Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Terry, Feel free to copy this to Pete if you think fit. I have read his account. My problem with giving any 'newbie' advice is as follows: Whatever treatment is decided nowadays, NAHT is often prescribed to reduce tumor size. That is fine if one wishes to go that way and it is indeed the way I went 8 years ago, after doing a lot of homework. However what NAHT does not do is give one the chance to look at one's overall hormonal profile prior to treatment to see what might be out of balance. I now argue that prostate cancer is due to a deficiency of androgen and excess of estrogen. There may be layers behind that as well, so I would recommend along with T and DHT to ensure normal levels, E to ensure within male range, SHBG to ensure T is effective and E ineffective (relatively) FSH, LH and prolactin to winkle out why T, DHT and E are out of balance. That is the minimum I would do. Unfortunately, if one is already on antiandrogen or LHRH-a then the exercise becomes pointless. Very few people will get to the stage of writing to YANA or any other group without having some hormonal suppression the first time round therefore the 'window of opportunity' I speak of will have to be approached the second or maybe even third time round doing HB. Cheers, Sammy. New entry on Yana Good morning from a wintry Cape Town.I am just about to post a new Experience on the website athttp://www.yananow.net/Mentors/PeteW.htm<http://www.yananow.net/Mentors/PeteW.htm> It seems to me that Pete Webb,whose story it is could do with a bit of input on his decision to go forLaparoscopic Surgery. I have suggested he joins this List, but in case hedoesn’t, you might like to give him some input.All the bestTerry Herbert Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June04: PSA 8.35:fPSA 42% TURPMy site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and theless a man knows, the more sure he is that he knows everything. JoyceCarey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Sammy, I cannot understand why you did not respond directly to Pete if you felt that you could help him. On the other hand, it is probably as well you didn’t as I am sure he would not have understood what you were saying or how it might help him resolve his immediate problem – whether his decision to have laparoscopic surgery is the right decision for him or whether as he says <snip> ….. should I go the RT route?” You are using acronyms in your post that I certainly would not have understood in the first few months after diagnosis, some of which I have never seen used previously, to the best of my knowledge. Some of them – NAHT, SHBG, FSH for example - do not appear in what I have always thought as one of the best PCa Glossaries – Young’s one on Phoenix 5 – or in Donna Pogliano’s excellent book A Primer for Prostate Cancer, so it would be very difficult for any newbie to make out what you are saying. I can guess that NAHT might be the equivalent of neoadjuvant ADT (Androgen Deprivation Therapy) but that’s about as far as I can go with regard to the three I mention above. As a matter of interest, why DO you use these acronyms? Presumably to avoid the chore of having to spell them out every time? Yet with modern word processing software, one can load them into an Autocorrect facility which will do the job with the same number (or even less) key strokes and which will result in a much clearer message for those who are not conversant with the acronym - probably most of us in this case. All the best Terry Herbert in sunny Kalk Bay, South Africa Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June 04: PSA 8.35:fPSA 42% TURP My site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey -----Original Message----- From: sammy_bates Sent: 18 August 2004 12:36 To: ProstateCancerSupport Subject: Re: New entry on Yana Terry, Feel free to copy this to Pete if you think fit. I have read his account. My problem with giving any 'newbie' advice is as follows: Whatever treatment is decided nowadays, NAHT is often prescribed to reduce tumor size. That is fine if one wishes to go that way and it is indeed the way I went 8 years ago, after doing a lot of homework. However what NAHT does not do is give one the chance to look at one's overall hormonal profile prior to treatment to see what might be out of balance. I now argue that prostate cancer is due to a deficiency of androgen and excess of estrogen. There may be layers behind that as well, so I would recommend along with T and DHT to ensure normal levels, E to ensure within male range, SHBG to ensure T is effective and E ineffective (relatively) FSH, LH and prolactin to winkle out why T, DHT and E are out of balance. That is the minimum I would do. Unfortunately, if one is already on antiandrogen or LHRH-a then the exercise becomes pointless. Very few people will get to the stage of writing to YANA or any other group without having some hormonal suppression the first time round therefore the 'window of opportunity' I speak of will have to be approached the second or maybe even third time round doing HB. Cheers, Sammy. ----- Original Message ----- From: Terry Herbert To: ProstateCancerSupport Sent: