Re: Stevie, thank you

[Guest guest]

Hi Stevie-

Thank you for updating us on how Mr. B is doing. He

sounds like such an honorable and distinguished man.

I remember when I was in New Zealand and gave

's mom a hug while she was sitting down. By

the time I made my way around the room saying bye

to the family, she was standing and told me she needed

to give me a " proper " good bye hug. It sounds like

that is what Mr. B was feeling with the Priest coming

by. It was a proper meeting for him and he needed

to attend just that way.

My thoughts are with you every day. Each time I even

see our car I think of Mr. B riding in your car with the

top down.

Hugs and prayers to you and your family-

Sandie

Des Moines, IA

-- Re: Missing messages

Hello Sandie and ,

Got this one! : ) Thank you for pointing that out . I

have a hard enough time remembering which messages I responded to

these days.

Maybe it was a good thing it got lost anyway because I think it was a

bit of panic and I've been so good about not panicking.

Mr. B just went through one whole week of the BMs again and this time

Hospice said his body might be trying to " shut down. " He eats

breakfast and then refuses lunch and wants only malt-o-meal for

dinner...maybe because he doesn't want to " fill up " again? He gets

exhausted at each expisode of BM and then has to be put to bed.

The other day, after he was tucked in, I talked to him about what was

going on and how he was feeling and he said he felt okay, he didn't

hurt or anything, he was just very tired and didn't understand what

was happening to his body (with the BMs). Then he said, " I know I'm

done here, but what does a dying person do? I don't know what to

do? The first thing that came out of my mouth was, " You are so damn

CUTE! " and he started up that Mr. B grin, then we both laughed and I

just hugged him so hard! Then I asked him, " Where are you going

after you leave here? " He said, " Straight up. " I hugged him again

and suggested he start thinking about " where he was going " and " who "

he would like to see again, like his Momma, and they will probably

help him when it was time. Then we would celebrate " where he has

been " when he gets there. He said that sounded like a good idea. He

smiled and I adjusted his pillow the way he likes...he looks so small

in that bed now, and told him I would check on him in an hour.

Today, the Priest came to visit Mr. B because he heard that he wasn't

doing very well and when Mr. B found out the Priest was coming, he

told the Caregiver that he wanted to sit up at the table....so,

Showtime prevails even for the very weak. As soon as the Priest

left, he asked to go back to bed.

We are taking it day by day, hour by hour, as we travel this crazy

road, and now, I suppose, we are beginning to look for the offramp

out of LewyVille.

Much love and Peace to all, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) ...but

have started up again.

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't been

the same since

Daily BP usually 68/52

Severe shoulder pain, hip pain, and shortness of breath.

Now taking Trilisate Liquid for pain - seems to be working

UTI since 4/7 not getting any better - took Bactrim - better now.

Sleeping most of the day, breathing becoming an issue, asking for

oxygen daily.

Got a Living Trust years before he became too ill.

Had a week of bouts with BMs, turned another corner, very weak now.

* * * * *

>

> Hello All,

> I, too, have noticed 'missing messages'.

> People responding to messages I never saw!

> SO... if one of us gets few responses we should not jump to the

conclusion that no one cares!!!!!

>

> Since there are so many of us having a problem, I'm guessing it

is at Yahoo's end.

> Please, keep in mind that this is a free service.

> How many of us could afford the ridiculous prices some sites

charge?

> I'm thinking that the contact we have is much better than no

contact at all.

> What's one more glitch in our lives?

> Just my 2 cents worth,

>

>

> - Kingston, Ontario, Canada

> Lo Mum 88(dx Jan. 05) and Dad 92 live with me.

> 25mg of Seroquel at bedtime only LBD related drug, so far

>

>

> ---------------------------------

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

>