Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Hi all, I've been on Betaseron for about 2+ years now. My neuro has suggested to me to think about changing to Copaxone. He gave me a big info box for it. I want to pose the question to those of you who use Copaxone.... what type of site reactions do you have? (this is a problem that I experience with Beta). Thanks for your input. Kim in Nebraska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Thanks Isela, That makes me feel a little more comforted. Kim copaxone ? Hi all, I've been on Betaseron for about 2+ years now. My neuro has suggested to me to think about changing to Copaxone. He gave me a big info box for it. I want to pose the question to those of you who use Copaxone.... what type of site reactions do you have? (this is a problem that I experience with Beta). Thanks for your input. Kim in Nebraska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Hi Bill, The Beta is also a subcu shot, just every other day. The site reactions are just way out of hand and my legs, arms and belly look like red, purple and are starting to get hard...hence my doc suggesting Copaxone. Since Copaxone is NOT an interferone, he said it might be good to chance to it to give myself a break until the Antegren comes out. He was pretty disappointed that the FDA is dragging their feet on the Antegren, said it will be 2 years now...ARG!!!!!!!!!!!!! I am wanting to talk with people on Copaxone to see what their sites react and look like. No sense in changing if there is also a site reaction problem too. No better people to talk to than the people who themselves use the med right?! Thanks, Kim copaxone ? Hi all, I've been on Betaseron for about 2+ years now. My neuro has suggested to me to think about changing to Copaxone. He gave me a big info box for it. I want to pose the question to those of you who use Copaxone.... what type of site reactions do you have? (this is a problem that I experience with Beta). Thanks for your input. Kim in Nebraska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Hi Kim you caught me online. I was telling my wife last night neurologist should join discussion groups so they can really learn more about the diseases they treat. I told Judy it is funny my doctor told me MS is not a family condition and he may be right but as I have met more people with MS I run across a few that have other family members with MS also. I was also told my diabetes has no connection to my MS but I have read some doctors don't believe that is true. I wonder if the doctor who joined this discussion group would tell us all we are dumb and don't know anything about MS. Bill copaxone ? Hi all, I've been on Betaseron for about 2+ years now. My neuro has suggested to me to think about changing to Copaxone. He gave me a big info box for it. I want to pose the question to those of you who use Copaxone.... what type of site reactions do you have? (this is a problem that I experience with Beta). Thanks for your input. Kim in Nebraska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Bill, EXACTLY! My neuro is great! I think I've noted before that his sister also has MS, so he is a really great dr. He spent 1 1/2 hours with me last week at my appt. He has such a caring personality, I still can't believe that the other neuros that I went to were so UNpersonable. Kim copaxone ? Hi all, I've been on Betaseron for about 2+ years now. My neuro has suggested to me to think about changing to Copaxone. He gave me a big info box for it. I want to pose the question to those of you who use Copaxone.... what type of site reactions do you have? (this is a problem that I experience with Beta). Thanks for your input. Kim in Nebraska Quote Link to comment Share on other sites More sharing options...
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