Re: I'm having a melt down

May 5, 2006

Oh Jan,

I can only imagine what you and Jim are going through. Have you asked the

doctor to

prescribe a shot of wine instead of Haldol? I wonder how that would go over,

but think it

might help the situation, as you seemed to indicate it would sedate Jim rather

than make

him more combative. I feel so very deeply for what you are both experiencing.

>

> Hi,

> Here's the scoop on Jim as of today. Yesterday,

> Thursday, they moved Jim from ER to a hospital room

> and said that if he could go 24 hours without being

> combative he could go to the nh today, well the

> hospital put a sitter in his room and then called

> today and said, " Jim was very calm through the night,

> but we can not transfer him, because there was a

> sitter in his room throughout the night and the

> nursing home policy is that no sitter can be in the

> room and that Jim has to be alone for 24 hours without

> being combative before they can transfer him to a nh.

> $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

> THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

> So he did not go to the nh home today and he was calm

> too! The hospital still has him. Unfortunately, I went

> to visit Jim and found him laying naked on a soaking

> wet bed pad with poop all up his back. The nurses

> could not change him, because of his combativeness

> with the toileting issues and just left the diaper off

> of him. He was laying peacefully in all that and I had

> to mention that he needs his bed pad changed and to be

> cleaned up, which made Jim combative, which I am sure

> now has to be recorded, so I am sure they will call me

> tomorrow and say they can not move him, since he was

> combative. If I had just kept my mouth closed, he

> would have remained calm. I have a feeling he will be

> coming back home with me. No one wants him. I should

> probably just let them give him the Haldol, so he is

> totally comatose and doesn't know what's going on. I

> am so exhausted. I have done all the work I had to do

> filling out the paper work at the nursing home and

> getting everything in order for Jim to be transfered

> there, but I have my doubts now. There is a new

> policy with Jim's health care now too that I have to

> pay $300.00 per day. He has already been there since

> Wednesday. It is also $200.00 for them to transfer Jim

> to the nh. Arghhhhhhh!!!!!

> I canceled my caregiver for Mother's Day since I

> thought Jim would be in a nursing home by then. I feel

> so hemmed in right now with no way out!!! This has

> been a total nightmare. Thanks for listening, I think

> I will go and have a few glasses of wine to calm my

> nerves now. I can't have a lemon drop, because that is

> when you make lemonade out of lemons and I don't feel

> like this is lemonade.

> Jan

>

> __________________________________________________

>

May 5, 2006

Jan:

Sorry to hear of all your troubles. California regs

must be different than Kansas. When Darrell was going

thru the same thing, they had to have a sitter in his

room 24/7 so that he did not fall or try to get out of

bed. I can't imagine that they would allow him to be

alone for 24 hours in his condition. Is the NH you

are looking at an acute-care NH? If not, he will not

qualify for Medicare or NH insurance if you have that.

I would question this with Medicare, which has strict

regulations, and I assume that he is on Medicare at

this time. They should keep him 3 days to be eligible

for the NH anyway. I think Medicare regs are

consistent throughout the US, since that's a federal

program. Do you have a social worker at the hospital?

Where my husband was, they did, and

she was helpful with things. They gave my husband

Ativan, which did calm him down, but I'm not sure it

was good for him in the long run. However, you are at

a point now, that it might be wise to have them give

him that or Seroquel so that he isn't combative.

Also, have them check him for UTI, as that makes my

husband much more combative when he has that. I can't

imagine making him lie naked in his own waste, and I

am sure there is some kind of overseer for hospitals

that would not allow that treatment. What kind of

hospital is this? You know you won't be able to take

him home in that condition, as I knew I couldn't take

my husband. They are too combative, and if he is

bigger than you, even tho he's ill, they can have a

lot of strength. My husband's arms and legs were like

steel pipes, even tho he had trouble walking, he still

had a lot of strength in them. Also, they have to be

transferred to a NH within a certain time (30 days)

from an acute care hospital to a NH to have Medicare

coverage. What kind of insurance do you have that

you have to pay $300 a day? If he's on Medicare, if

should pay what they allow, then bill your secondary

carrier, who should pay the remainder.

Perhaps you will have to talk to an attorney to get

some answers. I hope it works out for you. Our

thoughts and prayers are with you, as I know the

decisions you have to make are stressful, and then to

have it " blow up " thru no fault of yours, it's

terrible.

As an aside, is there something wrong with the site

that I've only received a few e-mails from caregivers

today? Generally, there will be many more than that

in a 24-hour period.

-- Janet Colello wrote:

>

> Hi,

> Here's the scoop on Jim as of today. Yesterday,

> Thursday, they moved Jim from ER to a hospital room

> and said that if he could go 24 hours without being

> combative he could go to the nh today, well the

> hospital put a sitter in his room and then called

> today and said, " Jim was very calm through the

> night,

> but we can not transfer him, because there was a

> sitter in his room throughout the night and the

> nursing home policy is that no sitter can be in the

> room and that Jim has to be alone for 24 hours

> without

> being combative before they can transfer him to a

> nh.

> $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

> THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

> So he did not go to the nh home today and he was

> calm

> too! The hospital still has him. Unfortunately, I

> went

> to visit Jim and found him laying naked on a soaking

> wet bed pad with poop all up his back. The nurses

> could not change him, because of his combativeness

> with the toileting issues and just left the diaper

> off

> of him. He was laying peacefully in all that and I

> had

> to mention that he needs his bed pad changed and to

> be

> cleaned up, which made Jim combative, which I am

> sure

> now has to be recorded, so I am sure they will call

> me

> tomorrow and say they can not move him, since he was

> combative. If I had just kept my mouth closed, he

> would have remained calm. I have a feeling he will

> be

> coming back home with me. No one wants him. I should

> probably just let them give him the Haldol, so he is

> totally comatose and doesn't know what's going on. I

> am so exhausted. I have done all the work I had to

> do

> filling out the paper work at the nursing home and

> getting everything in order for Jim to be transfered

> there, but I have my doubts now. There is a new

> policy with Jim's health care now too that I have to

> pay $300.00 per day. He has already been there since

> Wednesday. It is also $200.00 for them to transfer

> Jim

> to the nh. Arghhhhhhh!!!!!

> I canceled my caregiver for Mother's Day since I

> thought Jim would be in a nursing home by then. I

> feel

> so hemmed in right now with no way out!!! This has

> been a total nightmare. Thanks for listening, I

> think

> I will go and have a few glasses of wine to calm my

> nerves now. I can't have a lemon drop, because that

> is

> when you make lemonade out of lemons and I don't

> feel

> like this is lemonade.

