Hello

[Guest guest]

I am a new member as of today - and am curious to see if this gets to right

place. My dad has had Lewy Body for at least 5 years but was misdiagnosed as PD

for the first several years. He is now in a nursing home and is almost

completely disabled physically and mentally. He sleeps about 18 out of 24

hours, which is a blessing, because when he is awake, he is mumbling,

whispering, nervous, and worried. Sometimes he has periods of hours to a couple

of days where he is mostly unresponsive. My mother lives in assisted living

just across the parking lot and goes every day to " care " for him. Her biggest

worry is what is going to happen in the end and how do people with this disease

finally die. We have a big family and they have a lot of support, but it is

hard on all of us, as Dad was the rock of the family and an ambitious,

successful businessman. I'm anxious to read all of your entries to gain some

new insights........Judy