Re: Speech Problems: IMPORTANT INFORMATION!

[Guest guest]

Can I answer this for my daughter that isn't DS or MDS?

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate!!

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Well my son is 14 months, and he says momma, oh, mmmnn, yeah, babba

(for bottle)and mo (for more) He can sign the words more, eat, bye

bye, so altogether he can say/sign 7 words, im pretty sure that is

considered a delay. We just started sign language a month ago and

after three weeks of learning the sign for " more " he has attempted to

say it he just cant get the " r " sound out but he can definantly sign

it. So I guess since he hasnt started actual speech therapy yet, Im

not quite sure what issues he may or may not have, I just assume he

is delayed in speech. His physical therapist said he has the best

muscle tone in his face shes ever seen with a child that has downs

syndrome, also doctors have said the same thing, I told her it may be

because he has MDS instead of DS she said " yeah maybe " has any of

your therapists said that about your child and does it matter with

speech as far as SAYING the word correctly?

Marriah gideons mom

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately

with

> our children here.

>

> I know that many of you have said that your children are " non-

verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but

are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you

did

> to help it!!

>

> Then, tell me if you would be willing to complete a research survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get it

in

> the works quite quickly! This is the ONLY way for us to discover

what

> these problems are that our children are having and how we can help

> them to communicate!!

>

> Please don't wait to respond. I would like to get this information

> out to Dr. Kumin before the week is up! Just click reply and reply

to

> the group! This will help all of you discuss these speech problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!!

LOL)

>

> Thanks!

> Kristy

>

[Guest guest]

hi kristy. i can fax the language portion of shelby's IEP..

also, when we met for shelbys last IEP the de-classified her as " mentally

retarded " and placed her under " other medical " Yea!!!!!

Covington, SRES, REALTOR

Covington Real Estate

http://www.mypalomar.com

Call or Text

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Hi Sorry!

This is going to be specific to mosaic Down syndrome. However, for those who

really think their child has MDS, but have the Ds diagnosis, we would like to

hear from them also, and just put that in your response.

Kristy

Bolduc wrote:

Can I answer this for my daughter that isn't DS or MDS?

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate!!

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Hi

yes, you can fax that. our fax number is

thanks!

Kristy

" sabrina@... " wrote:

hi kristy. i can fax the language portion of shelby's IEP..

also, when we met for shelbys last IEP the de-classified her as " mentally

retarded " and placed her under " other medical " Yea!!!!!

Covington, SRES, REALTOR

Covington Real Estate

http://www.mypalomar.com

Call or Text

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

My daughter is Ellen. She is three years old. She was diagnosed when she

was about 2 with mild apraxia. I am not so sure of this now. She is not non

verbal. Ellen has mds.

This is where we are at now. When ME was little on, she would have what her

speech therapists referred to as pop outs. She would say words, as clearly as

could be, then we would never hear them again. Along with that,she had a

growing vocabulary that she has used appropriately and consistently. She says

Lucky (her dog) Belle (her cat), she refers to each of her siblings(in

particular, her one sibling, she will say his name, Nick, as clear as can be),

mom, dad, eat, please (pease), thank you , and your welcome, hi, bye, yes, no,

drink (jink),apple (bapple),banana, (nana), cracker(clear as can be). She has a

nice little, useful vocabulary. When we say I love you, she replies, I love you

too. It nearly sounds like one word, but is also very clear. She will also say

things like, No Nick. Or bad Belle. Or I want chips. She says hotty for potty.

She says tickle tickle, when we say, cut the pickle.She will attempt to say peek

a boo, but it is pretty blended. I know there are more, and but this is all I

can think of now.

ME has a nice little list of signs she does along with her little list of words.

She has little to no frustration with communication, and does a good job of

letting us know her needs. She understands all of what we say to her, and

follows directions beautifully.

Ellen loves music, and will " sing along " with many songs.

Ellen also will have whole conversations with her own language. If she is

mad at her brother, she will discipline him, with an entire lecture of made up

words. Usually, at the end, she will finish it with a word she knows. She will

sing for us, with the entire song of made up words as well. Of course, again at

the end, she will finish the song with a word she knows. Sometimes throwing

words she knows in the middle of the song.

