Re: Refusal to EAT/Sharon

[Guest guest]

Sharon,

I don't think it's anything physical with cutting, chewing, or swallowing

because his food is cut for him and we don't see him having difficulty with

chewing or swallowing--and it just seems to be so random.

The ladies who are his caregivers are very good and sweet women. Dad seems to

like them both and they seem to love him. Mom is having some difficulty because

as she says 'They're always there.' She doesn't really have the house to

herself and some days that just drives her crazy. We've moved her bed into a

guest bedroom and she has a bathroom to herself (except when we are down there).

It's just that there have been so many changes. She's holding up okay, I guess.

Dad hasn't been too aggressive since he's been home. If he is the ladies take

care of it.

Thanks for asking about us, Sharon. Tom and I spend quite a bit of time down

with Mom and Dad. He's still working in the micro lab of our hospital, but he

is more able to get time off when we have to go to Orlando. We've done a few

fun things for ourselves lately. We celebrated Valentine's Day with 2 concerts

at FSU--Art Garfunkle on Monday and Botti on V day! We're going to be

coming over to Destin in April for the Seabreeze Jazz festival. Not sure how

close you are--perhaps we can get together!

I hope things are going better with you and Donnie and his brother. Take

care.

Dianne P

daughter of Bill, 84

Sharon Murray wrote:

dianne

daddy went thru on/off eating habits, and then he went thru sweets,hewould eat

boxes of cookies at a siting and since he was not diabetic i figured some food

if better than no food, but he did eat his regular food,

could it be he is having trouble cutting his food, or chewing it or swallowing

and is choking and may need to go to pureed foods, or like anything with lbd a

stage that he will come/go out of it. how is mom doing with the help, is she

able to rest more and is he treating her better since she isntthe bad guy, to

make him do things he doesn t want to do. how are yu and tom doing, are you iwth

your parents more now or still traveling a lot??? think about you often

hugs.sharon

Dianne wrote:

My dad is at home with 24/7 caregivers and my mom. Mom's life seems to revolve

around what she's going to fix him for lunch and dinner each day. The caregiver

gets him out of bed around 1 pm for lunch--that's his first meal of the day--and

then dinner is around 7 pm. Some days he will clean his plate at both meals and

he always looks forward to an afternoon snack of M & Ms or something like

crackers and cheese and his dessert of ice cream or cookies after dinner. He

eats well most days. Some days, however, he won't eat anything (or if he does

it's very little) for lunch or dinner. My mom worries constantly when that

happens and it may last for a couple of days. Then it seems that he is back to

his old self and ready to eat again. I can't really explain it, but on the days

he doesn't want to eat he seems physically weaker--needing more assistance to

walk and wanting to be in bed more. Then when he " snaps out of it " he goes back

to being a bit more wakeful during

the day, more steady on his feet, even feeding himself rather than having the

caregiver do it. I try to ease my mom's mind when he has those spells by telling

her that he's not expending much energy and so isn't building up an appetite,

but it could be that he's just exercising control over his life (like Sharon

said). I wish I had an explanation...

Dianne P

daughter of Bill, 84

seanmhairx2 wrote:

My 94 year old father in a NH refused to eat lunch or dinner

yesterday...saying he was too weak,too tired, and not hungry. They did

manage to coherce him into eating some breakfast today by telling him

they would put him right back to bed after he ate something. He ate

very little and then requested they put him back to bed.

Does anyone have experience with this?

When I go to visit, which I do daily, he is on his bed, very little

conversation and pretty flat affect.

Any help apprecciated.

Thanks

---------------------------------

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[Guest guest]

hi dianne,

just some other thoughts, one he may not be hungry, when you arent active you

dont always get hungry. or he may not recognize his hunger. or maybe his tastes

have changed. and he doesnt like the same food anymore. with lbders and their

lack of good communication skills makes it difficult. we just have to play the

guessing game. good luck and hugs,

we have never been to destin but we might be ableto meet off the interstate

again, and this time let you meet my country boy donnie. hugs. sharon

Dianne wrote:

Sharon,

I don't think it's anything physical with cutting, chewing, or swallowing

because his food is cut for him and we don't see him having difficulty with

chewing or swallowing--and it just seems to be so random.

The ladies who are his caregivers are very good and sweet women. Dad seems to

like them both and they seem to love him. Mom is having some difficulty because

as she says 'They're always there.' She doesn't really have the house to herself

and some days that just drives her crazy. We've moved her bed into a guest

bedroom and she has a bathroom to herself (except when we are down there). It's

just that there have been so many changes. She's holding up okay, I guess. Dad

hasn't been too aggressive since he's been home. If he is the ladies take care

of it.

Thanks for asking about us, Sharon. Tom and I spend quite a bit of time down

with Mom and Dad. He's still working in the micro lab of our hospital, but he is

more able to get time off when we have to go to Orlando. We've done a few fun

things for ourselves lately. We celebrated Valentine's Day with 2 concerts at

FSU--Art Garfunkle on Monday and Botti on V day! We're going to be coming

over to Destin in April for the Seabreeze Jazz festival. Not sure how close you

are--perhaps we can get together!

I hope things are going better with you and Donnie and his brother. Take care.

Dianne P

daughter of Bill, 84

Sharon Murray wrote:

dianne

daddy went thru on/off eating habits, and then he went thru sweets,hewould eat

boxes of cookies at a siting and since he was not diabetic i figured some food

if better than no food, but he did eat his regular food,

could it be he is having trouble cutting his food, or chewing it or swallowing

and is choking and may need to go to pureed foods, or like anything with lbd a

stage that he will come/go out of it. how is mom doing with the help, is she

able to rest more and is he treating her better since she isntthe bad guy, to

make him do things he doesn t want to do. how are yu and tom doing, are you iwth

your parents more now or still traveling a lot??? think about you often

hugs.sharon

Dianne wrote:

My dad is at home with 24/7 caregivers and my mom. Mom's life seems to revolve

around what she's going to fix him for lunch and dinner each day. The caregiver

gets him out of bed around 1 pm for lunch--that's his first meal of the day--and

then dinner is around 7 pm. Some days he will clean his plate at both meals and

he always looks forward to an afternoon snack of M & Ms or something like

crackers and cheese and his dessert of ice cream or cookies after dinner. He

eats well most days. Some days, however, he won't eat anything (or if he does

it's very little) for lunch or dinner. My mom worries constantly when that

happens and it may last for a couple of days. Then it seems that he is back to

his old self and ready to eat again. I can't really explain it, but on the days

he doesn't want to eat he seems physically weaker--needing more assistance to

walk and wanting to be in bed more. Then when he " snaps out of it " he goes back

to being a bit more wakeful during

the day, more steady on his feet, even feeding himself rather than having the

caregiver do it. I try to ease my mom's mind when he has those spells by telling

her that he's not expending much energy and so isn't building up an appetite,

but it could be that he's just exercising control over his life (like Sharon

said). I wish I had an explanation...

Dianne P

daughter of Bill, 84

seanmhairx2 wrote:

My 94 year old father in a NH refused to eat lunch or dinner

yesterday...saying he was too weak,too tired, and not hungry. They did

manage to coherce him into eating some breakfast today by telling him

they would put him right back to bed after he ate something. He ate

very little and then requested they put him back to bed.

Does anyone have experience with this?

When I go to visit, which I do daily, he is on his bed, very little

conversation and pretty flat affect.

Any help apprecciated.

Thanks

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.