Re: Hello! I Am A New Member...

[Guest guest]

Hi beth. I live in Boston, MA (well actually Cambridge). Welcome

to the board, but I'm sorry you had to be here. I think it's

wonderful that you returned home to help care for your dad. I'm sure

your parents were thrilled with that decision. You will learn a lot

on this board and this site.

What meds is your father on? My mother has LBD - but not as young as

your dad - her 'story' is available to read in the " Files " section of

the site.

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid decline from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05. Update: on antidepressant Celexa, 20mg (still teary, but not

as weepy) and as of 4/21 on Exelon.

>

> Greetings Everyone From NJ Here!

>

> I just joined this support group last night and already have

learned so much, thank you.

>

> My name is beth and I was 19 years old when my father was

first diagnosed with AD at the age of 56, then about six years after

this, he was diagnosed with LBD.

>

> I was living up in Boston, MA before I made one of the best best,

most diffcult decisions within my life, thus far to move back home

to NJ and help care for my dad. I have been living in NJ for about

three years now and am 29.

>

> I wanted to join this group for educational purposes and to have

people relate to me with the challenges we face each and everyday.

My mom had told me about these online support groups, and have

finally joined, which I am happy about

>

> My father's LBD is progressing and the caregiving responsibilites

(as you all know), are becoming more intensive and challenging.

However, he is in pretty good spirits and is overall, a happy guy,

for this we are fortunate and thankful.

>

> Well, I won't leave a big biography here, but I do look forward

to learning and getting to know all of you better. Whatever curve

balls come our way, we will get through them. These challenges will

make us stronger, internally and externally. The love and

compassion we have for our loved ones are some of our strengths,

which make us shine and live so much more beautiful lives

>

> Write to you all soon,

>

> ~beth~

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Yahoo! Messenger with Voice.

>

>

[Guest guest]

We have had a couple of new people join lately, and I haven't had a chance

to greet them. But at this time, I welcome you, as I was welcomed. It is a

loving group, and most helpful as you have seen already.

Feel free to share your stories, or what ever. I sure do. But, since my

husband isn't as far along as many on this list, and I am new at all this

myself,

I don't have a lot to share, but sure am gaining a lot of knowledge. And you

other new comers will likewise.

A big Welcome to all of you,

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept.

In a message dated 4/28/2006 5:50:05 AM Central Daylight Time,

seoul0477@... writes:

Greetings Everyone From NJ Here!

I just joined this support group last night and already have learned so

much, thank you.

My name is beth and I was 19 years old when my father was first

diagnosed with AD at the age of 56, then about six years after this, he was

diagnosed with LBD.

I was living up in Boston, MA before I made one of the best best, most

diffcult decisions within my life, thus far to move back home to NJ and help

care for my dad. I have been living in NJ for about three years now and am

29.

I wanted to join this group for educational purposes and to have people rel

ate to me with the challenges we face each and everyday. My mom had told me

about these online support groups, and have finally joined, which I am

happy about

My father's LBD is progressing and the caregiving responsibilites (as you

all know), are becoming more intensive and challenging. However, he is in

pretty good spirits and is overall, a happy guy, for this we are fortunate and

thankful.

Well, I won't leave a big biography here, but I do look forward to learning

and getting to know all of you better. Whatever curve balls come our way,

we will get through them. These challenges will make us stronger,

internally and externally. The love and compassion we have for our loved ones

are so

me of our strengths, which make us shine and live so much more beautiful

lives

Write to you all soon,

~beth~

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

Messenger with Voice.

[Guest guest]

Hi beth-

Welcome to our LBD support group. My Dad died 9/11/05. I joined a few months

before he passed from LBD. I don't know how I would have gotten through these

tough times without this wonderful group. I have elected to stay on for 2

reasons. One, so that I could share my knowledge and give support to others.

The other reason is there are still timesI need support myself. There couldn't

be a more compassionate group. When my Grandaughter was in an accident this

week, the first thing I did was to email this group. They always say the right

things and can get you through any situation.

You are very fortuante that your Dad has maintained his pleasant personality.

My Dad also had a easy going personality and he maintained it until the end.

Reading these posts, I know how much more difficult it could have been.

