Re: New Member

Report post · November 6, 1999

Hi

> > 1. Jennie had her pituatory gland tested about 4 years ago for

> growth hormones and she is producing them but she is short for

> her age (my other children are overtaking her) she is growing all be

> it slowly. My question is Are their any chargers out there producing

> hormones that are having injections to boost their growth?

My son does not have charge, does have similar midline problems. he has

low levels of GH and other hormones, and has been on GH for 3 years. His

body does produce a little GH, but he quit growing at about age 2. he just

recently caught up and got 'on the curve " thanks to GH replacement.

Endocrine hormone levels can change at any time in the childs life. A test

4 years ago is not necessarily representative of levels she has now.

Usually, if levels are going to change drastically, the become lower. I

would say her lack of growth certainly warrants asking a doc (endocrine)

about GH. And, again, I don't know charge, but I do know that deficiency in

GH and other endocrine hormones can affect the function of organs like the

kidney, liver, etc. It is probably not too likely that is the problem, but

it is possible.

Jelena Salt Lake City UT

Wife to Liam, Mom to Matt 16, Logan 7 (bilateral cleft lip and palate,

partial ACC and SOD: ONH, partial panhypopit, SI disorder and hearing

impaired?), Connor 3 and Duncan 16 months

Report post · February 13, 2002

>

> I do have a weird question. Would anyone happen to know the points

> value for a jalepeno popper? Before I started the program we bought

> a whole box of frozen ones, and I don't dare eat one until I find out

> how much they are worth! lol I plan to cook them in the oven and

> not in the deep fryer. These are the kind with cheddar cheese in the

> middle. I can't imagine they'd be TOO high, but that could be

> wishful thinking! hahaha

According to the Complete Food Companion, pg 29, jalapeno poppers are 4

points each, stuffed jalapenos (prepared without fat) 2 (2 oz) are 4

points. However you can look at the nutritional analysis on the box and

figure out the exact for points for that product. HTH Enjoy the

" honeymoon " . LOL!

Pat

Report post · February 14, 2002

Pat wrote:

> According to the Complete Food Companion, pg 29,

> jalapeno poppers are 4 points each, stuffed jalapenos

> (prepared without fat) 2 (2 oz) are 4 points. However

> you can look at the nutritional analysis on the box and

> figure out the exact for points for that product.

Yeah, well that's why I had to ask, cuz there wasn't any nutrition

information at all on the box. But 2 poppers (without fat) for 4

points seems pretty do-able for me for treat once in awhile!! Thanks

so much for you help!

> Enjoy the " honeymoon " . LOL!

I will!

> Pat

Report post · February 27, 2002

Thanks to everyone for the warm welcome and words of encouragement.....I'll keep

you posted!

le

Re: New Member

le,

First, welcome!

Second, this is a lifestyle change and the only one you should

use as your gauge is you. We are all unique individuals. Our

bodies process foods, emotions and everything in their own

ways. Some people in a stressful situation, panic, others

remain calm, others turn to exercise to relieve the stress...some

of us to food. The thing is we all react to things differently.

Bodies process food differently. Some will do well on WW as is,

others will need a plan such as Wendie.

A healthy weight loss is usually recounted as 1-2 lbs. per week.

My doctor explained that, in fact, it should really be about 1but no

more than 2 percent of your body weight (and you should always

strive for 1percent). So I, having started at 345 lbs., would be

safe to lose 3.5-7 lbs. As my weight goes down, the amount

does too. I am at 293.5.

However, that being said, keep in mind that everyone is different.

You should never look at how much in a week other people lose

and compare yourself to them. Some people put on weight

easily, others do not. It's the same with losing weight.

At times, your body is going to think you are going into " famine

mode " because you've cut down your calories and fat intake.

When this happens, the body tries to hang on to fat " just in case " .

These people are actually the type that would survive under

" harsh " conditions. So look at yourself as a " survivor-type " and

use it to your advantage. You may need to retrain your body.

Teach it that it can survive with better food first. Eat all your

points, but make sure they come from good and healthy foods

that are low in fat, high in fiber and primarily come from the

vegetable, fruit, grain and legume sections. These foods provide

you with nutrition, calories are more readily available for energy

and keep your blood sugar at a steady peak instead of the fast

high/ fast low that processed foods and sugars create. Vary the

points during the week. Trick your body. Don't let it know what

you're doing.

You know, if you take medicines for a length of time, your body

becomes resistant to it. I watched my brother do it with aspirin.

Now when he has a headache, he may take several aspirin

where I may take 1/2 a pill and it works. Much in the same way,

the body can get used to the same amount of food, the same

amount of exercise. It begins to think it's normal, so nothing

changes. Shake it up. Vary the intensity of workouts, eat

different foods and their amounts.

One pound takes work to lose. On those weeks where you don't

lose or even gain, take a good luck at your food/exercise journal.

If you've been doing everything as you should, then chalk it up to

your body trying to normalize and " mix it up " . Try adding a little

more exercise, change your foods, give yourself a day of

complete relaxation. Oops, did I say do nothing? Yep,

sometimes even that works.

Find what works for you but be prepared to be challenged by your

body to change what works.

And remember, challenge is what makes life worth it.

Remember all those athletes we just saw at the Winter

Olympics. Jim Shea, third generation Olympian, said his

grandfather (gold medalist in '32) told him it wasn't about the

medal at the end, but the journey.

I believe the medal, or the goal which is met, is a moment in

time that celebrates a part of the journey...but we go on from

there...with newer and better goals...because that is what makes

us grow as people and helps us encounter things and people

that make the journey worth remembering and certainly worth

having taken.

