RE: My choice ....was ... Mortality rate for PCa

[Guest guest]

Yes, Sammy, it was all those 'non-conventional' actions, the simplest of

which was change of diet and weight loss but the most important of which, in

my opinion was stress reduction. That seems to me to be the one thing that

can create havoc with the immune system. Rather than clutter up this List,

since many people may not be interested, can I suggest that anyone who wants

a bit more details reads my story on either of my websites - here

http://www.yananow.net/Mentors/TerryH.htm or here

http://www.prostatecancerwatchfulwaiting.co.za/PersonalHistory.html

Talking of stories, when we set up the You Are Not Alone Now -

www.yananow.net website, one of the things we wanted to include was personal

stories of men who were prepared to share these and help those who came

behind to learn from their experiences. There is quite a collection now and

anyone wishing to access these can go to

http://www.yananow.net/Experiences.html where they are listed by type of

treatment chosen. There are links on the page to the Charts which group

summarise the data we have collected by year of diagnosis, age at diagnosis,

PSA and Gleason. Of course these should not be used to make any decision as

to treatment, but it can be useful to see how other men with a similar

diagnosis went about choosing their treatment and to be able to ocntact them

to ask any pertinent questions.

All the best

Terry Herbert

in sunny Kalk Bay, South Africa

Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. June

04: PSA 8.35:fPSA 42% TURP

My site is at www.prostatecancerwatchfulwaiting.co.za

It is a tragedy of the world that no one knows what he doesn't know, and the

less a man knows, the more sure he is that he knows everything. Joyce

Carey

Re: My choice ....was ... Mortality rate

for PCa

Terry,

I'd be interested to learn what your " choice of (non)treatment is

concerned " . Presumably by " non-treatment " you mean not having surgery /

radiation / HB and you are IN FACT referring to changes in ...

diet

lifestyle

exercise

supplements

avoidance of cancer promoting scenarios.

Looking forward to a meaningful reply.

Sammy

Re: Mortality rate for PCa

>

> -

> Terry,

> Your note interests me because I had your same numbers originally,

> but I chose radical surgery in March and am now okay, so far.

>

> But you are living proof that maybe the surgery was not absolutely

> needed. (I was told there was a chance that I would be okay without

> it.)

>

> What does TURP mean? PSA 42%?

>

>

> Good quote to end it.

>

>

>

>

>

>

[Guest guest]

Thank you for the information Terry.

I can just about agree with everything you say except your interpretation of

PC stats! I guess we'll have to agree to disagree there !

I took some time to check out your web links and came up with an interesting

story here. One of the founder(s) of YANA

http://www.yananow.net/Mentors/GreggM.htm is on testosterone therapy after

10 years of IHB and the misery that goes with it.

At last count his PSA was practically undetectable.

In the Conclusion to my paper " A 21st Century Understanding of Prostate

Cancer " I comment as follows: " The question to answer now is why such a

protocol of androgen challenge is not followed where a diagnosis of prostate

cancer is accompanied by low androgen levels? After all, the prostate is an

organ of sexual reproduction that is controlled from the womb before birth,

by sex hormones. What could be more simple than to first offer any man

diagnosed with prostatic disease the opportunity to regulate and normalise

their sex hormones? "

It looks like our friend Gregg has indeed found that " window of opportunity "

even after 10 years of misery under HB. In 2004 he says:

" My PCa appears a thing that belongs in the dark past, but it has a

terrible effect on my wife and my own life style as the result of the

surgery. Had I had the information then as is now available on sites like

this I would have chosen differently. But that is now of 13 years ancient

history, and I am a survivor and I continue to have my injection of

testosterone each 3 weeks that makes me feel human. Ten years ago my demand

to have this treatment was met with horror, and the dire warnings that my

body would be invaded by metastasis has not as yet eventuated. "

Hey ! You guys thought I was the only nutter out there ! He he ! Well done

Gregg for following your instinct!

