Re: A newbie!

[Guest guest]

Be very careful of HALDOL or ATIVAN they put my dad into a

vegatative state and will do the same for most LBD people. The

hallucinations make them act out ( my dad ran away 3x to get away

from them) He was quite strong and physical so the NH would call us

in when he became aggressive and we had to calm him down until we

found a dementia only NH which has been a blessing. The best

medicine we found for halluciantions was SEROQUEL and he got it am,

pm and nite and had a standing " as needed order " It must be given

BEFORE the agitation sets in and it takes a while to find the right

dose and timing . In the beginning, he was quite sleepy but

adjusted after a while. REMEMBER when it comes to meds and LBD

LESS IS BETTER !! Good luck -

-- In LBDcaregivers , GEstep3457@... wrote:

>

> Hello, my 87 year old dad has recently been diagnosed with LBD.

He has gone

> from being a very active, intelligent professional to a pretty sad

state. He

> falls, has slurred speech, and worst of all has bouts of

aggressive behavior.

> He hasn't had a driver's license in a couple of years, but

insists he is

> going to buy an RV and drive to Alaska. He keeps making phone

calls; as we

> find out about them we call the folks back and explain the

situation.

>

> He had been in a skilled nursing home but they made him leave a

couple of

> weeks ago and he and mom (who has Alzheimer's) are in their house

next to my

> sister. They have 24 hour care, but I doubt the caregivers will

last very

> long.

>

> Has anyone advice regarding medications they have found helpful?

We are

> working with a neurologist, but it is slow going. Medications to

avoid at

> all costs? His regular doctor has suggested Haldol might be

necessary. The

> neurologist discourages that, but we need to do something

differently. I

> live a hundred miles away and my poor sister is stuck with a big

load.

>

> E.

>