There are good things that have happened to me and many bad

things, but I am who I am because of them...and that's a pretty

good person...and what I am becoming is yet to be seen, but it

has all the earmarkings of a person who loves herself and

knows how to enjoy life.

Good luck to you,

Cris

>

> Hi, there!

> I've been on the Winning Points program for almost 2 weeks

(Friday will be my second weigh in). I'm doing pretty well with

it...not feeling too deprived, and eating tons more fruits and

veges and skim mild than I used to, which I know will make me

healthier in the long run.

>

> I am a little disheartened because I lost *maybe* one pound

the first week, and have this fear that there is just something

*wrong* with me and I will not have lost any again this week. My

husband, on the other hand, tried about half as hard as I did and

lost 3 pounds...lol..of course.

>

> I've been follwing the posts about the Wendi plan very closely

and plan to give that a try.... I'm very excited to see if it makes a

difference and I'll keep you all posted.

>

> Even though I haven't really lost yet, I'm very excited about the

program and feel good about myself just for sticking with it. My

sister and her husband are also on it...and after 6 weeks she's

lost 12 pounds and he's lost 28!! He just hit his 10% last

week...we're all so proud of him!

>

> Thanks for letting me join and I look forward to being part of

your list!

> le

>

Report post · April 12, 2003

Hi and wellcome to the group. Yes you are hypo with a TSH of 6.18 , (new limits are 0.3 to 3.04). Has your Doctor started you with thyroid replacments yet ? read this link on new limits. http://thyroid.about.com/library/weekly/aanewTSHrange.htm diets : to loose or keep weight I feel higher protein diets of which there are several are perhaps better for people with thyroid problems, like sugar busters. keep comming with the questions ... Be Well BoB New Member Hi,I just found out I have hypothyroidism.... my test came back at 6.18 which from what I have seen is mild hypothyroid. I also have been diagnosed with hypoglycemia... I don't know anything about either of these, so I'll probably sound stupid asking questions...I have so many questions I don't even know where to start! I guess for now, does anyone have suggestions for diet? Like should I have carbs and protein balanced or have more protein than carbs? Sounds funny with the timing, but I will be out of town this weekend so that's why I'm not responding...

Report post · April 13, 2003

More questions:

1) what is a glycemic index?

2) why no soy products?

3) has any female here heard of Polycystic Ovary Syndrome? It seems to me

the symptoms are quite similar (weight gain/inability to lose weight or keep

it off, depression for example) to hypothyroid. Has anyone been diagnosed

with that instead of hypothyroid only to find out it's really the thyroid

that has been out of wack and the PCOS doesn't exist? I've been wondering

that all weekend cuz doctors have told me I have PCOS and I don't exactly

believe it...

4) About Atkins. I know this is supposed to be high protein low carb

diet... my question is really about the products in the stores... like the

bars and drinks.... on the bars it says " net carbs: 2 " or something to that

effect. How does that work and are they good for hypoglycemia AND

hypothyroid.

5) What is the difference between t3 and t4? Should I be getting my t4

checked also?

6) Is hypothyroid something that comes and goes or is it constant? Like, in

1999 I had an issue, but then it went away according to the blood tests and

now it's appearing again.

To those who asked and are wondering -- I just found out on Thurs late about

my stuff and already had a follow up appointment for this Tues. He did say

something about thyroid medicine. I've been on Synthroid before...

Thanks

_________________________________________________________________

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Report post · April 13, 2003

Hi ! I will try to answer some of your questions!

1) A glycemic index refers to the action of carbs in different foods and how fast they raise your blood sugar and how much

2) I will let others answer this

3)Yes, I have heard of PCOS, and I have a friend who has that dx along with hypothyroidism,and possibly cushings.

4)another I will let someone else field

5) Yes, You should have your T4 checked too- and make sure that the tests include Free T3 and Free T4,these are better indicators of thyroid function. T4 needs to be converted to T3 to be used in your body, but all the thyroid hormones are needed.

6) Yes, hypo can come and go as in hashimotos, where you can be also hyperthyroid as well as the hypothyroid

I am sure you will get more feedback on your very good questions. We are happy you joined us, !Check out our links , we have a lot of good information available.

Hugs,

Feisty

Webb Osterlohgroup co-owner http://groups.yahoo.com/group/The_Thyroid_Support_Group/ATP Board Member,Thyroid Patient Advocate

Re: New Member

More questions:1) what is a glycemic index?2) why no soy products?3) has any female here heard of Polycystic Ovary Syndrome? It seems to me the symptoms are quite similar (weight gain/inability to lose weight or keep it off, depression for example) to hypothyroid. Has anyone been diagnosed with that instead of hypothyroid only to find out it's really the thyroid that has been out of wack and the PCOS doesn't exist? I've been wondering that all weekend cuz doctors have told me I have PCOS and I don't exactly believe it...4) About Atkins. I know this is supposed to be high protein low carb diet... my question is really about the products in the stores... like the bars and drinks.... on the bars it says "net carbs: 2" or something to that effect. How does that work and are they good for hypoglycemia AND hypothyroid.5) What is the difference between t3 and t4? Should I be getting my t4 checked also?6) Is hypothyroid something that comes and goes or is it constant? Like, in 1999 I had an issue, but then it went away according to the blood tests and now it's appearing again.To those who asked and are wondering -- I just found out on Thurs late about my stuff and already had a follow up appointment for this Tues. He did say something about thyroid medicine. I've been on Synthroid before...Thanks_________________________________________________________________MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus

Report post · April 14, 2003

Hi ,

To help answer your question on why no soy, visit this page:

http://search.about.com/fullsearch.htm?TopNode=%2F & terms=thyroid%20soy

There are several very informative pages on the subject.