I live next door to my parents. . It sure made it very convenient to be there

to take care of my Dad along with my Mom. Mom and I were a good team, but at

times our nerves became frayed. I got irritated at times with my 87 yr. old

Mother because she would rather do things herself than pay for more help. Now

my Mom is paying the price with her health. I look in the mirror and can't

believe how much I have aged. Be aware, as time goes by you will need outside

help and increase it according to your and your Dad's needs. It is not always

possible to keep a lo (loveone) at home, but in my situation I am so glad we

could. Dad's cooperative behaviour played a major role.

It sounds like you have a difficult situation going on, but with the your very

positive outlook and your family strenghts that you mentioned you will get

through this together..

Sincerely,

Gerry Deverell

Wilmington, De., your neighboring state

Caregiver and daughter of Dick Deverell, who died 9/11/05 after more than a 4

year battle with LBD.

From: EBHEART

To: LBDcaregivers

Sent: Thursday, April 27, 2006 10:01 PM

Subject: Hello! I Am A New Member...

Greetings Everyone From NJ Here!

I just joined this support group last night and already have learned so

much, thank you.

My name is beth and I was 19 years old when my father was first

diagnosed with AD at the age of 56, then about six years after this, he was

diagnosed with LBD.

I was living up in Boston, MA before I made one of the best best, most

diffcult decisions within my life, thus far to move back home to NJ and help

care for my dad. I have been living in NJ for about three years now and am 29.

I wanted to join this group for educational purposes and to have people

relate to me with the challenges we face each and everyday. My mom had told me

about these online support groups, and have finally joined, which I am happy

about

My father's LBD is progressing and the caregiving responsibilites (as you

all know), are becoming more intensive and challenging. However, he is in

pretty good spirits and is overall, a happy guy, for this we are fortunate and

thankful.

Well, I won't leave a big biography here, but I do look forward to learning

and getting to know all of you better. Whatever curve balls come our way, we

will get through them. These challenges will make us stronger, internally and

externally. The love and compassion we have for our loved ones are some of our

strengths, which make us shine and live so much more beautiful lives

Write to you all soon,

~beth~

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

Messenger with Voice.

[Guest guest]

Hi ,

It's great to have typed you Thank you for your response and I am sorry to

hear about your mom. That's great you live in Cambridge ( Child and

Harvard land). I miss New England, family, and friends, but I know it's not too

far to come and visit, which is nice.

My dad has been declining within the past month, hence the reason I have not

been writing to you and everyone else. His medications consist of:

Aricept

Namenda

Cardura

Buspar

Provigil

and a variety of vitamins, fish oil, CoEnzyme Q10, etc.

Life has definitely changed, as you are familiar with. How about your mom,

family, how has your life changed? I will write more later and look

forward to getting to know all of you soon.

I hope all is going well and if you are a mom, happy mothers day...to your mom

as well.

Hugs,

~beth~

wrote:

Hi beth. I live in Boston, MA (well actually Cambridge). Welcome

to the board, but I'm sorry you had to be here. I think it's

wonderful that you returned home to help care for your dad. I'm sure

your parents were thrilled with that decision. You will learn a lot

on this board and this site.

What meds is your father on? My mother has LBD - but not as young as

your dad - her 'story' is available to read in the " Files " section of

the site.

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid decline from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05. Update: on antidepressant Celexa, 20mg (still teary, but not

as weepy) and as of 4/21 on Exelon.

>

> Greetings Everyone From NJ Here!

>

> I just joined this support group last night and already have

learned so much, thank you.

>

> My name is beth and I was 19 years old when my father was

first diagnosed with AD at the age of 56, then about six years after

this, he was diagnosed with LBD.

>

> I was living up in Boston, MA before I made one of the best best,

most diffcult decisions within my life, thus far to move back home

to NJ and help care for my dad. I have been living in NJ for about

three years now and am 29.

>

> I wanted to join this group for educational purposes and to have

people relate to me with the challenges we face each and everyday.

My mom had told me about these online support groups, and have

finally joined, which I am happy about

>

> My father's LBD is progressing and the caregiving responsibilites

(as you all know), are becoming more intensive and challenging.

However, he is in pretty good spirits and is overall, a happy guy,

for this we are fortunate and thankful.