> Jan

>

> __________________________________________________

>

May 5, 2006

Jan,

I am so ready to have a glass (or two or three) of wine with you, because Fred's

Adult Family Home (AFH) owners cornered me today and said he has been verbally

abusive to the caregivers and swears and carries on until he gets what he wants.

He can be very loud when he wants to be, although his physical limitations are

great, so he at least he can't go after anyone. He just threatens them. He

calls me all day long, and now the phone is confusing to him and he forgets our

number, and is not only calling me, but is calling everyone in town with a

number the least bit similar to ours. And thanks to caller ID people are

calling the AFH asking who is calling them and leaving these strange messages.

They think he needs a little Ativan to calm his " anxiety. " I have to agree he

needs something. I have to make an appt with the neurologist because our PCP is

not willing to prescribe any psychotropic drugs. He at least knew that Haldol

can be very damaging, and said all dopamine antagonist drugs could be, including

Seroquel. (sp?) I guess he is scaring the other residents (now just two

others), one is a very sweet, gentle confused lady with AD.

I took our daughter two days ago to the neurologist, who ordered x-rays to see

if her spine instrumentation was still intact, and blood work to see if she

might be suffering with gallstones or something. It turns out her spasticity

is so strong it has bent the steel rods in her back. No wonder she is moaning.

Now I have to take her to a spine specialist to see what we need to do.

I've had a long list of other things go wrong today...but instead of listing

them, may I just click my glass to yours, Jan. I hope you don't give up on the

nursing home. They have to be able to handle difficult patients. Maybe there

can be a medical intervention (as in meds). Do some of these special

psychotropic drugs take a while to take effect? You need to be able to help him

as an advocate, not a caregiver from now on. The best thing for you to do is

to have a nervous breakdown and become incapacitated. I'm thinking of doing

that myself. Then someone has to step in and take over. If I weren't so darn

controlling, I'd really do it!

I'm having a melt down

Hi,

Here's the scoop on Jim as of today. Yesterday,

Thursday, they moved Jim from ER to a hospital room

and said that if he could go 24 hours without being

combative he could go to the nh today, well the

hospital put a sitter in his room and then called

today and said, " Jim was very calm through the night,

but we can not transfer him, because there was a

sitter in his room throughout the night and the

nursing home policy is that no sitter can be in the

room and that Jim has to be alone for 24 hours without

being combative before they can transfer him to a nh.

$#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

So he did not go to the nh home today and he was calm

too! The hospital still has him. Unfortunately, I went

to visit Jim and found him laying naked on a soaking

wet bed pad with poop all up his back. The nurses

could not change him, because of his combativeness

with the toileting issues and just left the diaper off

of him. He was laying peacefully in all that and I had

to mention that he needs his bed pad changed and to be

cleaned up, which made Jim combative, which I am sure

now has to be recorded, so I am sure they will call me

tomorrow and say they can not move him, since he was

combative. If I had just kept my mouth closed, he

would have remained calm. I have a feeling he will be

coming back home with me. No one wants him. I should

probably just let them give him the Haldol, so he is

totally comatose and doesn't know what's going on. I

am so exhausted. I have done all the work I had to do

filling out the paper work at the nursing home and

getting everything in order for Jim to be transfered

there, but I have my doubts now. There is a new

policy with Jim's health care now too that I have to

pay $300.00 per day. He has already been there since

Wednesday. It is also $200.00 for them to transfer Jim

to the nh. Arghhhhhhh!!!!!

I canceled my caregiver for Mother's Day since I

thought Jim would be in a nursing home by then. I feel

so hemmed in right now with no way out!!! This has

been a total nightmare. Thanks for listening, I think

I will go and have a few glasses of wine to calm my

nerves now. I can't have a lemon drop, because that is

when you make lemonade out of lemons and I don't feel

like this is lemonade.

Jan

__________________________________________________

May 6, 2006

June and others,

There just doesn't seem to be a lot of messages. I went to the Yahoo site and

maybe they aren't getting them either.

I also was struck by not much in the way of messages. Maybe everyone is

gardening? or putting LOs in nh? : ) or drinking wine.

Jan hope things are going better. There must be something they can give him to

help calm him and it doesn't have to be haldol or ativan. They sure have enough

pills around. I don't know what we have that is being recommended but there are

some on drugs.

And the other thing that I keep wondering what makes him so upset with the

wetting situation. I can't believe there isn't a solution somewhere.

As for money, why isn't Medicare taking care of his hospital bill? I know there

is a deductible, but you should have some help with it. Has it not been long

enough since his last visit? That should be able to be refuted. Someone out

there has answers. And the SW (Social Worker) might be a place to start at the

hospital. I thought I heard once that you are not required to take him home. I

think they are required to find him a placement.

I guess I need to go see what is on some of the sites and see if I can come up

with something. Mom wasn't on meds so I am not the best one to ask about that.

Maybe there are others in California who can offer suggestions. (Although you

have been at this a while and I would have thought someone would have already.)

Have you asked the MD what they would do if you weren't there? What would they

do with Jim if he had no one?

Hope you had your wine and are sleeping soundly.

Hugs

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: I'm having a melt down

May 6, 2006

You have described a ghastly situation and I agree with those who mentioned

that the condition in which you found Jim isn't even legal. In Illinois, if

they find animals as big as horses not cared for, the owners are jailed. I

was the legal guardian for a sister for many years and went through so many

situations. I called the state at times and the ombudsmen and documented what

was happening. Yes, there are so many d--- forms and papers that need to be

taken care of, that you probably can't even think about contacting one more

person. But this is intolerable. My stomach was in knots reading what you

wrote. I hope and pray that you can stay focused because this is so

mind-boggling. Arlene

May 6, 2006

, I sure am sorry you are having such a a time of it. When it rains

for you it pours. Goodness. I am sorry.

I'll click a glass of wine with you and Jan. (smile)

Imogene

In a message dated 5/6/2006 2:09:02 AM Central Daylight Time,

cloudy@... writes:

I've had a long list of other things go wrong today...but instead of listing

them, may I just click my glass to yours, Jan.

May 6, 2006

Janet-

I feel so bad for you. What you are going through is ridiculous. I had some

advice to give you. I will definitly keep you and Jim in my thoughts and

prayers. I will try to come up with some advice or at least comforting words

and email you when I do.

Being a nurse, I have 2 possible guesses why they put a sitter in with Jim. 1.

Legality. 2. The hospital wanted to keep their census up. Putting a sitter in

with Jim gave them more patient days and delayed his transfer.

Please take care of yourself.

Gerry

Wilmington, De.

Daughter & caregiver of Dick Deverell, who died on 9?11/05 after more than a 4

yr. battle with LBD.