Ellen loves to be read to, and loves to " read " . She will move her finger

along the page, in the correct order, and " read " the book. She shows great

expression when she is " reading " . All of the words will be made up, and she will

end with a word she knows.

Hopefully this helps you to understand Ellen's speech a bit more. Thank you

for taking the time to do a study on our children. I hope I have shared what you

are looking for. I would happily fill out a survey for your study. Diane

-------------- Original message from " Kristy Colvin " :

--------------

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate!!

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Hi all sorry I have not been too actitve in the group lately.  Anyway Isabella,

is 19 months old.  She was very quiet as a baby.  At 12 months old she tried to

say more words than she does now.  She seems to want nothing to do with

speaking, just no interest.  She gets words and says them for a month or two and

then they seem to be lost.  She seems to also have trouble saying words when she

wants them like bye.  She will always wave bye but the word seems to be delayed

a few minutes if it comes out at all. 

 

Sue

Isabella 19 months mds

Subject: Speech Problems: IMPORTANT INFORMATION!

To: MosaicDS

Date: Tuesday, August 5, 2008, 9:11 PM

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

To: MosaicDS@...: kristy@...: Wed, 6 Aug 2008 04:11:00

+0000Subject: Speech Problems: IMPORTANT INFORMATION!

Hi,

I am not sure if it is a speech problem or just part of development.However,

Braxton will say many words and then not say them again. I have been told this

can be normal?

I would gladly answer questions and participate in research.

Denner

Braxton 2 (MDS), Ashton 2, h 7mos

Hi EveryoneI spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with our

children here. I know that many of you have said that your children are

" non-verbal " or have possible Apraxia. Whatever speech issue your child is

having, I NEED YOUR RESPONSE!!Tell me your child name and age and explain

exactly what they are doing in regards to speech. If they are not having Apraxia

issues or 'non-verbal' issues, but are having a different speech problem, please

respond also!And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did to help

it!!Then, tell me if you would be willing to complete a research survey (about

35 questions) regarding speech.If we can get enough participants for this

research, we can get it in the works quite quickly! This is the ONLY way for us

to discover what these problems are that our children are having and how we can

help them to communicate!!Please don't wait to respond. I would like to get this

information out to Dr. Kumin before the week is up! Just click reply and reply

to the group! This will help all of you discuss these speech problems and what

you are doing in your area to help them.We have over 600 people in our support

group here! I hope for 600 emails before Friday!!! (I know...be careful what you

wish for!! LOL)Thanks!Kristy

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[Guest guest]

Austin , age 5 (6 in Oct.). Babbles, no clear words, in ST during School

Year. He will mimick the speech pattern (like voice influction, sounds, voice

pitch, etc.) and he does say NO & OW very clearly, but no other words.

I would be very happy in doing a survey for Dr. Cumin. I did take Austin to a

Speech Pathologist this summer to try to get a Dx of Apraxia and Austin

absolutely would not cooperate, so it was impossible to Dx him as Apraxia.

Austin currently uses Sign Language to communicate his wants/needs.

 

Blessings Abound,

(Becky) Rowe

Family Assistance Coordinator

www.imdsa.org

IMDSA Conference July 10-12, 2009

Mom to Trey (8 ADHD) & Austin (5 MDS)

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Just a PS, Austin, about 6 months ago could and would say/sign Apple &

Pizza...he no longer says these words....now only the signs for each. And he was

very " enthusiastic " about saying Pizza, he would scream it when pizza night was

upon us...he would even say pizza if he saw a pizza commerical on TV, now,

nothing.

 

Blessings Abound,

(Becky) Rowe

Family Assistance Coordinator

www.imdsa.org

IMDSA Conference July 10-12, 2009

Mom to Trey (8 ADHD) & Austin (5 MDS)

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Kristy--My son,  is almost 34 yrs old.  I'm not sure whether or not he is

too old for this survey.  I am always interested in anything to do with research

on Speech.  He can be understood by some people and not by others.  If he says

what he wants at a resturant, usually the wait person looks at me for

clarification.  He also has what I term " lazy lips " because of mumbling.  He

still cannot sequence sentences, but seems to do ok with 1 or 2 word responses. 

