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Hello to all, My name is Mimi to most . This is the name given to me by my

granddaughters. It makes me smile to hear it and boy do I need to smile. 3 yrs.

ago I went to my PCP asking for an MRI as I was experiencing nerve pain in my

feet and toes. At the same time I was having several surgeries on both my hands

for trigger fingers. I thought maybe I had a pinched nerve in my neck so he sent

me . What they saw was at the end of the cervical area a Syrinx so they had me

come back for more MRI's with and without dye. Conclusion was SM . Enlargement

of the central canalof the thoracic spinal cord especially at T10,T5,T6 and T7

and opposite T3 and T4 Evidence of SM involving the entire Thoracic spinal cord

most pronounced opposite T5 and T6........Now that was a mouthful and I was in

shock... What to do ? I asked for consult with an NL who did not know what to

say to me then a NS who said go home and live your life while you can.... Now I

am having terrible

shaking, tingling and numbness in my feet,legs and neck...oh my head

too....they said no sign of  tonsillar herniation at foramen magnum....... So

here I am looking for some comfort answers and questions...I am gong to apply to

TCI for an exam. I hope it doesnt take too long . I heard maybe 6wks.....Oh . I

had  Lyme Diease in my Central nervous system 8 yrs ago.I had a PIC line with

Roceftin pumped into my brain for 1 month and I wonder if that didnt start this

whole thing???? No one can answer that one? My sister who is 20 yrs older than

me has CM and has had the operation at TCI...so maybe it is in the family ???but

she has only a small syrinx....anyways Thanks for listening and I hope to talk

to someone here for help.........thanks a lot...   Mimi to most