Hope this helps.

Molly.

Re: New Member

> More questions:

>

> 1) what is a glycemic index?

>

> 2) why no soy products?

>

> 3) has any female here heard of Polycystic Ovary Syndrome? It seems to me

> the symptoms are quite similar (weight gain/inability to lose weight or

keep

> it off, depression for example) to hypothyroid. Has anyone been diagnosed

> with that instead of hypothyroid only to find out it's really the thyroid

> that has been out of wack and the PCOS doesn't exist? I've been wondering

> that all weekend cuz doctors have told me I have PCOS and I don't exactly

> believe it...

>

> 4) About Atkins. I know this is supposed to be high protein low carb

> diet... my question is really about the products in the stores... like the

> bars and drinks.... on the bars it says " net carbs: 2 " or something to

that

> effect. How does that work and are they good for hypoglycemia AND

> hypothyroid.

>

> 5) What is the difference between t3 and t4? Should I be getting my t4

> checked also?

>

> 6) Is hypothyroid something that comes and goes or is it constant? Like,

in

> 1999 I had an issue, but then it went away according to the blood tests

and

> now it's appearing again.

>

> To those who asked and are wondering -- I just found out on Thurs late

about

> my stuff and already had a follow up appointment for this Tues. He did say

> something about thyroid medicine. I've been on Synthroid before...

>

> Thanks

>

> _________________________________________________________________

> MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*.

> http://join.msn.com/?page=features/virus

>

Report post · April 14, 2003

Hi

First of all, when it comes to the thyroid problems causing other hormonal problems, it's kind of like that old saying, "All elephants are animals, but all animals aren't elephants". When it comes to cause-and-effect, yes, the thyroid runs virtually every bodily function, right down to a whole bunch of cellular reactions. It is a master gland, right along with the pituitary and the hypothalamus. ly, I say, as a nonprofessional, but a thyroid sufferer, that one of these organs cannot do without the other one. In other words, if one is messed up, the other one is "off" (because of an intricate feedback system in these marvelous bodies of ours. Know your disease. Find out as much about it as you can. To my knowledge, PCOS can exist without thyroid problems, but knowing what I know now, I would go to great lengths to study all you can about your thyroid. When you have your tests, always get a copy of your lab sheets, and find out which ones were run, and which ones weren't. You definitely want to know your T4, FREE T3, and FREE T4, though some will only do a TOTAL T3 and TOTAL T4. TSH is important, but it is very controversial now about it taking a too-important role in your treatment. I like the About.com site, with Shoman. She is a thyroid sufferer and has a wealth of info on every single aspect of our disease----including the soy issue and all these things. It will amaze you. It is a complicated issue, and everyone is totally individual, when it comes to their body chemistry. Also, there are MANY related issues about inappropriate doctor care, and lack of knowledge from SOOOO many doctors out there.

marin@...

Re: New Member

More questions:1) what is a glycemic index?2) why no soy products?3) has any female here heard of Polycystic Ovary Syndrome? It seems to me the symptoms are quite similar (weight gain/inability to lose weight or keep it off, depression for example) to hypothyroid. Has anyone been diagnosed with that instead of hypothyroid only to find out it's really the thyroid that has been out of wack and the PCOS doesn't exist? I've been wondering that all weekend cuz doctors have told me I have PCOS and I don't exactly believe it...4) About Atkins. I know this is supposed to be high protein low carb diet... my question is really about the products in the stores... like the bars and drinks.... on the bars it says "net carbs: 2" or something to that effect. How does that work and are they good for hypoglycemia AND hypothyroid.5) What is the difference between t3 and t4? Should I be getting my t4 checked also?6) Is hypothyroid something that comes and goes or is it constant? Like, in 1999 I had an issue, but then it went away according to the blood tests and now it's appearing again.To those who asked and are wondering -- I just found out on Thurs late about my stuff and already had a follow up appointment for this Tues. He did say something about thyroid medicine. I've been on Synthroid before...Thanks_________________________________________________________________MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus

Report post · August 23, 2003

Hi Kim! Welcome...

Whether your thyroid restarts or not depends on what caused it to slow...

Might as well figure it won't.

30 mg or 1 grain seems to be a common dose. The dose you need depends on

what, if anything your thyroid puts out as well as your absorption and

all kinds of other things. Starting on a lower dose does let your body

get used to it and with follow up labs and finding out how you are

feeling they will be able to find your optimal dose.

Going without your meds is not a good thing.. eventually you will pay the

price as too many of us are realizing now after going for too long

underdosed or without meds, or on the wrong meds.

When you get your next labs done.. which will most likely be in about a

month or month and a half.. Get your results and post them here.... Well

need the actual numbers as well as the labs ranges.. we'll give you and

heads up on what they look like based on our research and experience.

Topper ()

Group Co-Owner http://groups.yahoo.com/group/The_Thyroid_Support_Group/

http://toppertwo.tripod.com

On Sun, 24 Aug 2003 01:35:07 -0000 " kim " writes:

> Hi everyone,

> My name is Kim. I was recently dignosed as Hypothyroid after a blood

> test showed my TSH to be 7.988. My free T4 was within normal ranges.

> I was prescribed 30 mg of Armour thyroid. Actually I had to talk my

> doc into it as she wanted to prescribe Synthroid. I had heard some

> good things about Armour and wanted to try that instead.

> I have heard that 30mg is too low a dose. Has anyone else started on

> this low a dose?

