This will take some adjusting!

[Guest guest]

We have not gotten a call yet, but I am reading the posts and realize

my life does not focus around Lewy any more.

I do not have to rush home anymore. I do not have to lay out meds

and fix gummy meals. I cannot complain about caregiver stress. I am

not sure what my life will be.

We may not have expereinced an extreme end, but it feels like it. It

was not serene last night. We thought she would just fade, and all

hell broke loose. I do know she lived way beyond what any of

professionals believed was possible. The disease took her in an odd

way. She was physically in good shape. Where the Lewy chewed

through the circuits was eating and then drinking. She wouldn't be

forced to eat, or tolerate being fed. It is like the appetite and

thirst wires were chewed in two. I know every case is different, and

i wonder what others see as the circuit that broke their loved one.

The circiuts were broken, and I guess I want to know how Lewy did it,

and what other things might have happened to others.

I remember asking how do Lewies die, and what causes all the pain in

Lewies. I don't know that i can figure out the pain of the last 6

months.

Thank God for the Ultram.

I guess i will continue to try to figure out Lewy, and i will be the

questions, whether I am a caregiver, or not.

I will be researching what causes a clot in relation to dehydration.

Millie did not have blood pressure problems until 3 weeks ago, so we

know the pressure regualtiong center also took a major Lewy slug.

The symptoms change so rapidly and because of the dementia, can't be

traced, or treated, well.

So, brace yourselves as I continue to think out loud on what Lewy is

doing specifically to a loved one. How can we help in the defining

the many ways that Lewy destroys our loved ones. Just

saying " dementia " doesn't really cover it.

Later,

Carol