Dena

[Guest guest]

Hi Dena-

Nothing much to say except it is so nice seeing

a post from you. Been thinking about you and

your mom.

Heartfelt hugs-

Sandie

-- Re: Lewy Lean & Tirades

Hi Myrna

One thing that I think others will agree on is that

evenings seem to be worse than day time for some

reason. Sundowning always occurred with my mom around

4-4:30. She would hallucinate more etc.. Everything

would be more intensified in the evenings. Too bad

your choir practice is not in the afternoon. I really

most people more work. I am sorry that you have to

give up something you really enjoy doing. I gave up so

many different things, but now I am back to most of

them. Possibly think of it as taking a break from

Choir and know that you may return soon. These

episodes can be very frightening. Be safe and keep

praying that is the best advise I can give. Thinking

about you.

Dena

Mother (83) End stages LBD in NH. Currently on no Meds

--- myrnajohnson wrote:

> Gerry said: Another thought----I was wondering if it

> could be linked to the Lewy lean, where the lo leans

> to the side while sitting?

> The strange part about the Lewy lean is that some

> days it is so bad that eating is a real hassle as

> food tends to run down hill. Why is it that it can

> be so bad some days and then go for days, even a

> week or two and not be present? Is it something I

> am doing or am not doing?

>

> Yesterday was an awful day. I decided that I could

> not longer go to church choir practice or sing in

> the choir. I had been taking Jerry with me and,

> while he won't sit quietly in the choir room, I have

> been letting him sit in his SS classroom and even

> wonder the church building if he wants. It is not a

> very large church and it is like home to him.

> Several evenings he has gathered hymn books or other

> literature and piled it up. The final straw was

> when I had to clean up the men's bathroom. Last

> night I told him that I had deiced to quit choir so

> we could be together more. He was really

> aggressive, feeling that " he never gets to go

> anywhere " . What a surprise this was as I make a

> definite reason everyday to leave the house so he

> can not feel confined. We eat out 3 or 4 times a

> week and attend church & Sunday school, go to Senior

> Citizens and some church functions. This is not

> easy for me to do as sometimes he needs a cane and

> sometimes he needs his wheelchair. After his tirade

> about never getting to go anywhere, he was really

> off the wall in being angry.....you can't sell my

> house, I have rights, I am going to leave you and a

> lot of salad talk nonsense. I got him to take his

> nighttime medicine early adding 25 mg of Seroquel

> and he did calm down in about an hour. But I tell

> you, I feared for my safety for about an hour. This

> morning he made no reference to it and got up

> cheerfully to go to adult day care (which he hates).

> Go figure. I think it is the ups and downs and the

> volatile nature of the disease that sends me to my

> knees....a lot of prayer helps. Just needed to

> unload. Thanks for listening (or is it reading?).

> Myrna (68) in Missouri

> Caregiver for Husband Jerry (71)

> Diagnosed AD 1997, LBD 2004

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________