I'm having a melt down

Hi,

Here's the scoop on Jim as of today. Yesterday,

Thursday, they moved Jim from ER to a hospital room

and said that if he could go 24 hours without being

combative he could go to the nh today, well the

hospital put a sitter in his room and then called

today and said, " Jim was very calm through the night,

but we can not transfer him, because there was a

sitter in his room throughout the night and the

nursing home policy is that no sitter can be in the

room and that Jim has to be alone for 24 hours without

being combative before they can transfer him to a nh.

$#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

So he did not go to the nh home today and he was calm

too! The hospital still has him. Unfortunately, I went

to visit Jim and found him laying naked on a soaking

wet bed pad with poop all up his back. The nurses

could not change him, because of his combativeness

with the toileting issues and just left the diaper off

of him. He was laying peacefully in all that and I had

to mention that he needs his bed pad changed and to be

cleaned up, which made Jim combative, which I am sure

now has to be recorded, so I am sure they will call me

tomorrow and say they can not move him, since he was

combative. If I had just kept my mouth closed, he

would have remained calm. I have a feeling he will be

coming back home with me. No one wants him. I should

probably just let them give him the Haldol, so he is

totally comatose and doesn't know what's going on. I

am so exhausted. I have done all the work I had to do

filling out the paper work at the nursing home and

getting everything in order for Jim to be transfered

there, but I have my doubts now. There is a new

policy with Jim's health care now too that I have to

pay $300.00 per day. He has already been there since

Wednesday. It is also $200.00 for them to transfer Jim

to the nh. Arghhhhhhh!!!!!

I canceled my caregiver for Mother's Day since I

thought Jim would be in a nursing home by then. I feel

so hemmed in right now with no way out!!! This has

been a total nightmare. Thanks for listening, I think

I will go and have a few glasses of wine to calm my

nerves now. I can't have a lemon drop, because that is

when you make lemonade out of lemons and I don't feel

like this is lemonade.

Jan

__________________________________________________

May 6, 2006

Jan - I can't imagine what you're going through right now. It seems

so unfair! And poor Jim - what he's going through is a nightmare. I'm

so sorry that you're having to deal with this long fight. I'll keep

the two of you in my thoughts and prayers - prayers for some light to

finally shine on this situation and get you the help you both need!

>

> Hi,

> Here's the scoop on Jim as of today. Yesterday,

> Thursday, they moved Jim from ER to a hospital room

> and said that if he could go 24 hours without being

> combative he could go to the nh today, well the

> hospital put a sitter in his room and then called

> today and said, " Jim was very calm through the night,

> but we can not transfer him, because there was a

> sitter in his room throughout the night and the

> nursing home policy is that no sitter can be in the

> room and that Jim has to be alone for 24 hours without

> being combative before they can transfer him to a nh.

> $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

> THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

> So he did not go to the nh home today and he was calm

> too! The hospital still has him. Unfortunately, I went

> to visit Jim and found him laying naked on a soaking

> wet bed pad with poop all up his back. The nurses

> could not change him, because of his combativeness

> with the toileting issues and just left the diaper off

> of him. He was laying peacefully in all that and I had

> to mention that he needs his bed pad changed and to be

> cleaned up, which made Jim combative, which I am sure

> now has to be recorded, so I am sure they will call me

> tomorrow and say they can not move him, since he was

> combative. If I had just kept my mouth closed, he

> would have remained calm. I have a feeling he will be

> coming back home with me. No one wants him. I should

> probably just let them give him the Haldol, so he is

> totally comatose and doesn't know what's going on. I

> am so exhausted. I have done all the work I had to do

> filling out the paper work at the nursing home and

> getting everything in order for Jim to be transfered

> there, but I have my doubts now. There is a new

> policy with Jim's health care now too that I have to

> pay $300.00 per day. He has already been there since

> Wednesday. It is also $200.00 for them to transfer Jim

> to the nh. Arghhhhhhh!!!!!

> I canceled my caregiver for Mother's Day since I

> thought Jim would be in a nursing home by then. I feel

> so hemmed in right now with no way out!!! This has

> been a total nightmare. Thanks for listening, I think

> I will go and have a few glasses of wine to calm my

> nerves now. I can't have a lemon drop, because that is

> when you make lemonade out of lemons and I don't feel

> like this is lemonade.

> Jan

>

> __________________________________________________

>

May 6, 2006

Jan: you and Jim are in my thoughts and prayers. I do think the hospital social

worker is a way to break the log jam. You do need a professional problem fixer.

I have found sometimes social workers can be a God send. Having been a social

worker I have seen some that are worthless. I pray you get a good one. Almost

every hospital has one. The normal fee is free to $25.00 per hour. If you get a

good one they will be worth their weight in gold. Outside social work agencies

tend to have the best. You can find them in the yellow pages.

Dirk

Janet Colello wrote:

Hi,

Here's the scoop on Jim as of today. Yesterday,

Thursday, they moved Jim from ER to a hospital room

and said that if he could go 24 hours without being

combative he could go to the nh today, well the

hospital put a sitter in his room and then called

today and said, " Jim was very calm through the night,

but we can not transfer him, because there was a

sitter in his room throughout the night and the

nursing home policy is that no sitter can be in the

room and that Jim has to be alone for 24 hours without

being combative before they can transfer him to a nh.

$#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

So he did not go to the nh home today and he was calm

too! The hospital still has him. Unfortunately, I went

to visit Jim and found him laying naked on a soaking

wet bed pad with poop all up his back. The nurses

could not change him, because of his combativeness

with the toileting issues and just left the diaper off

of him. He was laying peacefully in all that and I had

to mention that he needs his bed pad changed and to be

cleaned up, which made Jim combative, which I am sure

now has to be recorded, so I am sure they will call me

tomorrow and say they can not move him, since he was

combative. If I had just kept my mouth closed, he

would have remained calm. I have a feeling he will be

coming back home with me. No one wants him. I should

probably just let them give him the Haldol, so he is

totally comatose and doesn't know what's going on. I

am so exhausted. I have done all the work I had to do

filling out the paper work at the nursing home and

getting everything in order for Jim to be transfered

there, but I have my doubts now. There is a new

policy with Jim's health care now too that I have to

pay $300.00 per day. He has already been there since

Wednesday. It is also $200.00 for them to transfer Jim

to the nh. Arghhhhhhh!!!!!

I canceled my caregiver for Mother's Day since I

thought Jim would be in a nursing home by then. I feel

so hemmed in right now with no way out!!! This has

been a total nightmare. Thanks for listening, I think

I will go and have a few glasses of wine to calm my

nerves now. I can't have a lemon drop, because that is

when you make lemonade out of lemons and I don't feel

like this is lemonade.

Jan

__________________________________________________

May 6, 2006

And seeing all that poor, Jan, has endured for so long almost scares me. I

am facing the same road.

