lack of concern and compassion

[Guest guest]

> I haven't given up on my family completely, but I know where to

go when I need that support, and it is here. If I hadn't joined this

group I'm certain that last Sunday would have been my last day, I was

truly ready.I cry when I write this but the people here have done more

for me in the last 4 days then all the doctors put together over the

last 10 years, you folks have given me more strength than I knew I

had, just when I needed it most.I would never turn away from anybody

here, and thats a promise.

~ So glad to hear you say that! I feel very strongly about

having the chance to meet people here who *understand* It means

everything to me. I am not always great at posting, but I try to keep

up ;-) I *AM* pretty good at chatting on Yahoo messenger.. I am

Watrq2 on there as well...Gentle hugs.

Blessed Be, Lori in California

[Guest guest]

Hi ,

I have been in this group for at least 4 months now and find the people

wonderful. No, you don't get support from your family, not too many people do.

I am so lucky, I have a daughter who is my very best friend and has fybro. she

has helped me through working everyday and applying for SSD. She held my hand

through all the turmoil....she is the greatest. Even my partner doesn't

understand. I have gotten a little thick skinned through this whole ordeal.

You always have us.

Write when ever your down or share some good news with us. We all love you and

will always understand.

donna

[Guest guest]

, I'm so glad to hear from you. I wanted to write you anyhow.

I've been following your postings and the groups responses. Aren't

they wonderful? I've only been a member for a short time now.

I'm sorry to hear your family does not take the time see how you

are, as well. I must say, that mine does call me sometimes but when

it comes to the fibromyalgia or talking about it, they don't respond

or ever ask me how I'm doing. As long as I'm feeling well,

everything is fine, but when I'm not, it does get depressing that I

feel like I can't go to them. I think I get more sad than anything,

hurt feelings. When I get angry it's more at the pain and my body

and then I want to yell at it!

Some people here have suggested that I write a letter to my family

and I think that is what I'm going to have to do. Just telling them

straight forward, this is what I've been diagnosed w/ and this is

how it affects me and this is what I would hope from everyone and so

on. Even though it's been 3 years. (I've tried to avoid the topic w/

all of them, fearing it. When I'm " not feeling good " I hide out.) I

just need to do it. You can read some past posts to get some more

input on writing the letter if you think it would help you.

Anyhow, having my boyfriend definitely is making things easier.

We've only been together for a short while and I do feel very lucky.

I hope he knows that. His birthday is next week. I hope I can do

something special for him.

, we are all very happy that you found this group when you

did. I'm sure many people have been where you've been. I was down

your road once before in my life too. I was much younger (just a

teenager, I'm 24 now) I didn't have a group like this then. But I

knew if I could make it through what I did, that I would never be

down that road again, b/c, for me, I decided I wasn't going to let

outside forces control my life. I'm fairly (okay very) stubborn. So

that made it easy to not give up.

For someone w/ chronic pain it seems like you don't have control of

your life b/c of the limitations that you have. But as long as you

keep fighting and trying, you never know. You never know. It takes a

lot to look at things differently and learn what everything means to

you. But as long as you have that perception, you have a world in

front of you. And as for those people in your life, or around you,

that bring you down or don't lift you up, you just look for others.

Always looking for others. (By the way, I think you found them,

here:)) I found this to be true. Everything took time and nothings

perfect and there are good days and difficult days, but you know

what, it's your day. It's your day. Each day. Remember that. When I

truly make myself believe that, I do feel like I'm glowing. The

little things seem less. And when I am feeling down, I say, it's

okay to feel that way. I give myself permission and then I'll say

okay, I wallowed enough, now I need to face the day again

The difference between then and now is I wasn't in that much pain

then. The pain is what's difficult to manage. You can't make it go

away. But that's where this group comes in w/ all their support,

advice, and understanding.

Now I don't know if any of this helps you, but it helped me. And I

hope you know, that I just want you to know, that you can always

come here to find those " other people " I was talking about. I hope

none of this has come across the wrong way. I just wanted to say, I

can relate to you too. And if you ever want to talk... I cry too, as

I write and as I read.

To better days, .

> Hi ,I just finished reading your mail about your sister and

brother and their lack of sensitivity.

If I hadn't joined this group I'm certain that last Sunday would

have been my last day, I was truly ready.I cry when I write this but

the people here have done more for me in the last 4 days then all

the doctors put together over the last 10 years, you folks have

given me more strength than I knew I had, just when I needed it

most.I would never turn away from anybody here, and thats a promise.

I'm always here to talk if you want ,have a good day.

.