Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Hi, Whenever my husband is in the hospital he immediately starts struggling to leave and his dementia gets worse until I can get him home. He becomes combative and uncooperative while in hospital. This time he's really in a mess because of this problem. Following the neurosurgery for his broken neck they evaluate his progress based on how well he responds neurologically. This requires demonstrating the ability to follow commands to open eyes, say his name, date, place, stick out his tongue, smile, squeeze fingers, flex or resist ankles, wrists, arm or leg pressure. can and does perform these actions when he wants to, but he won't cooperate with the doctors or therapists. He never does when in the hospital. As a result, the physical and occupational therapy folks won't find him eligible for rehabilitation or returning home. Skilled nursing or even rehab will just produce more of the same behaviors. Before his surgery I had asked for a consult with the neuro-psych doctor that Geri Hall recommended, but they just sent regular neuro doctors, who didn't think that dementia with Parkinsonism was necessarily LBD, and were not medicine saavy in regard to LBD. They said the only thing to do for agitation would be to add more seroquel, which is okay, but may not be all that needs to be considered just now. Today I asked again and have convinced the surgical resident and the social worker that his dementia is affecting his ability to improve. They have asked again for the consult, and think that Neurology will send someone, hopefully the neuropsychiatrist knowlegeable about LBD. Wish me luck. Kathy Wife to 83 year old with Parkinsonism and later onset LBD, currently in hospital recovering from neurosurgical repair of C1 & C2 vertebra fractures Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 I do wish you luck, and I hope the doctor you speak to will be more aware and understanding of LBD. It's amazing that so many don't know that much about it, but when they are told about it, I would think they would do some research so they know what they are dealing with. If we can find it on the internet, so can they. JuneC --- p108nky wrote: > Hi, > > Whenever my husband is in the hospital he > immediately starts > struggling to leave and his dementia gets worse > until I can get him > home. He becomes combative and uncooperative while > in hospital. This > time he's really in a mess because of this problem. > > Following the neurosurgery for his broken neck they > evaluate his > progress based on how well he responds > neurologically. This requires > demonstrating the ability to follow commands to open > eyes, say his > name, date, place, stick out his tongue, smile, > squeeze fingers, flex > or resist ankles, wrists, arm or leg pressure. > can and does > perform these actions when he wants to, but he won't > cooperate with > the doctors or therapists. He never does when in the > hospital. As a > result, the physical and occupational therapy folks > won't find him > eligible for rehabilitation or returning home. > Skilled nursing or even > rehab will just produce more of the same behaviors. > > Before his surgery I had asked for a consult with > the neuro-psych > doctor that Geri Hall recommended, but they just > sent regular neuro > doctors, who didn't think that dementia with > Parkinsonism was > necessarily LBD, and were not medicine saavy in > regard to LBD. They > said the only thing to do for agitation would be to > add more seroquel, > which is okay, but may not be all that needs to be > considered just now. > > Today I asked again and have convinced the surgical > resident and the > social worker that his dementia is affecting his > ability to improve. > They have asked again for the consult, and think > that Neurology will > send someone, hopefully the neuropsychiatrist > knowlegeable about LBD. > Wish me luck. > > Kathy > Wife to 83 year old with Parkinsonism and > later onset LBD, > currently in hospital recovering from neurosurgical > repair of C1 & C2 > vertebra fractures > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Dear Kathy, Thanks for keeping us posted about your dear husband. Of course he is more agitated in the hospital! " Regular " people are too - we just may not be quite as obvious about it. You do have the right to inform the hospital administrator, department head MD, etc. about the kind of training you want the consultant to have. You can do this directly with one of them and/or request a care conference - at which all the involved staff (physical medicine, orthopod, primary care, pharmacy, neuro, psych, social work, dietary, etc) get together, review the case as a group,and come up with the best possible plan. Anybody has the right to request a care plan (some places call them case management meetings). You, the legal representative, are also present and can express your concerns. For many of us, this is easier than chasing around one specialist after another. Do hope you will have a peaceful evening. Lin June Christensen wrote: I