Jan, dear one, you are an inspiration though, in your reaching out to me

many times already, and helping others as well, and still contending with the

struggle you have had. If anyone deserves love, you do! I send mine in big

measure.

I pray it will all settle down soon, and fall into place, so that you can

have a break.

I appreciate your comments too, . You too, are a great source of

strength. and deserving of a great deal of love. You have mine.

Keep on keeping on.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism, and Frontal Lobe Disease with Apathy.

In a message dated 5/6/2006 6:54:56 AM Central Daylight Time,

octoryrose@... writes:

Jan - I can't imagine what you're going through right now. It seems

so unfair! And poor Jim - what he's going through is a nightmare. I'm

so sorry that you're having to deal with this long fight. I'll keep

the two of you in my thoughts and prayers - prayers for some light to

finally shine on this situation and get you the help you both need!

>

> Hi,

> Here's the scoop on Jim as of today. Yesterday,

> Thursday, they moved Jim from ER to a hospital room

> and said that if he could go 24 hours without being

> combative he could go to the nh today, well the

> hospital put a sitter in his room and then called

> today and said, " Jim was very calm through the night,

> but we can not transfer him, because there was a

> sitter in his room throughout the night and the

> nursing home policy is that no sitter can be in the

> room and that Jim has to be alone for 24 hours without

> being combative before they can transfer him to a nh.

> $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

> THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

> So he did not go to the nh home today and he was calm

> too! The hospital still has him. Unfortunately, I went

> to visit Jim and found him laying naked on a soaking

> wet bed pad with poop all up his back. The nurses

> could not change him, because of his combativeness

> with the toileting issues and just left the diaper off

> of him. He was laying peacefully in all that and I had

> to mention that he needs his bed pad changed and to be

> cleaned up, which made Jim combative, which I am sure

> now has to be recorded, so I am sure they will call me

> tomorrow and say they can not move him, since he was

> combative. If I had just kept my mouth closed, he

> would have remained calm. I have a feeling he will be

> coming back home with me. No one wants him. I should

> probably just let them give him the Haldol, so he is

> totally comatose and doesn't know what's going on. I

> am so exhausted. I have done all the work I had to do

> filling out the paper work at the nursing home and

> getting everything in order for Jim to be transfered

> there, but I have my doubts now. There is a new

> policy with Jim's health care now too that I have to

> pay $300.00 per day. He has already been there since

> Wednesday. It is also $200.00 for them to transfer Jim

> to the nh. Arghhhhhhh!!!!!

> I canceled my caregiver for Mother's Day since I

> thought Jim would be in a nursing home by then. I feel

> so hemmed in right now with no way out!!! This has

> been a total nightmare. Thanks for listening, I think

> I will go and have a few glasses of wine to calm my

> nerves now. I can't have a lemon drop, because that is

> when you make lemonade out of lemons and I don't feel

> like this is lemonade.

> Jan

>

> __________________________________________________

> Do You Yahoo!?

> Tired of spam? Yahoo! Mail has the best spam protection around

> http://mail.yahoo.com

>

------------------------

May 6, 2006

Just remember that we all are with you if not physically but emotionally. Is

it not amazing that when things start to become bearable something is thrown

at you from another corner. Keep your strength up and get a little rest so

that you will be ready for the next hurdle

Simel

>

>Reply-To: LBDcaregivers

>To: " LBDcaregivers " <LBDcaregivers >

>Subject: I'm having a melt down

>Date: Fri, 5 May 2006 18:09:42 -0700 (PDT)

>

>Hi,

>Here's the scoop on Jim as of today. Yesterday,

>Thursday, they moved Jim from ER to a hospital room

>and said that if he could go 24 hours without being

>combative he could go to the nh today, well the

>hospital put a sitter in his room and then called

>today and said, " Jim was very calm through the night,

>but we can not transfer him, because there was a

>sitter in his room throughout the night and the

>nursing home policy is that no sitter can be in the

>room and that Jim has to be alone for 24 hours without

>being combative before they can transfer him to a nh.

>$#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM IF

>THEY KNOW WE ARE WORKING TO GET HIM INTO A NH?!!!!!!

>So he did not go to the nh home today and he was calm

>too! The hospital still has him. Unfortunately, I went

>to visit Jim and found him laying naked on a soaking

>wet bed pad with poop all up his back. The nurses

>could not change him, because of his combativeness

>with the toileting issues and just left the diaper off

>of him. He was laying peacefully in all that and I had

>to mention that he needs his bed pad changed and to be

>cleaned up, which made Jim combative, which I am sure

>now has to be recorded, so I am sure they will call me

>tomorrow and say they can not move him, since he was

>combative. If I had just kept my mouth closed, he

>would have remained calm. I have a feeling he will be

>coming back home with me. No one wants him. I should

>probably just let them give him the Haldol, so he is

>totally comatose and doesn't know what's going on. I

>am so exhausted. I have done all the work I had to do

>filling out the paper work at the nursing home and

>getting everything in order for Jim to be transfered

>there, but I have my doubts now. There is a new

>policy with Jim's health care now too that I have to

>pay $300.00 per day. He has already been there since

>Wednesday. It is also $200.00 for them to transfer Jim

>to the nh. Arghhhhhhh!!!!!

>I canceled my caregiver for Mother's Day since I

>thought Jim would be in a nursing home by then. I feel

>so hemmed in right now with no way out!!! This has

>been a total nightmare. Thanks for listening, I think

>I will go and have a few glasses of wine to calm my

>nerves now. I can't have a lemon drop, because that is

>when you make lemonade out of lemons and I don't feel

>like this is lemonade.

>Jan

>

>__________________________________________________

>

May 6, 2006

Hi June,

Yes, Jim is going into a Medicare

approved/MediCal/Medicaid Certified nursing home. I

have been working with the social worker at the

hospital and with an Elder Care Attorney for two

years. Jim is going into the facility under

MediCal/Medicaid. Yes, Jim has medicare for his

health care, he is in what is called, Senior Advantage

health care and on the medicare plan D. The

policy for the senior advantage changed this year to

pay $300.00 per day for a hospital stay.

It was not that way in previous years, but changed the

beginning of this year. California will clean your

pockets out. Everything here is an expense. They will

tag extra money on wherever they can.

It is my fault that Jim has not been given Ativan or

Haldol, because I had it put all over his charts not

to give him either of those drugs and that is why

everyone is having a hard time with him now. Maybe I

should change that. I've been so afraid for him to be

given those drugs, but what does it matter at this

point. They have Jim pumped up on Seroquel, he looks

like a zombie, but as soon as you go to change him,

all of a sudden he has the strength to hit and kick.