Also he has auditory discrimination difficulties.  He's pretty good at gesturing

and gives the first letter of what he is trying to communicate. This " deficit "

is the main problem that keeps our children from being employed in jobs other

than non-verbal positions. He could beneifit fom language therapy and speech, bu

there is no coverage from insurance because it is considered long term vs

stroke, etc.  Let me know if you need more imput. I'm not sure if I am sending

the reply

correcty, but will give it a try.    Thanks, Rita Treckman 

Subject: Speech Problems: IMPORTANT INFORMATION!

To: MosaicDS

Date: Tuesday, August 5, 2008, 11:11 PM

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Rita -

I may be speaking out of turn but your son will NEVER be too old for a study

on MDS. He has it, that is it. My daughter (9) can mostly be understood by

her peers but adults can understand if they take the time to listen - most

of us don't - too much other stuff going on to stop and listen to a little

girl.

Darlene

On Wed, Aug 6, 2008 at 1:43 PM, Rita Treckman wrote:

> Kristy--My son, is almost 34 yrs old. I'm not sure whether or

> not he is too old for this survey. I am always interested in anything to do

> with research on Speech. He can be understood by some people and not by

> others. If he says what he wants at a resturant, usually the wait person

> looks at me for clarification. He also has what I term " lazy lips " because

> of mumbling. He still cannot sequence sentences, but seems to do ok with 1

> or 2 word responses. Also he has auditory discrimination difficulties.

> He's pretty good at gesturing and gives the first letter of what he is

> trying to communicate. This " deficit " is the main problem that keeps our

> children from being employed in jobs other than non-verbal positions. He

> could beneifit fom language therapy and speech, bu there is no coverage from

> insurance because it is considered long term vs stroke, etc. Let me know if

> you need more imput. I'm not sure if I am sending the reply

> correcty, but will give it a try. Thanks, Rita Treckman

>

>

>

> From: Kristy Colvin <kristy@... <kristy%40imdsa.org>>

> Subject: Speech Problems: IMPORTANT INFORMATION!

> To: MosaicDS <MosaicDS%40yahoogroups.com>

> Date: Tuesday, August 5, 2008, 11:11 PM

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately with

> our children here.

>

> I know that many of you have said that your children are " non-verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you did

> to help it!!

>

> Then, tell me if you would be willing to complete a research survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get it in

> the works quite quickly! This is the ONLY way for us to discover what

> these problems are that our children are having and how we can help

> them to communicate! !

>

> Please don't wait to respond. I would like to get this information

> out to Dr. Kumin before the week is up! Just click reply and reply to

> the group! This will help all of you discuss these speech problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!! LOL)

>

> Thanks!

> Kristy

>

>

[Guest guest]

Hi, I have a beautiful little girl named Hailey Modesitt. She is 5

years old. She communicates with a few single words and by pointing

to what she wants. The only sounds she has are ds and bs. She losses

words after saying them for a few months. She does the same with

foods. She will eat a certain food for a month and then never eat it

again. She shows no interest in talking. She is unable to

repeat sounds but some sounds are heard during play.She is able to

say mom but all other words beginning with m are pronounced with a b.

example: more would be bore. She is unable to move her tongue around

normally when ask to do so but does do some tongue movement when she

is just playing. She has low muscle tone in her mouth. It is

difficult for her to chew her food also so we have to cut it in small

bitesize pieces. There realy needs to be more research for our

children. They need our help and I just dont know what else to do.

She has gotten speech therapy since she was 6 months old and is now

using a talking device and some signs to communicate.It very slow

going but she is making progress. Any help would be appreciated. To

answer your other question....yes I would be willing to fill out the

survey. I would be willing to do just about anything to help Hailey

and the other kids.

Haileys dignosis: Down Syndrome,Apraxia,severe ADHD,Sensory

disorder,and mild Autisum.

Thank you ,

Becky Modesitt

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately

with

> our children here.

>

> I know that many of you have said that your children are " non-

verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but

are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you

did

> to help it!!

>

> Then, tell me if you would be willing to complete a research survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get it

in

> the works quite quickly! This is the ONLY way for us to discover

what

> these problems are that our children are having and how we can help

> them to communicate!!

