is still

the worst.

However, it depends what your feet look like - do you have raised

arches, curled toes, walking tiptoe, floppy feet, poor ankles control?

it may be worth getting your feet looked at in the context of TC before

you go for any unnecessary surgery.

Regards

Nina

Quoting i_didnt_do_it16 :

> Hello,

> Sorry I havent posted in a while, been busy trying to find a job and

>

> looking into volunteering at a hospital within the next couple

> days. But I have a questions again...I have been looking at TC

> websites and saw that a sign of TC is foot deformities? Is that

> true. For the past few years I have had a bump that appears to be

> the bone of the outside of my foot sticking out of my foot. Could

> that be a sign of the TC? I am going to my ortho on Friday because

> I may need surgery to have it fixed because the last procedure to

> help it did not work(the just shaved off excess skin from my foot :

> ( ) If anyone has had a problem similar to this can you help me?

> Any thing would be appreciated. Thanks... M.

>

>

>

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