do wish you luck, and I hope the doctor you speak to will be more aware and understanding of LBD. It's amazing that so many don't know that much about it, but when they are told about it, I would think they would do some research so they know what they are dealing with. If we can find it on the internet, so can they. JuneC --- p108nky wrote: > Hi, > > Whenever my husband is in the hospital he > immediately starts > struggling to leave and his dementia gets worse > until I can get him > home. He becomes combative and uncooperative while > in hospital. This > time he's really in a mess because of this problem. > > Following the neurosurgery for his broken neck they > evaluate his > progress based on how well he responds > neurologically. This requires > demonstrating the ability to follow commands to open > eyes, say his > name, date, place, stick out his tongue, smile, > squeeze fingers, flex > or resist ankles, wrists, arm or leg pressure. > can and does > perform these actions when he wants to, but he won't > cooperate with > the doctors or therapists. He never does when in the > hospital. As a > result, the physical and occupational therapy folks > won't find him > eligible for rehabilitation or returning home. > Skilled nursing or even > rehab will just produce more of the same behaviors. > > Before his surgery I had asked for a consult with > the neuro-psych > doctor that Geri Hall recommended, but they just > sent regular neuro > doctors, who didn't think that dementia with > Parkinsonism was > necessarily LBD, and were not medicine saavy in > regard to LBD. They > said the only thing to do for agitation would be to > add more seroquel, > which is okay, but may not be all that needs to be > considered just now. > > Today I asked again and have convinced the surgical > resident and the > social worker that his dementia is affecting his > ability to improve. > They have asked again for the consult, and think > that Neurology will > send someone, hopefully the neuropsychiatrist > knowlegeable about LBD. > Wish me luck. > > Kathy > Wife to 83 year old with Parkinsonism and > later onset LBD, > currently in hospital recovering from neurosurgical > repair of C1 & C2 > vertebra fractures > > ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs ------------------------------------ Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Oh, my! I was just reading this after returning home from seeing my mom in the hospital...she is very peaceful today, the Haldol has her sleeping like a baby and it is such a change from her battle to leave yesterday. However, she can be woke up, and even wakes up on her own if she has to use the restroom. I think she could even do all the commands that you listed below. It's wonderful medicine and it worked for her, but the neurologist told me yesterday that sometimes each medication works or doesn't work depending on each individual person, but said that there was more than one that they could try until they found the one that did work for her. I'm glad that first one worked so well. Joan Daughter of 85 year old mom with LBD diagonosed just one week ago. > > Hi, > > Whenever my husband is in the hospital he immediately starts > struggling to leave and his dementia gets worse until I can get him > home. He becomes combative and uncooperative while in hospital. This > time he's really in a mess because of this problem. > > Following the neurosurgery for his broken neck they evaluate his > progress based on how well he responds neurologically. This requires > demonstrating the ability to follow commands to open eyes, say his > name, date, place, stick out his tongue, smile, squeeze fingers, flex > or resist ankles, wrists, arm or leg pressure. can and does > perform these actions when he wants to, but he won't cooperate with > the doctors or therapists. He never does when in the hospital. As a > result, the physical and occupational therapy folks won't find him > eligible for rehabilitation or returning home. Skilled nursing or even > rehab will just produce more of the same behaviors. > > Before his surgery I had asked for a consult with the neuro-psych > doctor that Geri Hall recommended, but they just sent regular neuro > doctors, who didn't think that dementia with Parkinsonism was > necessarily LBD, and were not medicine saavy in regard to LBD. They > said the only thing to do for agitation would be to add more seroquel, > which is okay, but may not be all that needs to be considered just now. > > Today I asked again and have convinced the surgical resident and the > social worker that his dementia is affecting his ability to improve. > They have asked again for the consult, and think that Neurology will > send someone, hopefully the neuropsychiatrist knowlegeable about LBD. > Wish me luck. > > Kathy > Wife to 83 year old with Parkinsonism and later onset LBD, > currently in hospital recovering from neurosurgical repair of C1 & C2 > vertebra fractures > Quote Link to comment Share on other sites More sharing options...
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