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Re: Falling

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All,

One of the women in our support group wrote this:

" .just wanted to say that my husband has fallen twice in 2 days.... he

wasnt hurt.. just scared...seemed to come out of nowhere..he  fell on top

of 3 people in a movie theatre lobby.... then tripped the following day on

a rug...does this happen withLBD.. is there anything i can do about it? he

is having a harder & harder time walking.. getting in & out of bed etc.. we

do exercise alot stretching etc "

(Her husband is not on Aricept or Sinemet since he doesn't want to take

anything.) I didn't have this particular problem with my Mom. Any

suggestions other than having him walk with a cane, walker or wheelchair?

Thank you all.

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We had this problem A LOT with Grandma, especially after she broke her hip.

Unfortunately if he isn't willing to take any meds (Sinimet might help with the

getting out

of bed but I don't think it'd do much about the falling) or use a walker or cane

there just

isn't a lot you can do. We insisted Grandma use a cane but she never did use it

correctly

(she just carried it and that only when we were watching her like a hawk) and

she kept on

falling until she broke her other hip. Then we insisted she use a walker but

again she only

used it when we made her and she still continued to fall at times when she was

not under

direct supervision. After much debate and general nervousness we talked it over

and

decided that short of tying her to a chair (or the bed), which we would never

do, there just

was only so much we could do. We insisted she use the walker when we were

around and

other than that hoped for the best.

Its not a good answer but its all I have.

Emma

>

> All,

>

> One of the women in our support group wrote this:

>

> " .just wanted to say that my husband has fallen twice in 2 days.... he

> wasnt hurt.. just scared...seemed to come out of nowhere..he  fell on top

> of 3 people in a movie theatre lobby.... then tripped the following day on

> a rug...does this happen withLBD.. is there anything i can do about it? he

> is having a harder & harder time walking.. getting in & out of bed etc.. we

> do exercise alot stretching etc "

>

> (Her husband is not on Aricept or Sinemet since he doesn't want to take

> anything.) I didn't have this particular problem with my Mom. Any

> suggestions other than having him walk with a cane, walker or wheelchair?

>

> Thank you all.

>

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Norma,

When Mom started to trip over rugs, I took up all the area rugs. And it would

seem a cane or walker would help. I know it did Mom even when she didn't want

to use one. It saved her from falls.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Falling

All,

One of the women in our support group wrote this:

" .just wanted to say that my husband has fallen twice in 2 days.... he

wasnt hurt.. just scared...seemed to come out of nowhere..he� fell on top

of 3 people in a movie theatre lobby.... then tripped the following day on

a rug...does this happen withLBD.. is there anything i can do about it? he

is having a harder & harder time walking.. getting in & out of bed etc.. we

do exercise alot stretching etc "

(Her husband is not on Aricept or Sinemet since he doesn't want to take

anything.) I didn't have this particular problem with my Mom. Any

suggestions other than having him walk with a cane, walker or wheelchair?

Thank you all.

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Share on other sites

Norma, there can be different reasons for falling with Lewy. I know if my

mother had been

in a movie theatre lobby, a strange space with people moving in every direction,

she would

have become more rigid, possibly even frozen and that could lead to tripping.

In a

situation like that she could even have fallen with a walker but it might have

helped. A rug

can present a problem visually as visual spacial perception can become distorted

so any

change in flooring, even the pattern on a lobby carpet can lead to uncertainty

to depth of

the floor change, if that makes sense. A rug could look like a huge hole in the

floor. A

pattern, yikes! Our LOs tend to need flooring that doesn't change. Many have

to take up

rugs or lay a runner the same as carpeting. It sounds like meds as well as a

walking

device are probably indicated. Or perhaps with the meds a walking device could

wait. The

husband with LBD likely doesn't have rational thought and this may be something

his wife

will need to take control of.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> All,

>

> One of the women in our support group wrote this:

>

> " .just wanted to say that my husband has fallen twice in 2 days.... he

> wasnt hurt.. just scared...seemed to come out of nowhere..he  fell on top

> of 3 people in a movie theatre lobby.... then tripped the following day on

> a rug...does this happen withLBD.. is there anything i can do about it? he

> is having a harder & harder time walking.. getting in & out of bed etc.. we

> do exercise alot stretching etc "

>

> (Her husband is not on Aricept or Sinemet since he doesn't want to take

> anything.) I didn't have this particular problem with my Mom. Any

> suggestions other than having him walk with a cane, walker or wheelchair?