Cheers,

Sammy

Leicester, England.

http://prostateman.org

Re: Mortality rate for PCa

> >

> > -

> > Terry,

> > Your note interests me because I had your same numbers originally,

> > but I chose radical surgery in March and am now okay, so far.

> >

> > But you are living proof that maybe the surgery was not absolutely

> > needed. (I was told there was a chance that I would be okay without

> > it.)

> >

> > What does TURP mean? PSA 42%?

> >

> >

> > Good quote to end it.

> >

> >

> >

> >

> >

> >

[Guest guest]

Terry,

Maybe we can get some agreement ;-) on what Gregg's last word means in terms

of what you said below regarding the PSA of 0.7. Is Gregg's PSA still 0.7

after three more years of testosterone treatment ? Amazing !! You said

> a level that men who have had surgery would often regard as a sign of

progression.

I'd have to disagree quite strongly with that - since PSA has remained at a

stable 0.7 for many years. I'd want to know about other markers and

biological indicators and I'd take Gregg's own point about QoL VERY

seriously. At this stage in his life it is business to make the most of what

is left - not chase a meaninglessly low PSA (for the benefit of what ?).

Sammy.

" [update 21 November 2001] . I am maintaining good health and have reduced

my weight slightly. My latest PSA was 0.7 in October 01, but there are no

symptoms that would indicate a flare-up of any malignancy. I continue to

have monthly testosterone injections and am presently negotiating with my

medical prescriber to assist me in trialing a drug called DHEA for short -

an explanation is here - Dehydroepiandrosterone - to improve my sense of

physical and emotional well-being.

[update 12 April 2004]Gregg is now 73 and it is 13 years since his

diagnosis. Here is his update:

My health continues to be reasonably well controlled and following yet

another heart stent last year, I have been able to decrease my medication

intake, but unfortunately my arthritis still needs attention and thus my

weight remains a problem because of its required control.

My PCa appears a thing that belongs in the dark past, but it has a terrible

effect on my wife and my own life style as the result of the surgery. Had I

had the information then as is now available on sites like this I would have

chosen differently. But that is now of 13 years ancient history, and I am a

survivor and I continue to have my injection of testosterone each 3 weeks

that makes me feel human. Ten years ago my demand to have this treatment was

met with horror, and the dire warnings that my body would be invaded by

metastasis has not as yet eventuated.

Re: My choice ....was ... Mortality rate

> for PCa

>

> Thank you for the information Terry.

>

> I can just about agree with everything you say except your interpretation

of

> PC stats! I guess we'll have to agree to disagree there !

>

> I took some time to check out your web links and came up with an

interesting

> story here. One of the founder(s) of YANA

> http://www.yananow.net/Mentors/GreggM.htm is on testosterone therapy after

> 10 years of IHB and the misery that goes with it.

>

> At last count his PSA was practically undetectable.

>

> In the Conclusion to my paper " A 21st Century Understanding of Prostate

> Cancer " I comment as follows: " The question to answer now is why such a

> protocol of androgen challenge is not followed where a diagnosis of

prostate

> cancer is accompanied by low androgen levels? After all, the prostate is

an

> organ of sexual reproduction that is controlled from the womb before

birth,

> by sex hormones. What could be more simple than to first offer any man

> diagnosed with prostatic disease the opportunity to regulate and normalise

> their sex hormones? "

>

> It looks like our friend Gregg has indeed found that " window of

opportunity "

> even after 10 years of misery under HB. In 2004 he says:

>

> " My PCa appears a thing that belongs in the dark past, but it has a

> terrible effect on my wife and my own life style as the result of the

> surgery. Had I had the information then as is now available on sites like

> this I would have chosen differently. But that is now of 13 years ancient

> history, and I am a survivor and I continue to have my injection of

> testosterone each 3 weeks that makes me feel human. Ten years ago my

demand

> to have this treatment was met with horror, and the dire warnings that my

> body would be invaded by metastasis has not as yet eventuated. "

>

> Hey ! You guys thought I was the only nutter out there ! He he ! Well done

> Gregg for following your instinct!