We belong to Kaiser Hospital, so Jim is in a facility

that has Kaiser doctors too. Everything goes through

Kaiser, there is no secondary carrier. Kaiser has the

medicare included in their program and you can't go

out of it. Also, when Jim was admitted into emergency

they ran all the tests and he did not have a UTI. So

yes, I am working with the hospital social worker and

an Elder Care Attorney to get through all this.

I think it was just a slow day on the site in answer

to your question if something is wrong with the site.

I don't have many e-mails either.

Thanks for all your help........Hugs, Jan

--- June Christensen

wrote:

> Jan:

>

> Sorry to hear of all your troubles. California regs

> must be different than Kansas. When Darrell was

> going

> thru the same thing, they had to have a sitter in

> his

> room 24/7 so that he did not fall or try to get out

> of

> bed. I can't imagine that they would allow him to

> be

> alone for 24 hours in his condition. Is the NH you

> are looking at an acute-care NH? If not, he will

> not

> qualify for Medicare or NH insurance if you have

> that.

> I would question this with Medicare, which has

> strict

> regulations, and I assume that he is on Medicare at

> this time. They should keep him 3 days to be

> eligible

> for the NH anyway. I think Medicare regs are

> consistent throughout the US, since that's a federal

> program. Do you have a social worker at the

> hospital?

> Where my husband was, they did, and

> she was helpful with things. They gave my husband

> Ativan, which did calm him down, but I'm not sure it

> was good for him in the long run. However, you are

> at

> a point now, that it might be wise to have them give

> him that or Seroquel so that he isn't combative.

> Also, have them check him for UTI, as that makes my

> husband much more combative when he has that. I

> can't

> imagine making him lie naked in his own waste, and I

> am sure there is some kind of overseer for hospitals

> that would not allow that treatment. What kind of

> hospital is this? You know you won't be able to

> take

> him home in that condition, as I knew I couldn't

> take

> my husband. They are too combative, and if he is

> bigger than you, even tho he's ill, they can have a

> lot of strength. My husband's arms and legs were

> like

> steel pipes, even tho he had trouble walking, he

> still

> had a lot of strength in them. Also, they have to

> be

> transferred to a NH within a certain time (30 days)

> from an acute care hospital to a NH to have Medicare

> coverage. What kind of insurance do you have that

> you have to pay $300 a day? If he's on Medicare, if

> should pay what they allow, then bill your secondary

> carrier, who should pay the remainder.

>

> Perhaps you will have to talk to an attorney to get

> some answers. I hope it works out for you. Our

> thoughts and prayers are with you, as I know the

> decisions you have to make are stressful, and then

> to

> have it " blow up " thru no fault of yours, it's

> terrible.

>

> As an aside, is there something wrong with the site

> that I've only received a few e-mails from

> caregivers

> today? Generally, there will be many more than that

> in a 24-hour period.

>

> -- Janet Colello wrote:

>

> >

> > Hi,

> > Here's the scoop on Jim as of today. Yesterday,

> > Thursday, they moved Jim from ER to a hospital

> room

> > and said that if he could go 24 hours without

> being

> > combative he could go to the nh today, well the

> > hospital put a sitter in his room and then called

> > today and said, " Jim was very calm through the

> > night,

> > but we can not transfer him, because there was a

> > sitter in his room throughout the night and the

> > nursing home policy is that no sitter can be in

> the

> > room and that Jim has to be alone for 24 hours

> > without

> > being combative before they can transfer him to a

> > nh.

> > $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM

> IF

> > THEY KNOW WE ARE WORKING TO GET HIM INTO A

> NH?!!!!!!

> > So he did not go to the nh home today and he was

> > calm

> > too! The hospital still has him. Unfortunately, I

> > went

> > to visit Jim and found him laying naked on a

> soaking

> > wet bed pad with poop all up his back. The nurses

> > could not change him, because of his combativeness

> > with the toileting issues and just left the diaper

> > off

> > of him. He was laying peacefully in all that and I

> > had

> > to mention that he needs his bed pad changed and

> to

> > be

> > cleaned up, which made Jim combative, which I am

> > sure

> > now has to be recorded, so I am sure they will

> call

> > me

> > tomorrow and say they can not move him, since he

> was

> > combative. If I had just kept my mouth closed, he

> > would have remained calm. I have a feeling he will

> > be

> > coming back home with me. No one wants him. I

> should

> > probably just let them give him the Haldol, so he

> is

> > totally comatose and doesn't know what's going on.

> I

> > am so exhausted. I have done all the work I had to

> > do

> > filling out the paper work at the nursing home and

> > getting everything in order for Jim to be

> transfered

> > there, but I have my doubts now. There is a new

> > policy with Jim's health care now too that I have

> to

> > pay $300.00 per day. He has already been there

> since

> > Wednesday. It is also $200.00 for them to transfer

> > Jim

> > to the nh. Arghhhhhhh!!!!!

> > I canceled my caregiver for Mother's Day since I

> > thought Jim would be in a nursing home by then. I

> > feel

> > so hemmed in right now with no way out!!! This

> has

> > been a total nightmare. Thanks for listening, I

> > think

> > I will go and have a few glasses of wine to calm

> my

> > nerves now. I can't have a lemon drop, because

> that

> > is

> > when you make lemonade out of lemons and I don't

> > feel

> > like this is lemonade.

> > Jan

> >

> > __________________________________________________

> >

May 6, 2006

Hi June,

Yes, Jim is going into a Medicare

approved/MediCal/Medicaid Certified nursing home. I

have been working with the social worker at the

hospital and with an Elder Care Attorney for two

years. Jim is going into the facility under

MediCal/Medicaid. Yes, Jim has medicare for his

health care, he is in what is called, Senior Advantage

health care and on the medicare plan D. The

policy for the senior advantage changed this year to

pay $300.00 per day for a hospital stay.

It was not that way in previous years, but changed the

beginning of this year. California will clean your

pockets out. Everything here is an expense. They will

tag extra money on wherever they can.

It is my fault that Jim has not been given Ativan or

Haldol, because I had it put all over his charts not

to give him either of those drugs and that is why

everyone is having a hard time with him now. Maybe I

should change that. I've been so afraid for him to be

given those drugs, but what does it matter at this

point. They have Jim pumped up on Seroquel, he looks

like a zombie, but as soon as you go to change him,

all of a sudden he has the strength to hit and kick.

We belong to Kaiser Hospital, so Jim is in a facility

that has Kaiser doctors too. Everything goes through

Kaiser, there is no secondary carrier. Kaiser has the

medicare included in their program and you can't go

out of it. Also, when Jim was admitted into emergency

they ran all the tests and he did not have a UTI. So

yes, I am working with the hospital social worker and

an Elder Care Attorney to get through all this.

I think it was just a slow day on the site in answer

to your question if something is wrong with the site.