>

> Please don't wait to respond. I would like to get this information

> out to Dr. Kumin before the week is up! Just click reply and reply

to

> the group! This will help all of you discuss these speech problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!!

LOL)

>

> Thanks!

> Kristy

>

[Guest guest]

Hi Kristy,

Even though we still haven't had Chase tested yet for MDS, he hasn't spoken a

word and he's 17months. if we ask or tell him something, sometimes we can see a

response in his facial expression, but when he tries to tell us something, we

can't understand, and its starting to be very frustrating. He's had just 1/2

hour of speech once a week, but starting next week (this was because of a

grant), we are going to an hour a week, plus I'm going to take him for speech

and language therapy on top of the regular speech he gets at home.

Lyndsay

Speech Problems: IMPORTANT INFORMATION!

> To: MosaicDS <mailto:MosaicDS%40yahoogroups.com>

<MosaicDS%40yahoogroups.com>

> Date: Tuesday, August 5, 2008, 11:11 PM

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately with

> our children here.

>

> I know that many of you have said that your children are " non-verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you did

> to help it!!

>

> Then, tell me if you would be willing to complete a research survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get it in

> the works quite quickly! This is the ONLY way for us to discover what

> these problems are that our children are having and how we can help

> them to communicate! !

>

> Please don't wait to respond. I would like to get this information

> out to Dr. Kumin before the week is up! Just click reply and reply to

> the group! This will help all of you discuss these speech problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!! LOL)

>

> Thanks!

> Kristy

>

>

[Guest guest]

Hi Rita

Thanks so much for responding! We would love for to be part of this

survey! I think it will help us tremendously!

thanks

Kristy

Rita Treckman wrote:

Kristy--My son, is almost 34 yrs old. I'm not sure whether or

not he is too old for this survey. I am always interested in anything to do

with research on Speech. He can be understood by some people and not by others.

If he says what he wants at a resturant, usually the wait person looks at me for

clarification. He also has what I term " lazy lips " because of mumbling. He

still cannot sequence sentences, but seems to do ok with 1 or 2 word responses.

Also he has auditory discrimination difficulties. He's pretty good at gesturing

and gives the first letter of what he is trying to communicate. This " deficit "

is the main problem that keeps our children from being employed in jobs other

than non-verbal positions. He could beneifit fom language therapy and speech, bu

there is no coverage from insurance because it is considered long term vs

stroke, etc. Let me know if you need more imput. I'm not sure if I am sending

the reply

correcty, but will give it a try. Thanks, Rita Treckman

Subject: Speech Problems: IMPORTANT INFORMATION!

To: MosaicDS

Date: Tuesday, August 5, 2008, 11:11 PM

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Hi Kristy,

Mark is 26 months old now and uses a combination of signs and some verbal

words. He is about 7 mos delayed in speech, but technically he's not if the

signs are factored into the equation. He has about 150 signs that he knows

how to use or understands. He can say words with " w " but not fully. For

example, " white " sounds like " whiiiiiiaaaa " (like a really bad Texas

accent!), and water is " wawa " , wall is " waooo " . He says dada a lot but not

so much with mama although he's using it more. He can say " ma " for gandma

when he sees her picture and " na " for his other grandmother when prompted.

We started signing early last summer and he now can pick up signs almost

immediately by watching " Signing Times " . He is obsessed with lights so we

are learning that sign (it's a hard one for a toddler to do so we

improvise), and he can do the sign for the sun.

I'd be happy to complete the survey.

Thanks!

gwyn

> Hi Rita

> Thanks so much for responding! We would love for to be part of this

> survey! I think it will help us tremendously!

> thanks

> Kristy

>

>

> Rita Treckman <ritatreckman@... <ritatreckman%40yahoo.com>> wrote:

> Kristy--My son, is almost 34 yrs old. I'm not sure whether or not

> he is too old for this survey. I am always interested in anything to do with

> research on Speech. He can be understood by some people and not by others.

> If he says what he wants at a resturant, usually the wait person looks at me

> for clarification. He also has what I term " lazy lips " because of mumbling.

