Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Hi All, Thank you all very much, I guess I got angry because I couldn't understand why when other people who are in the same boat as me were still having some sort of contact with a neuro. Yes i live in Tassie but lisa iam not born here LOL Tassie people are more know as two headed because they are said to have more inbred people here than anywhere. :0)but they are nice people most of them. I married a tassie guy, so I guess I am now a tasssite I did read all our post and I can;t remember what names where there but I will do what you all suggest and you what works for me. Someone had mentioned if I had lesions .. no I didn't have any, That is why the neuro was so confused, everything else had been ruled out, but I presented to him with everything still being full on, but I have to say it real shockd him when it all come back negitive. So once again thank you all, I will just see what happens and take each day at a time. And take my medication as that is helping to make life easier. If I didn't take it I would be not moving at all. Thanks and bes wishes to you all Colleen :0) > HI All, > > It feels like it has gone down the toilet. > > I no longer have a neuro as in until something major happens he > doesn't want to see me. The neuro has thrown me back to my GP. > > My Gp has said he has no idea what to do now, he has said that the > neuro will only send me back to him (GP). As I don't have any > lesions in brain or in spinal neck mri without contrast. > > The neuro at first before MRI did beleive 100% I had RRMS and he > said I do have problems such as ataxia, clonus and prymidal weakness > and I failed the Rombergism test, memory problems ect. But he can > not help me. > > I have been tested for everything else all came back normal. I have > had Pycological testing as well and she even said it isn't in my > head.I can't go to another neuro as the next one is 2 1/2 hours > away. It is just out of the question. I live in Tassie > > I am on neurontin for pain pins and needles and the numbness, > Baclofen for the muscule spasms, and spasity, and probanthine for > the bladder incontince. > > Does anyone have any idea to what I do now. As even my own GP > doesn't have a clue either. > > > Cheers > Colleen > > PS I also posted this somewhere else to get a blot of suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 I think one thing to consider is that the medications we are getting are mostly for symptoms. The ones that are specifically for " MS " are the ABC ones; but drugs for spasms and neuropathic pain are not limited to the specific diagnosis. Heck, I was even started on Avonex before I had the MS diagnosis-on the grounds that I had a related demyelinating disorder, and nothing else was working. Perhaps the neuro would treat the symptoms to see if you feel better until something more positive turns up. Hang in there! Sam Hi All, Thank you all very much, I guess I got angry because I couldn't understand why when other people who are in the same boat as me were still having some sort of contact with a neuro. Yes i live in Tassie but lisa iam not born here LOL Tassie people are more know as two headed because they are said to have more inbred people here than anywhere. :0)but they are nice people most of them. I married a tassie guy, so I guess I am now a tasssite I did read all our post and I can;t remember what names where there but I will do what you all suggest and you what works for me. Someone had mentioned if I had lesions .. no I didn't have any, That is why the neuro was so confused, everything else had been ruled out, but I presented to him with everything still being full on, but I have to say it real shockd him when it all come back negitive. So once again thank you all, I will just see what happens and take each day at a time. And take my medication as that is helping to make life easier. If I didn't take it I would be not moving at all. Thanks and bes wishes to you all Colleen :0) > HI All, > > It feels like it has gone down the toilet. > > I no longer have a neuro as in until something major happens he > doesn't want to see me. The neuro has thrown me back to my GP. > > My Gp has said he has no idea what to do now, he has said that the > neuro will only send me back to him (GP). As I don't have any > lesions in brain or in spinal neck mri without contrast. > > The neuro at first before MRI did beleive 100% I had RRMS and he > said I do have problems such as ataxia, clonus and prymidal weakness > and I failed the Rombergism test, memory problems ect. But he can > not help me. > > I have been tested for everything else all came back normal. I have > had Pycological testing as well and she even said it isn't in my > head.I can't go to another neuro as the next one is 2 1/2 hours > away. It is just out of the question. I live in Tassie > > I am on neurontin for pain pins and needles and the numbness, > Baclofen for the muscule spasms, and spasity, and probanthine for > the bladder incontince. > > Does anyone have any idea to what I do now. As even my own GP > doesn't have a clue either. > > > Cheers > Colleen > > PS I also posted this somewhere else to get a blot of suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Please 'scuse my ignorance but what or whare is Tassie? Thanks Peace & Blessings~*~Akiba ~*~Pragmatic VisionaryAIM ~ AkybaICQ 59094928MSN ~ akyba@...Yahoo~ AkybaThy Feet, My FeetDance the Dance of Divinity Re: Hope someone can help Hi All,Thank you all very much, I guess I got angry because I couldn't understand why when other people who are in the same boat as me were still having some sort of contact with a neuro.Yes i live in Tassie but lisa iam not born here LOLTassie people are more know as two headed because they are said to have more inbred people here than anywhere. :0)but they are nice people most of them. I married a tassie guy, so I guess I am now a tasssite :)I did read all our post and I can;t remember what names where there but I will do what you all suggest and you what works for me. Someone had mentioned if I had lesions .. no I didn't have any, That is why the neuro was so confused, everything else had been ruled out, but I presented to him with everything still being full on, but I have to say it real shockd him when it all come back negitive.So once again thank you all, I will just see what happens and take each day at a time. And take my medication as that is helping to make life easier. If I didn't take it I would be not moving at all.Thanks and bes wishes to you allColleen :0)> HI All,> > It feels like it has gone down the toilet.> > I no longer have a neuro as in until something major happens he > doesn't want to see me. The neuro has thrown me back to my GP.> > My Gp has said he has no idea what to do now, he has said that the> neuro will only send me back to him (GP). As I don't have any > lesions in brain or in spinal neck mri without contrast.> > The neuro at first before MRI did beleive 100% I had RRMS and he> said I do have problems such as ataxia, clonus and prymidal weakness> and I failed the Rombergism test, memory problems ect. But he can> not help me.> > I have been tested for everything else all came back normal. I have> had Pycological testing as well and she even said it isn't in my> head.I can't go to another neuro as the next one is 2 1/2 hours> away. It is just out of the question. I live in Tassie> > I am on neurontin for pain pins and needles and the numbness,> Baclofen for the muscule spasms, and spasity, and probanthine for> the bladder incontince.> > Does anyone have any idea to what I do now. As even my own GP> doesn't have a clue either.> > > Cheers> Colleen> > PS I also posted this somewhere else to get a blot of suggestions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Colleen.. I am in the same boat as you... After being reviewed by another neuro, they determined that there were lesions on my MRI films after all. But my neuro doesn't want to do anything. She's not cooperating at all. I'm at a loss as to what to do. VOTE for ALLISON in the May Photo Contest Here: One vote per day til May 15th! http://www.thriftykim.com/page/page/1138352.htm Quote Link to comment Share on other sites More sharing options...
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