>

> Thank you all.

>

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Hi Norma, Falling is part of LBD, because the patient has

Parkinsonism along with it. I am sorry this is happening.

How to remedy it, I don't know. My darling man is just showing signs

of falling. He is most wobbly. This morning he sat on the floor

looking in the bottom of a closet, and couldn't get up. He asked me

to help him, and stuck out his arm. I grabbed the back of his pants

and told him, " Now let's go up! " Later I realized that he knew what I

meant. Many times he doesn't know up and down, in and out, etc.

I have a nice walker with a seat and a basket, and have tried to

encourage him to use it, but he won't. The thing that is hard for him

is when he rises. He has to stand a minute before walking, or he will

fall. We need some type of rails that he can grab when he stands.

Love a bunch,

Imogene

>

> All,

>

> One of the women in our support group wrote this:

>

> " .just wanted to say that my husband has fallen twice in 2 days....

he

> wasnt hurt.. just scared...seemed to come out of nowhere..he  fell

on top

> of 3 people in a movie theatre lobby.... then tripped the following

day on

> a rug...does this happen withLBD.. is there anything i can do about

it? he

> is having a harder & harder time walking.. getting in & out of bed

etc.. we

> do exercise alot stretching etc "

>

> (Her husband is not on Aricept or Sinemet since he doesn't want to

take

> anything.) I didn't have this particular problem with my Mom. Any

> suggestions other than having him walk with a cane, walker or

wheelchair?

>

> Thank you all.

>

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<snip> We insisted Grandma use a cane but she never did use it

correctly (she just carried it and that only when we were watching

her like a hawk) and she kept on falling until she broke her other

hip. <snip>

My mom too... She just carried her cane and went around pointing with

it... LOL She had to be on a really good day to be able to use it

correctly and even then she had to focus real hard in order to do

it... It's not something she was used to using - and I can imagine

that a LO w/ Lewy trying to actually learn something new - when she

was forgetting things that were automatic (like putting on deoderant

correctly - she was putting it on between her breasts or behind her

ears like perfume) is near impossible for them... Sorry, besides

having someone constantly next to them to guide them I have no useful

advice on the falling. I do agree with making sure obstacles are out

of the way, area rugs are up, well lit homes, and wearing the best

shoes... Lin, thanks for the info regarding padded undergarmets -

gonna find and add that to the links section! Sharon, thanks for the

reminder about LOs taking their time when going from a sitting

position to standing - my mom too had to do this slowly b/c her BP

would bottom out upon standing...

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Lin - of course when I went to search for hip protector undergarments

I found a study that says that they're not useful... I listed below,

but I'd say wearing those undergarments doesn't hurt (no pun

intended.) I found a few sites that sell them - although quite pricey:

http://www.hiprotector.com/hippad.html

http://www.mtsmedicalsupply.com/pages/hipprotectors.cfm?vp=1

http://www.alzstore.com/alzheimers/safehip.htm

http://tinyurl.com/yvm2v4

Here's the study saying they're not useful:

Efficacy of a Hip Protector to Prevent Hip Fracture in Nursing Home

Residents

July 25, 2007

Conclusions In this clinical trial of an energy-absorbing/shunting

hip protector conducted in US nursing homes, we were unable to detect

a protective effect on the risk of hip fracture, despite good

adherence to protocol. These results add to the increasing body of

evidence that hip protectors, as currently designed, are not

effective for preventing hip fracture among nursing home residents.

Source: http://tinyurl.com/24lycj

>

> Hi Everyone!

> At the care center where I work, we provide heavily-padded-at the

hips undergarments for men and ladies. They are excellent for

protecting the hips of those prone to falls - are put on over

underwear and can be hand-washed from time to time as needed. They

come in different sizes, and our docs, nurses and physical therapists

love them. So do families and residents - they have prevented many

fractures. They aren't really obvious under clothing, and provide

another bit of peace-of-mind for those who are still ambulatory but

for various reasons tipsy. They are available through medical and

therapeutic supply catalogs for about $70. If prescribed, some

insurance carriers cover them. When families are willing, we also

provide wrist, elbow, knee and ankle pads for the elders. The parlor

sometimes looks like we're hosting a group of aged skaters, but they

sure save pain, grief and expense.

>

> Hope this is helpful.

> Lin

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