> What happens if you don't take medication? Does your thyroid ever

> start working normally again without the meds?

>

> Thanks so much,

> kim

Report post · November 1, 2003

Myrlene,

When you say that you had another thyroid test again and it is almost

" stopped " . What do you mean by that?

Without hearing more, for right now... if your thyroid has stopped

producing and you are totally dependant on thyroid supplements and you're

100 pounds heavier AND you are only on 100 mcg of Synthroid I can say

right now, with no hesitation at all that you are seriously underdosed.

Synthroid is supposed to be prescribed at the rate of 1 mcg per pound of

body weight in persons with zero thyroid function.

Personally, after the better part of 13 years on Synthroid, I'll not go

back. I'm taking Natural Thyroid now, a generic of Armour brand, if

you've heard of it.

I lost my thyroid to RAI (Radioactive Iodine) that was used to 'cure' my

hyperthyroid.

There are plenty of folks here that can help you get things figured out.

A good starting point would be to get your current labs. Do have the

figures for your latest blood test? We'd need to see the levels of TSH

Free T3 and free T4 and then we can go from there.....

Welcome to our little family.... You'll find all kinds of info and

support here!

Topper ()

On Sun, 02 Nov 2003 00:45:21 -0000 " birdlady72003 "

writes:

>

> Hello New Friends. I was referred to the thyroid groups

> by someone who already knows how helpful they are to her. I have

> been told I have Hashimoto's thyroid about 10 years ago. I have

> been

> in a wheelchair for 2 years due to an accident where I severely

> broke

> my large bone in my thigh. It splintered and was rebuilt from the

> knee up. I have had so many surgeries for the last 10 years and

> sitting in this chair that I have gained 100 lbs. I am just sick at

> heart and depressed and for awhile gave up on life.

> I'm getting so I'm tired all the time and have 2 or 3 catnaps

> every

> day. I am a senior citizen so I am privileged to be able to have

> naps. LOL

>

> Anyway a friend referred me to this person who said I would be

> able to get some support for many of these problems. I recently had

> a thyroid test again and it is almost stopped. The Dr. raised the

> dosage and it is Synthroid. It is 100mcg now.

> I'd like to know how to get started so I can become informed

> and do something better for myself. I am feeling up and down in

> moods

> and sometimes care and sometimes don't. But while I DO care, I'm

> asking for your input and advice in what you have all learned.

> Sincerely

> Myrlene M.

Report post · November 2, 2003

Yes, 100 mcgs of any synthetic thyroxine med represents that you would have

more than half of your thyroid function left. If the doctor meant literally

that your thyroid is completely " dead " , so to speak, you're not on nearly

enough medication. As for me, I won't take thyroxine-only meds,

exclusively, anymore. I take Armour. Some people take a combination of

Armour and thyroxine, if they're still not making enough of the T4

(thyroxine), but they're getting plenty of T3 (triiodothyronine). Synthroid

and other drugs like it are only T4,some of which converts to T3, but it's

not nearly like our own thyroids used to make. When our own thyroids were

healthy, they made T1, T2, T3, T4, and calcitonin (takes the calcium out of

your blood and deposits it in your bones). Armour Thyroid and natural

thyroid meds like it, have all of these, and are most similar to our

originals. We get it all. Yes, you need to post your tests here, with the

normal ranges to compare them to from your lab sheet. If they didn't give

you a copy, ask them for them. They're yours. Do you ever get to get up

out of your wheel chair? Do you get to do any type of range-of-motion

exercises? I know that you need your blood to circulate through all areas

of your body, so that you don't lose all your muscle strength, IF being

wheelchair bound is the cause. Thyroid problems also cause this to a large

degree because we don't usually have the energy to do much when we're

undertreated. Glad you came!

New Member

>

> Hello New Friends. I was referred to the thyroid groups

> by someone who already knows how helpful they are to her. I have

> been told I have Hashimoto's thyroid about 10 years ago. I have been

> in a wheelchair for 2 years due to an accident where I severely broke

> my large bone in my thigh. It splintered and was rebuilt from the

> knee up. I have had so many surgeries for the last 10 years and

> sitting in this chair that I have gained 100 lbs. I am just sick at

> heart and depressed and for awhile gave up on life.

>

> I'm getting so I'm tired all the time and have 2 or 3 catnaps every

> day. I am a senior citizen so I am privileged to be able to have

> naps. LOL

>

> Anyway a friend referred me to this person who said I would be

> able to get some support for many of these problems. I recently had

> a thyroid test again and it is almost stopped. The Dr. raised the

> dosage and it is Synthroid. It is 100mcg now.

> I'd like to know how to get started so I can become informed

> and do something better for myself. I am feeling up and down in moods

> and sometimes care and sometimes don't. But while I DO care, I'm

> asking for your input and advice in what you have all learned.

> Sincerely

> Myrlene M.

Report post · November 29, 2003

Hi, ,

With some

(probably very few) doctors altering the way you take your Armour could

prompt them to increase the dose... I am finding it much better,

and easier, to talk to the doctor about how I am feeling on the current

dose. Most of the doctors go by the test results. It is

necessary to give them an education on how dealing with the symptoms is

going to make you feel better and save them from having to listen to you

complain to them about the same things over and over again. The

goal is to be well or at least feel well. The goal is not to play

the numbers game with them.

