Update on Bobbie

[Guest guest]

Hi Everyone,

My poor Mother in Law, Bobbie, is in bad shape. I am so

frustrated!! It seems to me that the worst place for an LBD patient

to be is in the hospital. We should have just let her stay where she

was and never brought her into the hospital. Her problems have gone

from bad to worst.

They decided the episodes she was having were seisures rather than

blood pressure problems. Even though her blood pressure is all over

the board. The doctor started her on dilantin, the dose was probably

too much as she became so sleepy you could not wake her up. Then the

doctor came in and decided to give her an MRI. They put a med in her

IV, before I knew it, and when I asked what it was they said Ativan!

I was so upset I started to feel light headed. How can it be that

these Doctors do not know what they are doing. They new she has LBD

and we told them Ativan and Haldol are very bad for LBD patients. She

was so wiped out last night you could not understand anything she was

saying. She usually loves to talk but now she speaks in a whisper so

quietly you can put you ear right next to her face and you can't make

it out.

I went in and asked to speak to the supervising nurse. She was very

nice and took all the LBD information I had printed up and put it in

her file. I tried to feed her dinner but she was too sleepy. Before

all this she could feed herself if you just cut things into smaller

pieces.

I had a hard time sleeping last night. You try so hard to take care

of your LO then these careless doctors and nurses cause then harm.

This morning she is still very out of it. I tried to feed her but it

was hard for her to open her mouth and she said she was in pain. I'm

here at work today and feel helpless. Sorry to vent on all of you but

I'm sure you all understand my frustration.

Thanks for listening,

Maureen