New member ammey

[Guest guest]

A little about me...

I have been married almost 10 years (this October) and we have 3

great kids together. 11,7 and 21 months old. My oldest has Autism

and my middle son has Sensory Processing Disorder. My daughter is

reaching all her milestones, thank you know who! It makes life

awfully interesting to have yet another set of issues like this in

my life. I find it difficult to get myself to the Dr. because I

guess I am so wrapped up with whats going on with my kids. I went

for my usual check up in August with my Ophthalmologist and he sent

me immediately for an MRI w/ contrast, and so I said here we go

again. The process of evaluating it all is upsetting to me because

after all the wondering they might tell me again, that they don't

know. Has anyone else felt this way? I mean, if I don't have MS,

then tell me what it is before you shlup me out the door? I really

feel like I don't want to be going through this evaluation process

one more time!!! Sorry if I sound so BLAH, I usually don't talk like

this, but I really need some support:(

Thanks for Listening,

Ammey

[Guest guest]

Ammey,

I am also a newbie...joined the list earlier this week. I am also in

diagnostic limbo (again). It sucks. I have been dealing with

whatever this is off and on for over 20 years.

Like you, I also have an autistic child. My daughter is 6 years old

and is blind and HFA. She is verbal, learning to read (braille), and

beginning potty training. Caring for her is difficult, particularly

when I have these symptoms. She is very demanding and can at times

have violent tantrums. I am a single mom, so her care is 100% my

responsibility. I love her dearly, and simply must get over whatever

this is so that I can care for her and my other daughter (age 12)

properly.

I look forward to getting to know you.

> A little about me...

> I have been married almost 10 years (this October) and we have 3

> great kids together. 11,7 and 21 months old. My oldest has Autism

> and my middle son has Sensory Processing Disorder. My daughter is

> reaching all her milestones, thank you know who! It makes life

> awfully interesting to have yet another set of issues like this in

> my life. I find it difficult to get myself to the Dr. because I

> guess I am so wrapped up with whats going on with my kids. I went

> for my usual check up in August with my Ophthalmologist and he sent

> me immediately for an MRI w/ contrast, and so I said here we go

> again. The process of evaluating it all is upsetting to me because

> after all the wondering they might tell me again, that they don't

> know. Has anyone else felt this way? I mean, if I don't have MS,

> then tell me what it is before you shlup me out the door? I really

> feel like I don't want to be going through this evaluation process

> one more time!!! Sorry if I sound so BLAH, I usually don't talk

like

> this, but I really need some support:(

> Thanks for Listening,

> Ammey

[Guest guest]

hhmmm my son will turn 5 in a week and he is dev. delayed in speech etc.

and he has sensory integration too. It sure makes it hard to physically

take care of ourselves.

hugs

jodi

[Guest guest]

Wow, & Jodi!

I cannot tell you how cool it is to feel like I am Not the only

person in the world who knows what it is like. Just one of these

issues is enough! My middle son (7) has severe tantrums, and it is

because he hasn't had any Tx yet! We are finally figuring him out.

Autism... Are you in there? It is a lot to handle indeed, but I do

have a great husband and my sister is in an OT graduate program @

USC, Los Angeles. So, I am sure she will be helping us out even more

as she learns more. It's a blessing. I am really into trying to get

some support for me right now, if you know what I'm talking about!

MS, Autism, Marriage, Bills, SPD, OCD, you name it...I am in over my

head!

Does anybody understand this?

Today I felt that drowsiness and weakness I keep experiencing and

fell asleep on the couch for 3 hours! I got 8 hrs. sleep last night,

so when my husband came home I was still feeling kinda sick tired

and he said it's because it was hot today. I think he sees a pattern

with my fatigue,and I see it's probably true, is that typical MS

fatigue? I don't get it.

Thanks everyone! I need all I can get right now, otherwise I might

soon add Depressive Disorder to the List! (HAHAHA)

Ammey

> hhmmm my son will turn 5 in a week and he is dev. delayed in

speech etc.

> and he has sensory integration too. It sure makes it hard to

physically

> take care of ourselves.

>

> hugs

> jodi