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hereditary angioedema

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Dear All

has anyone treated this?

apparently it is due to a lack of a blood protein called c1 inhibitor which then

leads to continuous activation of the complement system and bradykinin

formation.It is not responsive to hydrocortisone or antihistamines and one

treatment is the use of Danazol.

apparently anabolic steroids lead to an increase in ci esterase inhibitor.

I havent seen the patient yet so havent been able to assess exactly how it

affects her.

Im wondering if turnera and smilax might be appropriate but if anyone has any

ideas/ experience with this Id be very grateful.

thanks , annette

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