Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Dear Jan, I used to be scared... now I'm just numb - I guess I expect things to happen. It's also easier with the support of the wonderful people in this group. Her last decline was about 6-8 months ago, and it was a little one, and she's been holding steady since. We just keep hoping for the best and for a relatively easy ride. Many hugs, Helene Subject: Re: new To: LBDcaregivers Date: Tuesday, November 4, 2008, 4:32 PM im so sorry helene, for your mom. how do you feel emotionally? has it scared you as her situation has deteriorated? i think its wonderful that your aunt is keeping her at home. thats very special of all of you. luv jan > > From: janiceshapiro95 <janiceshapiro95@ ...> > Subject: new > To: LBDcaregivers@ yahoogroups. com > Date: Monday, November 3, 2008, 5:04 PM > > > > > > > hello, im new here. my name is jan. my dad was diagnosed with LBD about > 2 to 3 years ago. we actually didnt know this till yesterday (long > story). we had thought he had parkinsons and alzheimers. > > BUT...he actually has LBD. all i know is from what i have read up on > internet sites. i am so new to this. im in shock, and i am devastated, > and i need to talk to someone. if anyone can help me, with some support > and info, and what this is really all about i would be so grateful. > thanks jan > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 Janice, dear lady, you are feeling hurt as will happen many times before all this is over. I am so sorry. It is hard to accept that our loved ones can't help it. My darling husband of 38 years has accused me of partying all night and bringing someone home with me. Now that hurts. But, he is paranoid, suspicious, jealous, and fighting this disease that he doesn't know how to handle. He is devastated. One dear girl's father tried to sell her as a prostitute, and she was called one in front of others. She was crushed, and she has serious health issues. A nurse comforted her for a long time, as I understand it. She tried to assure her that it was all part of the disease. Yes, it's hard to take. But, it will happen and our LO can't help it. The lesions in their brains do all kinds of crazy thing to them. My husband said, " I hate this disease " when he had a lucid moment. We all do. It is the ugliest of all illnesses I do believe. It only gets worse before they are released from all of it in death. Darling, I am so sorry for the hurt, but you will square your shoulders and be brave for your Daddy who loves you dearly. Love a lot and be strong, Imogene In a message dated 11/5/2008 4:15:11 PM Central Standard Time, janiceshapiro95@... writes: im so sorry. today my dad said he knows all of his kids and grandchildren, but he cant remember who fits with who. mn dad is a doctor, and was an extremely talented man in many fields, including photography, wood work, and he could converse with ANYONE on ANY topic. it is devastating to see him like this. the forgetting things has been for years, but this sudden deterioration has left me absolutely traumatised. today he told me he didn't know who i was married to. and he didn't know the difference between me and my sister. i am so - i dunno what jan **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\ searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 Yes, Jan She passed on October 20th at 12:58 PM Gladys -- Re: new hi gladys. thank you so much for your warm welcome. by your mom being freed from LBD, do you mean she passed away? luv jan ------------------------------------ Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2008 Report Share Posted November 5, 2008 Jan S, Mom came to live with me at the end of '98. Her initial diagnosis was Alzheimers. I never did get a different diagnosis. Back then it was hard to get much more than " dementia. " I just knew Mom was different than most of the AD people that were in one of the groups. I started to look and found LBD and it fit all her symptoms way to well. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: new hi donna, thank you for writing to me. i admire you so much for remaining here to help other people. i have another similar situation but did not have the strength at all to stay on and help once my baby was no longer with me. anyway... thats another issue. i am so sorry for the loss of your mom, and can only imagine what you have been through. how long before she passed away, was she diagnosed? what was it like looking after her? luv jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Dear Jan, We all understand the feelings you are having... it is so hard to watch the decline. We are all here for you. Knowing there is this kind of support has helped me so much in dealing with Mom's situation. Many hugs, Helene > > From: janiceshapiro95 <janiceshapiro95@ ...> > Subject: Re: new > To: LBDcaregivers@ yahoogroups. com > Date: Tuesday, November 4, 2008, 4:32 PM > > > > > > > im so sorry helene, for your mom. how do you feel emotionally? has it > scared you as her situation has deteriorated? i think its wonderful > that your aunt is keeping her at home. thats very special of all of > you. luv jan > > > > > > From: janiceshapiro95 <janiceshapiro95@ ...> > > Subject: new > > To: LBDcaregivers@ yahoogroups. com > > Date: Monday, November 3, 2008, 5:04 PM > > > > > > > > > > > > > > hello, im new here. my name is jan. my dad was diagnosed with LBD > about > > 2 to 3 years ago. we actually didnt know this till yesterday (long > > story). we had thought he had parkinsons and alzheimers. > > > > BUT...he actually has LBD. all i know is from what i have read up > on > > internet sites. i am so new to this. im in shock, and i am > devastated, > > and i need to talk to someone. if anyone can help me, with some > support > > and info, and what this is really all about i would be so grateful. > > thanks jan > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.