Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Jan, It is good to see you here. Does that mean you did get your computer? Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: Progressive Supranuclear Palsy...?'s/ June Hi June, I think that thing where they don't see close and reaching across the table is the lack of visuospatial awareness. Lack of Visuospatial awareness is an LBD symptom. My husband gropes for his food all around the plate and on the table around the plate trying to find his food when it is right in front of him on the plate. It says this is a symptom of LBD in the LBD brochure. Jan --- June Christensen wrote: > I looked up PSP on the web, since I had never heard > of > it, and was surprised that my husband's symptoms > almost fit it better than either AD or LBD. He > seems > to fall in between with those two diseases. > However, > I don't notice that his eyes are fixed, but he > doesn't > appear to see close very well and reaches for things > across the table. It would be so great if we could > just get a firm diagnosis before they go through > everything so we knew what we were working with! > > --- Janet Colello wrote: > > > Hi April, > > Yes, I have heard of PSP. Robin Riddle knows a lot > > about it, she is always sending out information > > about > > it. She can probably help you. > > When I was at the LBD Vs PDD Symposium in > Washington > > DC this last February, they touched on it. I > hadn't > > heard about it until then. Are your FIL's eyes > fixed > > in a stare. There was something said about the > eyes > > not being able to move or something to that > effect. > > I > > know there are people here on the site that know > > about > > it, so I hope you will get some answers plus your > > research will help too. > > I'm glad you finally got a proper diagnosis to > work > > with for your FIL. It must be a relief to have an > > answer to his symptoms. > > I know that LBD, PDD and PSP are all tied in > > together, > > since researchers at the DC Symposium touched on > it, > > because PSP is so similar to the others. > > Jan > > > > > > > > > > --- aswest1021 wrote: > > > > > Anyone know anything about PSP? My FIL, who was > > > thought to have PD, > > > then LBD, was just diagnosed last week with PSP. > > > I > > > am trying to > > > gather as much information as I can about the > > > disease, but it's not > > > looking very encouraging, in terms of prognosis. > > > > Also, is anyone here > > > familiar with the drug Inderal? My FIL was > weaned > > > completely off > > > Sinemet, but due to his continuing tremors, the > > > neurologist put him on > > > Inderal once a day. Any side effects we should > > know > > > about? My FIL > > > was also given botox injections in his neck to > > help > > > with his > > > drooling. Will it help and, if so, how long > does > > it > > > last? Thanks to > > > all of you! > > > > > > April > > > > > > > > > > > > > > > > > > > > > Welcome to LBDcaregivers. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.