>

> Cheers,

>

> Sammy

> Leicester, England.

>

> http://prostateman.org

>

>

>

>

>

>

>

[Guest guest]

Greggs PSA in Oct 01 was 0.7, and his PSA in April 04 appears to have been 2.95 according to the chart at

http://www.yananow.net/Chart-Gleason.htm#gs

-----Original Message-----From: sammy_bates Sent: Thursday, August 12, 2004 2:53 PMTo: ProstateCancerSupport Subject: Re: My choice ....was ... Mortality rate for PCaTerry,Maybe we can get some agreement ;-) on what Gregg's last word means in termsof what you said below regarding the PSA of 0.7. Is Gregg's PSA still 0.7after three more years of testosterone treatment ? Amazing !! You said> a level that men who have had surgery would often regard as a sign ofprogression.I'd have to disagree quite strongly with that - since PSA has remained at astable 0.7 for many years. I'd want to know about other markers andbiological indicators and I'd take Gregg's own point about QoL VERYseriously. At this stage in his life it is business to make the most of whatis left - not chase a meaninglessly low PSA (for the benefit of what ?).Sammy." [update 21 November 2001] . I am maintaining good health and have reducedmy weight slightly. My latest PSA was 0.7 in October 01, but there are nosymptoms that would indicate a flare-up of any malignancy. I continue tohave monthly testosterone injections and am presently negotiating with mymedical prescriber to assist me in trialing a drug called DHEA for short -an explanation is here - Dehydroepiandrosterone - to improve my sense ofphysical and emotional well-being.[update 12 April 2004]Gregg is now 73 and it is 13 years since hisdiagnosis. Here is his update:My health continues to be reasonably well controlled and following yetanother heart stent last year, I have been able to decrease my medicationintake, but unfortunately my arthritis still needs attention and thus myweight remains a problem because of its required control.My PCa appears a thing that belongs in the dark past, but it has a terribleeffect on my wife and my own life style as the result of the surgery. Had Ihad the information then as is now available on sites like this I would havechosen differently. But that is now of 13 years ancient history, and I am asurvivor and I continue to have my injection of testosterone each 3 weeksthat makes me feel human. Ten years ago my demand to have this treatment wasmet with horror, and the dire warnings that my body would be invaded bymetastasis has not as yet eventuated. Re: My choice ....was ... Mortality rate> for PCa>> Thank you for the information Terry.>> I can just about agree with everything you say except your interpretationof> PC stats! I guess we'll have to agree to disagree there !>> I took some time to check out your web links and came up with aninteresting> story here. One of the founder(s) of YANA> http://www.yananow.net/Mentors/GreggM.htm is on testosterone therapy after> 10 years of IHB and the misery that goes with it.>> At last count his PSA was practically undetectable.>> In the Conclusion to my paper "A 21st Century Understanding of Prostate> Cancer" I comment as follows: "The question to answer now is why such a> protocol of androgen challenge is not followed where a diagnosis ofprostate> cancer is accompanied by low androgen levels? After all, the prostate isan> organ of sexual reproduction that is controlled from the womb beforebirth,> by sex hormones. What could be more simple than to first offer any man> diagnosed with prostatic disease the opportunity to regulate and normalise> their sex hormones? ">> It looks like our friend Gregg has indeed found that "window ofopportunity"> even after 10 years of misery under HB. In 2004 he says:>> " My PCa appears a thing that belongs in the dark past, but it has a> terrible effect on my wife and my own life style as the result of the> surgery. Had I had the information then as is now available on sites like> this I would have chosen differently. But that is now of 13 years ancient> history, and I am a survivor and I continue to have my injection of> testosterone each 3 weeks that makes me feel human. Ten years ago mydemand> to have this treatment was met with horror, and the dire warnings that my> body would be invaded by metastasis has not as yet eventuated. ">> Hey ! You guys thought I was the only nutter out there ! He he ! Well done> Gregg for following your instinct!>> Cheers,>> Sammy> Leicester, England.>> http://prostateman.org>>>>>>>