Guest guest Posted September 7, 2007 Report Posted September 7, 2007 My doctors also did a great job describing the situation. Sandie did you get awarded by SSA or a private firm? I was awarded by SSA Sandie Never look down on SomeoneUnless you're willing to help them UpSee what's new at AOL.com and Make AOL Your Homepage. Quote
Guest guest Posted February 10, 2008 Report Posted February 10, 2008 Hi Janine, I was dx 38 yrs ago, but because of cleft palate at birth, then a collapsed lung preventing palate repair I spent my first 20 yrs in and out of hospital and had 25+ surgeries, thus compounding the bronc I suppose. I didn’t manage to get through any year at school w/out a lot of time off, and apart from a few better years in my 20s have found it very hard to sustain employment because I would have to have too much time off, and therefore kept losing jobs... I went onto a disability pension in my late 40s, some 7 yrs ago. I live in Australia, and sometimes it’s easy to complain about health services (have had some serious failings in the hospital/dental system in diff parts of Aus) but bottom line is that if I can’t afford insurance the ‘welfare’ services have to. It’s often not ideal - long waits, sometimes poor, failed or mis-dx and wrong treatments.... Going on a pension relieved me of enormous stress as I’d long passed the point of managing full-time work, and part-time was barely enough to survive anyway – so I’m well used to a reduced income. I do hope things work out for you, It’s bad enough w the disease in itself, and hope there’s someone US side who can help you find a solution, My heartfelt wishes Joy -- -- " Wealth is nothing, position is nothing, fame is nothing. Who you become inside is everything. What happens to you is not as important as how you react to what happens. " Quote
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