Re: I finally have a diagnosis

[Guest guest]

Di,

Congratulations on finding a good Dr., and one that will be able to help you

feel better! That's a wonderful feeling.

I hope the meds work for you, and you will eventually be able to return to

as normal a life a possible.

Hugs,

Dix

Di wrote:

Finally, after 19 months of pain, I found a doctor who would give me

a diagnosis.

[Guest guest]

Di,

I am so happy to hear you finally have a dx...I swear that is half

the battle...and the not knowing is so stressful. It is wonderful

that you found a doc that was able to give a dx and some hope for

the future. I hope the new med works for you...keep us posted.

Blessings and hugs,

Lee

> Hello everyone,

> Finally, after 19 months of pain, I found a doctor who would give

me

> a diagnosis.

[Guest guest]

Hi Di,

Welcome to the world of connective tissue trouble. (Tongue firmly in

cheek!!!) Seriously, even if you *only* have Ehlers-Danlos you probably

should have an echo, our loose connective tissue can cause heart trouble

too.

On the activity front; I find pilates good and have started hydrotherapy

which is also good, but the pool has to be warm.

Keep well,

Siel

" Di " wrote:

> Hello everyone,

> Finally, after 19 months of pain, I found a doctor who would give me

> a diagnosis. So here it is, at long last: I have an injury of the spinal chord

and a connective tissue disease - either Marfans or Ehlers-Danlos

> syndrome.

[Guest guest]

Hi Di,

Congratulations on the diagnosis. Finally after all this time you know

what's wrong with you. I know it's been a long haul for you. Now you will be

able to get all the information you can so you know what's it's all about.

Knowledge is power!

Kathleen in North Carolina (previously Calif.)

[Guest guest]

Hi Di

You must feel very relieved to have a name for your " enemy " . I am so glad

for you. Good luck with the Methadone.

Kaylene

>Hello everyone,

>Finally, after 19 months of pain, I found a doctor who would give me

>a diagnosis. I've seen 6 other doctors who have all ventured

>different guesses,

>I hope everyone's having a good day!

>Di

>in Vancouver, B.C., Canada

>

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