> He still cannot sequence sentences, but seems to do ok with 1 or 2 word

> responses. Also he has auditory discrimination difficulties. He's pretty

> good at gesturing and gives the first letter of what he is trying to

> communicate. This " deficit " is the main problem that keeps our children from

> being employed in jobs other than non-verbal positions. He could beneifit

> fom language therapy and speech, bu there is no coverage from insurance

> because it is considered long term vs stroke, etc. Let me know if you need

> more imput. I'm not sure if I am sending the reply

> correcty, but will give it a try. Thanks, Rita Treckman

>

>

>

> From: Kristy Colvin <kristy@... <kristy%40imdsa.org>>

> Subject: Speech Problems: IMPORTANT INFORMATION!

> To: MosaicDS <MosaicDS%40yahoogroups.com>

> Date: Tuesday, August 5, 2008, 11:11 PM

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately with

> our children here.

>

> I know that many of you have said that your children are " non-verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you did

> to help it!!

>

> Then, tell me if you would be willing to complete a research survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get it in

> the works quite quickly! This is the ONLY way for us to discover what

> these problems are that our children are having and how we can help

> them to communicate! !

>

> Please don't wait to respond. I would like to get this information

> out to Dr. Kumin before the week is up! Just click reply and reply to

> the group! This will help all of you discuss these speech problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!! LOL)

>

> Thanks!

> Kristy

>

>

[Guest guest]

Hi Kristy,

I know that I have shared this with you….However, this is for the group.

said his first word dada @ 6 months. He gradually started having

more works like bye bye, baby, boy and so on. At around 17 months he

started to lose many of his words. At the time his PT contributed it to his

focusing on learning to walk. When I look back none of my other children

lost any of their words. He started to talk again around 3yrs. His words

were never consistent and weeks would go by until I would hear another word.

Even now when he says a words it is in a low tone and he says it as clear as

a bell. Other times has his own language, and he won’t say another

word for a couple of weeks or more.

Recently here are his new words and how he uses them…. About two weeks ago

it was a Sunday morning and my husband and I were still laying in bed.

came into the room and put on PBS for him. A commercial came

on for Sesame Street and said Yaaa! Then when it did not came on

he said OH DAM! Very loud. This past week I pulled up to the school and I

said were @ school and his reply was “I know”. Then one time @

school he was tired and he told his aid “I want mom”. His words are

always very clear and he says them in the right content. On a few occasions

he will say a word loud. For the most part they a soft and he says them

quick. One time when he was three his SP said what is on your

sock? He said “oatmeal”.

has been diagnosed over the past year with SID and apraxia.

mom to 13, 10 and 11 months, 8 and 5 ½

mDs

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Kristy Colvin

Sent: Wednesday, August 06, 2008 12:11 AM

To: MosaicDS

Subject: Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate!!

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

, I know this is for Kristy, but I had to laugh when I read this. The

part about him saying Oh damn. It reminded me of a word I did not put on our

list. LOL. One day, we were trying to coax words out of Ellen. We would

show her stuff and say, what is this. Well, we came to the fruit, and held up an

apple, and said, " ME, what is this? " She said, " Bapple. " Then we held up a

banana, same question, reply, " Nana " Then on to the orange, and her reply,

" Shi* " And now, when ever we ask her if she wants one, or what it is, she

says, shi*. Hubby has apologized, and hopefully we will put an end to this.

LOL. But your story reminded me of a word we missed on our list. LOL. Diane

--------- Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate!!

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

No you're not Darlene, I agree with you!

 

Blessings Abound,

(Becky) Rowe

Family Assistance Coordinator

www.imdsa.org or becky@...

IMDSA Conference July 10-12, 2009

Mom to Trey (8 ADHD) & Austin (5 MDS)

Speech Problems: IMPORTANT INFORMATION!

> To: MosaicDS@yahoogroup s.com <MosaicDS%40yahoogr oups.com>

> Date: Tuesday, August 5, 2008, 11:11 PM

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately with

> our children here.

>

> I know that many of you have said that your children are " non-verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you did

> to help it!!

>

> Then, tell me if you would be willing to complete a research survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get it in

> the works quite quickly! This is the ONLY way for us to discover what

> these problems are that our children are having and how we can help

> them to communicate! !

