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Re: IMDSA Conference: Becky's Question

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Our conference is every other year. So, we do NOT have one this year! We are

having our next one in 2009! Plenty of time for planning!!

 

Our conference is very unique and we do have a Kid Konference where the children

are supervised by Genetic Students and we bring in a variety of presenters that

teach them different fun things. (last year we had Karate, Dance, Acting, Music

and Art to name a few) We will break the children up into 3 age groups so they

can have lots of fun! (on a side note, the Kid Konference is also for Siblings,

so anyone who has more than one child is welcome to bring them all!)

 

We also offer a Youth Conference and this year we will be splitting them up into

2 age groups. This conference is for ages 14 through adult. That conference

allows lots of fun things and also some good information on living

independently, getting a job, going to college, etc..

 

Our Main conference this coming year will have at least 3 break out sessions.

(last year we had two) We invite speakers of all topics so no matter if you have

a new born baby or an adult with Ds or MDS you will benefit from the conference.

 

Other interesting and fun things we do are:

Throughout Friday various researchers conduct research on site with participants

 

Friday evening we have our FAMILY REUNION where everyone gets together and just

visits and the kids play. During this time, we offer refreshments and also have

our silent auction.

 

Saturday evening we have our Banquet. During the banquet we invite a

self-advocate to speak which is very inspirational and we give out awards.

During this time, our Youth will sing a song they learned at their conference

and the kids will either sing a song or do a skit. We end our banquet with a

wonderful slide show presentation done to music highlighting all of the children

at the conference.

 

Then, after the banquet everyone DANCES!!!!!!!!!!!

 

You can see information about our past conference as well as some funny,

interesting and .... a bit crazy picture that were taken last year! Just go to:

http://www.imdsa.org/Conference/conference.htm and click on the conference

links!!!

 

You have a year to plan!!!! You HAVE TO COME!!!! LOL

Kristy

Subject: Re: A Small Percentage?? It seems like the numbers are changing

considerably!!!

To: MosaicDS

Date: Wednesday, June 25, 2008, 5:52 PM

Hi Kristy, Do yall have this conference every year. I would love to

attend but just dont see how I could pull it off. I live in NC so I

would have to fly in. Also am I right in understanding I can bring

Hailey with me? Will there be child care while Im in the conference?

I would need more time to plan attending. It is my wishes that yall

will have another one at a later date and hopefully I could come to

that one.

>

> From: jhockelaol (DOT) com <jhockelaol (DOT) com>

> Subject: Re: A Small Percentage?? It seems like the numbers

are changing considerably! !!

> To: MosaicDS@yahoogroup s.com

> Date: Tuesday, June 24, 2008, 10:30 PM

>

> How I wish someone could set up a booth at the NDSC convention and

offer free

> reliable karyotypes!

>

> Judie, mom to Christi, 29 , and lots more

>

> ************ **

> Gas prices getting you down? Search AOL Autos for

> fuel-efficient used cars.

> (http://autos. aol.com/used? ncid=aolaut00050 000000007)

>

>

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Guest guest

Oh wow this sounds like it would be alot of fun and very educational

for Hailey and I. Im gonna see what I can do so I can be there. I

have plenty of time to plan. Im glad it wasnt this year. That is

great that I will be able to bring Hailey with me. That takes care of

one problem I would have had...lol Thanks for all of the info...Have

a good night.

> >

> > From: jhockelaol (DOT) com <jhockelaol (DOT) com>

> > Subject: Re: A Small Percentage?? It seems like the numbers

> are changing considerably! !!

> > To: MosaicDS@yahoogroup s.com

> > Date: Tuesday, June 24, 2008, 10:30 PM

> >

> > How I wish someone could set up a booth at the NDSC convention

and

> offer free

> > reliable karyotypes!

> >

> > Judie, mom to Christi, 29 , and lots more

> >

> > ************ **

> > Gas prices getting you down? Search AOL Autos for

> > fuel-efficient used cars.

> > (http://autos. aol.com/used? ncid=aolaut00050 000000007)

> >

> >

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