Re: Missing messages/Stevie

[Guest guest]

Stevie thanks for the update. I've been wondering how Mr. B. is doing and have

been

meaning to ask. Now I don't have to!

Thankfully it sounds as if he is coming more to terms and at peace with this

journey, in a

big part thanks to your allowing him and leading him in discussing what is

happening to

him. You are so lucky he can still talk, especially laugh! I can't even

remember when I last

saw my mother smile, much less laugh. However the dying alert mind is difficult

to deal

with. My FIL is actively dying and while lucid, as good as it was to talk,

laugh, joke with

him, the final stage with him unresponsive now is actually easier , hoping he is

more at

peace and comfortable.

Another bear hug for Mr. B, and you from Canada!

, Oakville Ont.

Mom 92, 12 1/2 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Currently immobile, in tilt wheelchair, spoonfed pureed food. Spends most of

days behind

closed eyes.

Eltroxin, Tylenol twice a day.

Off Aricept since Feb./06

>

> Hello Sandie and ,

>

> Got this one! : ) Thank you for pointing that out . I

> have a hard enough time remembering which messages I responded to

> these days.

>

> Maybe it was a good thing it got lost anyway because I think it was a

> bit of panic and I've been so good about not panicking.

>

> Mr. B just went through one whole week of the BMs again and this time

> Hospice said his body might be trying to " shut down. " He eats

> breakfast and then refuses lunch and wants only malt-o-meal for

> dinner...maybe because he doesn't want to " fill up " again? He gets

> exhausted at each expisode of BM and then has to be put to bed.

>

> The other day, after he was tucked in, I talked to him about what was

> going on and how he was feeling and he said he felt okay, he didn't

> hurt or anything, he was just very tired and didn't understand what

> was happening to his body (with the BMs). Then he said, " I know I'm

> done here, but what does a dying person do? I don't know what to

> do? The first thing that came out of my mouth was, " You are so damn

> CUTE! " and he started up that Mr. B grin, then we both laughed and I

> just hugged him so hard! Then I asked him, " Where are you going

> after you leave here? " He said, " Straight up. " I hugged him again

> and suggested he start thinking about " where he was going " and " who "

> he would like to see again, like his Momma, and they will probably

> help him when it was time. Then we would celebrate " where he has

> been " when he gets there. He said that sounded like a good idea. He

> smiled and I adjusted his pillow the way he likes...he looks so small

> in that bed now, and told him I would check on him in an hour.

>

> Today, the Priest came to visit Mr. B because he heard that he wasn't

> doing very well and when Mr. B found out the Priest was coming, he

> told the Caregiver that he wanted to sit up at the table....so,

> Showtime prevails even for the very weak. As soon as the Priest

> left, he asked to go back to bed.

>

> We are taking it day by day, hour by hour, as we travel this crazy

> road, and now, I suppose, we are beginning to look for the offramp

> out of LewyVille.

>

> Much love and Peace to all, Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) ...but

> have started up again.

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't been

> the same since

> Daily BP usually 68/52

> Severe shoulder pain, hip pain, and shortness of breath.

> Now taking Trilisate Liquid for pain - seems to be working

> UTI since 4/7 not getting any better - took Bactrim - better now.

> Sleeping most of the day, breathing becoming an issue, asking for

> oxygen daily.

> Got a Living Trust years before he became too ill.

> Had a week of bouts with BMs, turned another corner, very weak now.

>

> * * * * *

>

>

>

>

> >

> > Hello All,

> > I, too, have noticed 'missing messages'.

> > People responding to messages I never saw!

> > SO... if one of us gets few responses we should not jump to the

> conclusion that no one cares!!!!!

> >

> > Since there are so many of us having a problem, I'm guessing it

> is at Yahoo's end.

> > Please, keep in mind that this is a free service.

> > How many of us could afford the ridiculous prices some sites

> charge?

> > I'm thinking that the contact we have is much better than no

> contact at all.

> > What's one more glitch in our lives?

> > Just my 2 cents worth,

> >

> >

> > - Kingston, Ontario, Canada

> > Lo Mum 88(dx Jan. 05) and Dad 92 live with me.

> > 25mg of Seroquel at bedtime only LBD related drug, so far

> >

> >

> > ---------------------------------

> > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

> 30+ countries) for 2¢/min or less.

> >

> >

[Guest guest]

Hello ,

Mr. B does seem to be more at Peace now. It truly was cute that he

wanted to be at the table for the Priest to visit. Mr. B can talk

but he mumbles and I am so used to it that I can understand him.

Actually, I can just look at him and I know what he is thinking. He

laughs about that! He seems to " talk " more clearly when he is put to

bed for the night. After he is tucked in by the Caregiver I go in

and talk to him for about 15 minutes and he tells me all kinds of

things that are going through his head. Last night he told me that I

was his best friend and he thanked me. He is such a doll!

I am sorry to hear about your FIL and send you much Peace to deal

with that situation, and hope your Mother will bless you with a smile

soon.

