anita/sharon m

[Guest guest]

anita,

welcome to our family and i am soooo sorry you had to look us up. feel free to

vent, scream, cry, ask quesitons, stomp your feet, whatever it takes to help

you. we are here with you 100% and undrestand the roller coaster ride of lbd.

as you read from my signature my dad died last fall from complications of lbd.

we were diagnosed as dad was in the hosp for 5 weeks with no official diagnosis

until a weekend doctor came in and mentioned lbd, i immediately looked up on

line and the symptoms described dad to a T the memory you are talking about

was similar in dad, but as the disease progressed he lived more in the past,

like asking me, do you remember when i changed your diaper the other day, and

now here you are changing mine. he had no concept of time and expected me to

remember him changing my daipers.

but it is easier to have a name with the disease, makes you feel like you arent

crazy. please be sure to have all legal paperwrok done NOW if it isnt already

done, do not wait . and also just as important take care of YOURSELF first. in

order to be a good caregiver you have to be healthy , so dont overlook your own

health needs too.

good luck and hugs, sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- Anita wrote:

My husband was recently diagnosed with Dementia. The events leading

up to this included hernia surgery, right after that we had three

hurricanes, then he hit his head and got shingles in his eye. After

that we were threatened with flooding. A lot of stress. He began to

show signs of slowness of gait and confusion. He also has Rem

Behavior Disorder which makes me suspect LBD.

His memory seems to be pretty good but he gets pretty confused about

the sequence or how to do something. He doesn't seem to be able to

learn new things either. Just recently he began wanting to sleep

all the time and just as I was about the call the Dr., he woke up.

Since then he has been awake more and he is walking better. The

confusion remains however.

We have an appointment at the University of Florida in September to

have further testing. Hoping we won't be on that rollar coaster

ride of diagnosis that others have talked about but I'm not holding

my breath.

Anita 63 Florida

Caregiver to Husband Joe 63

so far diagnosed with Dementia

Welcome to LBDcaregivers.