Yes, this

can be a slow process, but at least you have an opportunity to teach them

something while you work toward getting the relief you want and

need. As I explained it to my doctor.... " The TSH test

ranges were determined by testing people who do not typically need a big

adjustment in their medication because they were not on medication when

the normal range was determined. After medication has been started,

regardless of which one, the numbers in the TSH tests are skewed because

there is thyroid hormone present, but it may not be a high enough dose or

it could be the wrong type of hormones. If the body is not getting

enough T3, there are definite symptoms. How does one test

that? By adding low-dose T3 in slowly graduated increasing doses

until the symptoms disappear.

This is

somewhat like what Diabetics go through to determine their dose of

Insulin and other medications to control their blood sugar levels.

If an excess amount of certain foods is eaten, then the insulin dose

needs to be adjusted. That is premised on the fact that certain

foods will cause a rise in the sugar level. That is also why

Diabetics have to control things from the food intake side. They

can cause serious damage to their bodies if the sugar is out of control

or if they take too much or too little insulin. Insulin is a

short-acting medication, so frequent testing is needed -- especially when

they are first diagnosed.

The

difference with Thyroid is that it takes the body longer to adjust to the

replacement hormones. If increasing the T4 medication does not

provide relief from symptoms, then the Free T3 is the " key "

test. If the level is too low, then T3 must be added.

Determining how much T3 is a bit of a guessing game, as the T4 is

supposed to be converted. If the conversion is not adequate, then

increasing the T4 is not going to change the T3 levels and the symptoms

will remain. If the T3 intake is increased, then the result will be

seen in the Free T3 test and there will be some change in the severity of

symptoms.

Those are

the arguments I am using with my doctor. Since the arguments are

logical and are medically sound, he really has no choice but to try

increasing the T3 to see if better relief of my symptoms is

achieved. Had he refused to listen to me or outright refused, I

would be looking for a new doctor.

Dianne

At 11:19 AM 11/28/03 -0500, you wrote:

I have a

question. If you want more of the Armour wouldn't you be smart to

go ahead and swallow your pills the days before the blood test so he

raises the amount you are on?

--

Report post · January 31, 2005

Welcome !

We all fall off the wagon at times but I thinking it is the falling off that makes getting up so sweet! I wish much joy and success on your path back to fitness!

Tae Bo Love

Tyra

----- Original Message -----

What would you like people to know about you? Though I've let my health go for awhile, I'm really dedicated to working hard this time and learning from others.

Report post · July 27, 2005

--Hi Ann

Welcome to our tae bo group. Tae bo is fun. With 4 boys, you must

be very, very busy. has some inspirational and Believers

tapes also. Have a blessed day!

TiBo Tiger <><

- In tae-bo_on , " Ann M. Harrell " <blssd5x@y...>

wrote:

> What is your name? Ann

>

> How old are you? 36, in November

>

> Where are you from? NY but now reside in MD

>

> Tell us a bit about your family (spouse, kids, pets, etc.):

Husband and four

> sons (6y, 8y, 10y, and 12y)

>

> How long have you been doing Tae-Bo? almost two months

>

> What tapes do you have? BootCamp, ten of 's older Tae-Bo

videos, and I

> just ordered Fat Blasting and Xtreme BootCamp

>

> What are your fitness/weightloss goals? lose 55 lbs, trim and

tone, and

> develop more energy

>

> What results have you had so far (both physical and metal)? lost

15 lbs and

> 4 inches, and developed greater self-confidence

>

> What do you like most about Tae-Bo? extremely motivating, builds

strength

> (physically and emotionally), extremely challenging

>

> What do you like least about Tae-Bo? n/a...love it all

>

> What other exercises/activities do you do? keeping up with a

husband and

> four boys is enough additional exercise on top of my 6 hrs/week of

Tae-Bo

>

> What are your hobbies/interests? church, family, fitness, reading,

and

> travel

>

> What would you like people to know about you? I am a woman of

faith and

> fortitude...getting stronger (inside and out) every day

Report post · June 23, 2006

Its about 45 and everytime I do it. I feel that I have worked my entire body.

I am so pround of myself. I know my past 3 weeks have worked, cause today everyone I work with have noticed the change..

That's awesome ! I think I'm going to order it today.

Regina

Report post · July 20, 2008

Hi Shomy, and welcome! You are fortunate to be sharing the caregiving with your

sister. So

many of us are in that role alone. It does take its toll. Remember to take

care of yourselves

as well as your dad so you will be able to give him the best care possible.

Gibsons BC

Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD.

>

> Hello,

> I was told in an email to email back to this address so that I can start

posting messages on

the LBD caregivers group.

> My sister and I are caring for our 84-year old dad with LBD and I look forward

to insights

and advice and support from this group.

> Thank you.

> SS

>

Report post · July 20, 2008

Thanks Ron and keep in touch if you have any advice send it my way. What is your

story with LBD?

Subject: Re: New Member

To: LBDcaregivers

Date: Sunday, July 20, 2008, 9:15 AM

Hi,

Im very sorry to hear about your father.Welcome, Im sorry you have to be here

but grateful that you are.You will find many wonderful caring people here and

the knowledge to be gained here is amazing.I dont have nearly the good advice as

others here so I will leave most of that to them but sending you a heartfelt

and warm welcome.from one stressed out scatter brained (but still going strong),

caregiver. Ron

New Member

Hello,

I was told in an email to email back to this address so that I can start posting

messages on the LBD caregivers group.

My sister and I are caring for our 84-year old dad with LBD and I look forward

to insights and advice and support from this group.

Thank you.

SS

Report post · August 18, 2008

Hi Beth,

Welcome to the group, I’m sure you will find, as so many of us have, a fund of humour, experience and knowledge as well as support. As far as I know, this group originated in Australia.