I don't have many e-mails either.

Thanks for all your help........Hugs, Jan

--- June Christensen

wrote:

> Jan:

>

> Sorry to hear of all your troubles. California regs

> must be different than Kansas. When Darrell was

> going

> thru the same thing, they had to have a sitter in

> his

> room 24/7 so that he did not fall or try to get out

> of

> bed. I can't imagine that they would allow him to

> be

> alone for 24 hours in his condition. Is the NH you

> are looking at an acute-care NH? If not, he will

> not

> qualify for Medicare or NH insurance if you have

> that.

> I would question this with Medicare, which has

> strict

> regulations, and I assume that he is on Medicare at

> this time. They should keep him 3 days to be

> eligible

> for the NH anyway. I think Medicare regs are

> consistent throughout the US, since that's a federal

> program. Do you have a social worker at the

> hospital?

> Where my husband was, they did, and

> she was helpful with things. They gave my husband

> Ativan, which did calm him down, but I'm not sure it

> was good for him in the long run. However, you are

> at

> a point now, that it might be wise to have them give

> him that or Seroquel so that he isn't combative.

> Also, have them check him for UTI, as that makes my

> husband much more combative when he has that. I

> can't

> imagine making him lie naked in his own waste, and I

> am sure there is some kind of overseer for hospitals

> that would not allow that treatment. What kind of

> hospital is this? You know you won't be able to

> take

> him home in that condition, as I knew I couldn't

> take

> my husband. They are too combative, and if he is

> bigger than you, even tho he's ill, they can have a

> lot of strength. My husband's arms and legs were

> like

> steel pipes, even tho he had trouble walking, he

> still

> had a lot of strength in them. Also, they have to

> be

> transferred to a NH within a certain time (30 days)

> from an acute care hospital to a NH to have Medicare

> coverage. What kind of insurance do you have that

> you have to pay $300 a day? If he's on Medicare, if

> should pay what they allow, then bill your secondary

> carrier, who should pay the remainder.

>

> Perhaps you will have to talk to an attorney to get

> some answers. I hope it works out for you. Our

> thoughts and prayers are with you, as I know the

> decisions you have to make are stressful, and then

> to

> have it " blow up " thru no fault of yours, it's

> terrible.

>

> As an aside, is there something wrong with the site

> that I've only received a few e-mails from

> caregivers

> today? Generally, there will be many more than that

> in a 24-hour period.

>

> -- Janet Colello wrote:

>

> >

> > Hi,

> > Here's the scoop on Jim as of today. Yesterday,

> > Thursday, they moved Jim from ER to a hospital

> room

> > and said that if he could go 24 hours without

> being

> > combative he could go to the nh today, well the

> > hospital put a sitter in his room and then called

> > today and said, " Jim was very calm through the

> > night,

> > but we can not transfer him, because there was a

> > sitter in his room throughout the night and the

> > nursing home policy is that no sitter can be in

> the

> > room and that Jim has to be alone for 24 hours

> > without

> > being combative before they can transfer him to a

> > nh.

> > $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM

> IF

> > THEY KNOW WE ARE WORKING TO GET HIM INTO A

> NH?!!!!!!

> > So he did not go to the nh home today and he was

> > calm

> > too! The hospital still has him. Unfortunately, I

> > went

> > to visit Jim and found him laying naked on a

> soaking

> > wet bed pad with poop all up his back. The nurses

> > could not change him, because of his combativeness

> > with the toileting issues and just left the diaper

> > off

> > of him. He was laying peacefully in all that and I

> > had

> > to mention that he needs his bed pad changed and

> to

> > be

> > cleaned up, which made Jim combative, which I am

> > sure

> > now has to be recorded, so I am sure they will

> call

> > me

> > tomorrow and say they can not move him, since he

> was

> > combative. If I had just kept my mouth closed, he

> > would have remained calm. I have a feeling he will

> > be

> > coming back home with me. No one wants him. I

> should

> > probably just let them give him the Haldol, so he

> is

> > totally comatose and doesn't know what's going on.

> I

> > am so exhausted. I have done all the work I had to

> > do

> > filling out the paper work at the nursing home and

> > getting everything in order for Jim to be

> transfered

> > there, but I have my doubts now. There is a new

> > policy with Jim's health care now too that I have

> to

> > pay $300.00 per day. He has already been there

> since

> > Wednesday. It is also $200.00 for them to transfer

> > Jim

> > to the nh. Arghhhhhhh!!!!!

> > I canceled my caregiver for Mother's Day since I

> > thought Jim would be in a nursing home by then. I

> > feel

> > so hemmed in right now with no way out!!! This

> has

> > been a total nightmare. Thanks for listening, I

> > think

> > I will go and have a few glasses of wine to calm

> my

> > nerves now. I can't have a lemon drop, because

> that

> > is

> > when you make lemonade out of lemons and I don't

> > feel

> > like this is lemonade.

> > Jan

> >

> > __________________________________________________

> >

May 6, 2006

Hi Jan , Eileen from Ontario.... Just wanted to say my husband is on Ativan

also Paxil both to keep him calm and it seems to be working but thats him

its not for all, hes also on Exelon and many heart pills too

-- Re: I'm having a melt down

Hi June,

Yes, Jim is going into a Medicare

approved/MediCal/Medicaid Certified nursing home. I

have been working with the social worker at the

hospital and with an Elder Care Attorney for two

years. Jim is going into the facility under

MediCal/Medicaid. Yes, Jim has medicare for his

health care, he is in what is called, Senior Advantage

health care and on the medicare plan D. The

policy for the senior advantage changed this year to

pay $300.00 per day for a hospital stay.

It was not that way in previous years, but changed the

beginning of this year. California will clean your

pockets out. Everything here is an expense. They will

tag extra money on wherever they can.

It is my fault that Jim has not been given Ativan or

Haldol, because I had it put all over his charts not

to give him either of those drugs and that is why

everyone is having a hard time with him now. Maybe I

should change that. I've been so afraid for him to be

given those drugs, but what does it matter at this

point. They have Jim pumped up on Seroquel, he looks

like a zombie, but as soon as you go to change him,

all of a sudden he has the strength to hit and kick.

We belong to Kaiser Hospital, so Jim is in a facility

that has Kaiser doctors too. Everything goes through

Kaiser, there is no secondary carrier. Kaiser has the

medicare included in their program and you can't go

out of it. Also, when Jim was admitted into emergency

they ran all the tests and he did not have a UTI. So

yes, I am working with the hospital social worker and

an Elder Care Attorney to get through all this.

I think it was just a slow day on the site in answer

to your question if something is wrong with the site.

I don't have many e-mails either.