>

> Please don't wait to respond. I would like to get this information

> out to Dr. Kumin before the week is up! Just click reply and reply to

> the group! This will help all of you discuss these speech problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!! LOL)

>

> Thanks!

> Kristy

>

>

[Guest guest]

Oh, I SO HATE the term " mentally retarded. " I cannot believe some

states are still using that term, but they are. In KY, a child whose IQ

is between 55 and 70 and has adaptive behavior scores in that same range

is eligible under the category of Mild Mental Disability, while a child

whose IQ is below 55 and has adaptive behavior scores in that same range

is eligible under the category of Functional Mental Disability. I know

some people take issue take issue with the term " disability, " but I'd

MUCH rather say a child has a " disability " than to say they are

" retarded. " At least " disability " is not used in a derogatory manner in

the everyday speech of a big chunk of the population.

A.

Special Educator

Simon Kenton High School

(859)960-0348

cynthia.jones@...

" Deaf People Can Do Anything Except Hear! " (I. King Jordan)

Confidentiality Notice - This email is intended only for the person to

whom it is addressed and may contain confidential information. Any

unauthorized review is prohibited. If you are not the intended

recipient, kindly contact the sender by reply email and destroy all

copies of the original message. If you are the intended recipient, but

do not wish to receive communication through this medium, please advise

the sender immediately.

________________________________

From: MosaicDS [mailto:MosaicDS ] On

Behalf Of sabrina@...

Sent: Wednesday, August 06, 2008 12:45 AM

To: MosaicDS

Subject: Re: Speech Problems: IMPORTANT INFORMATION!

hi kristy. i can fax the language portion of shelby's IEP..

also, when we met for shelbys last IEP the de-classified her as

" mentally retarded " and placed her under " other medical " Yea!!!!!

Covington, SRES, REALTOR

Covington Real Estate

http://www.mypalomar.com <http://www.mypalomar.com>

Call or Text

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Oh Diane your story brought back a similar memory for me, not with Austin, but

with Trey.

When Trey was 2 or 3, he had a very hard time with speech (probably due to his

blanket, but that's another story). Some words we could make out, others were

" greek " or " Trey-nese " . It made for some comicial times but not so comical

others.

Whenever we were out on the interstate and Trey would see the Tractor Trailer

Trucks he'd yell out " **ck " for  " Truck " !

When my Mom first heard this, I thought she was gonna faint!

We finally had to convince him to say " Big Car "  until he got the TR sound

together, but it was funny at first and it was even funnier to see my Mom's

reaction..but only once LOL

 

Blessings Abound,

(Becky) Rowe

Family Assistance Coordinator

www.imdsa.org or becky@...

IMDSA Conference July 10-12, 2009

Mom to Trey (8 ADHD) & Austin (5 MDS)

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Diane,

That is to funny! has said “hey idiot†and “shut up†all in

the right content! You know this is a story I will have to share with my

husband. LOL.

From: MosaicDS [mailto:MosaicDS ] On Behalf Of

Grovers

Sent: Thursday, August 07, 2008 1:27 AM

To: MosaicDS

Subject: RE: Speech Problems: IMPORTANT INFORMATION!

, I know this is for Kristy, but I had to laugh when I read this. The part

about him saying Oh damn. It reminded me of a word I did not put on our list.

LOL. One day, we were trying to coax words out of Ellen. We would show her

stuff and say, what is this. Well, we came to the fruit, and held up an apple,

and said, " ME, what is this? " She said, " Bapple. " Then we held up a banana, same

question, reply, " Nana " Then on to the orange, and her reply, " Shi* " And now,

when ever we ask her if she wants one, or what it is, she says, shi*. Hubby has

apologized, and hopefully we will put an end to this. LOL. But your story

reminded me of a word we missed on our list. LOL. Diane

--------- Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate!!

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Hi Kim: Can you elaborate on Mia's progress and her level of

language? I'm always interested in hearing where everyone's

childrens stand. My daughter is only 9mths old is babbling, but this

is a great fear of mine. When did your daughter start babbling/

talking? What does it mean that she has small level of motor

planning?

Thanks!

Camisha

>

> Hi Kristy.

>

> I would definitely complete a speech survey for Mia, age 2.5.

