Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 > > Hi, I'm from UK and new to the group. I have a 9 yr old daughter with > bronchiectasis. I'm meant to do chest phsyio everyday with her but we > don't always get to do it. The nurse told me over the phone about self > breathing exercises she could do - does anyone know anything about > these, or can refer me to any websites? I'm very glad to have found the > group.Thanks. > I like to hear too!! Sorry I'm no help to you but I am also from UK (Northamptonshire,England) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Hi there, I have a Hill-rom vest that takes care of the chest physio. I am in the US and fortunately our insurance picked up the tab. It is rather expensive and if you can either get your insurance to pay for it or can afford it I recommend it highly. There are other vests on the market I know of but haven't researched them. I wish you the very best. It is so very difficult to get this phlegm up and out but necessary to keep healthy. By the way I also take Mucinex in pill form that loosens and thins mucus thus making it possible to bring it up and out. I am on a large dose of 1200 mg. morning and 1200 night. I am one of those who has a tough time coughing up and out. But I learned and have had less infections since. Hugs, Nan Re: breathing exercises >> Hi, I'm from UK and new to the group. I have a 9 yr old daughter with > bronchiectasis. I'm meant to do chest phsyio everyday with her but we > don't always get to do it. The nurse told me over the phone about self > breathing exercises she could do - does anyone know anything about > these, or can refer me to any websites? I'm very glad to have found the > group.Thanks.>I like to hear too!!Sorry I'm no help to you but I am also from UK (Northamptonshire,England) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2008 Report Share Posted October 4, 2008 Hi Janice I've had a couple of different pumps & the best one I've found yet is the Pari. I have a Pari LC Plus nebuliser - which came with the pump - but I found the Pari Star the best one. It gets into the finer airways as it produces a finer mist. All the best with your journey with this disease. Keep well everyone. Theresa Subject: Re: Re: breathing exercisesTo: "bronchiectasis " <bronchiectasis >Date: Saturday, October 4, 2008, 6:22 AM Hi Janice,I know everyone has their preferences but having had bronch for most of my life (going 5 decades plus) I fully know what you mean about the postural drainage & the muscle-wrenching needed to shift stuck stuff.I changed specialist recently, and at his recommendation have saline nebs and bought a Flutter Valve (Aus$140) which I only wish I¢d had for the last decade...! It¢s the best thing I¢ve found, bubble-peps, huff-breathing etc just doesn¢t work anymore, have too many cysts, too much damage and too much mucus. I¢d most absolutely definitely recommend it! If you can purchase a nebuliser (maybe 2nd hand, but buy the mask etc new) to do saline nebs it really helps loosen gunk without exhausting effort.Good luckjoy Quote Link to comment Share on other sites More sharing options...
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