Through emigration 1950s-60s, many UK people who maybe had whooping cough, lots bronchitis etc, ended up in Australia. I’ve heard bronch referred to as an “old English disease”. I read an article that claimed there had been little research done on bronch in 40 yrs, in Australia, & assume UK would have more research – bigger population, decades of smoky polluted industrial cities...

There are some people from UK on these sites, but have often wondered does Britain have other sites that most Brits prefer?

I have heard of others w/ MAC dx bronchiectasis, google <MAC bronchiectasis>, & go for sites such as Mayo, Merck, UK medical sites rather than sites claiming to have cures etc.

As for hair loss – sorry cannot help at all...as far as I know, no link to bronch I know of.

It is hard to tell, particularly thru menopause years, but I think generally it is just a dry-heat flush.... If the sudden heat breaks out in a sweat, after feeling cold, chilly – enough to put something warmer on even tho the weather may not be cold, I’d say low-grade fever/infection symptom. Guess it also goes w/ other symptoms, what you’re coughing up etc.

Cheers,

joy

Report post · August 19, 2008

Hi Beth, I was diagnosed with bronch in 1992. I am 58 years old and I also had (Yea! I can say had now and not have!) MAC. My last sputum culture in June came up negative so hopefully I will be off my 3 meds by the end of December of this year. MAC will cause night sweats which I did experience before going on the medication, but haven't had any for a few years now. Another symptom I had was fatigue and also had pneumonia a few times. I'm not sure about the hair loss, but I had told my pulmonary physician when I first started on the meds, that I thought they were making my hair fall out. The dermotologist could not find anything wrong. It seemed the more he increased the dosage, the more my hair fell out. I guess I won't find out if that is the cause until after the first of next year. If anyone in this group has any remedies for growing hair besides

"Rogaine," let me know. Jan in St. Louis, Missouri Beth wrote: Hello I have recently been diagnosed with this problem and am keen for the support of a group. Can someone please confirm that this group originates in Australia. Thank you. Can someone also assist with with

some ideas on the following My problem seems to be caused by MAC. Does someone else have this and if so, what specific problems has this caused. I am experiencing considerable hair loss and this is causing me more distress that the bronchiectasis. Has anyone else had this problem and if so, how have they dealt with it? Is having hot flushes and sweating a feature of this problem or is it solely menopausal. Thanks Beth

Report post · August 26, 2008

Hi Kat,

When my Mom was having more stomach issues a few years ago, a GI doc

gave her Lexapro, b/c he thought she was depressed. Well, the

hallucinations she had were incredible. She was seeing people, the

couch was breathing, etc. etc. We stopped those meds immediately,

and the hallucinations went away.

Mom is now, in addition to some blood pressure meds, on prozac,

aricept and namenda. Would love to find something that could help

with the tremors in her arms and hands. She used to be such a great

cook, and now it's a labor to feed herself.

Helene

>

> Hi All,

> I have kinda been observing how things work. Here is my intro:

> My Mom has been seeing a Neurologist since her hemmoraghic brain

stem

> stroke in Feb '06. Zolpidem was given during her stay in rehab for

a

> week after the stroke. She was misdiagnosed with side effects from

> medicines and low vision (which causes hallucinations). She is

also

> dealing with double vision and balance issues from the stroke. 20

> months after the stroke, she had learned to walk and do the stairs

> both with assistance. At 86 years young, she told her

> Neurologist, " I'm an old lady now. I'm 86 you know. " Clonazepam

was

> considered the wonder drug that helped control her anxiety and

> uncontrollable movements of her left leg allowing her to walk with

> little assistance. She has had care 24/7 since her stroke and

thinks

> I hold her back by not allowing her to walk by herself, " And when

are

> you going to let these girls (caregivers) go and leave me alone? "

> In 10/07 her complaint was a man singing in her head. He didn't

have

> a bad voice. He just sang the same songs over and over.

Neurologist

> started with Seroquel then switched to Zyprexa. Mom had problems

> walking on these meds and was trying to perform in rehab for her

> stroke in order to qualify for more rehab. I chose rehab over the

> singing in the head. At this time we could explain away the

> hallucinations. She had several bouts with pneumonia all cured at

> home with antibiotics. Levaquin was ruled a contributor to her

drug

> induced hallucinations. A neuropsych eval in 2/08 showed lewy body

> disorder without dementia. Neurologist put her on Namenda in

4/08.

> She suggested a Geriatric Psychiatrist, who took her off Namenda

and

> put her on Abilify and Exelon. No mention of the Clonazepam by the

> Psychiatrist. I worked to get the dosage up on the Clonazepam to

> help with the tremors in her left shoulder and uncontrollable

kicking

> of her left leg which seemed to be getting stiffer and she

complained

> that her foot was stuck on the floor (both stroke or so I

thought).

> I then started the Abilify. I received a call at work that an

> ambulance had been called by daycare because my Mother was

> unresponsive. The Psychiatrist told me no way the Abilify would

> affect her walking. ER said she was over medicated. Hmmmm

> Stop Abilify; lower Clonazepam; call Psychiatrist. He pats me on

the

> back. Now he says Clonazepam is not good for someone

hallucinating.

> Thanks. Neurologist confirms I should follow the Psychiatrist now

> that she is diagnosed. Note to self: time to accept clinical

> diagnosis of LBD any more proof will come in symptoms...until death.

> Today she is on her second week without Clonazepam. I always hated

> that drug. It's not covered by any insurance. Look forward.

> Prozac, Abilify, Exelon are the mix of the moment.