Thanks for all your help........Hugs, Jan

--- June Christensen

wrote:

> Jan:

>

> Sorry to hear of all your troubles. California regs

> must be different than Kansas. When Darrell was

> going

> thru the same thing, they had to have a sitter in

> his

> room 24/7 so that he did not fall or try to get out

> of

> bed. I can't imagine that they would allow him to

> be

> alone for 24 hours in his condition. Is the NH you

> are looking at an acute-care NH? If not, he will

> not

> qualify for Medicare or NH insurance if you have

> that.

> I would question this with Medicare, which has

> strict

> regulations, and I assume that he is on Medicare at

> this time. They should keep him 3 days to be

> eligible

> for the NH anyway. I think Medicare regs are

> consistent throughout the US, since that's a federal

> program. Do you have a social worker at the

> hospital?

> Where my husband was, they did, and

> she was helpful with things. They gave my husband

> Ativan, which did calm him down, but I'm not sure it

> was good for him in the long run. However, you are

> at

> a point now, that it might be wise to have them give

> him that or Seroquel so that he isn't combative.

> Also, have them check him for UTI, as that makes my

> husband much more combative when he has that. I

> can't

> imagine making him lie naked in his own waste, and I

> am sure there is some kind of overseer for hospitals

> that would not allow that treatment. What kind of

> hospital is this? You know you won't be able to

> take

> him home in that condition, as I knew I couldn't

> take

> my husband. They are too combative, and if he is

> bigger than you, even tho he's ill, they can have a

> lot of strength. My husband's arms and legs were

> like

> steel pipes, even tho he had trouble walking, he

> still

> had a lot of strength in them. Also, they have to

> be

> transferred to a NH within a certain time (30 days)

> from an acute care hospital to a NH to have Medicare

> coverage. What kind of insurance do you have that

> you have to pay $300 a day? If he's on Medicare, if

> should pay what they allow, then bill your secondary

> carrier, who should pay the remainder.

>

> Perhaps you will have to talk to an attorney to get

> some answers. I hope it works out for you. Our

> thoughts and prayers are with you, as I know the

> decisions you have to make are stressful, and then

> to

> have it " blow up " thru no fault of yours, it's

> terrible.

>

> As an aside, is there something wrong with the site

> that I've only received a few e-mails from

> caregivers

> today? Generally, there will be many more than that

> in a 24-hour period.

>

> -- Janet Colello wrote:

>

> >

> > Hi,

> > Here's the scoop on Jim as of today. Yesterday,

> > Thursday, they moved Jim from ER to a hospital

> room

> > and said that if he could go 24 hours without

> being

> > combative he could go to the nh today, well the

> > hospital put a sitter in his room and then called

> > today and said, " Jim was very calm through the

> > night,

> > but we can not transfer him, because there was a

> > sitter in his room throughout the night and the

> > nursing home policy is that no sitter can be in

> the

> > room and that Jim has to be alone for 24 hours

> > without

> > being combative before they can transfer him to a

> > nh.

> > $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM

> IF

> > THEY KNOW WE ARE WORKING TO GET HIM INTO A

> NH?!!!!!!

> > So he did not go to the nh home today and he was

> > calm

> > too! The hospital still has him. Unfortunately, I

> > went

> > to visit Jim and found him laying naked on a

> soaking

> > wet bed pad with poop all up his back. The nurses

> > could not change him, because of his combativeness

> > with the toileting issues and just left the diaper

> > off

> > of him. He was laying peacefully in all that and I

> > had

> > to mention that he needs his bed pad changed and

> to

> > be

> > cleaned up, which made Jim combative, which I am

> > sure

> > now has to be recorded, so I am sure they will

> call

> > me

> > tomorrow and say they can not move him, since he

> was

> > combative. If I had just kept my mouth closed, he

> > would have remained calm. I have a feeling he will

> > be

> > coming back home with me. No one wants him. I

> should

> > probably just let them give him the Haldol, so he

> is

> > totally comatose and doesn't know what's going on.

> I

> > am so exhausted. I have done all the work I had to

> > do

> > filling out the paper work at the nursing home and

> > getting everything in order for Jim to be

> transfered

> > there, but I have my doubts now. There is a new

> > policy with Jim's health care now too that I have

> to

> > pay $300.00 per day. He has already been there

> since

> > Wednesday. It is also $200.00 for them to transfer

> > Jim

> > to the nh. Arghhhhhhh!!!!!

> > I canceled my caregiver for Mother's Day since I

> > thought Jim would be in a nursing home by then. I

> > feel

> > so hemmed in right now with no way out!!! This

> has

> > been a total nightmare. Thanks for listening, I

> > think

> > I will go and have a few glasses of wine to calm

> my

> > nerves now. I can't have a lemon drop, because

> that

> > is

> > when you make lemonade out of lemons and I don't

> > feel

> > like this is lemonade.

> > Jan

> >

> > __________________________________________________

> >

May 6, 2006

So glad the NH thing got worked out and that is a

relief for you. I was the same way - relieved,

because of the stress of caring for someone,

especially after all the combativeness began. It has

taken me almost the three months to get adjusted

myself, and I still feel lots of guilt when I do

things and know he is sitting in a chair miserable.

But, it is better for them to be watched and taken

care of by somewhat professionals than to try to do it

on your own, and of course, it's much better for your

physical and mental health to have the burden

relieved.

Yesterday when I went to the NH, Darrell was in pretty

good spirits; talked; was able to remember some

things; and generally acted pretty good. Ate well,

too.

Today I went out of town and didn't get back until

about 8 p.m. I toyed with the thought of not

stopping, but I thought I had better. When I got

there, he was in the day room in a recliner, face

flushed, thrashing, talking gibberish, cursing,

hitting, angry, etc. I felt his forehead, and it was

hot, so I asked them to take his temp. I went into

his room to get him a handkerchief, and a few minutes

later I came out and they said it was 97.3. I knew

better, as he was burning up and flushed, so I told

them to take it again, which they did under his arm,

as he was combative with getting it in his mouth. It

was 101.6, and he normally runs a 97.6 or less, so

that means almost 4 degrees of temp. I knew that he

had a fever just from the way he was acting. They

called house dr, who wasn't on call, so had to call

another, and recommended antibiotic, even tho he is

still on antibiotic for staph UTI. Gave him tylenol.

I got a small cup of water down him, then he started

spitting all over. He was miserable. I left then

telling them to call me if his temp did not go down.

He was also coughing some. In less than an hour they

called and said it was down to 98 something, which I

really don't believe, as I don't think it could go

down that fast. They said he had voided, which I was

concerned about because of the UTI/staph thing, that

the fever could be connected to that. They were going

to put him to bed; said he had calmed down some, but

gave the aides a bad time when going to bathroom. So,

that's the way we left it for tonight. They will get

a portable x-ray on his lungs tomorrow and blood work

Tuesday. If I hadn't stopped, I don't know how long

he would have gone with that fever! I don't know what

happens to people that don't have someone that checks

on them regularly!