Tuesday, August 17, 2004 11:53 AM Subject: New entry on Yana Good morning from a wintry Cape Town. I am just about to post a new Experience on the website at http://www.yananow.net/Mentors/PeteW.htm <http://www.yananow.net/Mentors/PeteW.htm> It seems to me that Pete Webb, whose story it is could do with a bit of input on his decision to go for Laparoscopic Surgery. I have suggested he joins this List, but in case he doesn’t, you might like to give him some input. All the best Terry Herbert Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June 04: PSA 8.35:fPSA 42% TURP My site is at www.prostatecancerwatchfulwaiting.co.za It is a tragedy of the world that no one knows what he doesn’t know, and the less a man knows, the more sure he is that he knows everything. Joyce Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 > Glossaries – Young's one on Phoenix 5 – or in Donna Pogliano's excellent book A Primer for Prostate Cancer, Good idea to add in the footer but I can't get there. Maybe can help. > Sammy, > > I cannot understand why you did not respond directly to Pete if you felt > that you could help him. > > On the other hand, it is probably as well you didn't as I am sure he would > not have understood what you were saying or how it might help him resolve > his immediate problem – whether his decision to have laparoscopic surgery is > the right decision for him or whether as he says <snip> ….. should I go the > RT route? " > > You are using acronyms in your post that I certainly would not have > understood in the first few months after diagnosis, some of which I have > never seen used previously, to the best of my knowledge. Some of them – > NAHT, SHBG, FSH for example - do not appear in what I have always thought as > one of the best PCa Glossaries – Young's one on Phoenix 5 – or in > Donna Pogliano's excellent book A Primer for Prostate Cancer, so it would be > very difficult for any newbie to make out what you are saying. I can guess > that NAHT might be the equivalent of neoadjuvant ADT (Androgen Deprivation > Therapy) but that's about as far as I can go with regard to the three I > mention above. > > As a matter of interest, why DO you use these acronyms? Presumably to avoid > the chore of having to spell them out every time? Yet with modern word > processing software, one can load them into an Autocorrect facility which > will do the job with the same number (or even less) key strokes and which > will result in a much clearer message for those who are not conversant with > the acronym - probably most of us in this case. > > All the best > > Terry Herbert > in sunny Kalk Bay, South Africa > Diagnosed `96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June > 04: PSA 8.35:fPSA 42% TURP > My site is at www.prostatecancerwatchfulwaiting.co.za > It is a tragedy of the world that no one knows what he doesn't know, and the > less a man knows, the more sure he is that he knows everything. Joyce > Carey > > Re: New entry on Yana > > Terry, > > Feel free to copy this to Pete if you think fit. I have read his account. > > My problem with giving any 'newbie' advice is as follows: Whatever treatment > is decided nowadays, NAHT is often prescribed to reduce tumor size. That is > fine if one wishes to go that way and it is indeed the way I went 8 years > ago, after doing a lot of homework. However what NAHT does not do is give > one the chance to look at one's overall hormonal profile prior to treatment > to see what might be out of balance. > > I now argue that prostate cancer is due to a deficiency of androgen and > excess of estrogen. There may be layers behind that as well, so I would > recommend along with T and DHT to ensure normal levels, E to ensure within > male range, SHBG to ensure T is effective and E ineffective (relatively) > FSH, LH and prolactin to winkle out why T, DHT and E are out of balance. > That is the minimum I would do. Unfortunately, if one is already on > antiandrogen or LHRH-a then the exercise becomes pointless. > > Very few people will get to the stage of writing to YANA or any other group > without having some hormonal suppression the first time round therefore the > 'window of opportunity' I speak of will have to be approached the second or > maybe even third time round doing HB. > > Cheers, > > Sammy. > New entry on Yana > > Good morning from a wintry Cape Town. > > I am just about to post a new Experience on the website at > http://www.yananow.net/Mentors/PeteW.htm > < http://www.yananow.net/Mentors/PeteW.htm> It seems to me that Pete Webb, > whose story it is could do with a bit of input on his decision to go for > Laparoscopic Surgery. I have suggested he joins this List, but in case he > doesn't, you might like to give him some input. > > > All the best > > Terry Herbert > > Diagnosed `96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June > 04: PSA 8.35:fPSA 42% TURP > My site is at www.prostatecancerwatchfulwaiting.co.za > It is a tragedy of the world that no one knows what he doesn't know, and the > less a man knows, the more sure he is that he knows everything. Joyce > Carey > > > > > > Quote Link to comment Share on other sites More sharing options...
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