> Kat

> Caregiver for Jane, Mother, 86, diagnosed 3/08 LBD

>

Report post · August 26, 2008

whenever dad got upset teh doctor added zoloft 50mg and in 18 months we were up

to 150 mg it helped him a lot and it seemed to calm him which also seemed to

help with some tremors, daddy had some tremors but they normally werent too bad.

but zoloft did help with aggravation, aggression, depressiong and agitation.

zoloft was our life savior. good luck an dhugs, sharon

Subject: Re: New Member

To: LBDcaregivers

Date: Tuesday, August 26, 2008, 10:48 AM

Hi Kat,

When my Mom was having more stomach issues a few years ago, a GI doc

gave her Lexapro, b/c he thought she was depressed. Well, the

hallucinations she had were incredible. She was seeing people, the

couch was breathing, etc. etc. We stopped those meds immediately,

and the hallucinations went away.

Mom is now, in addition to some blood pressure meds, on prozac,

aricept and namenda. Would love to find something that could help

with the tremors in her arms and hands. She used to be such a great

cook, and now it's a labor to feed herself.

Helene

>

> Hi All,

> I have kinda been observing how things work. Here is my intro:

> My Mom has been seeing a Neurologist since her hemmoraghic brain

stem

> stroke in Feb '06. Zolpidem was given during her stay in rehab for

a

> week after the stroke. She was misdiagnosed with side effects from

> medicines and low vision (which causes hallucinations) . She is

also

> dealing with double vision and balance issues from the stroke. 20

> months after the stroke, she had learned to walk and do the stairs

> both with assistance. At 86 years young, she told her

> Neurologist, " I'm an old lady now. I'm 86 you know. " Clonazepam

was

> considered the wonder drug that helped control her anxiety and

> uncontrollable movements of her left leg allowing her to walk with

> little assistance. She has had care 24/7 since her stroke and

thinks

> I hold her back by not allowing her to walk by herself, " And when

are

> you going to let these girls (caregivers) go and leave me alone? "

> In 10/07 her complaint was a man singing in her head. He didn't

have

> a bad voice. He just sang the same songs over and over.

Neurologist

> started with Seroquel then switched to Zyprexa. Mom had problems

> walking on these meds and was trying to perform in rehab for her

> stroke in order to qualify for more rehab. I chose rehab over the

> singing in the head. At this time we could explain away the

> hallucinations. She had several bouts with pneumonia all cured at

> home with antibiotics. Levaquin was ruled a contributor to her

drug

> induced hallucinations. A neuropsych eval in 2/08 showed lewy body

> disorder without dementia. Neurologist put her on Namenda in

4/08.

> She suggested a Geriatric Psychiatrist, who took her off Namenda

and

> put her on Abilify and Exelon. No mention of the Clonazepam by the

> Psychiatrist. I worked to get the dosage up on the Clonazepam to

> help with the tremors in her left shoulder and uncontrollable

kicking

> of her left leg which seemed to be getting stiffer and she

complained

> that her foot was stuck on the floor (both stroke or so I

thought).

> I then started the Abilify. I received a call at work that an

> ambulance had been called by daycare because my Mother was

> unresponsive. The Psychiatrist told me no way the Abilify would

> affect her walking. ER said she was over medicated. Hmmmm

> Stop Abilify; lower Clonazepam; call Psychiatrist. He pats me on

the

> back. Now he says Clonazepam is not good for someone

hallucinating.

> Thanks. Neurologist confirms I should follow the Psychiatrist now

> that she is diagnosed. Note to self: time to accept clinical

> diagnosis of LBD any more proof will come in symptoms...until death.

> Today she is on her second week without Clonazepam. I always hated

> that drug. It's not covered by any insurance. Look forward.

> Prozac, Abilify, Exelon are the mix of the moment.

> Kat

> Caregiver for Jane, Mother, 86, diagnosed 3/08 LBD

>

Report post · August 28, 2008

Thanks for the welcome, Helene.

I took Lexapro to try to prevent my migraines. I couldn't eat or sleep and was

nauseas all the time. I only lasted a couple weeks. The weight loss was great

though :-)

The hallucinations my Mom has are like the ones your Mom had on meds. My Moms

don't go away. They just change substance and intensity. Right now she is on

her 2nd week of new meds. I have to figure out how to distract her tonight. We

just got home from daycare/work. She thinks her boyfriend is coming and wants

to get ready. Gotta go deal.

I would really like to know your situation. It's overwhelming trying to keep up

with all the conversations and situations.

Kat

Caregiver for Jane, Mom, 86, survivor of brain stem stroke 2/06, diagnosed 3/08

LBD

Re: New Member

Hi Kat,

When my Mom was having more stomach issues a few years ago, a GI doc

gave her Lexapro, b/c he thought she was depressed. Well, the

hallucinations she had were incredible. She was seeing people, the

couch was breathing, etc. etc. We stopped those meds immediately,

and the hallucinations went away.

Mom is now, in addition to some blood pressure meds, on prozac,

aricept and namenda. Would love to find something that could help

with the tremors in her arms and hands. She used to be such a great

cook, and now it's a labor to feed herself.

Helene

>

> Hi All,

> I have kinda been observing how things work. Here is my intro:

> My Mom has been seeing a Neurologist since her hemmoraghic brain

stem

> stroke in Feb '06. Zolpidem was given during her stay in rehab for

a

> week after the stroke. She was misdiagnosed with side effects from

> medicines and low vision (which causes hallucinations) . She is

also

> dealing with double vision and balance issues from the stroke. 20

> months after the stroke, she had learned to walk and do the stairs

> both with assistance. At 86 years young, she told her

> Neurologist, " I'm an old lady now. I'm 86 you know. " Clonazepam

was

> considered the wonder drug that helped control her anxiety and

> uncontrollable movements of her left leg allowing her to walk with

> little assistance. She has had care 24/7 since her stroke and

thinks

> I hold her back by not allowing her to walk by herself, " And when

are

> you going to let these girls (caregivers) go and leave me alone? "

> In 10/07 her complaint was a man singing in her head. He didn't

have

> a bad voice. He just sang the same songs over and over.