Going downstairs to give Mr. B your bear hug! Thank you so much and

Bless you, Stevie

* * * * *

>

> Stevie thanks for the update. I've been wondering how Mr. B. is

doing and have been

> meaning to ask. Now I don't have to!

> Thankfully it sounds as if he is coming more to terms and at peace

with this journey, in a

> big part thanks to your allowing him and leading him in discussing

what is happening to

> him. You are so lucky he can still talk, especially laugh! I

can't even remember when I last

> saw my mother smile, much less laugh. However the dying alert mind

is difficult to deal

> with. My FIL is actively dying and while lucid, as good as it was

to talk, laugh, joke with

> him, the final stage with him unresponsive now is actually easier ,

hoping he is more at

> peace and comfortable.

> Another bear hug for Mr. B, and you from Canada!

>

> , Oakville Ont.

>

> Mom 92, 12 1/2 years " Parkinsons "

> 3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

> Encouraged to give up her licence 6 years ago.

> Currently immobile, in tilt wheelchair, spoonfed pureed food.

Spends most of days behind

> closed eyes.

> Eltroxin, Tylenol twice a day.

> Off Aricept since Feb./06

>

>

> >

> > Hello Sandie and ,

> >

> > Got this one! : ) Thank you for pointing that out . I

> > have a hard enough time remembering which messages I responded to

> > these days.

> >

> > Maybe it was a good thing it got lost anyway because I think it

was a

> > bit of panic and I've been so good about not panicking.

> >

> > Mr. B just went through one whole week of the BMs again and this

time

> > Hospice said his body might be trying to " shut down. " He eats

> > breakfast and then refuses lunch and wants only malt-o-meal for

> > dinner...maybe because he doesn't want to " fill up " again? He

gets

> > exhausted at each expisode of BM and then has to be put to bed.

> >

> > The other day, after he was tucked in, I talked to him about what

was

> > going on and how he was feeling and he said he felt okay, he

didn't

> > hurt or anything, he was just very tired and didn't understand

what

> > was happening to his body (with the BMs). Then he said, " I know

I'm

> > done here, but what does a dying person do? I don't know what to

> > do? The first thing that came out of my mouth was, " You are so

damn

> > CUTE! " and he started up that Mr. B grin, then we both laughed

and I

> > just hugged him so hard! Then I asked him, " Where are you going

> > after you leave here? " He said, " Straight up. " I hugged him

again

> > and suggested he start thinking about " where he was going "

and " who "

> > he would like to see again, like his Momma, and they will

probably

> > help him when it was time. Then we would celebrate " where he has

> > been " when he gets there. He said that sounded like a good

idea. He

> > smiled and I adjusted his pillow the way he likes...he looks so

small

> > in that bed now, and told him I would check on him in an hour.

> >

> > Today, the Priest came to visit Mr. B because he heard that he

wasn't

> > doing very well and when Mr. B found out the Priest was coming,

he

> > told the Caregiver that he wanted to sit up at the table....so,

> > Showtime prevails even for the very weak. As soon as the Priest

> > left, he asked to go back to bed.

> >

> > We are taking it day by day, hour by hour, as we travel this

crazy

> > road, and now, I suppose, we are beginning to look for the

offramp

> > out of LewyVille.

> >

> > Much love and Peace to all, Stevie

> >

> > Stevie in So. California

> > LO - Mr. B (Uncle) 82 yrs.

> > Lives in my home - 3 yrs.

> > DX Parkinson's 1993

> > DX LBD 2003 - probably has PDD

> > End stage meds: Hytrin, E.S Tylenol (Hallies have

subsided) ...but

> > have started up again.

> > Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal,

Aciphex,

> > Amitriptyline

> > Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't

been

> > the same since

> > Daily BP usually 68/52

> > Severe shoulder pain, hip pain, and shortness of breath.

> > Now taking Trilisate Liquid for pain - seems to be working

> > UTI since 4/7 not getting any better - took Bactrim - better now.

> > Sleeping most of the day, breathing becoming an issue, asking for

> > oxygen daily.

> > Got a Living Trust years before he became too ill.

> > Had a week of bouts with BMs, turned another corner, very weak

now.

> >

> > * * * * *

> >

> >

> >

> >

> > >

> > > Hello All,

> > > I, too, have noticed 'missing messages'.

> > > People responding to messages I never saw!

> > > SO... if one of us gets few responses we should not jump to

the

> > conclusion that no one cares!!!!!

> > >

> > > Since there are so many of us having a problem, I'm guessing

it

> > is at Yahoo's end.

> > > Please, keep in mind that this is a free service.

> > > How many of us could afford the ridiculous prices some sites

> > charge?

> > > I'm thinking that the contact we have is much better than no

> > contact at all.

> > > What's one more glitch in our lives?

> > > Just my 2 cents worth,

> > >

> > >

> > > - Kingston, Ontario, Canada

> > > Lo Mum 88(dx Jan. 05) and Dad 92 live with me.

> > > 25mg of Seroquel at bedtime only LBD related drug, so far

> > >

> > >

> > > ---------------------------------

> > > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US

(and

> > 30+ countries) for 2¢/min or less.

> > >

> > >