Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Hi LeAnn, I'm in limbo land too. I think if I was diagnosed with MS I would also feel relieved. I would feel like all my questions had been answered. It would explain everything. I wouldn't have to worry any more about what is wrong with me. I could go into battle mode and fight it. Right now I can't fight what I can't identify. All I can do right now is just be grateful and celebrate what I can do. Patti Your MS reactions I was wondering something. First I want to say that I'm still in 'Limbo Land'. But, I would like to know how every one reacted to hearing that they had MS. From what I can gather, most had a 'waiting period' before finding out they had MS. Did you research MS and the ABCR (?) drugs? I was just wondering that's all. Someone had asked me how would I feel if the doctor confirms MS. I said releived. That's it, just releived. Thanks for all who answer. LeAnn __________________________________________________ PattiIn Southern California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 I felt relief. I also felt like shouting to everyone "SEE I wasn't imagining it!" lol I also felt struck by the finality of a diagnosis after expecting it for months. Even though I expected it--it was still a "punch in the gut" feeling. I did a lot of research from the time I had my big attack to the time I was dxed. hugs) SharonCharlene wrote: I was wondering something. First I want to say that I'm still in 'Limbo Land'. But, I would like to know how every one reacted to hearing that they had MS. From what I can gather, most had a 'waiting period' before finding out they had MS. Did you research MS and the ABCR (?) drugs? I was just wondering that's all. Someone had asked me how would I feel if the doctor confirms MS. I said releived. That's it, just releived. Thanks for all who answer. LeAnn __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 On how I felt in finding out I had MS.......well scared, crying....why me Lord, and then a friend ask me why not you.....I am no better then anyone else.....so why not me, well since then I have prayed lots, had my church pray, but for some reason God has not answered this one....He has blessed me in other ways....and then after I learned that MS is not a terminal illness, just lots of hills and mountains to cross over, I have met many people, lots that have to use a cane, and many who are just waiting to help if one needs it, this was my hardest, asking for help........I will tell you what, this illness does humble you if nothing else........Betty/TexasSharon Marsden wrote: I felt relief. I also felt like shouting to everyone "SEE I wasn't imagining it!" lol I also felt struck by the finality of a diagnosis after expecting it for months. Even though I expected it--it was still a "punch in the gut" feeling. I did a lot of research from the time I had my big attack to the time I was dxed. hugs) SharonCharlene wrote: I was wondering something. First I want to say that I'm still in 'Limbo Land'. But, I would like to know how every one reacted to hearing that they had MS. From what I can gather, most had a 'waiting period' before finding out they had MS. Did you research MS and the ABCR (?) drugs? I was just wondering that's all. Someone had asked me how would I feel if the doctor confirms MS. I said releived. That's it, just releived. Thanks for all who answer. LeAnn __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Hi Leann, We are in the same boat. My husband is waiting for a diagnosis. We have a mri with lesions and I can't get a neurologist to consider maybe they aren't caused by my husbands migraines. That he is not making up the muscle weekness, fatigue, spasticity, disorientation, etc. this doctor is stuck in the misconception that MS is a female disease. We go back next month. If we don't get through to him we will seek a second opinion. It goes so deep, this wanting a diagnosis, or if you will, an explanation. tonight we were at a dance and had to leave. there are, amongst our friends, a lot of tongues wagging. They see my husband appear totally well. Then thw next day or week he is sick. some think its an attention thing, some people think its laziness (that we just didn't want to stay and help clean up) and some think he is a hypochondriac. I guess its times like this you find out who your real friends are. I know my husband is a good man and he is not faking this. He is not crazy. and he is definitely not lazy. anyways, just really identified with you. thanks. May God bless you and keep you until we meet again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi Betty Since getting my MS my attitude towards people has changed a lot, I am an impatient person for the most part and have easily gotten angry at someone driving too slow or won't get out of my way. Those feeling towards people all changed when I was hit with my MS. I find my self needing to much assistance from people I don't know to make them angry, especially when in a store using my wheelchair there are a lot of high things I am always happy when someone gives me a hand. I am more patient with people on the road because I am probably that slow guy I use to get angry at, plus if I get in an accident since I use a walker dealing with any accident wont be that easy. My MS did turn me into a liar to people I worked with, I had told them MS can go into remission and I will be back to work in no time. I really thought when my MS first hit me using a walker would be short lived and I would get back to work. I guess we are all kind of dumb to this disease when we first get it. It did not take long to figure out this is not a cold that goes away it will be with me the rest of my life and I better learn to except it. Bill Re: Your MS reactions On how I felt in finding out I had MS.......well scared, crying....why me Lord, and then a friend ask me why not you.....I am no better then anyone else.....so why not me, well since then I have prayed lots, had my church pray, but for some reason God has not answered this one....He has blessed me in other ways....and then after I learned that MS is not a terminal illness, just lots of hills and mountains to cross over, I have met many people, lots that have to use a cane, and many who are just waiting to help if one needs it, this was my hardest, asking for help........I will tell you what, this illness does humble you if nothing else........Betty/TexasSharon Marsden wrote: I felt relief. I also felt like shouting to everyone "SEE I wasn't imagining it!" lol I also felt struck by the finality of a diagnosis after expecting it for months. Even though I expected it--it was still a "punch in the gut" feeling. I did a lot of research from the time I had my big attack to the time I was dxed. hugs) SharonCharlene wrote: I was wondering something. First I want to say that I'm still in 'Limbo Land'. But, I would like to know how every one reacted to hearing that they had MS. From what I can gather, most had a 'waiting period' before finding out they had MS. Did you research MS and the ABCR (?) drugs? I was just wondering that's all. Someone had asked me how would I feel if the doctor confirms MS. I said releived. That's it, just releived. Thanks for all who answer. LeAnn __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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