Guest guest Posted October 19, 2004 Report Share Posted October 19, 2004 Just signed up here tonite. I was diagnosed with MS one year ago. I am 53--almost 54. Blessed to be very mild, but last year was quite rough--numb from the neck down and lots of pain. I have probably had this for about 20 years. My first numbness was my entire left side in the mid 80's. All kinds of tests, but nothing found. I think I am glad since the treatments are greatly improved now. I take Avonex, most generally do my own injections. Sometimes have almost no reaction, just a little achy and headachy. Sometimes, feel pretty rough for 24 hours. I am very lucky to have a supportive family and very supportive husband. We have been married for 33 years, and this has been a huge adjustment. I do work, but cut back to 32 hours per week due to exhaustion. I just had my first year MRI to see what is going on and how the meds are handling this disease. Get my results on Friday. Have a great doctor who is very patient in answering all my questions and returning calls very promptly. I also have been very lucky in that this has never yet affected my vision. I did have to do 5 days of intense IV therapy last year to break the numbness cycle. My biggest problem is exhaustion and pain in my hands and feet. The vibrations in my legs have become pretty rare, but when I am tired and stressed my right foot and hand tingle and go numb. As I said above, I am married, we have two grown married daughters. I have my first grandchild born in June....he is a real ray of sunshine. My other daughter and her husband are in the process of adopting from China--after 9 years of trying they have given up on the fertility treatments. Can't say I blame them. Sooooo..this time next year, I should have a granddaughter also. That will great. Look forward to getting to know all of you Dan, hope your foot feels better. Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Dear Shari: Welcome to the group, sounds like you are handling life on its terms, healthy attitude. I'm glad to have you as a member. How exciting to be a grandma..I can't wait. I have friends who adopted from China, I think it is great, such beautiful people. I'm going to have to light a fire under my son and daughter in law, LOL. Bette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Welcome Shari. It is nice to meet you. Margot > > Just signed up here tonite. I was diagnosed with MS one year ago. > I am 53--almost 54. Blessed to be very mild, but last year was > quite rough--numb from the neck down and lots of pain. I have > probably had this for about 20 years. My first numbness was my > entire left side in the mid 80's. All kinds of tests, but nothing > found. I think I am glad since the treatments are greatly improved > now. I take Avonex, most generally do my own injections. Sometimes > have almost no reaction, just a little achy and headachy. > Sometimes, feel pretty rough for 24 hours. > > I am very lucky to have a supportive family and very supportive > husband. We have been married for 33 years, and this has been a huge > adjustment. I do work, but cut back to 32 hours per week due to > exhaustion. > > I just had my first year MRI to see what is going on and how the > meds are handling this disease. Get my results on Friday. Have a > great doctor who is very patient in answering all my questions and > returning calls very promptly. I also have been very lucky in that > this has never yet affected my vision. I did have to do 5 days of > intense IV therapy last year to break the numbness cycle. My > biggest problem is exhaustion and pain in my hands and feet. The > vibrations in my legs have become pretty rare, but when I am tired > and stressed my right foot and hand tingle and go numb. > > As I said above, I am married, we have two grown married daughters. > I have my first grandchild born in June....he is a real ray of > sunshine. My other daughter and her husband are in the process of > adopting from China--after 9 years of trying they have given up on > the fertility treatments. Can't say I blame them. Sooooo..this > time next year, I should have a granddaughter also. That will > great. > > Look forward to getting to know all of you > > Dan, hope your foot feels better. > > Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 I take 4.5 mp low dose naltrexone for my fibromyalgia and the effects have been amazing! No side effects and inexpensive, so it doesn't hurt to try it, unlike other big pharma meds. A google search will turn up lots of info. Good luck! > > > > My name is Margie, I thought I posted this morning about a drug call naproxen, I wanted to know if anyone has been on this and if they have any information about it. Thank you > > > Quote Link to comment Share on other sites More sharing options...
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