Get some rest now, and let the NH do the hard stuff!

--- Janet Colello wrote:

> Hi June,

> Yes, Jim is going into a Medicare

> approved/MediCal/Medicaid Certified nursing home. I

> have been working with the social worker at the

> hospital and with an Elder Care Attorney for two

> years. Jim is going into the facility under

> MediCal/Medicaid. Yes, Jim has medicare for his

> health care, he is in what is called, Senior

> Advantage

> health care and on the medicare plan D. The

> policy for the senior advantage changed this year to

> pay $300.00 per day for a hospital stay.

> It was not that way in previous years, but changed

> the

> beginning of this year. California will clean your

> pockets out. Everything here is an expense. They

> will

> tag extra money on wherever they can.

> It is my fault that Jim has not been given Ativan or

> Haldol, because I had it put all over his charts not

> to give him either of those drugs and that is why

> everyone is having a hard time with him now. Maybe I

> should change that. I've been so afraid for him to

> be

> given those drugs, but what does it matter at this

> point. They have Jim pumped up on Seroquel, he looks

> like a zombie, but as soon as you go to change him,

> all of a sudden he has the strength to hit and kick.

> We belong to Kaiser Hospital, so Jim is in a

> facility

> that has Kaiser doctors too. Everything goes through

> Kaiser, there is no secondary carrier. Kaiser has

> the

> medicare included in their program and you can't go

> out of it. Also, when Jim was admitted into

> emergency

> they ran all the tests and he did not have a UTI. So

> yes, I am working with the hospital social worker

> and

> an Elder Care Attorney to get through all this.

> I think it was just a slow day on the site in answer

> to your question if something is wrong with the

> site.

> I don't have many e-mails either.

> Thanks for all your help........Hugs, Jan

>

> --- June Christensen

> wrote:

>

> > Jan:

> >

> > Sorry to hear of all your troubles. California

> regs

> > must be different than Kansas. When Darrell was

> > going

> > thru the same thing, they had to have a sitter in

> > his

> > room 24/7 so that he did not fall or try to get

> out

> > of

> > bed. I can't imagine that they would allow him to

> > be

> > alone for 24 hours in his condition. Is the NH

> you

> > are looking at an acute-care NH? If not, he will

> > not

> > qualify for Medicare or NH insurance if you have

> > that.

> > I would question this with Medicare, which has

> > strict

> > regulations, and I assume that he is on Medicare

> at

> > this time. They should keep him 3 days to be

> > eligible

> > for the NH anyway. I think Medicare regs are

> > consistent throughout the US, since that's a

> federal

> > program. Do you have a social worker at the

> > hospital?

> > Where my husband was, they did, and

> > she was helpful with things. They gave my husband

> > Ativan, which did calm him down, but I'm not sure

> it

> > was good for him in the long run. However, you

> are

> > at

> > a point now, that it might be wise to have them

> give

> > him that or Seroquel so that he isn't combative.

> > Also, have them check him for UTI, as that makes

> my

> > husband much more combative when he has that. I

> > can't

> > imagine making him lie naked in his own waste, and

> I

> > am sure there is some kind of overseer for

> hospitals

> > that would not allow that treatment. What kind of

> > hospital is this? You know you won't be able to

> > take

> > him home in that condition, as I knew I couldn't

> > take

> > my husband. They are too combative, and if he is

> > bigger than you, even tho he's ill, they can have

> a

> > lot of strength. My husband's arms and legs were

> > like

> > steel pipes, even tho he had trouble walking, he

> > still

> > had a lot of strength in them. Also, they have to

> > be

> > transferred to a NH within a certain time (30

> days)

> > from an acute care hospital to a NH to have

> Medicare

> > coverage. What kind of insurance do you have

> that

> > you have to pay $300 a day? If he's on Medicare,

> if

> > should pay what they allow, then bill your

> secondary

> > carrier, who should pay the remainder.

> >

> > Perhaps you will have to talk to an attorney to

> get

> > some answers. I hope it works out for you. Our

> > thoughts and prayers are with you, as I know the

> > decisions you have to make are stressful, and then

> > to

> > have it " blow up " thru no fault of yours, it's

> > terrible.

> >

> > As an aside, is there something wrong with the

> site

> > that I've only received a few e-mails from

> > caregivers

> > today? Generally, there will be many more than

> that

> > in a 24-hour period.

> >

> > -- Janet Colello wrote:

> >

> > >

> > > Hi,

> > > Here's the scoop on Jim as of today. Yesterday,

> > > Thursday, they moved Jim from ER to a hospital

> > room

> > > and said that if he could go 24 hours without

> > being

> > > combative he could go to the nh today, well the

> > > hospital put a sitter in his room and then

> called

> > > today and said, " Jim was very calm through the

> > > night,

> > > but we can not transfer him, because there was a

> > > sitter in his room throughout the night and the

> > > nursing home policy is that no sitter can be in

> > the

> > > room and that Jim has to be alone for 24 hours

> > > without

> > > being combative before they can transfer him to

> a

> > > nh.

> > > $#@ & *! WHY WOULD THEY PUT A SITTER IN JIM'S ROOM

> > IF

> > > THEY KNOW WE ARE WORKING TO GET HIM INTO A

> > NH?!!!!!!

> > > So he did not go to the nh home today and he was

> > > calm

> > > too! The hospital still has him. Unfortunately,

> I

> > > went

> > > to visit Jim and found him laying naked on a

> > soaking

> > > wet bed pad with poop all up his back. The

> nurses

> > > could not change him, because of his

> combativeness

> > > with the toileting issues and just left the

> diaper

> > > off

> > > of him. He was laying peacefully in all that and

> I

> > > had

> > > to mention that he needs his bed pad changed and

> > to

> > > be

> > > cleaned up, which made Jim combative, which I am

> > > sure

> > > now has to be recorded, so I am sure they will

> > call

> > > me

> > > tomorrow and say they can not move him, since he

> > was

> > > combative. If I had just kept my mouth closed,

> he

> > > would have remained calm. I have a feeling he

> will

> > > be

>

=== message truncated ===

__________________________________________________

May 11, 2006

Jan,

I've been following your 'adventures' and am so happy that you finally

found a good place for Jim.

I'm interested in finding out about the LBD training the staff

received. This is something the LBDA is looking at for the not too

distant future and would like to know more about the 'who, what,

where, when and how' training they received.

Jim

>

> , have you tried San Marco off of Ygnacio in

> Walnut Creek? It is at 130 Tampico Dr. and the staff

> have all been trained in Lewy Body.

>

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