Neurologist

> started with Seroquel then switched to Zyprexa. Mom had problems

> walking on these meds and was trying to perform in rehab for her

> stroke in order to qualify for more rehab. I chose rehab over the

> singing in the head. At this time we could explain away the

> hallucinations. She had several bouts with pneumonia all cured at

> home with antibiotics. Levaquin was ruled a contributor to her

drug

> induced hallucinations. A neuropsych eval in 2/08 showed lewy body

> disorder without dementia. Neurologist put her on Namenda in

4/08.

> She suggested a Geriatric Psychiatrist, who took her off Namenda

and

> put her on Abilify and Exelon. No mention of the Clonazepam by the

> Psychiatrist. I worked to get the dosage up on the Clonazepam to

> help with the tremors in her left shoulder and uncontrollable

kicking

> of her left leg which seemed to be getting stiffer and she

complained

> that her foot was stuck on the floor (both stroke or so I

thought).

> I then started the Abilify. I received a call at work that an

> ambulance had been called by daycare because my Mother was

> unresponsive. The Psychiatrist told me no way the Abilify would

> affect her walking. ER said she was over medicated. Hmmmm

> Stop Abilify; lower Clonazepam; call Psychiatrist. He pats me on

the

> back. Now he says Clonazepam is not good for someone

hallucinating.

> Thanks. Neurologist confirms I should follow the Psychiatrist now

> that she is diagnosed. Note to self: time to accept clinical

> diagnosis of LBD any more proof will come in symptoms...until death.

> Today she is on her second week without Clonazepam. I always hated

> that drug. It's not covered by any insurance. Look forward.

> Prozac, Abilify, Exelon are the mix of the moment.

> Kat

> Caregiver for Jane, Mother, 86, diagnosed 3/08 LBD

>

Report post · August 28, 2008

Thanks for the welcome Donna.

Any way I can cut a patch in half? Mom's really delusional on Abilify and

Exelon. I have cut the Abilify in half already.

Kat

Caregiver for Jane, Mom, 86, brain stem stroke survivor 2/06, diagnosed 3/08 LBD

New Member

Hi All,

I have kinda been observing how things work. Here is my intro:

My Mom has been seeing a Neurologist since her hemmoraghic brain stem

stroke in Feb '06. Zolpidem was given during her stay in rehab for a

week after the stroke. She was misdiagnosed with side effects from

medicines and low vision (which causes hallucinations) . She is also

dealing with double vision and balance issues from the stroke. 20

months after the stroke, she had learned to walk and do the stairs

both with assistance. At 86 years young, she told her

Neurologist, " I'm an old lady now. I'm 86 you know. " Clonazepam was

considered the wonder drug that helped control her anxiety and

uncontrollable movements of her left leg allowing her to walk with

little assistance. She has had care 24/7 since her stroke and thinks

I hold her back by not allowing her to walk by herself, " And when are

you going to let these girls (caregivers) go and leave me alone? "

In 10/07 her complaint was a man singing in her head. He didn't have

a bad voice. He just sang the same songs over and over. Neurologist

started with Seroquel then switched to Zyprexa. Mom had problems

walking on these meds and was trying to perform in rehab for her

stroke in order to qualify for more rehab. I chose rehab over the

singing in the head. At this time we could explain away the

hallucinations. She had several bouts with pneumonia all cured at

home with antibiotics. Levaquin was ruled a contributor to her drug

induced hallucinations. A neuropsych eval in 2/08 showed lewy body

disorder without dementia. Neurologist put her on Namenda in 4/08.

She suggested a Geriatric Psychiatrist, who took her off Namenda and

put her on Abilify and Exelon. No mention of the Clonazepam by the

Psychiatrist. I worked to get the dosage up on the Clonazepam to

help with the tremors in her left shoulder and uncontrollable kicking

of her left leg which seemed to be getting stiffer and she complained

that her foot was stuck on the floor (both stroke or so I thought).

I then started the Abilify. I received a call at work that an

ambulance had been called by daycare because my Mother was

unresponsive. The Psychiatrist told me no way the Abilify would

affect her walking. ER said she was over medicated. Hmmmm

Stop Abilify; lower Clonazepam; call Psychiatrist. He pats me on the

back. Now he says Clonazepam is not good for someone hallucinating.

Thanks. Neurologist confirms I should follow the Psychiatrist now

that she is diagnosed. Note to self: time to accept clinical

diagnosis of LBD any more proof will come in symptoms...until death.

Today she is on her second week without Clonazepam. I always hated

that drug. It's not covered by any insurance. Look forward.

Prozac, Abilify, Exelon are the mix of the moment.

Kat

Caregiver for Jane, Mother, 86, diagnosed 3/08 LBD

Report post · August 28, 2008

Thanks Sharon and Pearl for the warm welcome. Please tell me your situation.

It's very overwhelming trying to keep up with the conversations and situations.

Kat

Caregiver to Mom, Jane, 86, brain stem stroke survivor 2/06, diagnosed w/ LBD

3/08

New Member

To: LBDcaregivers@ yahoogroups. com

Date: Tuesday, August 26, 2008, 5:47 AM