>

> Well, I won't leave a big biography here, but I do look forward

to learning and getting to know all of you better. Whatever curve

balls come our way, we will get through them. These challenges will

make us stronger, internally and externally. The love and

compassion we have for our loved ones are some of our strengths,

which make us shine and live so much more beautiful lives

>

> Write to you all soon,

>

> ~beth~

>

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Yahoo! Messenger with Voice.

>

>

[Guest guest]

Hello Gerry,

Thanks so much for your endearing e-mail and for staying, the group is

fortunate to have you. I am sorry to hear about your father's passing; however,

glad to hear he was pretty cooperative and in some high spirits until the end.

My mom and I are lucky, he is still in high spirits.

He has been declining within the past few months, it's been my mom and I from

the very beginning; however, thankfully, tomorrow he is being assessed with a

certified home healthcare person and will be coming in on Wednesdays from

12:30pm to 8:30pm. The care for my dad is becoming more time consuming and is

now catching up to my mom and me. Especially my mom, considering she is with

him throughout the day, then she goes off to work around 4:30pm, she is a

Psychotherapist, has her own practice, then I come home from work around 6:00pm,

so I have the night shift, besides the weekends.

How has your life changed since becoming a caregiver? Do you have any

pointers or suggestions with balancing your life? It's becoming more

challenging and frusturating, but all in all, we are very fortunate and life is

good

Did you and your mom ever think of putting your father on Cerequil (spelling

is wrong)? In order for you and your mom to get sleep throughout the night,

it's a sleeping pill.

Again, thank you for your kind words and I look foward to getting to know you

and your caretaking journey.

I hope all is going well and I will write as much as I can.

Hugs,

~beth~

Gerry Deverell wrote:

Hi beth-

Welcome to our LBD support group. My Dad died 9/11/05. I joined a few months

before he passed from LBD. I don't know how I would have gotten through these

tough times without this wonderful group. I have elected to stay on for 2

reasons. One, so that I could share my knowledge and give support to others.

The other reason is there are still timesI need support myself. There couldn't

be a more compassionate group. When my Grandaughter was in an accident this

week, the first thing I did was to email this group. They always say the right

things and can get you through any situation.

You are very fortuante that your Dad has maintained his pleasant personality.

My Dad also had a easy going personality and he maintained it until the end.

Reading these posts, I know how much more difficult it could have been.

I live next door to my parents. . It sure made it very convenient to be there

to take care of my Dad along with my Mom. Mom and I were a good team, but at

times our nerves became frayed. I got irritated at times with my 87 yr. old

Mother because she would rather do things herself than pay for more help. Now

my Mom is paying the price with her health. I look in the mirror and can't

believe how much I have aged. Be aware, as time goes by you will need outside

help and increase it according to your and your Dad's needs. It is not always

possible to keep a lo (loveone) at home, but in my situation I am so glad we

could. Dad's cooperative behaviour played a major role.

It sounds like you have a difficult situation going on, but with the your very

positive outlook and your family strenghts that you mentioned you will get

through this together..

Sincerely,

Gerry Deverell

Wilmington, De., your neighboring state

Caregiver and daughter of Dick Deverell, who died 9/11/05 after more than a 4

year battle with LBD.

From: EBHEART

To: LBDcaregivers

Sent: Thursday, April 27, 2006 10:01 PM

Subject: Hello! I Am A New Member...

Greetings Everyone From NJ Here!

I just joined this support group last night and already have learned so

much, thank you.

My name is beth and I was 19 years old when my father was first

diagnosed with AD at the age of 56, then about six years after this, he was

diagnosed with LBD.

I was living up in Boston, MA before I made one of the best best, most

diffcult decisions within my life, thus far to move back home to NJ and help

care for my dad. I have been living in NJ for about three years now and am 29.

I wanted to join this group for educational purposes and to have people

relate to me with the challenges we face each and everyday. My mom had told me

about these online support groups, and have finally joined, which I am happy

about

My father's LBD is progressing and the caregiving responsibilites (as you

all know), are becoming more intensive and challenging. However, he is in

pretty good spirits and is overall, a happy guy, for this we are fortunate and

thankful.

Well, I won't leave a big biography here, but I do look forward to learning

and getting to know all of you better. Whatever curve balls come our way, we

will get through them. These challenges will make us stronger, internally and

externally. The love and compassion we have for our loved ones are some of our

strengths, which make us shine and live so much more beautiful lives

Write to you all soon,

~beth~

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

Messenger with Voice.