> She is not apraxic and her therapist believes she will not develop

apraxia because she is consistent with her speech and language. She

does however have a small level of motor planning with regards to

speech.

>

> Thanks,

> Kim Lagonigro

> Mom to Mia 2.5 and the twins should be arriving sometime in

September!

>

>

> Speech Problems: IMPORTANT INFORMATION!

>

>

> Hi Everyone

> I spoke with our advisory board member, Dr. Libby Kumin tonight

> regarding the special speech problems that we are seeing lately

with

> our children here.

>

> I know that many of you have said that your children are " non-

verbal "

> or have possible Apraxia.

>

> Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

>

> Tell me your child name and age and explain exactly what they are

> doing in regards to speech.

>

> If they are not having Apraxia issues or 'non-verbal' issues, but

are

> having a different speech problem, please respond also!

>

> And, if your child used to have a speech problem, but it is now

> improving, or better, let us know that too! And tell us what you

did

> to help it!!

>

> Then, tell me if you would be willing to complete a research

survey

> (about 35 questions) regarding speech.

>

> If we can get enough participants for this research, we can get

it in

> the works quite quickly! This is the ONLY way for us to discover

what

> these problems are that our children are having and how we can

help

> them to communicate!!

>

> Please don't wait to respond. I would like to get this

information

> out to Dr. Kumin before the week is up! Just click reply and

reply to

> the group! This will help all of you discuss these speech

problems

> and what you are doing in your area to help them.

>

> We have over 600 people in our support group here! I hope for 600

> emails before Friday!!! (I know...be careful what you wish for!!

LOL)

>

> Thanks!

> Kristy

>

>

>

>

>

>

[Guest guest]

Hi Kristy,

Ricky is five. He does h6ave a number of words, some of which only those who

interact with him regularly are able to understand. Sometimes he speaks his

words backward and often times he speaks in his own language. I am happy to

participate in anything that might help create resources for our children. I

will very gladly answer a 35-question survey. I hope you receive another 500+

emails about this soon!

, mom of Ricky (5) MDS and a (11) 

Speech Problems: IMPORTANT INFORMATION!

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy

[Guest guest]

Hi Kristy, I, too, would be willing to do a survey to try to help others with

speech difficulties. Craig is 20 and has has speech therapy his whole life. He

is understandable by some people and not by others. Some days are better than

others. Also has " lazy lips " and slurrs or leaves off sounds. His sentences

are sometimes short and incomplete so that you have to play 20 questions to

figure out what he is talking about and hope he isn't going to get frustrated

and say " never mind " . He might say " My jacket " and then we have to pull it

all together; then at other times the sentence is full enough to get it together

for a conversation. " wh " words are very difficult for him to understand properly

and we have been working on that for a long time. We still work on reading and

I have found that using the signs we learned (and I have forgotten some of them)

helps in this area too. I need to refresh myself with words like were, then,

there, here especially. Terry

Speech Problems: IMPORTANT INFORMATION!

To: MosaicDS

Date: Tuesday, August 5, 2008, 11:11 PM

Hi Everyone

I spoke with our advisory board member, Dr. Libby Kumin tonight

regarding the special speech problems that we are seeing lately with

our children here.

I know that many of you have said that your children are " non-verbal "

or have possible Apraxia.

Whatever speech issue your child is having, I NEED YOUR RESPONSE!!

Tell me your child name and age and explain exactly what they are

doing in regards to speech.

If they are not having Apraxia issues or 'non-verbal' issues, but are

having a different speech problem, please respond also!

And, if your child used to have a speech problem, but it is now

improving, or better, let us know that too! And tell us what you did

to help it!!

Then, tell me if you would be willing to complete a research survey

(about 35 questions) regarding speech.

If we can get enough participants for this research, we can get it in

the works quite quickly! This is the ONLY way for us to discover what

these problems are that our children are having and how we can help

them to communicate! !

Please don't wait to respond. I would like to get this information

out to Dr. Kumin before the week is up! Just click reply and reply to

the group! This will help all of you discuss these speech problems

and what you are doing in your area to help them.

We have over 600 people in our support group here! I hope for 600

emails before Friday!!! (I know...be careful what you wish for!! LOL)

Thanks!

Kristy