Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 You can take meds for either low BP or high BP but not both. If she suffers from OH (orthostatic hypotension) -- lightheadedness upon standing -- that can be treated pharmacologically and non- pharmacologically. Many people with OH have supine hypertension. It's best to see a cardiologist or autonomic system specialist. > > Is there any way to stabilize this? My mom's BP has always been very low > (ie, 90/50); now it will run anywhere from that range to 179/96, the highest > I've seen it. And it's causing issues with dizziness and falling. She's > never fallen before, but now it's almost like she semi-passes out, with eyes > closed. OTOH, 99.9% of the time she is totally ambulatory, strong, > absolutely NO problems with gait or anything. In fact, since the side door > is broken on our minivan, she climbs into the back seat from the back > tailgate door, or over the passenger seat, or whatever with no issues > whatsover - *I* can't even do that - lol! And she walks the halls all day > every day. > > Being that she says there is no problem, in spite of having to be caught a > couple of times every day by whomever is nearby (and if she has actually > fallen, she'd either not remember it or wouldn't admit to it), I'm not sure > what the answer might be? Certainly it is WAY too soon to limit her > movement in any way - WAY too soon. > > I know that fluctuating BP is mentioned on the list of potential LBD signs - > I'm really open to any suggestions, as the NH has been asking me what I > think. Outside of trying to limit her, which isn't an option at this time, > anything else anyone can think of? I believe I'm asking the impossible > here... > > His, > Sherry > www.owly.net > daughter of , (mis?)diagnosed with AD in 2005, descent slowed by > Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my > house. We're learning to live with Lewy... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Golly you know a lot of big words . Thanks for your input, I wasn't thinking as much along medical lines as management, if you would care to elucidate on your " non-pharmacologically " comment I'd sure appreciate it! His, Sherry www.owly.net daughter of , (mis?)diagnosed with AD in 2005, descent slowed by Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my house. We're learning to live with Lewy... ----- Original Message ----- > You can take meds for either low BP or high BP but not both. > > If she suffers from OH (orthostatic hypotension) -- lightheadedness > upon standing -- that can be treated pharmacologically and non- > pharmacologically. Many people with OH have supine hypertension. > > It's best to see a cardiologist or autonomic system specialist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Sherry fluctuating bp is one of the most dangerous sympstoms of lbd, becuase if the person gets up adn moves to fast they fall and faint frequently. the are severel ways that we tried to deal with it, and the combo of these two worked the best, one was first Hyzaar 10 which is a bp medicine as well as a water pill, beucae teh bp medcines can make a person retain fluid, dad did pee more when he went but he didnt bpee more often, also our wonderful hospice nurse came up with this 'game ' for dad, when evver he sat up from laying before he turned to move his feet to the side of the bed, we would take 3 deep breaths with in, he loved his rose garden so we would tell him him to smell his roses in deep thru the nose and then blow out the birthday candles 3x, then he would go to his next position and do the 3 ins/outs again, and then he would stand holding on to his walker and with fluctuating bp i would be sure a true walker not a cane is used again 3 in/outs and then as he started takeing steps we would remind him smell the roses daddy and blowout the candels sometimes he would stop and do it, and i think that was his body telling him to stop and catch his breath other times he could walk and breathe at teh same time, depends on his lbd stage. i am sorry i missed your leter but i have been down with a damned kidney infection, also HCTZ 25 mg works well too, we changed him to hctz after 4 months on hyzaar. the actual cause of death was his bp dropping and not being able to recover. you have to keep them hydrated the more water or any fluid but water was best according to our MD who learneda bout lbd for daddy. never let them take off without at least 3 good deep breaths and that is why she used roses adn blow out your birthday candels and she could get away with now andersen taht wouldnt blow out one candle let alone all yours so they would laugh, and he would try harder, you have to find what wording works for you, but deep breathing and hyzaar 25 or hctz 25 are the 2 drugs taht helped dad, and by the way i am on hctz 25 for my kidneys too, and you are supposed to take it in the morning. good luck and hugs, sharon Subject: fluctuating BP To: LBDcaregivers Date: Tuesday, August 26, 2008, 5:01 PM Is there any way to stabilize this? My mom's BP has always been very low (ie, 90/50); now it will run anywhere from that range to 179/96, the highest I've seen it. And it's causing issues with dizziness and falling. She's never fallen before, but now it's almost like she semi-passes out, with eyes closed. OTOH, 99.9% of the time she is totally ambulatory, strong, absolutely NO problems with gait or anything. In fact, since the side door is broken on our minivan, she climbs into the back seat from the back tailgate door, or over the passenger seat, or whatever with no issues whatsover - *I* can't even do that - lol! And she walks the halls all day every day. Being that she says there is no problem, in spite of having to be caught a couple of times every day by whomever is nearby (and if she has actually fallen, she'd either not remember it or wouldn't admit to it), I'm not sure what the answer might be? Certainly it is WAY too soon to limit her movement in any way - WAY too soon. I know that fluctuating BP is mentioned on the list of potential LBD signs - I'm really open to any suggestions, as the NH has been asking me what I think. Outside of trying to limit her, which isn't an option at this time, anything else anyone can think of? I believe I'm asking the impossible here... His, Sherry www.owly.net daughter of , (mis?)diagnosed with AD in 2005, descent slowed by Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my house. We're learning to live with Lewy... Quote Link to comment Share on other sites More sharing options...
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